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Elderly parents

Where do we go from here?

510 replies

GnomeDePlume · 16/10/2024 23:25

Up until 4 weeks ago DM(85) was doing fine. Lived alone in a bungalow with family member close by calling in regularly (most days) for general chit chat.

Then she took a fall and broke her leg requiring surgery.

In these 4 weeks DM has declined so much. Her short-term memory is shot. She has stopped eating, she still chooses food but then just pushes it around a bit without managing more than a mouthful. She still drinks water but isn't interested in any other drink (she used to be a big tea drinker).

DM is now in a ward waiting for discharge to another hospital where she will do some physiotherapy.

It all seems too little, too late. She isn't getting out of bed. Her world has shrunk from bungalow, well tended garden, clubs, to the tray over her bed.

Is there any coming back?

I'm not sure what answers I'm looking for. It all feels a bit miserable at the moment.

OP posts:
WinterFrog · 28/12/2024 08:34

@GnomeDePlume 🌻 🍷
What else to say about your brother really. I know a few men like that. My brothers have their faults but those specific traits are not among them. Hugs to you as you navigate this

GnomeDePlume · 28/12/2024 08:24

@AInightingale &@Holesintheground you are both absolutely right. DB's concern is that DM slipped out of her chair in her room while trying to get put herself to bed.

To DB this means the chair is at fault. Unfortunately, short of making DM sit on the floor, DM is going to do this again at some point.

He is suggesting that staff are brusque and bullying with DM. I have seen no evidence of this. The staff are brisk and cheerful. DB feels they should spend more time gently pleading with DM to do whatever is necessary as that is his approach.

He can't see that the staff spend their days moving, helping and caring for contrary elderly people. They know what approach works best.

The overarching issue for DB is that he doesn't like being challenged by anyone he considers his social and academic inferior. Especially if they are female.

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WinterFrog · 28/12/2024 08:12

So sorry to hear about the fall @GnomeDePlume I'm glad she is unhurt.
My mother is worried about falling out of bed. Elf and safely apparently now decree that beds shouldn't have the sides up like they do in hospital. The argument is that there's a risk of bone breaks should the person inadvertently slide an arm or leg between the bars, or attempt to climb over them. We were told this by the rehab OT and by the person who did mum's assessment. It boggles my mind as I worked doing care in the community and we would always put the sides up ( trained to do so) We did lower the beds close to the floor overnight though. Mum's not considered a risk but if she were, they'd provide a kind of crash mat apparently.

Poor mum is really quite anxious after being in a double bed for 60+ years. The single profile bed must feel very narrow 😔 They used the sides in hospital as there was more observation (allegedly!)
Mum's most recent falls at home were sliding off her chair. Looked like that might happen in the hospital a couple of times so they had her in a deeper wheelchair kind of thing. We brought her a riser recliner for the home and she seems safer in that, though she runs the risk of playing with the controls and tipping herself out.

Solidary, once again, to all in this stage of our own lives 🌻

DaisyStarburst · 28/12/2024 06:47

Crikeyalmighty · 27/12/2024 21:58

I think the main reason many try and get by without residential care when in all honesty it would be the best solution is a built in fear of leaving your family with no inheritance if self funding and those that can't be self funding need to have considerable needs to get care funded- and of course there are also the odd very greedy folks out there who would try and keep parents out of much needed residential care if it's going to seriously deplete their inheritance

This is the reason MIL is resisting it. We've tried to talk to her about it but she won't listen.

Holesintheground · 27/12/2024 22:35

AInightingale · 27/12/2024 21:37

Short of (a) having someone inches from the old person 24/7 like a presidential bodyguard or (b) swaddling them in bubblewrap, there is nothing care homes can do to ensure no falls or trip injuries whatsoever. It would only be negligent if her care plan stated that she needed, say, two people to help her up out of bed, and only one person was available. Your brother sounds like a bit of a pain moaning about it. Glad your mother is okay because you really don't need A&E right now.

