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Elderly parents

How to get someone into nursing care if they refuse? No capacity

37 replies

user12743052 · 02/08/2024 22:12

D parent has dementia and complex medical needs, the family member who's caring for them is unwell and DP needs emergency admission to a nursing home.

DP will refuse, scream, wail etc and also I don't have my own transport or anyone else to help. They have been certified as lacking capacity due to the dementia but have their wits about them enough to know we're telling lies if we say we're going on holiday. How on earth do I get DP to the nursing home? I can't pick them up and bung them into a car seat!

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ElizabethVonArnim · 12/08/2024 23:09

I'm sorry it's such a nightmare for you. It sounds so hard.

user12743052 · 12/08/2024 21:07

I wish it were that easy. No luck so far.

I know I should laugh but i'm so exhausted with all this chasing around trying to placate people going on at me because I'm not a miracle worker. If it's not the carer telling me I'm a useless lazy cow it's social work telling me I need to get DParent moved yesterday or DP moaning at me for not visiting enough when I've worked a 70 hour week. Fuck this.

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ElizabethVonArnim · 12/08/2024 20:28

Perhaps this could be a lucrative daytime sideline for the Chippendales?

GoogleWhacking · 12/08/2024 14:52

ElizabethVonArnim · 12/08/2024 10:36

How have you got on? It is such a difficult situation.

I don't suppose my mum's situation is replicable but thought it might raise a smile. Mum was sectioned with dementia/delirium/acute what-have-you and was being very aggressive and uncooperative until the driver of the private ambulance came in to help. He was GORGEOUS, the living spit of Thor! He just held out his hand and mum went straight with him giggling like a schoolgirl.

Maybe you could hire a hottie to lure her into a car?

Sorry but this made me chuckle and would 100% have worked with my aunt. Gutted I didn't think of it!

ElizabethVonArnim · 12/08/2024 10:36

How have you got on? It is such a difficult situation.

I don't suppose my mum's situation is replicable but thought it might raise a smile. Mum was sectioned with dementia/delirium/acute what-have-you and was being very aggressive and uncooperative until the driver of the private ambulance came in to help. He was GORGEOUS, the living spit of Thor! He just held out his hand and mum went straight with him giggling like a schoolgirl.

Maybe you could hire a hottie to lure her into a car?

Iwasafool · 05/08/2024 13:05

Hairyfairy01 · 03/08/2024 11:48

The SW will always start with the easiest / cheapest solution eg - get a taxi. So try that despite you thinking it won't work (or at least pretend you have). Then phone back the crisis team and say the taxi plan hasn't worked what do you suggest next? The likelihood is both police and ambulance will end up attending the house and she will be put on a temporary section whilst the ambulance crew transport her to the nursing home. You need to keep throwing this back to the crisis team. By all means try what they suggest but when that doesn't work you call them straight away to inform them and ask for more help.

I couldn't face doing that to her, it would have ended in violence. She visited one care home to see what it was like and punched the manager in the face and ran off down the road. If you had seen how frail she was you wouldn't believe it was possible. Fortunately the manager was very good about it and said he'd never seen someone with advanced dementia in their mid 80s who could give Usain Bolt a run for his money.

Iwasafool · 05/08/2024 13:01

Mum5net · 03/08/2024 12:43

Good luck, it was one of the hardest things I've ever had to deal with and I've said I will never accept LPA for anyone again as it nearly killed me (I ended up in the cardiac unit at our local hospital.)

This also happened to both my SILs.

I have to confess until this happened I had no idea how damaging stress could be. I was admitted as an emergency, they wouldn't even take my from A&E to the ward without first fitting me with a mobile defibrillator as my ECG was so bad. Had an angiogram and other tests, once I was away from the phone and stopped getting calls from SW, GP, police, her neighbours it all just settled to completely normal.

GETTINGLIKEMYMOTHER · 05/08/2024 09:03

My DM (pretty bad Alz. by then) would never in a million years have agreed to move to a care home - why, when according to her there was nothing wrong with her? - but it had become an urgent necessity - she was no longer safe to be left alone at all.

Having arranged it all, we took her ‘out for lunch’ - a 60 mile journey and I was petrified the whole time that she’d twig. The CH had asked us to arrive for lunchtime - the actual lunch was very nice, poor DM still didn’t twig when you’d have thought it’d be obvious that it was a CH dining room. She even offered to pay for us all! 😩. Not that she’d had any valid CCs for quite a while.

I took her with Dsis, Dbro and BiL followed a bit later with her things (surreptitiously packed the night before) and a couple of small pieces of furniture.

She was self funded and we’d never involved SS - didn’t need anyone else to tell us what her needs were - they were obvious enough! - except that the home we’d chosen sent a SW for an informal interview to ascertain that she did actually need residential care.

