Please or to access all these features

Elderly parents

How do I stop feeling resentful?

87 replies

Strikingthebalance · 01/08/2024 11:22

I want to apologize in advance for sounding like a horrible person or resentful but I am struggling with things right now and would welcome any advice from anyone who has been through similar.

Caring for an elderly family member while they recover from major surgery so about 4-6 weeks as minimum. The hospital were awful in terms of post-op support and we’ve had to hire a frame and commode etc from a private company.

They need help with everything e.g. help to get out of bed, help to the toilet, help wiping on the toilet, help to stand up, help to walk from the toilet to the chair, help to get washed and put on deodorant, help to get dressed, help to get food, take pills, etc.

It feels like a lot, but I am doing it all because that’s what is needed. This is as well as running their house in terms of cooking, cleaning, washing etc.

We are 10 days in and the endlessness of it all is really getting me down, as I need to be available almost 24/7. I am needed for the morning routine from 6am and that takes an hour to do all that is needed to set them up for the day.

I get small breaks while another family member is around during parts of the day/ evening but that’s usually smaller things e.g. getting drinks, meds, food etc, and I am still needed for things like toilet trips etc so cannot go far.

It’s reminding me a lot of covid lockdown where we couldn’t leave the house as I feel like I cannot go far for fear of being needed. They also don’t want me to go anywhere busy or mix with people inside where possible as they’re worried about any germs I could bring home to them and make them ill.

When I’m not doing all of the above they want to chat, and find it hard to understand that I need some down time, even if that’s a nap or just sat on my own in silence in the garden or similar.

They are crying a lot because they say I’m not spending enough time with them and it’s lonely for them etc, which I do understand, hence the guilt for needing some time away. I am getting lots of little comments like ‘oh you’re on your phone I won’t waste my breath talking to you.’ I’ve explained I am listening but don’t always respond immediately. I feel like I am being treated like a teenager and mobile phones were not even around when I was an actual teen many moons ago!!

A friend said it’s like caring for another child, but it’s not at all, which I tried to explain. It’s a world away from that and in my personal experience bringing up kids and running your own house is far easier and very different.

We’ve had an up and down relationship in the past and I’ve certainly experienced struggles but I worked through loads of that in therapy and we’d reached a good place. This is all stirring up a lot of those feelings.

I just don’t see how I can continue to do this for the next 4 and a half weeks day in, day out (and possibly longer after that).

Incase anyone suggests it, they couldn’t afford care from outside support or an agency and have said they wouldn’t want anyone they didn’t know helping them with everything anyway.

How do I find the balance of not feeling so guilty and resentful all the time, having some time for me and being there for said family member all the time too?

Thank you of your read it all, I never meant for it to be this long! 🙈

OP posts:
Strikingthebalance · 04/08/2024 10:05

I have tired to negotiate a later get up time but she’s said she’s not able to as being in bed hurts her.

There’s been a lot more crying and she’s said she’s counting the hours through the night till 6am so I need to do this for her. She said I can go back to bed once I’ve got her sorted but once I’ve been up for an hour it’s she’d to go back to sleep.

She said if I went to bed earlier then I would be more reasonable and able to get up at 6am and give her the time she needs. She said this has really opened her eyes and although it doesn’t stop her loving me she never wants to be dependent on me again as it’s clearly a burden for me.

She’s told me she shouldn’t be starting the day like this and I haven’t once asked her how she slept or anything and she’s just a chore to me and I’m not interested in her. She hopes one day will be able to reflect on how I’m behaving.

I am trying to see this from her perspective and have said I will try and do better.

i am doing less in the day now than i was when I started this so can take some breaks as other family member is doing more of those things like prepping food and making drinks, although tbh I think I’d find that easier. I did ask about swapping/taking turns more but they’re not good in the mornings so won’t work. 😐

OP posts:
justforthisnow · 04/08/2024 09:39

FloralPunk · 04/08/2024 09:07

I think sooner rather than later, as poster would get help working out what she is willing and able to do. This is meant to be short term but parent might end up controlling all of OP's life going forward

I get a sense the patient is already controlling the OPs life.

Allthegoodnamesarechosen · 04/08/2024 09:29

When I was looking after my relative after their hospital discharge, I made a rule with them that from 2pm to 4pm I was ‘off’ ( even if I spent that time watching Tv in my bedroom, I was not ‘in’.) A bit of push back, until I pointed out that in hospital there was a nurse ( several shifts) a kitchen with cooks, a ward orderly to clean, the physio and a very nice woman who pushed a trolley with newspapers and chocolate on it and would stop for a chat. At home there was me.

luckily they cooperated. If your relative won’t, you are going to have to leave the house for your break time. If they want someone there 24/7 , they must accept other help.

