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Elderly parents

Attendance Allowance rejected

66 replies

RememberDecember · 19/12/2024 18:49

Found out today that mum’s application for AA has been rejected. She has early stage dementia. I was hoping to use it to pay for a carer to come in to help but will have to have a rethink. I’m not sure if there is any point trying to reapply at a later stage, unless things decline substantially. Have others reapplied successfully?

OP posts:
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Miley1967 · 11/01/2025 13:51

MrsClatterbuck · 11/01/2025 13:02

A work colleague applied for her mother and got rejected. She then got the social worker to help her apply and then got accepted. When applying for my mum I enlisted the help of the social worker and it was accepted. Do remember that you need to fill it out using her worst days. OK she might be OK on some days but others very much not OK.

You can fill it out based on worst days but it also asks how many days this applies to so you must explain if what they can and can't do fluctuates.

MrsClatterbuck · 11/01/2025 13:02

A work colleague applied for her mother and got rejected. She then got the social worker to help her apply and then got accepted. When applying for my mum I enlisted the help of the social worker and it was accepted. Do remember that you need to fill it out using her worst days. OK she might be OK on some days but others very much not OK.

TwentyKittens · 07/01/2025 09:30

RememberDecember · 06/01/2025 22:57

I had a call today re the AA and if I wanted to challenge the decision. Given all of it and the fact I was driving at the time, I have decided to shelve it for now and reapply at some point in future. I will ask CAB or similar for help in completing it rather than me cocking it up like this time!

The lady reiterated that the primary reason it was rejected is that mum doesn’t require ‘continuous care’ and can be left for over 5hrs during the day. The fact she might get lost,lock herself out or forget medication doesn’t seem to count for anything.

Honestly, I have had enough of it for now, will revisit in future once I have sorted out some sort of appropriate care.

She's helping you out here, OP!!

She's telling you that because you've written your mum can be left alone for 5 hours she doesn't qualify.

What you need to do is change that. Your mother obviously can't be left for five hours if she's locking herself out in those five hours and forgetting medication. The fact that she IS left is irrelevant.

MereDintofPandiculation · 07/01/2025 09:22

The lady reiterated that the primary reason it was rejected is that mum doesn’t require ‘continuous care’ and can be left for over 5hrs during the day. The fact she might get lost,lock herself out or forget medication doesn’t seem to count for anything. She’s telling you how to appeal! It’s not that those things “don’t count”, it’s that they don’t come out clearly enough in your application.

If you don’t appeal, use the time between now and your next appeal to collect “evidence” - date and time of every getting-lost event or near miss, every time she locks herself out. You don’t necessarily have to list it all, but it will give you the basis for firm numbers, which are taken more seriously than “sometimes” or “often”.

RememberDecember · 06/01/2025 22:57

I had a call today re the AA and if I wanted to challenge the decision. Given all of it and the fact I was driving at the time, I have decided to shelve it for now and reapply at some point in future. I will ask CAB or similar for help in completing it rather than me cocking it up like this time!

The lady reiterated that the primary reason it was rejected is that mum doesn’t require ‘continuous care’ and can be left for over 5hrs during the day. The fact she might get lost,lock herself out or forget medication doesn’t seem to count for anything.

Honestly, I have had enough of it for now, will revisit in future once I have sorted out some sort of appropriate care.

OP posts:
Kerfuffled · 24/12/2024 14:54

I filled in my Mum's application and it was rejected. I then spoke to Citizen's Advice who were brilliant. They completed the from and it was then granted at the full rate.

TwilightSkies · 20/12/2024 19:40

It’s pointless appealing if the form hasn’t been filled in properly. They will just use the form as evidence that she doesn’t need help. Same with mandatory reconsideration.

Salome61 · 20/12/2024 18:37

@Bignanna , my aunt should have the home help more regularly, but even though she is receiving the allowance, she is still scared to spend any money.

Her homehelp is £22 per hour and she is very pleased with what he does for her. My late Mum was my aunt's older, bossy sister - my aunt almost deliberately ignores my advice, I have no sway with her.

I live at a distance and have just helped her extend her lease with her neighbour, the freeholder, it has been a horrible experience for me with her saying things like 'it's making me ill', "I'm an old lady and you might understand one day". She didn't go to school because of childhood illness, my Mum was bossy because she loved her and wanted to protect her, she is naive.

CatStoleMyChocolate · 20/12/2024 18:25

If you fill it out again, make sure you go through everything step by step that she would do in the course of the day, emphasising where she has difficulty.

If it helps, try to think about what she is like on her worst day - not her best day or even an average day. That’s what I did with my MIL, who was convinced she wouldn’t be awarded it despite what I felt were fairly significant mobility issues, lots of medication to function even in a basic way, and a number of personal care challenges such as incontinence. It feels dispiriting but I wrote a lot of it as “has difficulty with”, “is unable to”, “needs X, Y and Z in order to do….”, and that worked in her case.

Craftycorvid · 20/12/2024 18:18

Just to reiterate what pp have said: you don’t need reduced mobility to qualify.

Viviennemary · 20/12/2024 17:10

Again a lot of older people are at risk of falling whether or not they have dementia This would not be a reason for AA. Get advice,

Orangesandlemons77 · 20/12/2024 17:04

I guess you could say that previously her problems were minimised but in reality they are worse? Add things like interactions as well. For example with a form I did I said they didn't fall that much but because of the combination of osteoporosis and sight problems it was a high risk if they did as they had broken a bone in the past. Things like that

Viviennemary · 20/12/2024 17:00

I don't think locked out once or twice will make a big difference. You need to think of daily things she can't manage very easily. Or forgetting once or twice to take medication. I think you should get advice from CAB before contacting them again and writing a letter.

