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Elderly parents

Mum has dementia and refusing help

58 replies

notanaturalmum · 25/06/2024 23:52

My mum has mid to late stage dementia and lives at home with my dad. They are late 70s.
My dad tries his best to care for her - cooks/cleans/encourages her to take her meds. i visit once a week to give my dad some respite.
Home instead visit every day so my dad can leave the house to go for a walk etc.
My mum is starting to struggle with personal care and wont accept help from anyone. She hasnt had a bath in weeks and we've
all tried to encourage her but shes having none of it.
she complains of pain in her foot, we cant get her to take her socks off, she won't let us or the carers or the chiropodist near. she's not brushing her teeth either.
she changes outfits multiple times a day but sleeps in her day clothes as shes quite confused with time. And she shuts the door and won't let you in to help when she's changing
the carers can't really force her against her will and we're worried for her hygiene.
what can we do. we can't hold her down or force her - she has hit my dad whilst he was trying to look at her foot.
I'm worried for the long term - if she has a sore on her foot it's just going to get worse without intervention.
we've tried all the health care professionals, they are very sympathetic but the advice doesn't really work.
i was actually contemplating sedating her today so that we could look at her foot but I'm sure thats illegal.
we want to support her but its nigh on impossible.
any suggestions please?

OP posts:
notanaturalmum · 26/06/2024 23:48

I have POA but I haven't really exercised it in that I already liaise with doctors/carers so at this point it isn't offering anything extra. I can't use it to force my mum to receive treatment.
I would rather in home care rather than a care home mainly because there is no way she'd go of her own free will. Its such a struggle to get her to leave the house. Even to stand on the front steps to take a family photo is a feat in itself.
Quick back story, my dad has terminal cancer so it's assumed that my mum will go in a home once he passes as long term i cannot manage my mum.
I have a FT job plus two kids. My sisters live further away but still in uk. They are helpful but i do the lions share (even though they both dont work full time or have kids but never mind). So maybe a care home later when we have no other option.
We can get a nurse to the house but mum just doesn't co-operate. Blood tests/blood pressure checks - she just refuses and the people leave empty handed.
I could cope with the reduction in hygiene I guess but she needs to brush her teeth.
I just want to know how other people have managed in similar situations x

OP posts:
Hairyfairy01 · 26/06/2024 23:12

You need a capacity assessment. Then district nurses / podiatry can look at her feet without consent but 'acting within best interests'.

TallulahBetty · 26/06/2024 15:21

Any POA?

olderbutwiser · 26/06/2024 15:21

Refusing hygiene seems to be a pretty common phase. How much of a problem is the hygiene issue, really? Can you live with it for a while, as it may pass? Similarly the changing of clothes and sleeping in her clothes - in the grand scheme of things does it really matter? Trying to control it may contribute to her confusion and anger.

The foot is more of an issue - but she really won't show it to anyone it will either get better by itself, or it will get worse. If it gets better that's fine; if it gets worse then she may decide she does want someone to look at it. And if you can bring yourselves to let the hygiene issues go for a while to reduce the tension she might be happier to show it to you.

It can be very very difficult to give someone with dementia the care you want to. Sometimes you just have to accept that their world is now different, and focus on what really matters to their wellbeing.

TheShellBeach · 26/06/2024 15:18

It sounds like she'd be better off in a care home.
Her dementia is going to get worse. She needs proper nursing care.
What does your dad think?

MissMoneyFairy · 26/06/2024 15:15

Ask fir a capacity assessment, dies anyone have power of attorney. No you can't sedate her against her will, has anyone tried offering a foot spa, you could all do it, say its good for your feet in this hot weather.

funnelfan · 26/06/2024 15:07

That sounds very difficult. I’m sorry I don’t have any suggestions other than going back to the healthcare professional and try to make it their problem (because it will end up on their plate if she does become unwell).

Asbopheasant · 26/06/2024 14:00

Have you thought she may need a home? My mother in law went through this, even though we had a care package in place it had come to a point that she needed more help. Can you speak to her doctor/social care team?