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Elderly parents

Why is there so much stigma around 'putting them in a home'?

235 replies

Sittingontheporch · 02/04/2024 13:07

Hi, I'm a frequent botherer of this board, but have changed username so I can be free with details and not worry about outing myself. And because the subject is one that makes me itchy with shame and fear of judgment, which is kind of the point of my query.

I feel there's so stigma and taboo around an elderly parent going into a home, an implied failure or dereliction of duty from the children. Phrases like 'never put me in a home', or 'they put her in a home', or 'I'd never let my parent go into a home'. As if it's akin to prison rather than being a measured shared decision around a situation.

Or am I paranoid?

Our situation is that my mother has advanced dementia and low-to-no mobility. She lives in a four-bedroom house about two hours drive from me and my brother (and an ocean away from my other sibling). She has always said that she wanted to move into a care home nearer to the two of us. Then when my father died, she said she wanted to stay in the house for a year with the full-time live-in carer that we had employed for him (it went up to two in his last months). It's now six months on and we've reached a crossroads. The house needs urgent adaptations to make it safe, plus a whole load of other things doing as it's falling apart. She says she wants to move and is even excited about it, but I don't know if she fully understands how much space, familiarity and her possessions she'll be giving up.

The three of us are agonising over the decision in rotation, especially the one who lives abroad. We've also had lots of 'helpful' suggestions from her friends, some of whom have told us that they're very upset by the move. Things like 'have you thought of moving her downstairs', 'have you thought of moving closer to her' etc, etc.

I think they're projecting as they wouldn't want to go into a home, but they're currently fit and well.

I just wish it didn't feel as if society judges it so negatively.

OP posts:
VelvetDragonfly · 02/04/2024 19:11

mrssunshinexxx · 02/04/2024 18:31

Why do people on here hound on a sensitive situation you no nothing about ?! @EmmaEmerald @VelvetDragonfly
She had a flat and he's sold it !
I have 3 young children of my own it isn't my job to care 24/7 for my nan not that she needs that. If my mum was still alive this wouldn't be happening, sickening really given she wasn't even her mother. But my father lived 20 yards from her flat is fully able and retired. It's a sad sad state that he's that uninterested.

Because you're talking nonsense. Blaming someone for not doing what you want them to do. Your Dad doesn't have to give up his own life to become a carer if he doesn't want to. Nobody has to do that. It doesn't make the person a bad person if they don't want to be a carer. How close he lives is irrelevant. So he wouldn't have travelling time and fuel costs, big deal. He'd still have to do all the work involved in caring for someone and running their life. It's physically demanding and takes a lot of time.

The only way your Dad could have sold your Nan's flat against her will was if he had power of attorney for finances. Even then, legally he has to make decisions that are in your Nan's best interests. If you or your Nan didn't/don't think it was in her best interests, either of you could have spoken out to the authorities at the time or at any time afterwards. Since your Dad hasn't been prosecuted for selling your Nan's flat, it must have been deemed to be in her best interests then.

The fact she had a flat and it was sold doesn't change the fact that if she has mental capacity and physical capability to care for herself, there's nothing to stop your Nan from renting a flat and moving out of the care home now. Most flats don't cost £1800/wk in rent, she'd have plenty left over for bills and going out. I'm guessing she hasn't done this because the care home probably is the best place for her to be.

mrssunshinexxx · 02/04/2024 19:08

@funnelfan no thanks I'll take her for her word. I visit weekly / twice weekly and see her mobility. Leaving this thread now.
Not proving anything to the OP everyone's situation is different. I'd of done anything to care for my mum in old age so I come at this from a very different view point to most.

lotsofdogshere · 02/04/2024 19:04

Thanks for this thread sittingontheporch. I’m mid way through my lasting power of attorney forms for health and money. I’m 75 tomorrow, my husband died recently. We’d got onto his LPA when he became ill - you’ve prompted me to finish mine.

we Cared for our parents so have good understanding of what’s involved. I wanted to bring my mum in law to live with us wheel cancer meant she qualified for end of life care - 18 weeks life expectancy. She’d lived in her own home with our support till them. No dear, she said - you’re very happy and I won’t wreck that. She’d cared for her father for several years.
she went into a nursing home 2 miles fro us. We visited daily as did our daughters/partners. She died 12 weeks later.

I don’t want to lose my independence and I don’t want my lovely daughters lives dominated by my increasing needs.
dont feel shame x

funnelfan · 02/04/2024 19:00

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I think you’re proving the OP’s fears about judgy people quite well there. As I said It doesn’t matter what she was capable of prior to breaking her hip, it’s what she can do now that matters. If she’s had a prolonged hospital stay after breaking her hip and some respite care in a nursing home then it is very likely she’s deconditioned enough to warrant being in a home, particularly if she wasn’t assessed as being safe at home with a care package.