This. And often falls happen because the person is doing something risky eg walking to the toilet without their stick or frame - my dad did this all the time, even though it slowed him down and made him less steady, because he wanted to show he could do without them. That's more likely at least to be noticed in a care home and someone will say 'Hey, Joe, where's your frame?' and or get it and or help him along. But as @AInightingale says you can't guarantee that unless someone watches them 24/7.

It's also more likely that someone in a care home will recover better from a fall, because they'll be noticed sooner instead of spending hours lying on the floor, they'll be checked over and a doctor called if needed, and so on. Glad your mum seems ok @GnomeDePlume .

Crikeyalmighty · 27/12/2024 21:58

I think the main reason many try and get by without residential care when in all honesty it would be the best solution is a built in fear of leaving your family with no inheritance if self funding and those that can't be self funding need to have considerable needs to get care funded- and of course there are also the odd very greedy folks out there who would try and keep parents out of much needed residential care if it's going to seriously deplete their inheritance

AInightingale · 27/12/2024 21:37

Short of (a) having someone inches from the old person 24/7 like a presidential bodyguard or (b) swaddling them in bubblewrap, there is nothing care homes can do to ensure no falls or trip injuries whatsoever. It would only be negligent if her care plan stated that she needed, say, two people to help her up out of bed, and only one person was available. Your brother sounds like a bit of a pain moaning about it. Glad your mother is okay because you really don't need A&E right now.

GnomeDePlume · 27/12/2024 18:48

@WellsAndThistles no, I wasn't the daily visitor but equally I wasn't a fairweather visitor. As @WinterFrog kindly pointed out, I work full-time. DB is retired and lives a 5 minute walk from DM.

Before she had her fall DM was living independently. Shopping, cooking, gardening, clubs. Getting a little repetitive as I guess we all do but generally fine.

Any road up, DM has had a fall in the care home. No injuries or pain. Unfortunately DB is getting himself worked up about it. He is being very negative about the home without doing anything.

Unfortunately DM is old, frail and has no memory about this. Falls go with the territory.

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WinterFrog · 26/12/2024 17:56

@GnomeDePlume has acknowledged that her brother visited more often @WellsAndThistles but even so, your post does sound a little bit barbed. OP works full lime and has a family; her brother is retired. Brothers are well able to pass on info though if there are concerns.
I was/am still in the position sometimes of shouting into the void about mother's confusion, suspect decision-making and general frailty, but this is easing as her regular carers get to know her and she's allowing her mask to slip a bit.
Just visited mine today and she informed me she's going home next week because she doesn't like the food. It's heartbreaking that she really pictures herself being back as she was before, if only she was at home.
It's tough, and it's rubbish being old, and so I, like @CaveMum wish us all best wishes, hugs and patience in the coming days.

WellsAndThistles · 26/12/2024 14:30

Just adding an edit as I didn't realise this thread was so long so what I originally said below isn't really relative now!

Presume you weren't the close relative visiting her everyday so it could be she was struggling a bit before but you were more of a 'fair weather' relative who didn't see the decline?

Just saying this as we had relatives like this with MIL that had no idea how much she was declining as they only seen her every few months and had no idea she was setting the cooker on fire, not having showers, not doing laundry or cleaning and generally starting to fall apart. It was us as the daily visit family that kept on top of those things for her.

WinterFrog · 26/12/2024 14:21

Sorry to hear about the noro virus in the ward @Randommother Miserable for everybody. My mother had a patient with covid in her hospital ward at one point, but they kept it contained, and we just had to wear ppe when we visited. Nobody else caught it, so it was over and done within a week thankfully.

