Please or to access all these features

Elderly parents

MIL care costs

138 replies

NoHaudinMaWheest · 08/01/2025 14:32

As the title says this is about paying care costs for my MIL.

I feel the need to give a fair bit of background in order for the situation to be understood and also to get things clear in my own mind. That will make it quite long so advance warning if you are short of time or capacity.

MIL is now 90. She was widowed 30+ years ago and has lived alone in her own owned home since. Until she was 79 she was pretty independent, driving, doing voluntary work, visiting friends etc.
She then had to have a fairly minor operation to remove a melanoma from her leg. She was assured that it was the type that doesn't spread systematically and that it had all been removed so once her leg had healed she could go back to normal. However she developed a severe reactive depression and stopped eating and drinking and caring for herself. She ended up very ill in hospital. After a period in acute and rehab hospitals she was discharged home, physically fine but still very depressed.
When FIL died she had taken out an insurance policy which would provide care at home and so that was used to hire a live-in carer to persuade her to eat, drink, wash etc. She had quite a lot of psychiatric input but never improved.
A few years later she had a fall which resulted in much reduced mobility. Since then she has lived in one room - bed and commode in the sitting room, just moving to the kitchen for some meals. She doesn't do anything -watch TV, read, knit, sew or engage in conversation. She just worries endlessly and repetitively about eg if the heating is working properly.
She has had the live in carers all this time funded by the insurance policy and her savings. About 5 years ago her savings ran out. BIL has POA and does all her financial stuff as well as managing the carers and practial stuff for the house though no hands on care. He managed to get social services to agree to some financial support and that was enough for things to continue until about 2 years ago.
At that point the care company massively increased their fees which meant that there was a considerable shortfall. Again BIL did the negotiations which meant some increase in SS contributions but there was still not enough so he decided that he and SIL and DH and I would top up - £125 a week for each couple (increased to £150 from this month).
He and DH are adamant that their mother should not go into a home. They feel that as they will ultimately inherit her house they will get their money back.
Some years ago (at least 15) MIL sold a field adjacent to her house. BIL had done quite a lot to negotiate with the council and developers so she got quite a good amount for it, some of which she gave to us and to BIL and SIL. DH and BIL feel that that means that it is only fair for them to fund MIL now.

MIL is not exactly healthy but she doesn't have any life threatening conditions and this situation could go on for many years. DH and I are both in our later 60s and both have disabilities which we manage independently now but may not be able to in the future. In addition we have two children in their 20s with disabilities which require additional support and limit their earning capacity.

I feel that although we may inherit there is no guarantee. If MIL was to require 2 to 1 or overnight care in the future she would have to go into residential care and the house be sold anyway. We are paying this out of income and even if we don't absolutely need it for day to day living now, we have good reason to want to save what we can as well as living reasonably comfortably now.

I really resent being given no choice about this funding. I am not sure that living in isolation like this is really in MIL's best interests. And all this is skewed but the fact that I have never really liked MIL - the feeling is entirely mutual.

DH is quite passive and happy to go along with what BIL says. We live a lot further away and have the DCs to be responsible for while BIL and SIL are a bit younger, in good health and don't have children.

I don't even know what the figures are and am not sure that DH does either. Nor do I know for certain what MIL's will contains.

Saying no would cause a huge family rift but it is what I really want to do.

Any advice welcome (if you have managed to get to the end of this screed).

OP posts:
TizerorFizz · 09/01/2025 09:15

@PermanentTemporary DM had a great care home. Self funding gave choice and DM was extremely well cared for. Every member of staff was great and other residents liked DM too and she liked them. They cared for her until the end and they really helped us as a family to feel her care was the best. One great aspect was having access to a GP!! So much better NHS care than when at home. She actually got some!

PermanentTemporary · 09/01/2025 09:08

What an absolute mess.

I'm with @TizerorFizz. You have very few things you can control here, but what you do have is your own money. I think you absolutely should not contribute your own income, for which you have definite needs, to someone else's care setup when they have FAR more resources than you and where you also think the current setup is actively damaging (fwiw I agree with you).

