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Elderly parents

What’s reasonable to expect from siblings?

60 replies

alladvicegratefullyappreciated · 12/10/2024 08:50

I (youngest D of 3) live close to ailing DM (Alzheimer’s) and DF (cancer currently well controlled). Both 80. Carers x twice a day for DM. DM is early late stage so things are getting hard to manage. I cover a lot of appointments for DF as he can’t take DM with him. Plus see them at least for an afternoon each weekend. Work FT, 2 teenage DDs one Y11 both dance so lots of driving around in eves. DH getting very angry re input from DBs who live 2.5 hours away and come for a night about every 2 months. Both work FT and no kids. DH and I having arguments on repeat. What’s reasonable to expect of sibling contributions living further away?

OP posts:
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Mum5net · 12/10/2024 18:29

crumblingschools · 12/10/2024 18:04

But if you cut back what you do will DF still be resistant to a home @alladvicegratefullyappreciated?

If you cut back -and you must- then cracks in the arrangements your DF reckons are ‘fine’ will appear very quickly.
OP, will do herself no favours if she continues to prop them up.
DF needs to be so sufficiently inconvenienced that he realises ‘help’ is required.

crumblingschools · 12/10/2024 18:04

But if you cut back what you do will DF still be resistant to a home @alladvicegratefullyappreciated?

NewName24 · 12/10/2024 17:51

I think it is very reasonable to point out that, yes, it is easier for you in one way, in terms of distance to give them support, but that you are currently giving that support 7 days a week, and, with your responsibilities to yourself, your dh and your dc, you can't sustain that. Then put forward the suggestion of each of them coming at the weekend once a fortnight would help immensely, if that is something they could arrange.
It will also give them some insight in to what the daily grind actually looks like, and they might come up with suggestions in terms of things they can practically do to help (batch cooking maybe, or some of the looking after the house, changing sheets etc etc.).

alladvicegratefullyappreciated · 12/10/2024 16:27

To be clear - I don’t want to ‘make’ DBs do anything. As PPs have pointed out it’s up to them what they do. What I am asking is whether it’s reasonable to ask as the whole issue has become quite emotive for me given feelings towards parents, DDs and DH as well as relationships with DB.

DF already gets attendance allowance for DM and pretty good support from SS. DF incredibly resistant to even contemplating a home …

OP posts:
thesandwich · 12/10/2024 16:13

Do your parents have attendance allowance? Do they have discounted council tax? These things can fund extra care.
a useful thing is a family what’s app where you can share info.
And you cannot “make “ them do anything. A cancer diagnosis(mine) was what it took to get my dbs, all 1-1.5 hours away to commit to regular visits.

Wolfpa · 12/10/2024 16:06

lollylo · 12/10/2024 15:04

Having kids does make you busier. Weird thing to say. I was far busier in the week with 3 younger kids than I am now 2 are adults and 1 late teen.

You may have been busier but plenty of people live busy lives without children. Just because you don’t have children doesn’t mean you have lots of spare time.

PermanentTemporary · 12/10/2024 16:04

What you should expect is that when you say 'right, we need to start talking nursing homes' that they don't kick off 'no mother of mine will go into a home' etc) if they've never given any realistic support. If I were you I would start floating the idea now.

Motheranddaughter · 12/10/2024 15:32

I decide what i do and leave my DBs to do what they decide to do
And my DH supports me totally

ArabellaFishwife · 12/10/2024 15:28

DH is the 'nearby' sibling in this scenario. Not so nearby that daily after-work visits don't take a large chunk of useful evening downtime. Early dinner, sort out necessary chores at home, then two hours on the FIL visit. Boom, most of the evening's gone. SIL lives a couple of hours away and visits most weekends, doing one overnight. I can't help but wonder if DH would do the same if their geographical locations were reversed. MIL and FIL never needed care simultaneously, so it's been a slog of several years with a brief few months where occasional weekends and evenings off were possible.
Point is that both of them think the other should be doing more, or different, things, and that their own respective contributions are the most significant. The sibling relationship has completely soured over the stress. They're in the process of organising care for FIL, and the one thing they agree on is that his wish to stay in his own home cannot continue to impinge on their freedom to live their own lives again. Or at least have a bit of a social life. The ILs were always very insistent on protecting theirs. You need to consider what you need from any arrangement, OP.

