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Elderly parents

Mum needs a nursing home after car accident

87 replies

GlassLampshades · 14/09/2024 08:20

Hello,

Can anyone point me in the direction of amazing resources, podcasts, websites etc where I can start to understand this whole new world that I've just arrived into?

My mum is late sixties and was in a car accident at the beginning of the year. She has a brain injury as a result, is currently in a specialist unit, and has been told she needs to leave as they can't do any more for her.

They advise a nursing home at mum's cost. My mum is bed bound due to the brain injury which has caused paralysis. She can use her hands and arms and can sometimes pull herself up to sit, but requires 2 / 3 people to move her. She does not use the toilet and only moves out of bed with a hoist to a chair where she sits for a few hours a day. She can hold a simple conversation but has clear cognitive issues, doesn't seem to grasp her situation, no short term memory.

I need to quickly understand how we go about financing this. My dad is also late sixties and in the family home in good health. The house is wholly unsuitable (a crumbling victorian terrace) for him and he would like to sell in the near future. The social worker says a decision needs to be made on Monday.

OP posts:
ApolloandDaphne · 14/09/2024 10:29

It does sound like you need to be there to hear what is being said first hand and to advocate on behalf of both your parents. It sounds very difficult.

AnnaMagnani · 14/09/2024 10:22

If she needs 3 people rather than 2 people for her care, that basically cuts off care at home, however much your dad would like to do it.

While she may be self-funding, they can't touch the home your dad lives in. This will likely leave a lot less money available and she will be local authority funding v quickly.

ClockwiseHoneysuckle · 14/09/2024 10:05

Does your mum have any claim arising from the car accident? That may need to be taken into account.

FaiIureToLunch · 14/09/2024 09:57

You must be in total shock. Your poor poor mum. My dad went into a nursing home after a stroke and they’ve been amazing to him. I would say get the best you can afford, there was such a difference between the normal ones and the fancy ones although that comes at a price. But he’s checked in every 15 minutes and they’re very good at getting medical assistance.

spinningisthebest · 14/09/2024 09:53

This is so hard for you and your family! It maybe worth having a chat with your mum's consultant - my late father refused to take on board my insistence the reality of my mum's care needs because he was overwhelmed and was talking about bringing her home when that really wasn't an option for either of them - the consultant was able to lay things out clearly and tell him what was in her best interests and my dad then accepted and was able with the help of the hospital to make plans.

sleeptight1 · 14/09/2024 09:52

@GlassLampshades From what you have said about your Mum's finances, she would be under threshold and the Local Authority would need to pay for a care home, although dependent on how far below the threshold, she may have to contribute.

As you move forward with this I want you to see this through the eyes of the social worker and their motivations when they deal with you

Local Authorities have tight budgets and it looks like your mum would be funded in full by the LA as she does not have huge assets outside of the home which can't be touched.

Care homes are expensive and the LA would have to pick up the tab, therefore, a cheaper option for them is to try and get her discharged home with equipment and a care package, at a guess, something like 3 calls a day with 2 carers depending on how she needs to be transferred. Your Dad would then need to do the care for the remaining 21 hours a day (approx).

So, when they do the means assessment they will apply pressure for the latter option of a return home, even though a care home is better for your Mum and your Dad's own health and wellbeing.

JohnofWessex · 14/09/2024 09:49

A neighbour was run over recently and needed a fortnights care.

They are claiming from the 3rd partys insurers.

Does it look like there will be a claim against another party for your mother>

FrothyCothy · 14/09/2024 09:48

Have an urgent and frank conversation with your dad OP about not agreeing to anything until he has discussed it with you. He may find himself railroaded into decisions that are not in his or your mum’s best interests. Maybe even practice some phrases with him for saying no, because it is so hard in the moment when the pressure is on from the hospital and the social worker and emotional distress is also in the mix.

Finding a suitable home takes time. Finding a suitable home once your mother has been discharged home will take even longer because she will plummet down the priority list for everyone except you and your dad. They cannot just discharge her as long as your dad keeps saying no, no, no. It certainly sounds like she couldn’t come home without extensive adaptations and equipment which is clearly nowhere near ready.

I echo the comments about re continuing healthcare and insurance. Insurance probably first to rule it out as a potential source of funding and then CHC. CHC will probably say no - appeal it. You can find the decision support tool for CHC online to get a feel for the kind of things that are assessed.