Your dh's income is much more difficult as obviously it's not yours, but you have an interest. I would focus on any joint financial goals that you have as a couple and how not having this money now will impact those goals.

Thinking about future money takes you into areas you have no control over - the will, the care setup, the value of the house, ultimate care costs, the length of MIL's life. I'd stop taking account of any of that as it will drive you mad.

This isnt easy and I'm guessing that there is a genuine risk to your marriage if you down tools and refuse to pay any more. But doing it from the basis that your MILs current care setup has demonstrably resulted in a terrible quality of life for her should give you some certainty here. Stop worrying about whether you like her or not, if the love of her children has resulted in this outcome.

As for nursing homes; yes they can be awful (I'm a community therapist working with older people and also have many extremely aged relatives) But often the actual awful impression is the reality of some of the conditions of extreme old age, not the home itself.

GnomeDePlume · 09/01/2025 07:06

NoBinturongsHereMate · 08/01/2025 22:43

they are convinced that if MIL goes into a home no-one will ensure that she eats

This is nonsense. They will regularly monitor both her weight and her food intake. She'll probably eat better than she does now.

I agree with this my DM moved into a care home just before Christmas after an extended hospital stay. Without a doubt she has been far better cared for in the care home than in hospital.

In 'cared for' I mean the whole person. Not just the physical. The care home encouraged DM to get out of her room, to sit in the lounge with others, to eat with others. Eating is discretely monitored. Drinking is regularly encouraged.

Being self funding meant that there was a choice in where to go. We were able to choose somewhere that worked both for DM and also for us, her family. The atmosphere is akin to a golf or spa hotel without the golf course or swimming pool.

It does help that DBs and I do not benefit from DM's will. We are cheerfully spending our kids' inheritance.

NoBinturongsHereMate · 08/01/2025 22:43

they are convinced that if MIL goes into a home no-one will ensure that she eats

This is nonsense. They will regularly monitor both her weight and her food intake. She'll probably eat better than she does now.

fashionqueen0123 · 08/01/2025 21:35

Holesintheground · 08/01/2025 20:23

But if she owns a house, SS are right to say that it should be used to fund her care, even if that's delayed until a later point when the house has been sold. The brother here sounds like he's just hoping to keep the house himself if he stalls long enough, though after MIL has died this will presumably mean buying out his brother's share. I'm afraid it's simply not fair of him though to expect the state to pick up the tab while he gets the asset.

Does anyone know what MIL has put in her will? I would assume she'd want to split her assets between her children but you never know. I would keep an eye on what the brother has planned for the house if he's really keen on it. If your DH made it clear he would expect to be bought out of his share when the time comes, then it might make his brother realise that it will take a lot to keep the house for himself, so he might reconcile himself to selling sooner rather than later. That would free up money for your MIL'S care.

Yes I agree with some of that - but atleast it may push them to sell the house or get her more suitable care. Or have the council fund it now but reclaim the money later out of the estate. It seems madness to rely on getting it back for the OP.

GOODCAT · 08/01/2025 21:04

My mum went into care last year. It was her decision. It is a really good home and she is much happier. There is company, plenty to do and she is really well looked after. It is absolutely the right thing for her. She has enough money for a limited number of years from the sale of her flat, so we are looking into insurance to fund it for life.

Honestly the relief that she is in the right place, that we are doing a lot less running around, makes all of us kids a lot happier and the impact on any possible future inheritance is utterly irrelevant.

Some others new to the home having been isolated before, but they seem to end up much happier, provided they still see plenty of their friends and family. You have to find the right home though.

