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Elderly parents

MIL care costs

138 replies

NoHaudinMaWheest · 08/01/2025 14:32

As the title says this is about paying care costs for my MIL.

I feel the need to give a fair bit of background in order for the situation to be understood and also to get things clear in my own mind. That will make it quite long so advance warning if you are short of time or capacity.

MIL is now 90. She was widowed 30+ years ago and has lived alone in her own owned home since. Until she was 79 she was pretty independent, driving, doing voluntary work, visiting friends etc.
She then had to have a fairly minor operation to remove a melanoma from her leg. She was assured that it was the type that doesn't spread systematically and that it had all been removed so once her leg had healed she could go back to normal. However she developed a severe reactive depression and stopped eating and drinking and caring for herself. She ended up very ill in hospital. After a period in acute and rehab hospitals she was discharged home, physically fine but still very depressed.
When FIL died she had taken out an insurance policy which would provide care at home and so that was used to hire a live-in carer to persuade her to eat, drink, wash etc. She had quite a lot of psychiatric input but never improved.
A few years later she had a fall which resulted in much reduced mobility. Since then she has lived in one room - bed and commode in the sitting room, just moving to the kitchen for some meals. She doesn't do anything -watch TV, read, knit, sew or engage in conversation. She just worries endlessly and repetitively about eg if the heating is working properly.
She has had the live in carers all this time funded by the insurance policy and her savings. About 5 years ago her savings ran out. BIL has POA and does all her financial stuff as well as managing the carers and practial stuff for the house though no hands on care. He managed to get social services to agree to some financial support and that was enough for things to continue until about 2 years ago.
At that point the care company massively increased their fees which meant that there was a considerable shortfall. Again BIL did the negotiations which meant some increase in SS contributions but there was still not enough so he decided that he and SIL and DH and I would top up - £125 a week for each couple (increased to £150 from this month).
He and DH are adamant that their mother should not go into a home. They feel that as they will ultimately inherit her house they will get their money back.
Some years ago (at least 15) MIL sold a field adjacent to her house. BIL had done quite a lot to negotiate with the council and developers so she got quite a good amount for it, some of which she gave to us and to BIL and SIL. DH and BIL feel that that means that it is only fair for them to fund MIL now.

MIL is not exactly healthy but she doesn't have any life threatening conditions and this situation could go on for many years. DH and I are both in our later 60s and both have disabilities which we manage independently now but may not be able to in the future. In addition we have two children in their 20s with disabilities which require additional support and limit their earning capacity.

I feel that although we may inherit there is no guarantee. If MIL was to require 2 to 1 or overnight care in the future she would have to go into residential care and the house be sold anyway. We are paying this out of income and even if we don't absolutely need it for day to day living now, we have good reason to want to save what we can as well as living reasonably comfortably now.

I really resent being given no choice about this funding. I am not sure that living in isolation like this is really in MIL's best interests. And all this is skewed but the fact that I have never really liked MIL - the feeling is entirely mutual.

DH is quite passive and happy to go along with what BIL says. We live a lot further away and have the DCs to be responsible for while BIL and SIL are a bit younger, in good health and don't have children.

I don't even know what the figures are and am not sure that DH does either. Nor do I know for certain what MIL's will contains.

Saying no would cause a huge family rift but it is what I really want to do.

Any advice welcome (if you have managed to get to the end of this screed).

OP posts:
MereDintofPandiculation · 10/01/2025 09:28

Honestly, I’d never put my mum in a care home. They are horrible places, especiallly as most people in the ones that accept local authority funding will have dementia and a really high level of need. A nice care home would be £0000’s per week but even those have their issues. I think people on mumsnet romanticise care homes as the better option for people because of loneliness, but they are not some lovely social club. Although to be fair it sounds like your MIL would be able to fund a nice home.