Bignanna · 20/12/2024 16:58

RememberDecember · 20/12/2024 16:56

I phoned and raised Mandatory Reconsideration. They ran through some of the reasons it was rejected - only diagnosed as mild dementia, falls haven’t resulted in any serious injuries, only goes out socially once a week, can be left for 5hrs at a time so doesn’t require constant supervision. This last part is true, but it isn’t like she can achieve much in that time.

They said to send a letter with any extra information to add to claim. Eg locked out of house.

I will do the letter but I am wishing I had gone to CAB or similar to fill out the form, there definitely seem to be specific things they are looking for within those 30 odd pages.

People with far fewer problems get this allowance! It shouldn’t be like a lottery, depending on how clever someone is at filling forms!

RememberDecember · 20/12/2024 16:56

I phoned and raised Mandatory Reconsideration. They ran through some of the reasons it was rejected - only diagnosed as mild dementia, falls haven’t resulted in any serious injuries, only goes out socially once a week, can be left for 5hrs at a time so doesn’t require constant supervision. This last part is true, but it isn’t like she can achieve much in that time.

They said to send a letter with any extra information to add to claim. Eg locked out of house.

I will do the letter but I am wishing I had gone to CAB or similar to fill out the form, there definitely seem to be specific things they are looking for within those 30 odd pages.

OP posts:
Miley1967 · 20/12/2024 16:24

Bignanna · 20/12/2024 16:01

How does your aunt manage with only help once a fortnight?

People don't even need to have a carer to qualify. they just need to have difficulties with personal care several times a day or night or both.

endofthelinefinally · 20/12/2024 16:21

I would say she does qualify. The forms are deliberately made difficult and you really do need to know how to fill in the important information and you must provide copies of prescriptions and hospital letters.
I would include copies of the lock smith invoices too, along with an explanation that she cannot go shopping alone because she gets lost and locks herself out.
You need to copy her Px and explain that she needs supervision to take the correct medication at the right time.
I did the forms for my parents and PIL about 20 years ago. It took me several hours to gather all the evidential paperwork, copy it all and fill everything in.

SilverBlueRabbit · 20/12/2024 16:11

Theeyeballsinthesky · 19/12/2024 18:52

Go to citizens advice or age uk and get them to help you appeal. I used to appeal them regularly for people and I usually won often because the original form had been completed by families who didn’t really know what they should be saying (no reason they should, ppl are generally not experts in benefit forms!)

I was about to say exactly this.

Both organisations are skilled at understanding what the assessors are looking for and what the true needs are. And if they come and help you reapply at home they might see things that you see every day and don't realise is an issue. For example- if a question asks 'can you rise from your seat unaided' your parent might say 'yes' but CAB or AgeUk watch her do it and see that it takes 3 minutes and the person needs to lean on things in order to get into a standing position. Or that someone needs to hold onto furniture to get across the room. And so forth.

Our local AgeUk now has to charge for assistance as they lost LA funding to complete the forms. But the cost is fairly negligible when you consider that they have been helping people with these forms for years and will have a really good understanding of what someone's true needs are. It is also often the case that family members fill out the forms thinking of someone's 'best days' rather than their worst days.

TheBroonOneAndTheWhiteOne · 20/12/2024 16:06

AA isn't awarded for mobility. So anything about that isn't considered.

However, general confusion, which makes it slower for your mum to wash, dress, cook, etc - yes, that's considered.

TheBroonOneAndTheWhiteOne · 20/12/2024 16:05

And do ask for the MR. You can't appeal without having the MR.
They'll give you some latitude in requesting one a little late. Do phone them today.

TheBroonOneAndTheWhiteOne · 20/12/2024 16:04

Great advice on filling these in on this site, OP.

www.benefitsandwork.co.uk

Remember that the DWP are only interested in what you can't do, not what you can, and if it takes you longer than normal to do it, you should get points. There's an art to filling the forms in.

PIP claim help, plus ESA, DLA & Universal Credit

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments, reviews, appeals.

http://www.benefitsandwork.co.uk

Bignanna · 20/12/2024 16:03

One thing to remember is it is about the help you need, not what you actually have. Lots of people living on their own get it, and they don’t have anyone to help them.

Bignanna · 20/12/2024 16:01

Salome61 · 19/12/2024 20:19

So sorry, my elderly aunt had help filling out this form. At the age of 86, widowed and alone, she did get the full allowance. She now has a fortnightly home help.

Apparently needing 'personal care' is the key. Good luck with your appeal.

How does your aunt manage with only help once a fortnight?

Bignanna · 20/12/2024 15:54

Viviennemary · 19/12/2024 18:54

Did they say why. Can she manage day to day activities. Like cooking, cleaning, washing dressing shopping and so on. And does she have a diagnosis from the doctor. Surprised it's been rejected if she has dementia unless its very early stage and she is managing fine.

They’re not interested in how cleaning, gardening etc is managed

SnakesAndArrows · 20/12/2024 15:13

MereDintofPandiculation · 20/12/2024 08:57

Yes, appeal. Take the advice of @Craftycorvid and @Theeyeballsinthesky . Think also about all the little arrangements already made to make life easier and about what she’d be like without them. For example, if you offered no help whatever, not even putting tablets in a 7-day organiser, would she be capable of taken the right meds each day? A useful phrase to remember: A need that is met is still a need.

Don’t second guess whether she’s eligible - that’s for them to decide. But you are entitled to put forward your best evidence, and if there’s any wayto improve what you presented the first time, do it.

Explain when you ask to appeal that your mother managed to hide the letter under piles f stuff and you’ve only just seen it. See if you can wangle an extension.

Yes, this. The fact your DM can’t take care of her own admin and you’re doing it for her is evidence of need.

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