Please or to access all these features

Elderly parents

I don't want to go to care home

41 replies

Dementiadad · 26/10/2024 11:47

I know, this is awful but I just can't face going to visit my dad.
I hate seeing him in the home, I hate the smell, the noise, everything. I feel so guilty that I have moved him in there, it was for his own safety but he has deteriorated so much. He doesn't always recognise me, sometimes he just tells me to go away.
I am so tired. Worn out from years of stress trying to manage him at his home with the help of carers. Worn out from the battle to get him into a home and now...
I need to sell his house to pay the care home fees, his money will run out around Easter time. He was a hoarder. I spend one day each weekend trying to clear it - I have done for 5 months and it still feels like I have a mountain to climb - I wish I could just hand the keys over to the council and be done with it.

I don't expect replies, I just needed to get it out somewhere where I wouldn't be judged.

OP posts:
New posts on this thread. Refresh page
SafeguardingSocialWorker · 05/11/2024 10:58

Do you have financial deputyship or LPOA? You shouldn't actually be selling or disposing of anything (including the house) if you don't.

Local Authorities deal with this kind of situation all the time, it's really common. Often the house and its contents sit there until the person dies or deputyship has been obtained by the family.

If you have LPOA /deputyship already then you are taking the correct course of action. It's enough for you to do for him, don't feel guilty for not visiting as much, let your sister take that share of things if you are doing the bulk of the house stuff.

StiffyByngsDogBartholomew · 03/11/2024 22:12

whatsappdoc · 26/10/2024 18:50

Re the house sale, why are you against the council putting a charge on it? They pay the bulk of the fees, charge a bit of interest and expect the balance to be repaid when either the owner dies or the fees exceed the value of the property. Even when the owner dies they won't expect a sale within a year.
About the contents, no one will consider the sale of antiques as deprivation of assets. Who will know?

Quite.
if the council are so keen to recover all his valuables towards his care they can come and clear it can't they.

HoraceGoesBonkers · 29/10/2024 08:00

I hate going too - my DF is like a vegetable now and mostly sleeps through visits. When he was a bit more alert I'd try things like music but sometimes he'd get upset so it was impossible to know what to do.

The care home is about an hour away from where I live in the middle of nowhere (thanks DM!). I had a bad mental health episode a few months ago when I'd driven myself down and back and he seemed really distressed. So you're not alone. There's bugger all around the home too although I normally go an hour before lunch, although that's partly because of fitting it around school.

If your sister will do visits and not the clear out I'd focus on the clear out.

Is there anyone in your Dad's old professional circuit who could help identify any valued items, get them priced and removed at once?

Also, can you take a holiday and just get away for a bit?

ChimpanzeeThatMonkeyNews · 26/10/2024 19:59

user8634216758 · 26/10/2024 16:06

How I survived, and my relative wasn’t a parent and was only “delightfully dotty” rather than a full blown dementia sufferer, was to treat it like a job.
So - anything of value, get the local auction house to collect. Clearance firm in to remove everything else from the house, keys to estate agent and advertised for a realistic price so its sold quickly.
Visit the home twice a month so that you can check everything ticking along, this may well go on for years yet, so pace yourself, particularly if there are other people visiting.

That's great advice.

whatsappdoc · 26/10/2024 18:50

Re the house sale, why are you against the council putting a charge on it? They pay the bulk of the fees, charge a bit of interest and expect the balance to be repaid when either the owner dies or the fees exceed the value of the property. Even when the owner dies they won't expect a sale within a year.
About the contents, no one will consider the sale of antiques as deprivation of assets. Who will know?

Toomanysquishmallows · 26/10/2024 17:00

i barely drink , I’m embarrassed to admit that after a care home visit , is the one time I buy a drink to have on the train .

Beamur · 26/10/2024 16:57

You’re burning out.
Step back, take some time off from visiting. You really don’t have to go several times a week if you’re feeling no benefit from it and neither is your Dad.

My DH went once a week, sometimes once a fortnight - it was enough to check in and make sure his Mum was being looked after. There was little if any social benefit to either of them.
Emptying the house contents in a way that’s reasonable and efficient is not deprivation of assets - you do not have to maximise every little thing.
This is a tough and emotionally wringing time of your life, so make sure it doesn’t take all of your energy and time.
Big hugs.

Words · 26/10/2024 16:42

Excellent advice @eatreadsleeprepeat . That was my strategy also. There just happened to be an excellent farm shop next to the care home.I used to go in there after and blow loads of money on nice things to eat.

Words · 26/10/2024 16:38

Mad cat woman (I am one too).

