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Elderly parents

I can't do this anymore

560 replies

ChristmasGrinch24 · 04/12/2024 15:57

My mother in law has stage 4 cancer, caught it late.
I've been running around non stop for two months straight while also caring for two kids with disabilities.im also unwell myself with a disability.

Shes now at the point where she's not well enough to be living on her own, and she's moved into ours. And I just cannot cope.
This morning she wet the bed, so I can to clean it up. She doesn't know where she is half the time. Shes at risk of falling.
It's to much. To much on top of my other caring responsibilities. I haven't showered in over a week.

My partners sister is the biggest selfish known to man, she doesn't give a shit. She doesn't even ring up to ask how she is.

I can't have her staying with us, it's just to much constantly, what can I do?

OP posts:
EmotionalBlackmail · 10/12/2024 16:34

If the DC goes into school and tells someone there that the grandparent ended up sleeping in their bed then it would end up being flagged as a safeguarding concern without you doing anything.

I do think you should get on with calling an ambulance and get her out of your house. What would have happened if she'd also wet your DC's bed and you ended up with another mattress out of action? Or worse, ended up dying in the DC's bed?

Safeguarding isn't just about physical or sexual abuse but also emotional or neglect. It looks like you're caught in a terribly hard situation but the last thing you need is a SS safeguarding investigation so I'd get on with ringing that ambulance and getting her transferred to hospital.

ChaosHol1 · 10/12/2024 16:21

Having just lost my mother in law last month to cancer and my mum last November. I'm absolutely disgusted at the lack of support and care she and you are getting. It sounds like she should be on end of life care. I appreciate you not wanting her to go to hospital however the truth is, shel be far more comfortable and settled there with people attending to her needs 24 hours a day. Whilst one of our mums was in hospital for end of life and hospice was a better experience with the other. The truth is, as things progress it could become distressing for all of you and her, as you be at the hands of the district nurses who have so far proven to be useless and could be waiting hours if you call in the night.

Has her doctor prescribed a just in case bag, for if she needs stat doses of pain relief or to calm her if agitated for the district nurses to attend and administer. Has she been prescribed oramorph for pain? Has she been prescribed fortisip high calorie drinks by the gp?

If she can't attend her hospital appointment and isn't lucid, your dh could call and ask if he can attend in her place if he has power of attorney in place.

Your sister in law sounds useless and whilst it's so hard in the moment, I found it easier when grieving knowing I had no regrets and had done everything to support my mum, as you have done.

Daleksatemyshed · 10/12/2024 16:04

I'm so sorry @ChristmasGrinch24 you're between a rock and a hard place. It's clear you're desperate for help, your MIL is dying, why no one seems to be taking that onboard is a mystery to me. My Father died of cancer, the Dr wanted to put him into a hospice but there was no room and he died two days later, he just quietly went to sleep so your MIL may be closer to the end then you think.
At least when she does pass you'll know you did everything you could

Wobblecushion · 10/12/2024 15:55

ChristmasGrinch24 · 10/12/2024 15:06

The problem I have is that because she keeps saying she wants to try chemotherapy my dp thinks we need to at least try and sort the confusion & her eating out.
In bloody denial. The chemo would just finish her off quicker. She told me before this that she didn't want to suffer, and I just feel she is suffering.
Please don't worry about my son, he's fine. He knows how poorly she is and he's very placid (has a LD) however my issue is if she gets into my other sons bed he WILL freak out.

If you think she is suffering then call 999.

Has the GP prescibed end of life drugs?

ChristmasGrinch24 · 10/12/2024 15:51

CandyMaker · 10/12/2024 15:36

Sorry I wasn't saying to put a lock on. Simply saying that was the likely outcome of reporting a safeguarding concern. It wont hurry things up.
Can you just tell her she has been referred for chemo but has to wait? I know it is a lie, but might be easier just to placate her.

Yeah that's fine I can tell her that however it's my dp who thinks if she gains some
Weight in the next week she'll manage to be accepted to chemo. When the nurses are saying if the confusion doesn't subside the oncologist won't even see her as she won't retain the information.

OP posts:
CandyMaker · 10/12/2024 15:36

Sorry I wasn't saying to put a lock on. Simply saying that was the likely outcome of reporting a safeguarding concern. It wont hurry things up.
Can you just tell her she has been referred for chemo but has to wait? I know it is a lie, but might be easier just to placate her.

ChristmasGrinch24 · 10/12/2024 15:07

Also neither can have locks on their doors for their own disabilities, I need to be able to get to them quickly in emergency.