BTW the infection thing is batshit and sounds like control freak to me.

BarHumbugs · 04/08/2024 09:16

It's hard but you've got to be honest with them. Either they let you have a break occasionally by getting in some help and allowing you some down time, stop with the emotional blackmail and stop dictating what you can do when you go out or you're leaving and they'll have to go back to hospital.

If they pull the same shit as this morning just say goodbye, leave and call social services. You've already done over and above what most people would do.

CrotchetyQuaver · 04/08/2024 09:16

YABU, you've been manipulated here. If they truly didn't have enough money to pay for help it would have been forthcoming.

The rest of it, I feel for you. I'd start going out for short periods for a break.

FloralPunk · 04/08/2024 09:07

justforthisnow · 04/08/2024 08:35

And when the dust settles on this episode, look at the site mentioned by another poster above, Out of The Fog. A pinch point is not a good time to start enforcing boundaries based on decades of expected ways of behaving, but when that passes take the time to work on those issues, before the next episode happens Flowers.

I think sooner rather than later, as poster would get help working out what she is willing and able to do. This is meant to be short term but parent might end up controlling all of OP's life going forward

justforthisnow · 04/08/2024 08:35

And when the dust settles on this episode, look at the site mentioned by another poster above, Out of The Fog. A pinch point is not a good time to start enforcing boundaries based on decades of expected ways of behaving, but when that passes take the time to work on those issues, before the next episode happens Flowers.

justforthisnow · 04/08/2024 08:32

The options mentioned above need to be explored - the care available post surgery (re-enablement?), and also some private care options need to be looked at, even 1 hour a day.
Why the 6am starts? Are there meds that need to be given at that hour? If not, I'd start there and move that out to 7am, non negotiable. Or else a private carer does it if the patient wont budge.

eggplant16 · 04/08/2024 08:27

Hire a private carer to give you a break.

FloralPunk · 04/08/2024 08:22

Strikingthebalance · 04/08/2024 08:07

I am finding the 6am gets up hard going every single day. I tried to communicate that today and negotiate (the morning routine takes anywhere between 30mins - 1hr) but this was not well received and I got tears and all sorts and made to feel like I am being unreasonable and selfish.

This is not normal caring . Sounds like you're dealing with somebody very difficult. It's very difficult to say no when you have been brought up like this 💐
Suggest you have a look at the Out of the fog website for some ideas

Strikingthebalance · 04/08/2024 08:07

I am finding the 6am gets up hard going every single day. I tried to communicate that today and negotiate (the morning routine takes anywhere between 30mins - 1hr) but this was not well received and I got tears and all sorts and made to feel like I am being unreasonable and selfish.

OP posts:
FloralPunk · 03/08/2024 11:55

How are you OP? If your person can't afford private carers, I'd recommend speaking to their GP or the hospital ward they were on to find out about adult social services. You can't go on like this!

CharlotteLucas3 · 02/08/2024 15:50

I’m my mum’s carer but her needs are fairly minimal. They mainly involve her entertainment - she needs to talk about crap constantly. It feels like I have an alien attached to my head with its tendrils worming their way into my brain. She’s so so needy and I’m an introvert with very limited energy….all of which is being drained by her.

Anyway, I probably sound like a bitch. But the point is that they lose their empathy (if they ever had any to begin with) and if there’s no one else around to help support you, then you have to do that for yourself. If you don’t set boundaries and enforce them, you’ll snap or your body will make the decision it’s had enough and you’ll become ill.

Why are you doing this anyway? There is absolutely no way that I’ll be wiping my mother’s bum.

Lexy70 · 01/08/2024 20:22

Poor you it sounds a nightmare. I did four days for my husband post a foot op and that was enough. It is relentless and suffocating as you say.
You are on duty from 6am it sounds exhausting. Surely your parent is improving post op and regaining their abilities. Make sure you aren't encouraging dependence, I mean that kindly but I'm sure by this stage your parent could be attempting to wipe their own bottom.

You need to take time and nap, chill and have time on your own to recharge your batteries.

I'm guessing this is your mother by the nasty little things she is saying, but jeez not spending enough time with her! What more could you possibly give you are giving your every waking minute to her.

You have my full sympathy but please don't keep doing this for another 4-6 weeks. As one single person it is physically impossible and you will burnout physically and mentally. Please step away and look into reablement and such services. Look after yourself xx

Words · 01/08/2024 17:11

I am so sorry OP. You are not horrible.