It's definitely calmer in the nursing home but also a feeling of just looking after the residents as they are, so that's a big change from the rehab unit. Mother is meant to be up on her feet and walking, in an attempt to build her muscle strength. But they also don't push it because they have to give people the choice. So mother says no, she'd prefer the sara-stedy, and so that's how she travels. In rehab it took one carer but in the home she's what's known as a 'double-up' meaning two carers for mobilising her. She's had a cold though, so is extra tired. Hopefully come the new year she'll have a bit more get up and go.
@DaisyStarburst it seems very few older people willingly sign up for residential care. It generally takes either a hospital admission ( mine had a stroke and @GnomeDePlume's broke her leg)or family carers burn out from trying to hold it together. My poor mum is still expecting to recover and go home but at the moment it would be impossible without 24 hour care. I can't see that changing quite honestly but it's really hard to tell her that.

Love and best wishes to all on here. I hope everyone plus their loved ones had some joy over Christmas 💐 🎄

CaveMum · 25/12/2024 13:44

Sending best wishes, hugs and patience to all today and in the coming days.

DaisyStarburst · 25/12/2024 12:07

I've been reading but not commenting, interested because of MIL although we are not quite at care home stage yet but she is struggling at home and refusing to give in. Best wishes to everyone.

GnomeDePlume · 25/12/2024 12:01

All good wishes for your DM @Randommother . My experience so far is that the care home is a lot calmer. The focus is more holistic than hospital which IME is very siloed.

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Randommother · 25/12/2024 10:34

Wishing you all, and your elderly parents a very Merry Christmas! We’ve finished opening presents here so I’m going to shower and head to the hospital to see mum. There’s another noro outbreak on her ward so it’s been closed for over a week (again) but they are allowing us in today and tomorrow. I’m hoping she’ll be moved out from hospital to a care home at some point early in the new year, from reading everyone else’s posts it sounds like a much calmer environment.

GnomeDePlume · 24/12/2024 19:16

AInightingale · 24/12/2024 18:19

Glad to hear your dm is sounding a bit more settled @GnomeDePlume.

I went to see my mother today and the home is in the middle of a flu outbreak, everyone masked up and old people coughing their heads off. I don't think the vaccines have been very effective this year and the damn thing is everywhere.

Couple of our hospitals locally are already under 'extreme pressure' with v long corridor waits and the most I'm hoping for until the end of January is that my mother doesn't have to attend one for any reason.

Fingers crossed that everyone can keep clear of hospital

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GnomeDePlume · 24/12/2024 19:16

helpfulperson · 24/12/2024 17:18

Both my parents developed different preferences in care homes Dad started taking sugar in tea and I was in once when he got quite cross with a member of staff who forgot. And my mum started eating mushrooms which she had always hated. We'd told the care home this so they offered her a different soup and she was adamant she wanted mushroom like everyone else. I'm guessing it was related to the dementia

I do wonder sometimes if our parents developed aversions to things (mushrooms, sugar in tea, milky coffee) as a way of annoying their kids. Come dementia and the need to wind up the kids fades.

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AInightingale · 24/12/2024 18:19

Glad to hear your dm is sounding a bit more settled @GnomeDePlume.

I went to see my mother today and the home is in the middle of a flu outbreak, everyone masked up and old people coughing their heads off. I don't think the vaccines have been very effective this year and the damn thing is everywhere.

Couple of our hospitals locally are already under 'extreme pressure' with v long corridor waits and the most I'm hoping for until the end of January is that my mother doesn't have to attend one for any reason.

helpfulperson · 24/12/2024 17:18

GnomeDePlume · 24/12/2024 15:12

Visited DM this morning. She was happily sat in the main lounge enjoying a mince pie and a milky coffee. The milky coffee is relevant because for as long as I have known DM she has always had black coffee.

DB is very insistent that DM needs a different chair for her room and is quite cross that the care home haven't magicked one up for her. Having spoken with the care home myself they have advised that a number of residents have their own chairs.

DM admitted to DD today that the chair she has is fine it's just that my two DBs startled her awake yesterday which put her in a contrary mood.

If DM wants a different chair there is no problem for us to provide it. However no one is going to pull one out of their left ear in Christmas week.

