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Elderly parents

Hospital lied! Wwyd?

29 replies

ReallyBadEyeDeer · 28/04/2024 11:36

Hi I don't know if there's even any point making a fuss about this but am so hurt and angry. Elderly parent has been in hospital a long while following fall and confusion. Much better now but still comes out with very odd things and routinely believes they are somebody else, are in a different place, that things have happened which haven't or people are different to who they actually are.

Hospital is now preparing to discharge as nothing physically wrong, asked me if I still had any concerns and I said yes as they still seem intermittently delusional, occasionally very angry (quite verbally agressive) towards me, and various staff members at the hospital have mentioned suspected dementia to me but apparently they're not allowed to make a dementia diagnosis whilst in hospital- I stated that concerns me as I will not be able to provide care when they come out and elderly parent lives alone.

Discharge notes have come through saying I - not they- had reported elderly parent showing signs of severe dementia since going to hospital. Plus a range of other misquoted things taken completely out of context. They say very little about their own observations other than that a cognitive test was done and give the score which is exactly on threshold for dementia (again, not stated in the report). It's all things I've said. Plus a recommendation fir further assessment once discharged.

Of course my parent is now incredibly cross with me because it looks like I'm saying they've got dementia and am the one that's kept them in hospital all that time. I feel like I've been totally stitched up and am now left not only having to deal with someone undiagnosed but possibly with dementia, certainly delusional, when they come out but also now who doesn't trust me and with a fractured relationship. This has also gone to their GP which isn't going to help my relationship with them if ever needed.

Is there even any point putting in a complaint? What should I do? Its been an awful time anyway and this just feels like a kick in the teeth.

OP posts:
Lampan · 28/04/2024 11:52

In my experience, trying to get a dementia diagnosis is extremely difficult. It’s not in the hospital’s or indeed the GP’s interest to make a diagnosis. The cognitive tests are nonsense too. It makes me so angry, surely a relative noticing something isn’t right should be taken seriously? But it is easier for doctors to minimise and deny these concerns.
Rant over. It’s shit OP but you won’t be the only one who has been here

Octavia64 · 28/04/2024 11:52

No point putting in a complaint.

You may be best advised to act as if your parent already has a dementia diagnosis since in my experience very little support is offered following one anyway.

Are they likely to remember the letter?

Many people with dementia are able to be relatively safe and look after themselves in their own home which is a familiar environment with familiar routines and activities.

Do you have specific concerns?

ReallyBadEyeDeer · 28/04/2024 11:46

INeedNewShoes · 28/04/2024 11:42

I wouldn't worry about what the GP will think. They know that hospital letters often contain mistakes. They will also know that adult children are often the ones to spot dementia though and they might be able to support your DM through a diagnosis.

I don't think it's worth complaining unless you will benefit yourself from writing a letter to feel as though you've done something about it. I'm not belittling what has happened; I'm just aware that only the most serious of complaints are likely to be dealt with satisfactorily so I don't think you would get a useful response and it'll just drag things out.

That's what I suspected re: not being worthwhile. I'm just so cross at the damage they've now done to my relationship, which already was not good and they've made it even harder just so that they could get elderly parent discharged and still cover their conscience that they'd flagged the issue without needing to make a "diagnosis" themselves. They've kicked the can down the road to me instead.

Unfortunately I already don't have a great history with the GP - elderly parent has complex mental needs and I tried to flag issues a while back before they ended up in hospital but GP said they wouldn't get involved in family matters. So I don't think they will be thrilled to see my name on those notes again. I don't even want to be involved! I'd love to wash my hands altogether but they have nobody else so I have some ethical / moral obligation

OP posts:
INeedNewShoes · 28/04/2024 11:42

I wouldn't worry about what the GP will think. They know that hospital letters often contain mistakes. They will also know that adult children are often the ones to spot dementia though and they might be able to support your DM through a diagnosis.

I don't think it's worth complaining unless you will benefit yourself from writing a letter to feel as though you've done something about it. I'm not belittling what has happened; I'm just aware that only the most serious of complaints are likely to be dealt with satisfactorily so I don't think you would get a useful response and it'll just drag things out.