The hospital and social care team should have sorted this out. Referral to re-enablement service, plus provision of aids. I am not sure what can be done retrospectively but I would definitely investigate this. Age UK can be helpful.

Next time- and there will absolutely be a next time- you say ' this is an unsafe discharge. I cannot provide the care s/he needs'. Grey rock.

Check out cockroach cafe on the elderly parents thread asap. Many in the trenches on there, as well as some graduates.

Strength to you. FlowersCake

I8toys · 01/08/2024 16:22

You're not selfish. They should have either kept them in hospital longer or arranged some help on their exit. Has someone said they have carers at home? Or was it assumed?

It always make me mad when they say oh I don't want strangers doing this for me, they did it in hospital for them with no complaints. I don't know why it should change at home.

EmotionalBlackmail · 01/08/2024 15:52

Do you normally live there? What about your own house?

What do you normally do with your time? Could you maintain at least some of that for your own sanity eg work, volunteering, meeting with friends, exercise class?

showeringthisaft · 01/08/2024 14:56

I wouldn't be able to do what you're doing so hats off to you, nothing to feel guilty about.

Is there any reason why you didn't access carers rather than take it all on yourself?

AmaryllisNightAndDay · 01/08/2024 14:26

Your relative is behaving like a child but you are reacting as if they are your parent. I guess they are?

Instead of getting resentful you need to get tough. You need to look after yourself, mentally and physically. Yes you will help them out, but not all by yourself; and yes you will spend some time with them but not all the time. You can't be at their beck and call 24/7. That ways lies not just resentment but illness for you, and what help will you be then? Blank out the guilt-tripping. If that's their style then it's no wonder you didn't used to have a good relationship.

As for germs, you can't live like a prisoner to keep them feeling safe. Has a doctor told you that your relative needs to be isolated? Take sensible precautions against infection but not more than a carer would take.

Nobody wants to be cared for by strangers but sometimes it is necessary. Your relative needs to get used to carers because they may need care again in future and sooner or later you wont be able to do it all for them. Now is the time to start putting some of the help they need (but don't want) in place so they have time to adjust and start getting used to it as they recover.

Happyinarcon · 01/08/2024 14:12

They are crying a lot because they say I’m not spending enough time with them and it’s lonely for them etc, which I do understand, hence the guilt for needing some time away. I am getting lots of little comments like ‘oh you’re on your phone I won’t waste my breath talking to you.’

You are feeling exhausted because they will never turn to you and say, thanks you did a great job and I’m fine just watching tv for an hour or so. They will only ever try to guilt you into giving more and more of yourself until you will actually get sick. Nothing you do will be enough to make them happy and it’s mentally exhausting to be on such a hopeless treadmill.
This is a good time to practice boundaries where you get to be the one who decides how much time they get. They will be miserable either way but at least you will stay sane.

EmotionalBlackmail · 01/08/2024 14:08

You need to contact the hospital or SS and explain you can't do all of this. I had to say no to this - no way could I afford to take 6 weeks off work to go and live with them to provide care after an operation. Although there was a bizarre assumption this was an entirely reasonable thing to ask of me!

They got two weeks in residential care, then four weeks at home with carers.

MissMoneyFairy · 01/08/2024 13:50

Get in touch with their gp and adult social services, they should have had a care needs assessment, home and financial assessment , reablement or home care set up before they went home. You or someone will have to tell them this is unsustainable and they either get carers, equipment, adaptations in or they need to go to a carehome or rehab unit to recover. There's no way you can carry on like this.

OptimismvsRealism · 01/08/2024 13:40

You are a good person op. I won't do this for my parents. Could you have left your relative in hospital? I would do that. Worried about how much the system might try to force caring on me. No way, I'm not a caring person.

Froniga · 01/08/2024 13:37

AnnaMagnani · 01/08/2024 11:38

You are not unreasonable, it is a lot of work!

Can you get GP to refer to your local Reablement team as caring for people who need additional support after a hospital admission is exactly what they are for.

Absolutely this. Hospital should have set this up prior to discharge. My mother needed same amount of care following hospital discharge from breaking her arm. She had told hospital staff that she didn’t need need any assistance her daughter would do it all.
I was working full time at the time and no chance that I could take 4-6 weeks leave to provide the care my mother needed. She had the hospital arrange care and it went well. Get on to the hospital and tell them you can’t go on doing this.
good luck

BeaRF75 · 01/08/2024 12:56

Unfortunately, you got sucked into this rather than just saying "no". In which case, as mentioned, carers would have been arranged.
Just try to cut back as much as possible and speak to Social Services and/or charities re any help they can give. It's absolutely not your job to do any of this, OP.