It’s also very common for elderly people to vastly overestimate their own capabilities, so I’d take whatever she’s telling you about it with a pinch of salt.

mrssunshinexxx · 02/04/2024 18:46

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inappropriateraspberry · 02/04/2024 18:43

My mother is the opposite to most. She has always told me to out her in a home when needed! She doesn't want to hold us back and would hate us to feel bad about doing it. Thankfully she is 80 this year and still with it!

Hoplolly · 02/04/2024 18:42

It's people with no lived experience. If you have a family member with advanced dementia it can be the safest and best place for them.

funnelfan · 02/04/2024 18:42

mrssunshinexxx · 02/04/2024 18:33

@Sittingontheporch she's mentally fine a little forgetful since breaking her hip and going to hospital then a nursing home, prior to this she was washing her self , cooking , doing what she needed to do. My dad could have cooked her a meal at dinner time and ran the hoover round for her , picked up prescriptions that's literally it. It's appalling really how so many think this situation he's done the right thing. People that have young families / still working I totally understand why they can't do much for elderly parents but he's retired and lives 10 seconds from her flat door!

It doesn’t matter what she was capable of prior to breaking her hip, it’s what she can do now.

My dad could have cooked her a meal at dinner time

And what about breakfast and lunch? Cups of tea and snacks? Who would do the food shopping plus toiletries and household items such as toilet roll and cleaning supplies?

ran the hoover round for her

who would clean the toilet and bathroom and kitchen? Wipe down the surfaces in the rest of the flat? Do her laundry? Do any necessary maintenance?

picked up prescriptions

who would order those prescriptions? Take her to the doctor for her check ups, and make sure she’s taking the medication at the right time and dose?

You have no idea.

Towerofsong · 02/04/2024 18:39

I think it's a stigma left over from the days when homes were pretty awful. Back in the 1970s-1990's they weren't great, and that is what people who are now elderly grew up seeing if they had elderly relations who were 'in a home'.

I will say that it really is important that the person themselves is on board with the benefits of being in a home, such as social contact and someone to do all the work for them. People that go in and are not very on board with it, or who don't get a chance to pack and 'say goodbye' to their own home first, tend to not do very well and deteriorate quickly.

Sounds like your mum is on board with this and she has had a year to process the loss of her husband and get ready for the change, so it will probably be a good move for her.

mrssunshinexxx · 02/04/2024 18:35

@funnelfan my sister, and I visit my nan obviously and she tells me! Fucking hell

mrssunshinexxx · 02/04/2024 18:33

@Sittingontheporch she's mentally fine a little forgetful since breaking her hip and going to hospital then a nursing home, prior to this she was washing her self , cooking , doing what she needed to do. My dad could have cooked her a meal at dinner time and ran the hoover round for her , picked up prescriptions that's literally it. It's appalling really how so many think this situation he's done the right thing. People that have young families / still working I totally understand why they can't do much for elderly parents but he's retired and lives 10 seconds from her flat door!

CHEESEY13 · 02/04/2024 18:33

I think part of the problem of "putting them in a home" is the unspoken guilt that comes with the feeling "could/should we have done more?", but mental and physical endurance has limits and once exhaustion overtakes you then there's not much choice.

More urgently is when a person's home is sold to pay the extortionate fees and they repeatedly ask "what about when the money runs out?" every time you visit them. They are literally terrified that the care home will boot them out.

mrssunshinexxx · 02/04/2024 18:31

Why do people on here hound on a sensitive situation you no nothing about ?! @EmmaEmerald @VelvetDragonfly
She had a flat and he's sold it !
I have 3 young children of my own it isn't my job to care 24/7 for my nan not that she needs that. If my mum was still alive this wouldn't be happening, sickening really given she wasn't even her mother. But my father lived 20 yards from her flat is fully able and retired. It's a sad sad state that he's that uninterested.

KalaMush · 02/04/2024 18:30

Oh yes sorry, I guess the retirement living accommodation is more like 3.5.

EmmaEmerald · 02/04/2024 18:28

KalaMush · 02/04/2024 18:18

OP could you / your mum consider option 4.5, a retirement living flat? I think that can work well for people who don't yet need full time care.

She has full time live in care now AIUI.

it's not enough - it takes a team in a lot of situations. A retirement flat is the lightest of help really, it's not between 4 and 5.

also, why is 4 as hard as 2?

VelvetDragonfly · 02/04/2024 18:26

mrssunshinexxx · 02/04/2024 14:04

At £1800 a week, they do. @funnelfan

If your nan has mental capacity to decide her own care and £1800/wk income, there's nothing stopping her from renting a one bed flat and moving out of the residential care home. So she's either in there because she doesn't have capacity and needs to be in there or because she has agreed to be in there. If it's just that she doesn't realise she's free to move out, perhaps you can tell her and help her find a flat to rent, since you feel so strongly about it.

EmmaEmerald · 02/04/2024 18:24

mrssunshinexxx · 02/04/2024 16:25

@foxandbee yes she has capacity to be at home. She had a fall and broke her hip and never went back to her flat. I'm NC with my dad so there's a long story there. In short she's in a home because he doesn't want to do more / anything for her she honestly lives 20 yards from his front door. Very very sad excuse for a son

What did you want him to do? What does she need help with in order to stay at home? What do you see the care home doing for her and could you do all that?