There isn’t a definite relationship between cost and quality. Some expensive homes have facilities designed to appeal to relatives that the resident won’t actually use. What makes the difference is a good manager and happy settled staff. That can be found in care homes at any fee level

NoHaudinMaWheest · 10/01/2025 09:10

EmotionalBlackmail MIL was depressed before things got so restricted when she could move around the whole house and the carers took her out locally fairly regularly but the current situation can't be helping.
The one room set up was put in place when she came home from hospital after a fall and at that time she needed hoisting and 2 to 1 carers. However this hasn't been the case for years but the arrangement has not been changed.
I suppose if you are seeing it all the time, it becomes the norm.
I hadn't seen MIL in the flesh for a long time (Covid, then BIL restricted visitors even when national restrictions were lifted, then we moved back to Scotland so visits require 2 night stays and it is very difficult to leave DCs alone for that long). However we all went down in the summer for her 90th birthday and I looked at things with fresh eyes.

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NoHaudinMaWheest · 10/01/2025 09:03

GnomeDePlume that must have been so difficult for you. I suspect your are right re BIL. The family narrative is that BIL is the practical one and DH is the airy fairy academic. It is true that DH isn't very practical in a DIY type way but he is perfectly capable of understanding financial stuff. DH is now severely visually impaired which makes reading printed matter difficult though not impossible. I suspect that this is being used to say 'Oh don't worry about all the figures and details.'

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EmotionalBlackmail · 10/01/2025 08:10

It sounds like she has such a miserable existence. No wonder she's depressed. She hasn't been able to bath or shower for FIVE YEARS because of not being able to manage the stairs? And she's existing in one room with a commode and a live-in carer?

She would be so much better off in a home! They have been an overwhelmingly positive experience for us - one of my relatives chose to go into one and really blossomed. Regular, varied proper meals (how good is the carer at cooking - IME they're variable, or is she living on freezer meals) cooked by someone whose job it is to cook appetising meals for elderly people. Company of she wants it - the care homes we used encouraged residents to sit together and encouraged shared interests. Activities, visitors from outside. One of them runs a toddler group in the home! She would see so many more people and have so much more to take an interest in! And she'd be able to shower regularly. It doesn't sound like the POA is acting in her best interests by keeping her at home isolated and miserable.

What happens if your or your DH's health suddenly deteriorates and you absolutely must stop paying the monthly amount because you need it for your needs? Or your children's needs?

GnomeDePlume · 10/01/2025 07:07

@NoHaudinMaWheest if your BIL is anything like my DB you may need to push quite hard to get full financial information.

When we started to look at care homes for DM, DB was very shy of giving me proper information. I had to tease it out of him.

DB didn't want DM to go into a care home (he wanted her to stay in hospital) so used the lack of financial disclosure to try to achieve this.

TizerorFizz · 09/01/2025 23:51

My DM got £0 from SS because she had savings. They only offered 4 visits a day when they thought she had no savings and they were going to have to pay for a care home. They then lied to me about her discharge assessment at the hospital which was 100% that going home was not possible. They said that was not true! So at 99 DM never had any assessment from SS in her home because they will not spend the money on an “unacceptable” outcome - financially to them. That is, needs a card home at their cost. DM had been in hospital 3 times prior to the final time. Nothing from SS ever. Basically you know whether she needs a care home but many old people always want to stay in their home and relatives pay for this - in time or money. They might have neither.

@NoHaudinMaWheest I think you have to analyse all income and expenditure. Your list seems comprehensive but have you any idea what house maintenance might be? Or improvements if living there is difficult? If she has a decent enough house, why didn’t she downsize earlier? This seems very late in the day.

It’s foolish to take out a loan when she would have equity from selling if she needs a care home. I would insist she lives within her means and also make sure you do not pay in the future. Insist your family comes first. I’d also be against the BIL paying more too and paying himself back from inheritance. At what interest rate? Yet another complex arrangement which could be obscure. You will lose out there too.

I would look at care homes near one of her dc or both. She will be self funding so you have choice. Care homes here ranged from £4600 to £6000 a month, a year ago.

Harassedevictee · 09/01/2025 23:35

A good list.