I was dreading the day of the move like nothing else in my life before, but it went better than we’d dared to hope.

I can’t say she was happy or that she settled very quickly, but by then there was no alternative.

Mum5net · 03/08/2024 12:43

Good luck, it was one of the hardest things I've ever had to deal with and I've said I will never accept LPA for anyone again as it nearly killed me (I ended up in the cardiac unit at our local hospital.)

This also happened to both my SILs.

Hairyfairy01 · 03/08/2024 11:48

The SW will always start with the easiest / cheapest solution eg - get a taxi. So try that despite you thinking it won't work (or at least pretend you have). Then phone back the crisis team and say the taxi plan hasn't worked what do you suggest next? The likelihood is both police and ambulance will end up attending the house and she will be put on a temporary section whilst the ambulance crew transport her to the nursing home. You need to keep throwing this back to the crisis team. By all means try what they suggest but when that doesn't work you call them straight away to inform them and ask for more help.

Iwasafool · 03/08/2024 10:21

user12743052 · 03/08/2024 07:45

Thank you for all your replies. I have POA, SW and medical assessments have all been done, self funding with some LA contribution organised. SW and medics, carers manager and I agree that an emergency nursing home placement is needed due to escalating medical needs and dementia.

@MsCrawford At home care isn't possible due to their complex medical needs, hence nursing care not just a care home. It's arranged, except getting them there.

@parietal @skibiditoilet Wheelchair + drive them isn't possible unfortunately as I can't drive. I can't say we're going to the garden centre, Tesco etc as I've got no car to drive them and nobody else who can help. GP useless.

I spoke to SW yesterday after a team meeting including the family member who cares for them and is ill. SW have been helpful otherwise but basically told me to "just" phone a taxi. Parent refuses to get a taxi anywhere and is generally very stubborn, bad-tempered and always gets their own way as their outbursts are such hard work - they are likely autistic. Significant meltdown now likely. They have for years said they would rather die than move to an "old folks' home".

I will try phoning the home and see if they can help, I think this must happen sometimes.

Edited

I had this and so many people telling you to "just take them" when it isn't that easy or thinking it is just a legal question. I think what you are asking is what I asked, "how do you physically do it" and it is all very well saying this that and the other should happen, be firm, tell them what is happening when they won't actually move.

SW said all they could do was send the men in white coats to do it by force which I couldn't do. I even had backing from the police who were getting tired of the phone calls about the little green men in her loft who were keeping her awake, emergency calls from carers who had been locked out, complaints about her running up and down a busy road, a main route into the city where she lived. Still we got no practical help.

In the end we hired a private SW, he found the right home, a fall meant a trip to A&E and SW collected her with a bunch of flowers and said he was taking her for a trip out and a meal before she went home. Her carers had packed her stuff and he took her to the home. She didn't twig immediately but kicked off when the penny dropped. Hats off to the home as she put them through hell for a few weeks, phone calls to the police, setting off fire alarms. Poor young male carers were used to "charm" her and I often wondered if a young woman would be used in the same way with an old man without boundaries but that is a different question. Then she settled.

Good luck, it was one of the hardest things I've ever had to deal with and I've said I will never accept LPA for anyone again as it nearly killed me (I ended up in the cardiac unit at our local hospital.)

user12743052 · 03/08/2024 10:19

@Misthios yes, the problem is how stretched services are - nurses, social work, GP, my employer and colleagues. There's no slack in the system. No siblings or other family to help (parent fell out with them all).

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user12743052 · 03/08/2024 10:15

@tippitytop 24h care isn't possible as the complex needs require a nurse. Too much even for community nurses + live-in (I spent a while trying to get this sorted and got nowhere).

Taking more time off is really impossible, colleagues are on annual leave, my job can't be left without cover and I've already stretched colleague goodwill recently. Basically I'm in the middle of a lot of people saying "can't help, sorry". It would be OK after the summer holidays but not now.

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Misthios · 03/08/2024 10:05

@user12743052 I really empathise. My dad did not have autism but dementia changed him hugely into this anxious, paranoid person. He couldn't cope with ANY deviation from the normal routine of just him and my mum, even my sibling or I visiting for lunch was an enormous issue, someone coming to service the boiler or similar meant he was unsettled and worried for days about strange people in the house.

I also understand - as many others will too - that social services are so stretched and can't just deal with it, so they expect family to pick up the pieces. You just need to stand very firm in face of the guilt tripping about what other families do, or couldn't you just... or that it's just for a short period.