I’m so sorry for you and your dad that this has happened to your mum. There IS a way to find a workable and safe solution for all but frankly it may mean hardening yourself and being a total pain in the arse to the point of seeming heartless. It will be worth it to get your mum where she needs to be.

Mydustymonstera · 14/09/2024 09:47

That’s good that you’ll go with him. Come back and talk through it afterwards!

MissMoneyFairy · 14/09/2024 09:46

She needs a full care needs assessment, a financial assessment which is all done by the ward and therapists. Does she have capacity to make a decision, not sure why there is a DOL in place, you'll need to ask, she's not able to leave by herself so it maybe lack of capacity so is there lasting power of attorney in place. Don't be intimidated by the sw, she cannot be discharged until there is a safe environment to move to. You also need to see what her insurance covered.

Mischance · 14/09/2024 09:46

Contact Beacon who are there to advise and support on the matter of Continuing Health Care Funding. www.beaconchc.co.uk

I go this for my late OH - but only after an appeal.

Beacon CHC | Free advice & expert representation

Helping people to navigate NHS Continuing Healthcare. Free helpline & resources. Expert representation. Ethical and personal service. Over 50,000 helped.

http://www.beaconchc.co.uk

GlassLampshades · 14/09/2024 09:46

Thank you everyone. Incredibly useful information. I will start reading the links provided. Sorry I've messed up quoting replies etc.

I really appreciate all your input.

OP posts:
GlassLampshades · 14/09/2024 09:44

Small joint savings account

OP posts:
sleeptight1 · 14/09/2024 09:44

@GlassLampshades I can say from personal experience - please advise your Dad not to feel duty bound to bring her home. Your Mum has complex needs. Once she is discharged home, he will be left to get on with it. When he can't cope with the stresses of it and reaches out for help he will be placed on a waiting list to be seen by community therapy/OT's which can take weeks or months to be seen. I have seen this first hand. It is not in your Mum's best interests for her to be discharged home and for your Dad to attempt to do the bulk of the care. Please remind him of this. Take your time and don't allow social workers or anyone else to pressurise your Dad into letting her come home.

GlassLampshades · 14/09/2024 09:43

Thank you, this is very helpful.

OP posts:
Mydustymonstera · 14/09/2024 09:42

It might be that when your dad sees mum in a more homely setting, in a care home unit for assessment, - he’s more able to make a decision as at least he can see the benefit of it for her then. And there should be input from different professionals to talk through her needs and risks, and how these could be met or not met at home. So it’s not all coming from you??

GlassLampshades · 14/09/2024 09:41

sleeptight1 · 14/09/2024 09:38

@TreadSoftlyOnMyDreams is correct OP. The hospital staff will be under pressure to free up the bed. It is not down to you to you to find a solution to this, they need to assess your mums needs and do a financial assessment of your mum. Its not clear from your original post if this has been done.

Have a look at this guide - this is a link to an org called Beacon who can offer independent advice on whether you mum can access continuing healthcare which is funded by the NHS.

www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/nhs-continuing-healthcare/#:~:text=To%20be%20eligible%20for%20NHS,how%20complex%20your%20needs%20are

If this cannot be obtained for your Mum, then in Northern Island if your Mum has more than £23,250 she would have to pay for carers. Once her assets go below this threshold, she would be required to pay part of the care fees. Once below £14,250 then she will no longer be required to pay. Important to note this means test is purely on your Mums assets. Say you Mum and Dad have a joint bank account of £50k, £25k of that would be assumed to be hers in the assessment.

The home that your Dad is living in will not be included in the means test/financial assessment as he needs somewhere to live.

If your Mum and Dad had a joint by-to-let Property for example, this would be included in the means assessment.

No assessments have been done AFAIK.

I realise now it's very important for me to try and accompany my dad to the meeting with the social worker on Monday as I'm hearing everything second hand from him.

They have a small joint savings account which would put her under the threshold. No other assets apart from the house and their pensions.

OP posts:
Mydustymonstera · 14/09/2024 09:40

just realised you are getting all the info 2 nd through dad. Do talk to them yourself or be there when dad meets them.
maybe they are talking about an assessment unit? Where I am, that’s a short term nursing placement which allows for a fuller assessment and care planning for home or long term care. They would be looking for a quicker decision on that, as it’s then that you’ll have time and space to plan what’s next. Usually 4 weeks.