I’ve been prompted by another post that Age UK have a lot of useful information on their website https://www.ageuk.org.uk

https://www.ageuk.org.uk

Crikeyalmighty · 09/01/2025 23:20

@NoHaudinMaWheest I think that's exactly it - it needs a thorough looking at rather than looking at it through 'greed goggles' of 'getting their money back'

It's extremely presumptuous of your H too to presume you are happy to have less income for maybe longer term potential gain- what if you split?? I hate to say it but you would get jack shit as it stands as they don't own the house having been handing over thousands

NoBinturongsHereMate · 09/01/2025 22:01

That looks a good starting list. As part of the last one I'd want a new social services care assessment.

NoHaudinMaWheest · 09/01/2025 21:26

I have tried to compile a list of questions we need the answers to before deciding the way forward.

MIL's income:
Pensions
Benefits
Insurance contributions
SS contributions
Our and BIL and SIL's contributions
Is there any capital left and if so is there any interest?
Any investments or other income?

Her outgoings
Care fees
Council tax
Utilities (water, heating oil, electricity)
House insurance
Food, toiletries, cleaning stuff
Phone, internet, TV licence (she doesn't use the latter two but the carers do)
Medical costs (podiatry, dental, optical, taxis to hospital)
Clothes and hairdressing
House maintenance and repairs
Replacing household equipment
Christmas, birthday etc cards and presents
Anything else

Has the house been valued recently or does anyone know roughly how much it is worth?
Are there any charges on it?
Should we revisit equity release?

Has anyone actually seen the will and if so what does it say?

What is the current state of MIL's capacity? Does BIL have H&W POA and has it been activated?

Has anyone asked MIL in a neutral way if she is still happy to remain at home?
Has anyone looked at local care homes? Found out how much they cost and what they are like?

Has anyone thought objectively about MIL's current living arrangements - lack of access to bath, shower, toilet; isolation; difficulty in getting out of the house; absence of facilities in the village?

Is that too detailed? Have I missed anything?

OP posts:
NoHaudinMaWheest · 09/01/2025 21:06

Downsizing at this stage is not a realistic option. It should have been done years ago but wasn't so here we are.

Arran2024 she is too old for some schemes but others have no upper age limit. I don't know how good they are though.
As BIL worked in banking before he retired he is considered to have all the financial acumen. Obviously he does know some things but I am not sure we should be totally rely on him.

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Arran2024 · 09/01/2025 20:34

Harassedevictee · 09/01/2025 19:26

@Arran2024 but the person is selling to move into a care home. No stamp duty, no new carpets, furniture etc.

Yes, sorry I was just talking about equity release in general as people assume it's a bad choice but actually it can work out cheaper than moving. I think the OP mil is too old for equity release.

Crikeyalmighty · 09/01/2025 20:27

@TizerorFizz to be honest if it's using 80, 000 of her own money from the house asset ( allowing for interest) - it makes more sense than using OPs money when clearly they don't have that kind of spare change down the back of a sofa- I agree that it makes more sense to sell up and residential care but if that isn't happening then someone has to pay for at home- and unless BIL can fund it in full and takes bigger cut of inheritance and balance it out then I would insist on equity release- she's 90 and has a lot of equity - so it's not like folks who stupidly do this at 63 with very modest amounts of equity and then wonder why it eats up all their equity

Harassedevictee · 09/01/2025 19:26

@Arran2024 but the person is selling to move into a care home. No stamp duty, no new carpets, furniture etc.

Arran2024 · 09/01/2025 19:03

TizerorFizz · 09/01/2025 17:06

If you borrow £20,000 - in 12 years you owe £40,000. Getting money out from downsizing can make far more sense. At least you can get a return on it. Live in carers are expensive. It won’t be much cheaper than a care home. DM paid £30 an hour. Not live in but if you needed 40 hours a week that’s £1200 a week. So not far off a care home. Equity release is the last resort and only ok if you don’t have dc. If you do, talk to them and familiarize yourself with the problems and solutions to your care without equity release.

I was told it would cost me £60k to move - estate agent fees, removals, stamp duty etc. Then buying new furniture, curtains etc if yours doesn't fit. If you have a house worth quite a bit, it can be much more sensible to borrow a bit on equity release than to move.