TizerorFizz · 08/01/2025 20:50

@NoHaudinMaWheest You are welcome and I hope family members understand their roles and responsibilities. DH and me are your age and my DM had a property to sell. She died before much of the proceeds were used but as Attorney I never asked anyone else for money. I also knew what was in DMs will and it was fair to all that she self funded when living at home became impossible. Just remind everyone of the rules.

notatinydancer · 08/01/2025 20:48

TheGodWorm · 08/01/2025 15:18

You could be paying £9k a year. Let's assume MIL lives till 100. That's £90k you've paid. Your 2 siblings would have also paid that. Splitting the house 3 ways then would be fair.
But if you don't contribute to your MIL's care, your siblings would then have to pay £135k each (I hope I'm getting this right). They should recoup this from the sale of the house, plus lost interest.

It's her husband and his brother. The OP is the DIL it's not her siblings.

NoHaudinMaWheest · 08/01/2025 20:44

TizerorFizz thanks for that clear message.

OP posts:
TizerorFizz · 08/01/2025 20:41

@NoHaudinMaWheest It’s 100% clear that an attorney MUST act in the sole interest of the donor. Your MIL. No will beneficiaries are relevant or anything else. He should be guided by health professionals if he has health and welfare POA. If just finance, he has to manage her money for her needs. It is not acceptable to ask you. This is too much money every month and it sounds like a care home is best. I assume you know the costs but an attorney cannot hold onto a house belonging to the donor because they want the money from it. Your MIL’s needs come first.

NoHaudinMaWheest · 08/01/2025 20:34

As for the will I don't know for sure what is in it. DH and BIL seem to be assuming an even split between them but I don't know if that is based on certain knowledge. BIL is executor but that doesn't necessarily mean he has seen it.

OP posts:
NoHaudinMaWheest · 08/01/2025 20:31

I know BIL is keen on the house but as his wife has made it abundantly clear that she is not prepared to live there, I think he has accepted that it will have to be sold in the end.
I don't think BIL is being in any way fraudulent but I not so confident that things are being managed as well as they could be. It would be possible to make adaptations to make things more comfortable for MIL for example and that hasn't been done.
My hands are tied because no one listens to me. For example when MIL first became ill I suggested they applied for AA. I even offered to do it as I have experience of applying for disability benefits. They did do it in the end but resisted for much longer than necessary.

OP posts:
Holesintheground · 08/01/2025 20:29

care homes are used to coaxing people to eat

Yes exactly. This also struck me as an odd objection to a home. My dad ate much better there as proper meals were cooked and served, and residents could eat in their rooms but were very much encouraged to come to the dining room and eat at the table with others at mealtimes other than breakfast. They may be thinking of something more like hospital where food is plonked down and just removed later with no care for if the patient has tried it, can eat it, or whatever. A care home environment would be different. Staff are specifically there to make sure residents eat, get washed and dressed etc.

Holesintheground · 08/01/2025 20:23

fashionqueen0123 · 08/01/2025 20:01

Can you get SS to reassess then? Maybe they’d fund a care home if her needs are now higher. It doesn’t sounds like her house is suitable at all

But if she owns a house, SS are right to say that it should be used to fund her care, even if that's delayed until a later point when the house has been sold. The brother here sounds like he's just hoping to keep the house himself if he stalls long enough, though after MIL has died this will presumably mean buying out his brother's share. I'm afraid it's simply not fair of him though to expect the state to pick up the tab while he gets the asset.

Does anyone know what MIL has put in her will? I would assume she'd want to split her assets between her children but you never know. I would keep an eye on what the brother has planned for the house if he's really keen on it. If your DH made it clear he would expect to be bought out of his share when the time comes, then it might make his brother realise that it will take a lot to keep the house for himself, so he might reconcile himself to selling sooner rather than later. That would free up money for your MIL'S care.

eatreadsleeprepeat · 08/01/2025 20:06

I think you need to tease this out into separate strands and consider each one.
MIL physical and mental health- care homes are used to coaxing people to eat, at the moment she is obviously vegetating which will be having a negative impact on mental and physical health. Is staying at home what she still wants?
Your own family health and well being, paying money out is obviously causing you concern and you have needs as a family which means that life could be a bit easier with £100+ pounds a week.
MIL home, for your BIL this is something he both has an emotional attachment too and regards as an asset, but it is not his to decide about.
Future, the costs are likely to rise so committing to paying now is an open ended commitment. And you are no longer earning to replace this money as it is used up. You could have a scenario where you subsidise care at home then she goes into a care home and that takes up all the value of her house.
I can appreciate that your BIL is not easy to say no to but he is not in the same position as you so may not understand the impact on your family.
You need to get clear your personal boundaries on this, then have a talk with your husband to reach, hopefully, a united decision.

