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Elderly parents

Why is there so much stigma around 'putting them in a home'?

235 replies

Sittingontheporch · 02/04/2024 13:07

Hi, I'm a frequent botherer of this board, but have changed username so I can be free with details and not worry about outing myself. And because the subject is one that makes me itchy with shame and fear of judgment, which is kind of the point of my query.

I feel there's so stigma and taboo around an elderly parent going into a home, an implied failure or dereliction of duty from the children. Phrases like 'never put me in a home', or 'they put her in a home', or 'I'd never let my parent go into a home'. As if it's akin to prison rather than being a measured shared decision around a situation.

Or am I paranoid?

Our situation is that my mother has advanced dementia and low-to-no mobility. She lives in a four-bedroom house about two hours drive from me and my brother (and an ocean away from my other sibling). She has always said that she wanted to move into a care home nearer to the two of us. Then when my father died, she said she wanted to stay in the house for a year with the full-time live-in carer that we had employed for him (it went up to two in his last months). It's now six months on and we've reached a crossroads. The house needs urgent adaptations to make it safe, plus a whole load of other things doing as it's falling apart. She says she wants to move and is even excited about it, but I don't know if she fully understands how much space, familiarity and her possessions she'll be giving up.

The three of us are agonising over the decision in rotation, especially the one who lives abroad. We've also had lots of 'helpful' suggestions from her friends, some of whom have told us that they're very upset by the move. Things like 'have you thought of moving her downstairs', 'have you thought of moving closer to her' etc, etc.

I think they're projecting as they wouldn't want to go into a home, but they're currently fit and well.

I just wish it didn't feel as if society judges it so negatively.

OP posts:
Catgotyourbrain · 02/04/2024 13:33

And yes, most people are reluctant because if you've owned you own home and built up that capital it can all go in a matter of months. 15 months cost about 60k. It's shit but that's currently the case

Catgotyourbrain · 02/04/2024 13:30

You have to ignore them - as PP mentioned they are projecting.

IME of putting my DF in a home after him and DM moved in during Covid. He had Parkinson's and dementia and went down hill very quickly. DM and I agonised endlessly over it, until we really had no choice, and yet we still agonised and felt guilty. It wasn't until afterwards we realised how actually there was no real choice - and our lives mattered too. Without noticing it he had got so difficult to care for that we had subconsciously reached a point where we all knew he couldn't be left on his own in a room - at all, and my mum was going down hill with exhaustion and lack of sleep from sharing a bed with him (so he didn't go walkabout)

Along with everyone else I know who has been through this we look back and unanimously use the phrase 'not before time', we really should have done it earlier for his benefit. While looking after him at home we were doing so much caring and organising, that we didn't spend and quality time with him. Once he was in the home - when we visited we spoke to him, and didn't have any logistics or caring responsibilities. Much more quality time.

She will be very much better in a good home. Make sure its one she can stay in with dementia specialist wing. This is essential.

Lollypop701 · 02/04/2024 13:29

My dad had words with me when mil went into a home… I told him I couldn’t afford to give up my job to care for her, so we’d be homeless and wouldn’t be able to visit him in another country as I wouldn’t be able to leave her, i would be caring for mil.

i honestly don’t think other people , especially older males, understand what actually caring for an elderly infirm person entails. That’s it’s 24/7, can involve personal care and heavy lifting, medical appointments plus emotional toil.

Mil was perfectly happy and really well looked after, was visited by family pretty much every day and taken out 2/3 times a week. It worked really well

so ignore anyone who isn’t involved in the care process, they know nothing about your situation

ThisJoyousTaupeCat · 02/04/2024 13:25

I think this judgment is said about the sadly many, well certainly at least in the past) homes where elders abuse and neglect was rampant. If they are safer in a home and better looked after, visited and asked after i don't think it's cruel. I actually feel that more children are reluctant to put their parents in homes out of their own selfishness, mainly fear of their reputation damage in the community and amongst relatives or out of greed and not wanting loss or reduction of inheritance by selling the family home to fund care.

AnnaMagnani · 02/04/2024 13:23

In my experience, the relative who lives furthest away is almost always unhelpful. Especially if abroad.

They have no idea how bad things have got, that you have tried all their suggestions already and have a vision of mum/dad based in the past.

DeltaAlphaDelta79 · 02/04/2024 13:20

My mother has absolutely insisted that if she needs it, that my brother and I are to "put her in a home". She would hate for either of us to give up our lives to look after her (altho it would be an absolute pleasure) and even more so, hate for us to be involved in personal care, especially in the event of any decline in her faculties. You need to do what is best for her and your wider family. Ignore her friends, unless they are offering to care for her themselves!

romdowa · 02/04/2024 13:19

The stigma comes from a time when care homes didn't provide the best care and abuse was rife in them. A time before police clearance and proper training ect

Lifestooshort71 · 02/04/2024 13:17

Ignore well-meaning friends and decide as a family. The expression 'putting her in a home' is dreadful particularly when an elderly parent has been involved in the decision. You sound a lovely family and, between you all will find the best place for mum.

Gwenhwyfar · 02/04/2024 13:16

I don't think there is a stigma any more. Especially not when they have complex needs.

RunnersHi · 02/04/2024 13:11

I really don't think it's judged negatively and absolutely wouldn't be in your situation. Your mum can't cope in her house and wants to move. I would simply ignore the friends, who will have their own worries and agendas- they might be thinking of themselves, they might just like having your mum around as a friend but, seeing as they're not the ones doing the caring, that's irrelevant.