TizerorFizz · 09/01/2025 17:06

If you borrow £20,000 - in 12 years you owe £40,000. Getting money out from downsizing can make far more sense. At least you can get a return on it. Live in carers are expensive. It won’t be much cheaper than a care home. DM paid £30 an hour. Not live in but if you needed 40 hours a week that’s £1200 a week. So not far off a care home. Equity release is the last resort and only ok if you don’t have dc. If you do, talk to them and familiarize yourself with the problems and solutions to your care without equity release.

ByQuaintAzureWasp · 09/01/2025 14:50

Can BIL put a charge against the house to get your money back if MIL needs to go into a care home and house needs to be sold.

Arran2024 · 09/01/2025 14:44

Not necessarily if you just use a chunk of equity for a few years. We have looked into it. The costs of selling up and moving are higher than the costs of taking a bit of equity.

TizerorFizz · 09/01/2025 14:27

@NoHaudinMaWheest It might be solely from her resources but the debt is not written off. What happens when the loan needs to be repaid on death? There could be very little left for beneficiaries. The sum payable doubles every 12 years. It’s always better to sell and invest. Or downsize. Read MSEs guide. What beneficiary wants a multiplying debt?

Holesintheground · 09/01/2025 13:56

A suggestion. Your DH puts something in writing to his brother saying that you've been reviewing your family finances and concluded that from the end of March you will no longer be able to pay the previously agreed contribution to MIL's care. This is for all the reasons given: MIL's own wellbeing, the need to plan for further decline, and the wish to prioritise your own children and their increasing needs. You're open to other ways of supporting MIL and will discuss those but the current arrangement will stop at that date. This gives almost 3 months' notice and allows you to take charge of your own role in this, while allowing time to research the other options. Draw a line.

NoHaudinMaWheest · 09/01/2025 13:50

TizerorFizz yes of course selling is best if she were to go into residential care. However if her sons insist on continuing with the live-in carer, equity release would allow it to be paid for from her resources rather than ours.

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TizerorFizz · 09/01/2025 13:00

@NoHaudinMaWheest Equity release could well leave you seriously out of pocket! It’s a mortgage loan with very high interest rates. You will be liable for repaying it and this could take all her equity in her property. It’s much better to sell and self fund. It’s hard when that might use up funds too but there’s no debt. Unlike equity release!

stayathomegardener · 09/01/2025 12:29

I would look into buying a care annuity policy.

For around £130k plus her pensions all of my mother's care costs are covered. £50k+ a year.

The remainder of her house money has earned around £70k in interest since we took out the annuity.

Had we not done this her current care spend would be £250k+

As an aside mum went into a care home via social services a very undernourished size 0, depressed and lonely she's now size 14/16 and so settled.

With dementia she believes she's either in a very expensive hotel or a monastery (it's the feeling of calm about the place apparently)

fashionqueen0123 · 09/01/2025 12:12

TizerorFizz · 09/01/2025 09:15

@PermanentTemporary DM had a great care home. Self funding gave choice and DM was extremely well cared for. Every member of staff was great and other residents liked DM too and she liked them. They cared for her until the end and they really helped us as a family to feel her care was the best. One great aspect was having access to a GP!! So much better NHS care than when at home. She actually got some!

Great point. Having access to a dr or nurse is great! We had the same
for my Nan when she was in respite care. She had a UTI and there was no need to try to get a gp appt!

NoHaudinMaWheest · 09/01/2025 09:52

Thanks PermanentTemporary. My Dad's nursing home was good although it might have looked a bit basic. There are good homes out there though I suspect that MIL will take her 'difficult' nature with her where ever she is.

We need to review the situation. BIL has already said he plans to do this in April (when pension and benefit increases come in) but I will push for earlier. If they won't agree to consider residential care, and I fear that is likely to be the case, then I will push for revisiting equity release.

My main worry in all this is the future of our children. There is a lot of uncertainty there and much that is out of my control but I don't want to do anything which will make their future more difficult if it can be avoided.

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