OP posts:
ChristmasGrinch24 · 10/12/2024 15:06

The problem I have is that because she keeps saying she wants to try chemotherapy my dp thinks we need to at least try and sort the confusion & her eating out.
In bloody denial. The chemo would just finish her off quicker. She told me before this that she didn't want to suffer, and I just feel she is suffering.
Please don't worry about my son, he's fine. He knows how poorly she is and he's very placid (has a LD) however my issue is if she gets into my other sons bed he WILL freak out.

OP posts:
CandyMaker · 10/12/2024 14:47

@ChristmasGrinch24 it is sadly very common to have confusion as people are nearing the end of their life.

CandyMaker · 10/12/2024 14:45

SheilaFentiman · 10/12/2024 10:02

Hmmm. Personally, I would doubt whether a confused, frail, elderly lady getting into the wrong bed would actually be safeguarding, and would think it would just rain complication on OP at a time when she least needs it.

Exactly. No one would be worried about this being a safeguarding concern for the child. The only action would be to recommend a lock for the sons bedroom door.

ChristmasGrinch24 · 10/12/2024 14:35

GP got back still no beds. Ffs.
She has low sodium, so changed her meds. He doesn't think that's the source of the confusion he says it's very likely the confusion is end of life. He says it's normal for people to experience delirium in their final days/weeks.

OP posts:
TriangleLight · 10/12/2024 13:00

This is very traumatising for the DC

Call an ambulance

whatwouldyoudoifisangoutofkey · 10/12/2024 12:41

thank you @AnotherVice ,I had no idea that such medication could be carried by paramedics.

colesr · 10/12/2024 10:40

countrygirl99 · 10/12/2024 09:13

You need to flag a safeguarding concern on behalf of your son.

A great example of how people like to use 'buzzwords' without either thinking or understanding what they are actually saying.

ChristmasGrinch24 · 10/12/2024 10:31

countrygirl99 · 10/12/2024 09:13

You need to flag a safeguarding concern on behalf of your son.

Oh yeah lovely because I really need that going on right now!
She's a confused frail elderly lady whose dying, she didn't do it with intentions.

OP posts:
SheilaFentiman · 10/12/2024 10:02

countrygirl99 · 10/12/2024 09:32

IME nothing gets action like a safeguarding concern.

Hmmm. Personally, I would doubt whether a confused, frail, elderly lady getting into the wrong bed would actually be safeguarding, and would think it would just rain complication on OP at a time when she least needs it.

AnotherVice · 10/12/2024 09:46

Just In Case medications. They are specifically for end of life and usually include morphine for pain relief and breathlessness, hyoscine for respiratory secretions, an anti-sickness medication and a sedative for agitation. They have to be given by injection or syringe-driver so can only be given by a healthcare professional. This would usually be a hospice nurse, district nurse but can be a paramedic. The drugs are usually prescribed by the GP but Paramedic Practitioners carry emergency supplies.

whatwouldyoudoifisangoutofkey · 10/12/2024 09:39

@AnotherVice what are JIC meds please?

countrygirl99 · 10/12/2024 09:32

SheilaFentiman · 10/12/2024 09:16

That would not seem likely to get OP’s family what they need, but would just bring down more stuff to deal with.

IME nothing gets action like a safeguarding concern.

AnotherVice · 10/12/2024 09:25

OP, I work for the ambulance service and seldom say this but please do call 999. It may not be what we are primarily for but we do deal with this sort of thing a lot. We can stay for hours and make all the calls and have a duty of care to not leave until it is sorted one way or another. If you request a Paramedic Practitioner for JIC meds they will likely send one if a car who can administer morphine, hyoscine for her breathing etc....Good Luck.

SheilaFentiman · 10/12/2024 09:16

countrygirl99 · 10/12/2024 09:13

You need to flag a safeguarding concern on behalf of your son.

That would not seem likely to get OP’s family what they need, but would just bring down more stuff to deal with.

countrygirl99 · 10/12/2024 09:13

You need to flag a safeguarding concern on behalf of your son.

ChristmasGrinch24 · 10/12/2024 09:00

I know it's impossible, we can't do 24 hour care. Hence the palliative care bed in a care home.
he's chasing the GP up today to see if there's been any luck!

OP posts:
ChristmasGrinch24 · 10/12/2024 08:58

Well last night she got into ds13 bed, no idea how as she can't walk properly and needs to be wheeled about!
Ds13 was a bit upset this morning but last night rolled over (thankfully he has a double) and just let her sleep rather than calling for one of us.
So now means we need to set hourly alarms throughout the night to make sure she's not gone wondering!

OP posts:
CaveMum · 09/12/2024 21:21

It's worth pointing out to the family (and bearing in mind yourself) that if she were hospital/a hospice the people looking after her would be on shifts. It is not possible for 1 person to care for a sick/dying person 24 hours a day with no respite.

It's a cliche I know, but you have to put your own oxygen mask on first before you can help others.