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Elderly parents

Can I refuse to have my mother stay with me?

369 replies

Wheatlands · 07/01/2025 10:26

My mother, aged 97, is currently in a high care unit that she was sent to after spending three weeks in hospital with pneumonia. When my husband called yesterday to ask about the plan for mum, the nurse said they are still giving her antibiotics, and she is having 'mobilisation therapy' and then they will be looking into her discharge. From what the nurse says, they intend to discharge her back to us, but with more carer visits. Before she went into hospital she had one carer visit a day.
Both my husband and I work fulltime. I work from home, but for 10 to 12 hours a day teaching English online and I risk my work if I have to leave a meeting to care for mum.
We have cared for her for 12 years, with her progressively needing more and more care. She falls often and I can't lift her on my own. She is incontinent and even with the nappies, needs a lot of cleaning. She needs attention during the night.
We are both completely exhausted - I have been battling a viral chest infection since before Christmas. I feel completely terrified. I don't want her to come back because we just can't cope any more. There is no other family help available.

Do I have the right to refuse to have her back?

OP posts:
Thursdaygirl · 08/01/2025 19:48

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The OP cannot offer the care required

Sillyname63 · 08/01/2025 19:38

You can ask for a carers needs assessment, your needs are assessed independently to your mothers.
Yes you can refuse to have home, ask to see a social worker asap about your options they will hopefully be able to help you. Hopefully she lived in your home and not you in hers as this might change things . Start with the place she is in now ask to speak to the nurse in charge of her care they know who to contact and will get the ball rolling.

Lolalady · 08/01/2025 19:29

Absolutely you can refuse to have her back. Social Services will pull every trick in the book to get you to do it but stick to your guns. Assume your mother receives state pension so that will be taken towards her care but beyond that the local authority is responsible.
I was being pushed to care for my father after my mum died. I flatly refused and they found him a care home pretty quick! Sounds harsh but I had health issues and could not have coped with him.

Deered · 08/01/2025 19:28

Wheatlands · 07/01/2025 10:26

My mother, aged 97, is currently in a high care unit that she was sent to after spending three weeks in hospital with pneumonia. When my husband called yesterday to ask about the plan for mum, the nurse said they are still giving her antibiotics, and she is having 'mobilisation therapy' and then they will be looking into her discharge. From what the nurse says, they intend to discharge her back to us, but with more carer visits. Before she went into hospital she had one carer visit a day.
Both my husband and I work fulltime. I work from home, but for 10 to 12 hours a day teaching English online and I risk my work if I have to leave a meeting to care for mum.
We have cared for her for 12 years, with her progressively needing more and more care. She falls often and I can't lift her on my own. She is incontinent and even with the nappies, needs a lot of cleaning. She needs attention during the night.
We are both completely exhausted - I have been battling a viral chest infection since before Christmas. I feel completely terrified. I don't want her to come back because we just can't cope any more. There is no other family help available.

Do I have the right to refuse to have her back?

No your not. Her needs have increased to more than u can safely manage, there are some good long term placements available. Quality of time far outweighs quantity, and resentment or further illness is not what anyone wants or needs

Minxmumma · 08/01/2025 19:12

Please ask the hospital to do a social services referral asap for your Mum. Any carer who deals with this level of care will tell you that you are not their carer you are their loved one and it is important to keep that definition.

BeMintSwan · 08/01/2025 19:01

If she is a British citizen the local county council will have to fund her care in a care home. They will take whatever income she has from any pension or state pension into consideration and pay the rest. You have no obligation to look after her, the care assessor/social worker is talking nonsence. If you have any problems contact your local MP- it works wonders!

gardenflowergirl · 08/01/2025 18:51

Depends what the circumstances were of her coming the the UK from SA. Sounds like she's not entitled to benefits if your husband gives her a 'pension'. She could be considered your dependent in these circumstances and your financial responsibility. You'd have to get a social care assessment which would include finance.

dementedmummy · 08/01/2025 18:39

Wheatlands · 07/01/2025 10:35

We can't afford to pay for a care home, and she has no funds or property to sell. I agree though that she needs to be in care. Is the council obliged to pay for her if we can't?
I was told by the care assessor who came about a year ago that what is important is my mother, not us. The care plan is based on what is best for her, and our needs are irrelevant.

Unfortunately you have been sold a load of codswallop by the assessor. Yes your mother is front and centre of the care plan but not at your expense. You can (and should by the sounds of things) refuse to look after her. Cash strapped councils will try every trick in the book to get out of paying for care and manipulative techniques such as this are horrific for those on the receiving end. Good luck and big hugs as this decision will not have been an easy one for you x

JenniferBooth · 08/01/2025 18:31

And what about the last 12 years eh? @Buzyizzy21 Thats how long OP has already been caring for.

Oh btw I await your petition to get Carers Allowance raised as this is obviously a passion of yours. Link please!!!!

Ohnobackagain · 08/01/2025 18:26

@Wheatlands sounds like you have things sorted but otherwise this may help:
www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/when-the-council-might-pay-for-your-care/

Buzyizzy21 · 08/01/2025 18:25

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Br1256 · 08/01/2025 18:18

You haven’t mentioned if your mum has dementia … I may have missed it ….but what does she want/ expect?

thisisrubbish · 08/01/2025 18:06

You are absolutely important and whoever said you’re not should be sacked. Just had a similar situation with my Mother in law. You can 100% refuse to continue caring for her.
The Local Authority do have a duty of care and will carry out a means test to understand her ability to pay or not.
You should have been offered a carers assessment as soon as you started looking after her. Is she on Attendance Allowance?
Your position is you are facing crisis of care and carer breakdown if you have to continue.
This situation must be resolved before discharge! Under no circumstances should you accept a discharge into your care until Social Services has properly assessed.
Section 9 of the Care Act 2014 informs that local authorities must: carry out an assessment of anyone who appears to have needs for care and support!