GlassLampshades · 14/09/2024 09:38

Mydustymonstera · 14/09/2024 09:36

The social worker will just be looking for a general idea of whether you’re open to nursing care or wanting mum home somehow. This is going to be a longish process and their role is to help and guide you through it. If you don’t feel that is happening , then say so.
Age UK are a good starting point, they do some downloadable booklets and guides on looking for care homes, what to ask, and how the funding works.
your dad’s home will be discounted from the financial assessment but any savings in her name only, or half of any joint savings, will be counted in.

Thank you very much. Nursing home is the only viable option in my eyes. But my dad is feeling guilty and like he should bring her home. I'm against that, for my mum's sake as well as my dad's.

OP posts:
Viviennemary · 14/09/2024 09:38

stopringingme · 14/09/2024 09:32

@GlassLampshades

Tell the social worker that they will need to either help or wait until you can sort this out.

They can not discharge your Mum without something in place.

Does insurance from the time of the accident cover anything - either hers if she was driving or anyone else involved as her life has been changed so completely.

Wishing you and your family best wishes 💐

I thought about the insurance too if it was a car accident. The Social worker is being totally unreasonable forcing you to an answer by Monday. The rules about who is entitled to funded nursing care are very complicated.

sleeptight1 · 14/09/2024 09:38

@TreadSoftlyOnMyDreams is correct OP. The hospital staff will be under pressure to free up the bed. It is not down to you to you to find a solution to this, they need to assess your mums needs and do a financial assessment of your mum. Its not clear from your original post if this has been done.

Have a look at this guide - this is a link to an org called Beacon who can offer independent advice on whether you mum can access continuing healthcare which is funded by the NHS.

www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/nhs-continuing-healthcare/#:~:text=To%20be%20eligible%20for%20NHS,how%20complex%20your%20needs%20are

If this cannot be obtained for your Mum, then in Northern Island if your Mum has more than £23,250 she would have to pay for carers. Once her assets go below this threshold, she would be required to pay part of the care fees. Once below £14,250 then she will no longer be required to pay. Important to note this means test is purely on your Mums assets. Say you Mum and Dad have a joint bank account of £50k, £25k of that would be assumed to be hers in the assessment.

The home that your Dad is living in will not be included in the means test/financial assessment as he needs somewhere to live.

If your Mum and Dad had a joint by-to-let Property for example, this would be included in the means assessment.

Greytulips · 14/09/2024 09:37

Are you not claiming from the car insurance? She should be covered for long term care. There’s a separate claim - for injuries.

My sisters employer won 3 million 20 years ago.

What have the insurers said?

GlassLampshades · 14/09/2024 09:36

Henleylady · 14/09/2024 08:33

That is really helpful. Be careful what advice you get as care provision and financial support is really different across the UK.

https://www.ageuk.org.uk/northern-ireland/information-advice/care/find-care-support/ I would call a NI advice line on Monday - Age UK has one for example. Even if they can't help they should be able to signpost to others.

A quick Google has this - your mum may meet this...

https://www.ageuk.org.uk/northern-ireland/information-advice/health-wellbeing/health-services/nhs-continuing-healthcare/

Your social worker is unreasonable giving you a Monday deadline and no information about the support that is available.

Care is complex and you've got to know the system and also what to know what to ask about.

Thank you very much. It is complex and intimidating. I am hearing everything via my dad and he is understandably traumatised and scared and I'm not sure he is able to focus on the practicalities. I will try to be there on Monday when he meets the social worker. He wants to bring her home and feels duty bound to do so, so it's not easy having to be the "evil child" insisting on a nursing home. I'm doing it for my mum though as there is no way he could provide the appropriate levels of care outside of the care package, and he'd run himself into the ground trying.

I did ask him to raise the NHS continuing care assessment with the social worker but he forgot.

The specialist unit advises the nursing home. The social worker has said mum would have to fund it.

OP posts:
Mydustymonstera · 14/09/2024 09:36

The social worker will just be looking for a general idea of whether you’re open to nursing care or wanting mum home somehow. This is going to be a longish process and their role is to help and guide you through it. If you don’t feel that is happening , then say so.
Age UK are a good starting point, they do some downloadable booklets and guides on looking for care homes, what to ask, and how the funding works.
your dad’s home will be discounted from the financial assessment but any savings in her name only, or half of any joint savings, will be counted in.

Nsky62 · 14/09/2024 09:34

She should be getting PIP full rate, as she qualifies, or the equivalent, don’t be rushed into nursing homes.
is it possible for negative equity?
Also if the accident was not her fault, is their compensation from other party?Please discuss with care plan, and social worker