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Elderly parents

People who give up there lives to care for elderly and unwell parents, just how do they do it?

105 replies

Backtothe80splease · 18/12/2024 09:50

Sorry, long thread but I'm feeling so very guilty.

I am 51 suffering from anxiety, depression, chronic health issues and am in perimenopause so I'm probably being too sensitive but I've been torn to strips on a local FB and have not slept last night because of this.

My parents are in their early 80's. I have always been close to them and they live just around the corner. Until 2018 they had a golden life. They have lots of money, until recently had good health, they were always out and about and loved life.

However, mum was diagnosed with Alzheimer's in 2018 and 6 years on, as expected it is getting worse. She is also bent over with osteoporosis, has a pacemaker and this year was diagnosed with breast cancer (controlled with medication). My poor mum has really taken a battering with her health.

My dad is not a natural born carer and as I only worked part time I have slowly found myself doing more and more for them to the point that I am round 4-5 times per week and at one point I was doing everything. I started a thread a year or two back and upon advice I did step back a bit, we got a lovely carer for mum so she has help showering and getting dressed in the mornings. Dad was very opposed to this originally but now says the carer is a lifeline for him but he still refuses more help in the evenings or at weekends! I also take mum to a day centre two afternoons per week to give dad a break but it's not enough. He is complaining more and more that he is struggling with mum especially as she is starting to have a few (albeit sporadic atm), toilet accidents.

To be honesty, we are all frazzled. Both my sister and I have chronic health issues which have become worse during this time of great stress and dad is very low and although he has always been cantankerous, the stress is making him worse and we often snap at each other. I also have teens at home and a DH. DH and I argue a lot recently as he thinks I do far too much for dad especially as my father is very well off and tight, he often refuses to spend out for things to make their lives easier. He has squirrelled all their money away in investments for a rainy day but he can't see that their raining day has arrived.

Anyhow, dad and I had a conversation the other day after mum had wet herself in the car. He said he can't cope. I have suggested live in care as they have the space and money but he says he does not want people in his home. Fair enough. I don't want to see mum in a home but I am not 83 years old and living with her 24/7. So I have suggested in the new year we look at some local care homes and maybe start with respite and go from there.

I have asked on our cities' FB group for suggestions on good local care homes and I have had lots of great replies. However, I have had a few women tell me that all the homes are awful and they wouldn't put a rat in them. One has gone so far as to bombard my post with comments to me (and others) saying we have no morals by allowing our loved ones to go into care and that she will give up her life and dedicate it to looking after her father when the time comes. She claims to hav decades of caring experience in homes and says they are all dreadful places. She has told me I'm a pathetic creature, that I have no clue and we are all trying to justify our decisions to put Lo's in care.

Tbh, her replies have devastated me. I don't want my mum going into care, it's the last thing I want for my lovely kind, caring mum but how can I override my dad's decisions even with POA, he lives with her. I can not dedicate my time to care for my mum all the time, I'm at rock bottom as it is. I am at my lowest seeing my parents struggle so much, dementia is evil. This woman is making out that I have no compassion for my mum, that I'd just shove her in the first home I come across. That couldn't be further from the truth, I would research and research until I found the right one.

Now my ds girlfriend has said she has worked in a few of the homes and they are indeed all awful.

What on earth do we do? I hate this, it's destroying us all.

OP posts:
HowDoYouSolveAProblemLikeMyRear · 18/12/2024 10:01

I have up my job to care for my mother. I had to give up my home too and move in with them. I'm really glad I was able to do so. It would be a lot harder now that I have a husband and children though.

Generally speaking, it's a bit cruel to dump loving parents in an old people's home and never visit or support them.

But to put those parents in a home because it's safest for them and because you still need to work and so on, and to visit regularly? Not in the least bit unkind.

I suspect that people who condemn others for putting loved ones in a care home have never cared for someone at home, or at least not someone with dementia and double incontinence.

It's very, very different from doing it for a job, when you get to do your shift then leave and relax at home. It's like having the hardest aspects of a newborn and a toddler, but at the same time and potentially for years on end.

No care home is perfect. If you're able to visit often and at varied times of day, it will enable you to better ensure the care is good. Please don't listen to that nasty troll though. Noone I know who has actually cared for a loved one at home has that attitude.

TwinkleLights24 · 18/12/2024 10:00

The care homes she has worked in are clearly poor because dreadful women like her have worked in them. There will be some great ones too.

Cafecontribution · 18/12/2024 09:59

That sounds so hard OP.

There are two examples in my family where someone has made huge sacrifices to care for someone else.

In both cases, the situation got worse over time & the carer gradually gave up more & more of their time / energy to care for the other person then didn’t know how to extract themself from the situation.

In one case, by the time the person being cared for had passed away, the carer’s own health was destroyed so the carer never got to enjoy their own retirement.

This is why I am insisting everyone in my family prepares for their future.

TwinkleLights24 · 18/12/2024 09:58

Please ignore the nasty comments. They probably have no idea of the true reality.

Do what’s best for your parents and family.

ssd · 18/12/2024 09:56

I'm sorry you are facing this @Backtothe80splease (i wouldn't mind going back as well)

I started the elderly parents section on mn about 13 years ago as i was going mad with it all.

If you don't get the answers here, have a look there. All the best.