Good luck - do you have siblings who can support you in this?

tippitytop · 03/08/2024 09:55

@user12743052 as others have said you need to keep throwing it back at your SW - the mental health act isn't always able to be used, sometimes the court of protection route for a deprivation of liberty order needs to be gone down. Are there no other options like 24hr care at home? i have rather horrible memories of taking a parent on a 4hr car journey in the midst of a psychotic episode because the nhs wouldn't transfer them back to their home city! i know you don't want to take "2 wks off work" to persuade them but sometimes things are most definitely easier when you are in the same city, we had a horrendous time trying to be in 2 places at once. Professionally i would say the only other thing to do if all else fails is to disavow all responsibility for your parent , in my NHS time i did literally see family members rock up with someone in a wheelchair & a suitcase and leave them at the door!

GivePeopleGrapes · 03/08/2024 09:41

@user12743052 yes, the first time we approached social services, we were patted on the head and gently dismissed. They suggested my 80 yo relative could apply for carers allowance to continue looking after their sick partner when they were sobbing saying they couldn't cope. Rather quickly, this escalated when I gave written and photographic evidence of things like the condition of their house and the actions that were physically dangerous to themselves and to others. My parent wouldn't engage with social services and in the end they were sectioned. They were in hospital for nearly a year while a suitable placement was found. During that time, their assessments showed that although they had a good facade, they had no skills behind it, and their lack of insight into their condition made it hard to support them.

Good luck x

user12743052 · 03/08/2024 09:28

@GivePeopleGrapes thank you I think this may be the route we have to go down. Their SW is inexperienced and I might need to escalate it to discuss a possible solution like this.

I think they will be OK once in care but it's the fear of the unknown, naturally enough.

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GivePeopleGrapes · 03/08/2024 09:26

Ok I've been here. Literally, with a parent with dementia and undiagnosed autism. Feel free to pm

You will need to explain the ways in which the person is a danger to themselves and to others, and that you can't provide the care they need to support them and keep them safe. They will need to be sectioned under a Section 2 of the Mental Health Act (up to 28 days for assessment). If it is found that they need further treatment they can apply for a Section 3 hold which also means that Section 117 aftercare kicks in.

GoogleWhacking · 03/08/2024 09:24

A&E in ambulance. Nursing home team collected them from Hospital and took them directly to nursing home

This was had to happen in my case. Social Services said we had to back off helping until they failed on their own. It was horrible, but it took less than a week for her to fall and get admitted to hospital. It is hideous that that was the only way we could get her support and she broke her elbow in the process. I had a LPA but was still unable to do anything.

user12743052 · 03/08/2024 09:21

@Helenloveslee4eva the wheels have fallen off hence it being an emergency admission. They can't wander and get picked up by the police as they are not mobile; they are at home and at risk of a medical episode which can result in death within a few hours. Their carer is on their knees and seriously unwell.

I have already contacted the crisis team who have helpfully suggested getting a fecking taxi. I also live 180 miles away and cannot just take 2 weeks off work for a fortnight of protracted negotiations, incessant crying and attempts at persuading the stubborn old bugger.

GP is useless. Sedation is unethical apparently.

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Anewuser · 03/08/2024 09:19

SeaToSki · 03/08/2024 08:06

Would something like this help? They handle people with MH crises

https://emapatienttransport.co.uk

I never knew this existed. We have a motability wheelchair van but don’t use it enough for their liking. We couldn’t think of a suitable way to get to hospital appointments etc but this service seems perfect.

Sorry to derail the initial post.

@user12743052 I’m sure it’s probably not allowed, but what about asking the GP for medication? Maybe a sedative would help?

Misthios · 03/08/2024 09:06

Hairyfairy01 · 02/08/2024 22:59

You need to contact the crisis team in adult social services. They will need to ensure people are acting in your parents best interest if they do not have capacity to make this decision themselves.

This.

I contacted them when my father was declining and was at the stage where he was not safe to be left unattended even for 3 minutes. I was worried what would happen to him if anything happened to my mother. The very nice social worker I spoke to explained that they had a 24 hour emergency line which I could call and they would take over and keep him safe.

We talk about "sectioning" in terms of people who have serious mental illness but it can also be used to keep people with dementia safe, and take them somewhere they don't particularly want to go.

Helenloveslee4eva · 03/08/2024 09:00

The only answer is wait till the wheels fall off ( and allow them to do so 😢) so eg they fall , are found wandering by police , cause a public disturbance or just get too ill to refuse. It’s very hard.

it is possible to take someone for medical attention by force in an emergency but usually involves waiting till patient weak . Police will intervene if danger to self / others in public place.

good luck. Been there. It’s awful.

Mum5net · 03/08/2024 08:50

@SeaToSki Just saw that it operates in MIL’s area. If only we’d known of that one. MIL was a prisoner in her own upstairs with fluctuating capacity for 18 months. Would not venture downstairs as she was too scared- even with a stairlift. Then lost all her muscle tone.

user12743052 · 03/08/2024 08:35

@SeaToSki that's an idea, thank you, I hadn't thought of that. I'll see if there's something similar near parent.

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