KalaMush · 02/04/2024 18:18

OP could you / your mum consider option 4.5, a retirement living flat? I think that can work well for people who don't yet need full time care.

Sittingontheporch · 02/04/2024 18:16

Oh god tell me about it Kalamush - I'm always rushing off there as well as having to deal with a crumbling house over which I have no control or full authority.

Yes agree with funnelfan, I'm intrigued to know what Mrssunshinexxx dad should be doing in this situation? If he's organising a home for her and the move, he's hardly doing nothing. Don't underestimate how much work and emotional load that is in itself.

OP posts:
KalaMush · 02/04/2024 18:04

In some ways I think 4 is as hard as 2 (assuming 3 is not an option because you've already done the moving away thing). With 4 you're doing the emergency trips to and fro when they have a fall. Not to mention the non emergency trips to sort out their admin 🤦‍♀️

funnelfan · 02/04/2024 18:02

mrssunshinexxx · 02/04/2024 16:25

@foxandbee yes she has capacity to be at home. She had a fall and broke her hip and never went back to her flat. I'm NC with my dad so there's a long story there. In short she's in a home because he doesn't want to do more / anything for her she honestly lives 20 yards from his front door. Very very sad excuse for a son

What exactly did you want your dad to do to enable your Nan to stay at home? I suggest you are doing exactly what is discussed in this thread, and morally judging the child of the parent in the care home. £1800 per week is the top end of care home fees unless your Nan has more complex needs eg dementia? Someone is obviously prepared to pay the fees. If you are NC with your dad, where are you getting all this information? Is it your Nan? Because this board is full of tales of elderly parents telling lots of partial stories to various friends and family, never the full picture.

EmmaEmerald · 02/04/2024 18:02

@Sittingontheporch glad that was helpful.
In terms of what people think of me, I try to channel Samantha from Sex and the City, when she said, "Honey, if I worried what every bitch in New York was saying about me, I'd never leave the house." 😂

@PermanentTemporary I liked that "bless your heart". I'm going to practice saying that as Lady Mary!

Sidebar - I feel like I should point out that most of the really full on carers I know have been men.

It doesn't make a difference to me - I still felt hopelessly inadequate.

These particular chaps have the natures where if you took their to do list away from them, they would be lost. They help my mum with things sometimes now and I am very grateful.

They will be lost when they retire maybe? Still out running at 5 am in their 60s.

They probably get less than four hours sleep a night and they just don't need more.

it took me a while to stop comparing myself to them. They are just made of completely different stuff than I am. As I am so much younger, they were puzzled that I don't have the same energy as them.

Also, I don't have children etc ...they just seem to be capable of doing so much more than I am.

I do think that the neighbour I mentioned, the one who spent 10 years looking after his mum, was guilt tripped somewhat. I know his siblings didn't want Care home money eating up their inheritance. (His words)

Sittingontheporch · 02/04/2024 17:51

The thing is it's not the us looking after her vs a care home, it's her with a live-in carer vs a care home. So I'm probably past the point of judgment given that there's already been a huge dereliction of daughterly duty!

There's a sliding scale of choices that society respects that probably goes in order of worthiness -
1)giving up your life and moving in with them
2) moving them in with you and your kids
3) keeping them at home with daily visits as you never selfishly abandoned your home town
4) keeping them at home with a live-in carer as they're past the point of safety with a visiting carer
5) ominous music, The Care Home.

I just want to feel like none of these come attached with any moral judgments. And that nobody does anything to an elderly person - that even with dementia there's a sense that it is done for or by them. My mother says she wants to move. We are facilitating it for her. And even if she didn't want to, I still think we might need to as the house isn't safe.

My friend did number 2 and I'm in awe of her. Mind you, she's not free from guilt as her father trip over her dog, hit his head and died from a brain bleed.

OP posts:
Topseyt123 · 02/04/2024 17:28

Don't feel guilty. You have to do what is right for all of you, and people who criticise you have probably never even tried looking after an adult who has dementia and/or has lost their mobility, is doubly incontinent etc., doesn't want to wear a nappy or incontinence pants, cannot get themselves to the toilet, become violent, are very strong and can struggle with you too, cannot wash or dress themselves, cannot feed themselves, can do nothing about the house etc. The list goes on.

They maybe think that changing an adult nappy is no different from changing that of a baby when it is in no way comparable. A poonami from an adult is vastly more humungous and harder to deal with than that of a baby.

Don't listen to the critics, even though some might be well meaning. If they really won't back off then tell them that they are welcome to come and take over the care if they think that they are so clever and they don't like what you are doing.

Lovetotravel123 · 02/04/2024 16:34

Having been in a situation where two of us couldn’t move my dad to change his wet bed, I think there comes a time when there is no choice but to move the person into a home. Don’t feel guilty.

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