I think there is something about the reversal of roles when children become their parents' caters that is substantially difficult emotionally as well as practically. Especially if the relationship was dysfunctional to start with.

I am really pleased you worked through it so positively but for some of us from 'stately homes' families, it can be extremely challenging.

This may or may not apply to the OP but I wanted to just point that out for anyone reading this thread.

eatreadsleeprepeat · 26/10/2024 16:35

Hugs. You are almost at the end of a long and exhausting process so are already tired.
House, use his trade contacts as much as you can. Try to arrange a day when you and sister and other half can all be there for a few hours, one person does tip runs while the others bag stuff up. Split the stuff for charity shops between you and your sister so it doesn’t all fall on you. Then clearance company and cleaning company and estate agent.
Visiting, I sympathise so much, we established a pattern of visiting once a fortnight (reasonably long drive), arrived about forty minutes before lunch so there was a natural end to the visit and then tried to do something on the way home, coffee, lunch, shop, walk to get some of the images and feelings out the way before going home.

MadCatWoman7 · 26/10/2024 16:12

It is indeed a very difficult time for you. I would put aside one day a week when you go to visit your dad in the home and speak to him about general things, the weather, food, what you have been up to. Spend time with him while he is alive as you will have memories to look back on. Can you take him for a walk around the grounds in a wheel chair? I think you will need to step up to that for yours and his sake. Get a company to clear the house and get it sold PDQ. You will look back and know that you have done the right thing by him, by you and keeping him safe is the most important word on the agenda. Good luck! I've been there and it is no easy feet. Be strong and take courage.

Holidaysarecomingocthalfterm · 26/10/2024 16:09

Dementiadad · 26/10/2024 13:05

Thank you - your comments have made me cry! I don't think I had realised what a toll this is taking,

Clearing his house - he had an antiques business/ hobby and so there is a lot of stuff left over from that, I don't think I am allowed to just have someone take it? I am selling things to his old trade contacts - one came and took a load of stuff today - it would be deprivation of assets? I am concentrating on digging out valuable things and shoving worthless stuff in another room which I will just leave to a clearance firm. I should be done by Christmas and I am aiming to put it on the market in January as a renovation job - the estate agent said not to bother trying to tart it up.
The home said they would give us a couple of months grace and the LA said if we couldn't sell the house they would take a charge over it. Tbh what can they do? Deliver him to my house? If there isn't cash there isn't cash.

I have a sister but she has washed her hands if it all. She will visit him once a week but that's it. I invite her to help every weekend, she has been a couple of times but there are always reasons why she can't and I have just given up trying to get her to help.

Tbh her relationship with my dad was never great, mine marginally better. He was AWOL for most of my teen years. I have been reading quite a lot of pop psychology - the body keeps the score etc - as I do think this situation is bringing out some old wounds from my childhood.

My DH is pretty supportive- he isn't happy about our lack of weekends but has never offered to go instead of me etc. he hasn't seen my dad in years/ has never offered practical help with him.

Thanks again everyone.

Definitly take out the stuff you want to keep or sell. No much and then get in a company to sort it all out.

My PIL are hopefully far from this stage (hopefully) but I will certainly need to do this with there stuff.

user8634216758 · 26/10/2024 16:06

How I survived, and my relative wasn’t a parent and was only “delightfully dotty” rather than a full blown dementia sufferer, was to treat it like a job.
So - anything of value, get the local auction house to collect. Clearance firm in to remove everything else from the house, keys to estate agent and advertised for a realistic price so its sold quickly.
Visit the home twice a month so that you can check everything ticking along, this may well go on for years yet, so pace yourself, particularly if there are other people visiting.

Tittat50 · 26/10/2024 15:56

@Words ah bless you. I just read what you said. There is /was likely similar personality traits there with our mum's.

You sound another good soul like OP 💐

Words · 26/10/2024 15:52

@Tittat50 . I wrote my post before reading yours. I understand completely and am so sorry you went through that hospital experience in that way. FlowersCake

Words · 26/10/2024 15:47

OP I really feel for you.

I had years of this, first with my father then with my mother. I hated going. Both had dementia. As you say, the noise, the heat, the sense of decay. Awful.

Lockdown was a blessing as it relieved me of the obligation to go. When it was lifted I went once a fortnight for about half an hour. I often wondered why I bothered. As I know for absolute certainty my mother would not visit me at all if I were to become very ill. It would upset her too much, you see.

Other people visited but they understandably dropped away.