Ponderingwindow · 12/10/2024 15:26

I wanted to agree with the other posters who mentioned support for you. If you have stepped up and decided to be a carer, then your siblings have an obligation not to make things harder for you. That means deferring to your decisions, even if they disagree.

This happened with my mother and grandmother. She lived thousands of miles away and could not provide any real support so everything fell to her sister, my aunt. My mother was extremely unhappy with the end of life decisions aunt made. Mom didn’t say a word to aunt. Instead she called me for emotional support. She understood that her sister didn’t need that burden.

NewName24 · 12/10/2024 15:26

I think you do need to ask each of them to come for a full weekend a month or for a day a fortnight.
What you can't control is their response, but it is not an unreasonable ask.

That is presuming they have a similarly close relationship with your parents.

Ponderingwindow · 12/10/2024 15:20

Even if they come for a visit, does that actually take any real burden off of you? Popping in for lunch doesn’t help you with the day to day logistics of managing their lives.

in terms of real support, you can expect nothing. Even if they lived next door, you can’t expect them to provide care. It is a highly personal choice and depends on their individual relationship with the parents. Not everyone has a healthy enough relationship with their parent to step into the role of caregiver.

YellowAsteroid · 12/10/2024 15:15

PermanentTemporary · 12/10/2024 13:49

What's reasonable to expect? Unconditional* support for you and usually the decisions you make, as the person on the spot. A listening ear when you discuss these things.

*That doesn't mean theyre not allowed to express an opinion, but the main carer nearby gets the casting vote.

I think you need to focus FAR more on what it's reasonable for you to do. Your parents have increased needs and with them you need to look at what other support you can organise. In particular, do you mean by cover that you are taking your df to appointments? Look for volunteer driving services. Does your DM need more care visits a day - I'm not sure what you mean by 'things are hard to manage'. Is your weekly visit a nice social thing, or are you running yourself ragged doing their cleaning and laundry and making meals?

If I'm honest it sounds as if it might be sensible for them to move into a nursing home together.

This, 100%

YellowAsteroid · 12/10/2024 15:12

And I agree that your brothers not having children is irrelevant. Childless people have lives too and those lives are just as valuable as those of parents. We can’t know that they are necessarily less busy than the OP.

Bottom line @alladvicegratefullyappreciated is that you probably need to work towards moving your mother to specialist institutional care. Dementia is cruel and usually needs more care than family can provide.

user1474315215 · 12/10/2024 15:11

You can't expect anything. My Dsis would have done anything for our DF (she was his clear favourite) but I had a completely different relationship with him and was not prepared to offer support as I'd had nothing but criticism all my life.

YellowAsteroid · 12/10/2024 15:08

I live a very long way away from my elderly parents (late 80s both needing outside care). I see them once a year after a 24 hour plane journey. When I’m there, I do what I can to relieve my siblings from daily visits.

Nut it is what it is. I am never going to live near enough to take on a large role in their care. That is non-negotiable

If one of my siblings-in-law started laying down the law about my involvement I would be furious. They would be interfering completely inappropriately in my relationships with my parents and my siblings.

My siblings and I have frank conversations about our parents’ care. I can do little except provide (quite a lot of) money and also a lot of moral support. I will support whatever decision my siblings make - they’re the ones bearing the burden of care. In fact, I am currently using them to move forward more quickly on plans for institutional care for our father.

It is becoming too much for one sibling and their life and choices are important as well. Institutional care will actually provide more of the specialist care our father is starting to need.

But that has nothing to do with my sibling’s spouse!

lollylo · 12/10/2024 15:04

Wolfpa · 12/10/2024 09:00

I am the sibling in this scenario and manage to make the trip home once every 3 months but can’t afford to do it more as I have to stay in a hotel when I am there.

it sucks not being able to help more I don’t think the feelings of guilt will ever go away. I do however organise the weekly meal shop and manage all of the finances so there are things your brothers can do remotely to help out.

as far as the you have 2 kids and your brothers have none this comment is unkind and irrelevant. Just because you have children doesnt make you any more important or any busier than someone without.

Having kids does make you busier. Weird thing to say. I was far busier in the week with 3 younger kids than I am now 2 are adults and 1 late teen.