Both my parents developed different preferences in care homes Dad started taking sugar in tea and I was in once when he got quite cross with a member of staff who forgot. And my mum started eating mushrooms which she had always hated. We'd told the care home this so they offered her a different soup and she was adamant she wanted mushroom like everyone else. I'm guessing it was related to the dementia

GnomeDePlume · 24/12/2024 15:12

Visited DM this morning. She was happily sat in the main lounge enjoying a mince pie and a milky coffee. The milky coffee is relevant because for as long as I have known DM she has always had black coffee.

DB is very insistent that DM needs a different chair for her room and is quite cross that the care home haven't magicked one up for her. Having spoken with the care home myself they have advised that a number of residents have their own chairs.

DM admitted to DD today that the chair she has is fine it's just that my two DBs startled her awake yesterday which put her in a contrary mood.

If DM wants a different chair there is no problem for us to provide it. However no one is going to pull one out of their left ear in Christmas week.

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GnomeDePlume · 23/12/2024 08:03

There is a feeling for me of 'this is it, this is where it comes to'.

The lifetime of childhood, jobs, raising a family, retirement, comes to a stop in a care home.

I don't know if you garden? We have an allotment, we often joke that it should be called Next Year as we spend so much time saying 'next year we will do XYZ'.

Now for my DM there is no Next Year. She doesn't seem to be able to look forward and the past is a jumble of memory fragments. So all she has is now.

When my DM was saying she wanted to go home. I think it became a dream of home, an idyllic blend of her bungalow and her childhood home all in summer time.

The reality would be as you describe: commodes, carers coming in, adaptations. All compromise.

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WinterFrog · 23/12/2024 07:25

So sorry about your mum being in pain @GnomeDePlume 😔 The sheepskin sounds like a good idea. I hope the staff are managing it properly. Pressure sores must be so painful.
I am not sure what my mum really thinks. She's never been one to admit defeat, and I have to admire her indomitable spirit. Home would not be as comfortable as her lovely room with the large bathroom. I think what she's really missing is her independence, but home would give her less, not more, of that as it's not so well set up. It would be all compromise, with a commode and no chance to shower as the bathroom wouldn't be able to accommodate her hoist or wheeled shower chair.
It's all so sad isn't it?

GnomeDePlume · 22/12/2024 22:08

That is so difficult for you @WinterFrog . Do you think at some level your DM knows that she can't live independently now?

It is so difficult when you know the reality is that where they are now is actually the best place.

DD and I visited DM today. She was in a lot of pain from what I think is a pressure sore. However, my Christmas present was a sheepskin. With some help from staff we were able to get it onto her chair. Result!

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WinterFrog · 21/12/2024 14:02

Good to hear mum's made it to the dining room @GnomeDePlume I hope it gives your brother some confidence. Are they hoisting her into a wheelchair? Mum's ok with the sara-stedy to wheelchair at moment. Would bed- care follow for your mum if she could no longer cope with the hoist? Is it hurting her?
I'm feeling more myself again today. I think we talked about acceptance upthread, and for me it's an ongoing process. Mum is aware enough to know where she is and why, but is anticipating a miraculous recovery despite being reluctant to do the exercises the physio has set her. She still talking about looking forward to getting home, and doing some gardening, as if it's a foregone conclusion. I can feel my heart rate rise just thinking about responding to that. So far we're just kicking the can down the road and suggesting she thinks about it after Christmas, once the weather improves and so on.
I have a people-free afternoon here and I'm off to spend the rest of it with my nose in a book.
Best wishes to all ☕ 📙 🌻

GnomeDePlume · 21/12/2024 10:01

@WinterFrog that does sound very hard for you. Especially with your DM getting less interested in you, her family.

With my DM I think we are well beyond that point. DM is either in the moment or 70 years ago. But I do remember the first time DM forgot about my birthday as being very hurtful. DM had always made a big thing about birthdays being important (especially hers!).

DM's issues with frailty are getting slowly worse. Pretty soon even the mo-lift (sack barrow) is going to be beyond her.

Good news! DM made it to the dining room for lunch! DB was late arriving so staff took mum along. Apparently had a nice time and ate well.

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