NoHaudinMaWheest · 08/01/2025 20:06

She is claiming Attendance Allowance and has been for years.

OP posts:
NoHaudinMaWheest · 08/01/2025 20:05

fashionqueen her needs haven't really changed since the last assessment two years ago. SS did (I think) feel a care home might be necessary but as she owns the house she would be self funding.

OP posts:
Holesintheground · 08/01/2025 20:04

Heretobenosy · 08/01/2025 16:33

If the local authority are paying for some of her care they will have already insisted on her getting attendance allowance and would take it as part of her contribution to what the local authority pay.

Not the case with my dad. They told me I could claim attendance allowance but while he was at home with carers coming in, they funded that as he owned his home but didn't have other savings above the limit. It was pretty full on and in the end I never did claim as things progressed and he moved to a care home, with the agreement that those costs would be reclaimed when his house was sold later.

I'd agree with other posters that for all people say 'I'd never put mum or dad in a home' there comes a point where there's no other option, and like the posters who have shared here such as @Calmhappyandhealthy and @DwarfPalmetto my dad's experience was good. The carers were kind and attentive, he got company and good regular meals, and most of all, I didn't have the constant worry of whether he was OK, if he was eating (I lived 2 hours away so couldn't just pop in) or whether, when I rang and he didn't answer, that was because he was ill, or had fallen and was lying somewhere unable to move. I can see why a care home seems like the absolute last resort to some people, but it ensured safety and a level of care for my dad that wasn't by then achievable at home.

fashionqueen0123 · 08/01/2025 20:01

Can you get SS to reassess then? Maybe they’d fund a care home if her needs are now higher. It doesn’t sounds like her house is suitable at all

NoHaudinMaWheest · 08/01/2025 19:29

UnhappyAndYouKnowIt the field money was at least 15 years ago so as I understand would not be considered deprivation of assets. MIL had no care needs then. She also thought that she had insurance to cover any that arose. It is unusual that this situation has gone on so long. She has been depressed, unstimulated and isolated for the last 11 years with only minor health deterioration so I feel that she could well live another 5-10 years.

If MIL had no other recourse then I would agree that DH should fund her but she does.

I think a care home is a better option not just for the additional human contact. She is living in one room. She hasn't had a bath or shower for more than 5 years because the facilities are upstairs and she can't get upstairs. She uses a commode because the downstairs toilet is too small for someone who needs assistance.

It is not clear whether she actually needs 24 hour care and I obviously don't know enough to be sure.

Some other points. It is not just a clash of personalities. She has always been a difficult woman who can be pretty nasty. I did my best to get on with her but I think I can fairly say that she undermined that. SIL feels the same so it is not just me. I feel that she has also treated her sons quite badly but they don't see that.
I acknowledge that BIL has the main burden of care but the care agency does most of the organising so his role is mainly taking the carers shopping, organising for any maintenance that needs done on the house and the financial stuff. However it is limiting and SIL is getting fed up with it.

OP posts:
Ilovethewild · 08/01/2025 19:09

Op

I have to wonder if all this is in your mils best interest. I appreciate she may have capacity.

care homes do have good and bad points, but are also not the only option! Extra care sheltered means carers on site but her own flat. Retirement flat/home. Lots of options. You can also speak to Age U.K. possible get her independent advice/assessment.

some require her house to be sold to pay, but that is part of what happens. Some require SS input unless fully funded.

if independent people (ie SS) are suggesting care home, then why is no one listening? If family want to pay, then they can. I hear you don’t want to, but you can’t stop DP paying.

does mil need 24/7 care? Could this be explored? An assessment 2 yrs ago needs reviewing.

