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Elderly parents

I can't do this anymore

560 replies

ChristmasGrinch24 · 04/12/2024 15:57

My mother in law has stage 4 cancer, caught it late.
I've been running around non stop for two months straight while also caring for two kids with disabilities.im also unwell myself with a disability.

Shes now at the point where she's not well enough to be living on her own, and she's moved into ours. And I just cannot cope.
This morning she wet the bed, so I can to clean it up. She doesn't know where she is half the time. Shes at risk of falling.
It's to much. To much on top of my other caring responsibilities. I haven't showered in over a week.

My partners sister is the biggest selfish known to man, she doesn't give a shit. She doesn't even ring up to ask how she is.

I can't have her staying with us, it's just to much constantly, what can I do?

OP posts:
yipyipyop · 13/12/2024 20:29

That's great op. Your MIL is very lucky to have you

CaveMum · 13/12/2024 20:25

Such good news for your MIL, and for you. Well done.

narniabusiness · 13/12/2024 20:21

So pleased to read your news. Hopefully your MIL will be comfortable and her children can spend time with her knowing she is well cared for. Just as importantly you can spend time with your children and have your home back.

OnlyinBlackandWhite · 13/12/2024 20:18

I am very happy for you and very happy for her. That is the right place. Can I say also that hospices are usually lovely and not at all like hospital corridors- I would like to go out in a hospice, nice bed, view, and people who know what they are doing. I'm glad you got to this point.

MyrtleStrumpet · 13/12/2024 20:05

What a relief for you! I hope the night goes well for you x

SheilaFentiman · 13/12/2024 20:00

Oh thank goodness

ChristmasGrinch24 · 13/12/2024 19:59

We have found her a hospice bed!

The GP needed her to agree to a DNR and it was all done this evening. The district nurses are coming with transport to get her down the stairs & to the hospice in the morning.

It is a beautiful place, big beautiful modern rooms that look out onto rolling hills.
We got there In the end. X

OP posts:
AInightingale · 13/12/2024 16:42

How can you 'just take her' in your car when she's a very sick dying woman, is incontinent, highly confused and frail. Do they expect her to sit on a chair in A&E for hours? The mind boggles. I hope the palliative care bed becomes available for her in the next couple of days, OP, for all your sakes.

Fuffedoff · 13/12/2024 16:39

ChristmasGrinch24 · 13/12/2024 15:23

The ambulance didn't turn up. Busy apparently. Could be waiting a day as it's not urgent I could just take her there I've been told... even though she can't do the bloody stairs!!!
The GP has been done another assessment after last night, they have a palliative care bed at a care home but the district nurses need to the paperwork.

Sorry if this has been suggested earlier but has anyone mentioned a fast track referral to NHS continuing health care?

If not, I'm happy to give more info about what it is and how it may help.

A health professional i.e. district nurse has to fill in a fast track referral form if MIL is coming towards end of life. This is then sent to the CHC team who screen it and will fund either a package of care or nursing home placement, at no cost to you.

They will have a list of care/nursing home placements available and will help you place.

FrogsLoveRain · 13/12/2024 16:27

I've been reading your thread from the start but haven't commented before.

You've done amazingly OP. MIL is very lucky to have you. Hope the coming times are easier for you. Take care of yourself.

Please do keep us updated on this thread. I don't know you, have never been in the position you've been put in but I've been checking this thread multiple times a day and sending you love x

FiloPasty · 13/12/2024 16:24

I’ve been reading your thread and sending you all my best wishes, you’ve been amazing to your MIL, I do hope that bed turns up for her.

Christmaseason · 13/12/2024 16:22

Hopefully the nurses can fill in the forms soon and you get her in the home over the weekend. I’m thinking of you.

OnlyinBlackandWhite · 13/12/2024 16:17

I'd also say when they come, if she does not have capacity, then your husband can make a 'best interests' decision on her behalf, which means he can decide she needs hospital, hospice or a care bed and it is not up to her. If she has brain mets, is confused, wandering, then it is very risky to have her upstairs at night.

People say they want to die in their own bed, but she's not even in her own bed or home, and what they really mean is they want a peaceful and painfree time- she will not get that without either hospice at home in her own home or a hospice or palliative care bed. You are doing the right things here OP, you cannot keep her at your home upstairs where she is a falls risk and needs proper palliative care, let alone the stress on you.

Crossed fingers the palliative bed in a care home comes through and the paperwork is sorted, or you get her into hospital today or tomorrow, SIL can scream and cry, but she is screaming and crying as her mum is dying and she can't face that, you are doing the right thing in the face of this.

SendMeHomeNow · 13/12/2024 16:17

Good for you OP, I hope they arrive very soon. You must be exhausted!

WTFMartin · 13/12/2024 15:32

You’re doing bloody amazing, hang in there.

Timeforabiscuit · 13/12/2024 15:27

Holding a hand for you to keep going 💪

ChristmasGrinch24 · 13/12/2024 15:23

The ambulance didn't turn up. Busy apparently. Could be waiting a day as it's not urgent I could just take her there I've been told... even though she can't do the bloody stairs!!!
The GP has been done another assessment after last night, they have a palliative care bed at a care home but the district nurses need to the paperwork.

OP posts:
hevs03 · 13/12/2024 12:04

OP have read your whole thread and wow you are a saint with doing what you have been for your Mother in Law as well as your every day stuff with your boys etc. I really hope that the ambulance arrives soon and your Mother in Law is settled in hospital with all that she needs to be comfortable and you have a chance to have a breather, a catch up sleep. I really hope that this all works out for you and your family and your Mother in Law is given the care and respect she deserves at this stage. (And you get to tell your Sister in Law how selfish she has been)

IAmTooOldFor · 13/12/2024 11:33

Me too with the metaphorical handholding @ChristmasGrinch24 . Hold the line, you’re nearly there.

CaveMum · 13/12/2024 10:55

Joining the hand holding. You’re doing brilliantly @ChristmasGrinch24

DPotter · 13/12/2024 10:47

Another hand to hold yours.

ChristmasGrinch24 · 13/12/2024 10:12

I've been let down by everyone. Not just him alone. Everyone.

The ambulance hasn't even arrived.
I've got the GP ringing me to ask if she's now permanent residency, I've told them no.

OP posts:
yipyipyop · 13/12/2024 09:57

You've really been let down by your partner. It doesn't sound like he's doing anything. Just "worrying" isn't enough.

Mindymomo · 13/12/2024 09:50

We had this with my MIL, FIL couldn’t cope, I told him to call for an ambulance. They came out, took one look at her, and took her to hospital straight away, GP had seen her 2 days before, she virtually stopped eating, she rallied in hospital for a few days, then went downhill and refused all food and medication. She died peacefully, clean and cared for, which would not have been the case at home.

MyrtleStrumpet · 13/12/2024 09:16

I think you've been really let down by a lot of people, OP, and I'm so sorry. A close relative died at home earlier this year and he had a catheter and adult nappies, all sorted out by the district nurses. I'm so surprised they wouldn't help out in this case.

I hope the ambulance arrives shortly then you can have some respite.