Floralnomad · 08/01/2025 17:59

That sounds like a good result then @Wheatlands .

TwinklySquid · 08/01/2025 17:53

Wheatlands · 07/01/2025 10:35

We can't afford to pay for a care home, and she has no funds or property to sell. I agree though that she needs to be in care. Is the council obliged to pay for her if we can't?
I was told by the care assessor who came about a year ago that what is important is my mother, not us. The care plan is based on what is best for her, and our needs are irrelevant.

If it’s your home, you can say you are unwilling to house her. It’s harsh but she needs more care than you can provide.

Excellentvintage · 08/01/2025 17:53

You need to speak to the discharge team at the hospital and say that you are refusing to have her back home as her needs are too great now. They should then liaise with the local councils Social Services hospital discharge team who will speak to you. An assessment should be done for her care needs to decide if it's a care home or a nursing home that she needs. If she doesn't own a property and has minimal savings then the council should fund her placement. They may try to say that the family need to pay a top up but you can refuse to do this and they have to come up with at least one affordable home. She will have to contribute something from her weekly/monthly income towards the cost of her care-social services or the finance team at the council will do a personal budget for her.
We have just gone through this with my mother in law (although she didn't live with us but with her niece who said she could no longer cope) and she was discharged straight from hospital into a nursing home.

Silvers11 · 08/01/2025 17:48

Wheatlands · 07/01/2025 10:35

We can't afford to pay for a care home, and she has no funds or property to sell. I agree though that she needs to be in care. Is the council obliged to pay for her if we can't?
I was told by the care assessor who came about a year ago that what is important is my mother, not us. The care plan is based on what is best for her, and our needs are irrelevant.

@Wheatlands The Care Assessor would tell you that because they absolutely will try to persuade you, ANY WAY they can to take her home again. They will put you under enormous pressure to give in. You will need nerves of steel to refuse to do so, and don't let them guilt trip you - but You have every right to say that she cannot come home because you cannot look after her any more/properly and to send her home would be an unsafe discharge.

Do NOT even think about temporarily taking her home, 'while they sort something out' because if you do that nothing will happen. They are so overstretched that if you do, she will go way back to the bottom of the pile of cases and she'll never get admitted

And Yes - if she has no money, then the LA will need to pay if she needs to go to a home.

kiana2015 · 08/01/2025 15:34

Care home is best for both of you, you won't have the big impact and she will receive good socialisation and rehabilitation. If she has no funds, the local authority will fund it, this will limit your care home options though as not want local authority occupants as they pay dramatically less, most have a certain number of beds they are willing to give to local authority,
Lost can bend this rule if they want so it won't hurt to be pushy

Porcuporpoise · 08/01/2025 15:31

MissMoneyFairy · 08/01/2025 12:53

Not in my experience. The best care can be found in council funded homes, fancy rooms, activities that most if the residents can't join, food that most can't eat does not make a high quality home.

I'm sure this can be the case but it has not been my experience either.

Edited to add: certainly it's true that you can't assume good care will be provided just because you are paying through the nose.

rainbowunicorn · 08/01/2025 15:28

Tubetrain · 08/01/2025 12:26

Also, the homes that the council will pay for are much lower quality than self funded ones.

Not the case in my experience.

Joystir59 · 08/01/2025 15:16

Well done OP.

WoolySnail · 08/01/2025 14:24

Wheatlands · 08/01/2025 12:25

Thank you everyone for all your encouragement and advice. You gave me the courage to be very firm and clear when the social worker called me today.
She is going to refer to social services, but she agreed that mum cannot come back here, and was so encouraging and kind.

thank you!

Glad you have some good news OP. Just remember pp advice to stay firm. Best of luck xxx

JenniferBooth · 08/01/2025 14:15

He is my fil so not 'blood' family so I don't have any say at all

Quelle surprise! You see exactly the same attitude towards step parents on here Nothing to do with you and not your business but you have to do the drudge work

PinkSparklyPussyCat · 08/01/2025 13:22

However it is worth saying that sometimes I found that residents were happier in the "scruffier" homes with happier atmospheres. It is very individual and staff and leadership dependent. The ethos comes from the top and if this is right the home is good.

MIL had to go into a nursing home. The first home she was in looked scruffy from the outside, the paintwork was tired and it seemed dark. The staff were absolutely amazing though, they were kind, attentive and genuinely cared. The owner would fight tooth and nail for her residents and also looked after her staff. She threatened to ban BIL due to his attitude. Sadly MIL had to move as the home closed due to the owners ill health and she never settled in the new home and died a couple of months later. There was nothing wrong with the home or staff, it just didn't have the homely feel of the first one.

maddiemookins16mum · 08/01/2025 13:22

Wheatlands · 08/01/2025 12:25

Thank you everyone for all your encouragement and advice. You gave me the courage to be very firm and clear when the social worker called me today.
She is going to refer to social services, but she agreed that mum cannot come back here, and was so encouraging and kind.

thank you!

I was only thinking of you yesterday and the awful stress you must be under.

All the best.