you can or have been clearly able to pay the shortfall, but I agree you should have complete transparency about costs, income, expenditure, bills etc.

relying on the house sale is foolish, nothing is guaranteed and no sight of will is a concern.

sadly it’s so often family who are identified as stealing/ mismanaging/ abusing older people (I believe more than 75% of older abuse is from family and financial abuse is the biggest affecting older people) I’m not saying that’s happening but secrecy and lack of transparency are a concern.

i think it’s fine to raise concerns with dh about the cost. The field income would have lasted 9/10 yrs, was sold 15yrs ago so has already run out? £600pm is a lot to pay out! In my family, you pay what you can afford not just an equal amount! Can you agree a figure that is manageable for you and dh and find a way for her needs to be met that way? Possible selling and moving is an option?
does bil have POA over finances and health? Housing?

get sight of info
agree amount that is maneagble to pay with dh
discuss with bil and sil and dh together.
speak to Age UK

fashionqueen0123 · 08/01/2025 18:52

NoHaudinMaWheest · 08/01/2025 18:24

Autumnalmists I don't know but don't think so. LA are providing the amount of funding that she would be entitled to given her needs minus the amount she is assessed to pay out of her income. I.e. same as if she had carers coming in daily. Which is why it nowhere near covers live in care.
Don't know what DH will feel about the inheritance if it comes. I have kept my inheritance from my parents separately as otherwise I have very little of my own but I have also used it for joint costs e.g house adaptions we made for Dd.

Does she need live in care then?

UnhappyAndYouKnowIt · 08/01/2025 18:44

Oh, I thought of a third point.

Regardless of how well you get on with her, this woman birthed and raised him.

A man who has the means to contribute to his mums care, and doesn't, is not someone I would want to know, let alone marry.

Harassedevictee · 08/01/2025 18:34

@NoHaudinMaWheest If BIL is so attached to MIL’s/the family home, when she sadly dies will he sell it or buy out DH’s 50% at market rate? Do you know how MIL’s will apportions her estate?

The £60k from the sale of the field should have been invested for MIL, with BIL’s share, £120k would have been invested and would be there to pay the additional costs for 5 years +. My mum gifted me some money, I refused it for ages but as the rest of the family had taken their money I finally agreed. It is ring-fenced in case my Mum needs it. Your DH is right to use this money to fund his Mum’s care.

However, once the £60k is spent then it stops. Your first responsibility is for you and your DH’s future.

I agree with pp that full financial disclosure is appropriate. Having seen how people can be when it comes to money I would be doing due diligence by checking income and expenditure including checking Land Registry for the sold price for the field. Sadly I have seen people be too trusting.

UnhappyAndYouKnowIt · 08/01/2025 18:30

NoHaudinMaWheest · 08/01/2025 15:38

Thanks for all the replies.

find me elf I don't know the overall amount the field was sold for. We got about £60,000 I think.
Obviously MIL won't live for ever but anywhere from 5-10 is a realistic possibilty by which time we will be mid-late 70s.
I have no idea how much the house would sell for really. It is a good sized family home in a desirable commuter village. It would need a lot of updating but is in a good state of repair. I would think it would be easy enough to sell but how much would be left would obviously be dependent on the care home costs and how long they go on for.
Yes if we don't contribute BIL and SIL would have to pay more if they chose to. Frankly I prefer to keep the money we know we have rather than rely on an uncertain inheritance and if they did pay more now I would think it fair that they had more of whatever was left. Don't think DH would be happy about any of that though.

Ok, two things.

First: She's 90, depressed, socially isolated and housebound with minimal cognitive stimulation or mobility. None of these traits are conducive to living another 5-10 years unless maybe her parents each lived to 110.

Second: She gave you each £60K and the local authority are contributing towards her care?

That would make her a homeowner who deprived herself of assets to fund you at the taxpayer's expense.

If £150 a week is all you're paying, you might want to count yourself lucky that they aren't pursuing you for all of it.

Swipe left for the next trending thread