GOODCAT · 12/10/2024 15:00

Can you get more paid care put in place for your parents?

I am the sibling in this situation. It wasn't realistic to travel up every weekend or even every few weeks for long. We couldn't stay over either so it was a day visit. We did every 4 to 6 weeks for years, but it didn't make any material difference.

It wasn't realistic for my sibling to do as much as they were and they were getting close to burnout. Both they and Mum were resistant to paid care.

Mum is now in a home which has made a massive difference to the sibling who is nearest. My mum is a lot happier too.

YellowAsteroid · 12/10/2024 14:59

It is none of your husband’s business to police his in-laws’ behaviour. If helping to care for your mother is too much for you to manage then you need to look at an institutional solution.

Your DH has no business to intrude upon his in-laws’ relationships or sense of responsibility towards your parents.

And it’s making your life more difficult as well. He needs to calm down and butt out.

MrsBennetsPoorNerves · 12/10/2024 14:45

You can ask but you can't demand or expect. Your brothers will have to make their own decision about how much or how little they are able to help, and you will have to figure out what you can do for yourself. If it isn't enough, then paid care is the only other alternative.

There is no point in your DH getting annoyed with you about what your brothers are or aren't doing. You can only control what you do yourself.

I'm the sibling that lives near my elderly parents. Dsis lives too far away to really contribute. It is what it is. If it gets to be too much for me, we will have to find an alternative way forward.

crumblingschools · 12/10/2024 14:43

@alladvicegratefullyappreciated my DF had cancer and dementia, because one crap illness wasn’t enough! He and DM managed for a while but then things started to ramp up. Ended up in hospital after a fall. Hospital tried to get him discharged home but we knew DM really couldn’t cope anymore. We got a home sorted for him. DM and I felt the guilt but the nurse said to my DM you can go back to being his wife and not his carer. Unfortunately he died from the cancer before he actually got to the home 😔 But you need to frame it like this, are you and DF pretty much carers for your DM? Is this impacting yours and your DF’s health. Are you slowly becoming your DF’s carer?

EmotionalBlackmail · 12/10/2024 14:29

OP putting it bluntly, you'll never get the time back with your DH or your teenagers unless you cut back on what you're doing for your parents and put some boundaries in place. It's really easy to get sucked into more and more caring, and before you know it your children have left home.
And I've seen this happen a couple of times - relationship with partner gets put on hold because of caring for elderly people, then something happens (accident, serious illness) and they've lost that relationship and all that time they could have enjoyed together.

PermanentTemporary · 12/10/2024 13:49

What's reasonable to expect? Unconditional* support for you and usually the decisions you make, as the person on the spot. A listening ear when you discuss these things.

*That doesn't mean theyre not allowed to express an opinion, but the main carer nearby gets the casting vote.

I think you need to focus FAR more on what it's reasonable for you to do. Your parents have increased needs and with them you need to look at what other support you can organise. In particular, do you mean by cover that you are taking your df to appointments? Look for volunteer driving services. Does your DM need more care visits a day - I'm not sure what you mean by 'things are hard to manage'. Is your weekly visit a nice social thing, or are you running yourself ragged doing their cleaning and laundry and making meals?

If I'm honest it sounds as if it might be sensible for them to move into a nursing home together.

Mum5net · 12/10/2024 13:46

This isn't answering your question.
But the very reason you are asking the question is because what is being asked of you is no longer sustainable.
The changes lie at your feet.
You need to change your own response to make yourself feel more in control.
Essentially, that's the answer...

Gazelda · 12/10/2024 12:49

I've been in a similar position OP. But it was my MIL who was ill and DBIL lived in another country.

It was miserable for all of us.

What helped was when we (DH and I) asked DBIL for specific things. Eg setting up and paying for personal alarm. Doing weekly online food shop. Paying for a cleaner. Buying MIL an iPad so they could FaceTime Sunday afternoons.

It needed spelling out to him how much we were doing. How much time it took away from our DC. How much £ we spent each week in hospital car parking. How many times we had to leave work in the middle of the day because there was an emergency.

None of which we begrudged, but all things he didn't see or think about. He immediately stepped up to the practical and financial stuff he could do from a distance.

I'm certain he felt guilty that we bore the brunt, but once we gave him a list of tasks, he got straight onto it.