It's an absolute mother lode ( forgive the pun) of stress, and I think you are right about it re opening old wounds. Then there is the endless paperwork, the hospital appointments and visits, the arrangement of practicalities.... on and on and on. My mother was incredibly self centred and strange and we were never close. So there was simmering resentment in the mix also.

She died in January last year and the relief was immense. I think only now am I experiencing the true physical and emotional effects of it all.

Do go for a cup of coffee in the cockroach cafe in elderly parents. So much support, friendliness advice and understanding there. The cake is great, too. :)

LifeisNOTlikeemmerdalefarm · 26/10/2024 15:43

I was in your shoes regarding my mum.
In the end I only visited once a week.
Twice the week she died.

My friend who was in this position never visited her dad
when he went into a care home.

When I was speaking to mums care home they suggested that
I must think about my health as well so only visit when I want to
as mum didn't know me from Adam.
Fortunately mum only lasted 4 months.

Take care of yourself OP.

Tittat50 · 26/10/2024 15:40

I'm all for truth and honesty but the first thing I'd do here is say you're away for 2 weeks. I don't know if he will comprehend this but you just need a break.

I am youngish, a decent, caring person, and my own mother would rarely visit me when seriously ill, almost died on one occasion and stuck in hospital for months one time and weeks another - with nothing. No clothes, no clean pants. I was bedridden.

What I'm trying to say is that you are a lovely caring daughter, even more so after him being AWOL.

Just don't be around for 2 weeks and come up with some excuse for anyone who needs to know. Have a break and block it out for a little while so you can re group.

Radio for him sounds a great idea. Is he allowed Alexa? You can get mini ones that display photos and all sorts on a tiny screen.

CoastalCalm · 26/10/2024 15:39

Another post to say engage a local auction house they will clear anything they can add to next sale - I have seen all sorts in our local ones that have obviously come from a clearance in similar circumstances. It won’t be viewed as deprivation of assets , it’s a perfectly normal thing to do

1457bloom · 26/10/2024 15:31

anything not nothing

1457bloom · 26/10/2024 15:31

Buy him a good air purifier, a really good CD player or DAB radio, electric blanket, nothing to make it more comfortable.

MightSoundCrassButItsFactual · 26/10/2024 15:26

Is he having dementia?

Thommasina · 26/10/2024 15:25

Dementiadad · 26/10/2024 13:05

Thank you - your comments have made me cry! I don't think I had realised what a toll this is taking,

Clearing his house - he had an antiques business/ hobby and so there is a lot of stuff left over from that, I don't think I am allowed to just have someone take it? I am selling things to his old trade contacts - one came and took a load of stuff today - it would be deprivation of assets? I am concentrating on digging out valuable things and shoving worthless stuff in another room which I will just leave to a clearance firm. I should be done by Christmas and I am aiming to put it on the market in January as a renovation job - the estate agent said not to bother trying to tart it up.
The home said they would give us a couple of months grace and the LA said if we couldn't sell the house they would take a charge over it. Tbh what can they do? Deliver him to my house? If there isn't cash there isn't cash.

I have a sister but she has washed her hands if it all. She will visit him once a week but that's it. I invite her to help every weekend, she has been a couple of times but there are always reasons why she can't and I have just given up trying to get her to help.

Tbh her relationship with my dad was never great, mine marginally better. He was AWOL for most of my teen years. I have been reading quite a lot of pop psychology - the body keeps the score etc - as I do think this situation is bringing out some old wounds from my childhood.

My DH is pretty supportive- he isn't happy about our lack of weekends but has never offered to go instead of me etc. he hasn't seen my dad in years/ has never offered practical help with him.

Thanks again everyone.

Bless you OP. I hope you keep some of the antiques money for yourself. Your dad is allowed to give 3k as a gift every year. Take some and do something nice for yourself.

EmotionalBlackmail · 26/10/2024 15:21

Some house clearance companies will sort into what is valuable and can go to auction, what can be donated or recycled and what can be binned. They charge upfront, then any proceeds minus costs from the auction come back to you. The one we used would keep back things like photos and paperwork for us to go through. That makes the whole thing more manageable and you don't have to do any moving or sorting yourself.

If you can't find a house clearance company that does that, then try an auction house, they'll take and sell what they think will sell (minus their costs). Then you can get the likes of a local
charity shop or house clearance to deal with the rest.

Cut down on the visits, he probably doesn't know or understand how frequent they are! Have some weekends to yourself!

PermanentTemporary · 26/10/2024 15:13

If your sister is going once a week that's great.

The great thing about selling the house is that it WILL end one day. The weight off your shoulders at that point will be enormous. I think the system you are working to sounds very good.