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Elderly parents

Am I right to call 111?

257 replies

JamieFrasersSassenach · 17/02/2024 18:15

DM has definitely got cognitive decline.
This week it has got markedly worse.

Today she has been telling me things have happened that I know have not.

Examples are that her heating isn't working - it's 23 in her house.

She says people have been coming in and out of her house all week - British Gas Homecare came twice to put new batteries in her hive thermostat and then to show her how to set her boiler temperature - their records say she was confused.

I live an hours drive away from her, I came over this morning to check everything for her - all good, spent about 2.5 hours with her.

I got home at lunchtime, by 3.30 she had phoned me 3 times to say her heating was not working and she was freezing (her hive account which I have access to was showing the house temperature to be 23) and then that none of her 3 TVs were working.

I came back - everything working fine, DM wearing a vest top because she is so warm.

She then said she phoned me because there were electrical wires all over the floor and she did not know where to put them.

She said I had left the wires there when I was stripping down electrical equipment this morning.

There were no electrical wires and I had not had any electrical equipment out this morning.

I called 111 and spoke to them about her confusion. I am waiting for a call back.

Is there anyone else I could contact for help this evening?

I can't stay here with her and simply cannot keep driving over, or to be honest cope with constant phone calls. I'm thinking maybe she has a uti and this is making her a bit delusional.

Anyone have experience of similar - ideas of what I should do to get DM some help tonight/tomorrow?

I have PoA set up so if she is deemed in the future to lack capacity I can act on her behalf.

OP posts:
BigFluffyHoodie · 21/02/2024 17:13

We got all sorts of things for my relative - a wrist alarm, in case she fell. She wouldn't wear it. A necklace alarm - ditto. A phone service which she could press a button for help. She just pressed it all the time, asking what the time was or could they bring her a cup of tea. Or just walked off with them going "Hello? Hello?" and then we would be called.

Be very, very wary of assessments - ideally you would be with her for every one. Because they ask things like "Can you use the kettle?" and your Mum says "Yes, of course I can". But she can't.

My relative had Type II diabetes, so it was very important that she ate. So part of her care plan was for them to prepare food for her. But they wouldn't stay to check she ate it. I often found sandwiches in the bin.

TheShellBeach · 21/02/2024 17:09

I do agree that you'll need to be very firm if the hospital tries to discharge her with something like four carer visits a day.

You'll just end up having to deal with the endless minutiae which that entails.

But take it a step at a time for now.

MacaroonMacaron · 21/02/2024 17:06

Hopefully once she starts antibiotics under supervision in hospital the confusion will lessen and you can start planning for the longer term.

BigFluffyHoodie · 21/02/2024 17:04

Yes, she was never going to take the antibiotics.

Start looking into key safes. It's a little box that gets attached to the wall outside next to her front door. You put a spare key in it, and it's secured by a combination lock. So that the carers visiting her can get in without her needing to find the key.

JamieFrasersSassenach · 21/02/2024 16:56

She cannot come and live with me and I cannot go and stay with her so that will not even be a consideration.

There are paramedics and an ambulance with her now. They had to climb through her kitchen window as she cannot find either set of door keys to open her door.

She told them I have locked her in and taken her keys away.

They are looking for the keys and failing that will get the fire brigade or police to force her door open.

She also apparently has the antibiotics from Saturday night there.

I am waiting for them to call me back to let me know if they have found the keys.

OP posts:
BigFluffyHoodie · 21/02/2024 16:48

And, as I said before, do not let them discharge her into your care. Unless you want her to come and live with you, which may be an option.

If she is to remain living where she is, do not say "Well I can stay with her for a while to settle her back in". You have to be very blunt that she lives on her own, and that there must be a care package for her.

BigFluffyHoodie · 21/02/2024 16:04

OK OP, that is really good news that she is going into hospital. Once there, there will have to be a care plan in place before they can discharge her. You must insist on this, and if they push back because "she says she can cope", tell them it's a safeguarding issue. Those are two magic words.

PanettonePudding · 21/02/2024 16:01

Oh gosh I'm sorry to hear this, but maybe it had to happen so that your DM can get the assessment and treatment she needs.

JamieFrasersSassenach · 21/02/2024 15:58

I have spoken to a dementia nurse at Dementia UK this afternoon.

DM currently believes she is locked in her house and has no water and no food.

I contacted 111, a paramedic has spoken to DM and is sending an ambulance. She told the paramedic that I have locked her in the house.

I just hope that they can gain entry to her home.

I understand completely the concern about her driving and she will not be driving whilst she is this unwell and if she does not recover then she will never drive again.

Keeping everything crossed that she can be treated for the UTI by IV and we can return to DM who sometimes forgets what day of the week it is.

OP posts:
PanettonePudding · 21/02/2024 15:05

I once posted on the Elderly parents board asking for advice when I thought my mother shouldn't be driving any more. Dear god, some of the replies I got! Wouldn't be surprised if BFH was one of them. Then there was the time I asked about how I might be able to limit the thermostat settings on DM's heating so she didn't bankrupt herself. You'd have thought I was asking how to ship her to a gulag. Just do what you can OP. And if you're not already in the cafe, come and join us there for constructive support.

stomachamelon · 21/02/2024 14:23

@BigFluffyHoodie she isn't your relative though. So knock it on the head. Everything about the OP tells me they are trying.

BigFluffyHoodie · 21/02/2024 14:05

TheShellBeach · 21/02/2024 13:59

Could you stop being so confrontational.

I told myself, when dealing with two different relatives with dementia, that I never wanted to have to stand in a Coroner's Court explaining that I could have stopped my relative driving, if only I'd tried harder. So I moved heaven and earth to do that. It caused rows, upsets, and it took time and effort. But my conscience was clear because I did stop them driving.

TBH, having read all the OP's replies, she is minimising what is happening. It could be tomorrow that her mother smashes into a family walking home from school... or it could be next week. OP's mother even mentioned driving, on the phone to her.

If you think that asking somebody to face up to reality is "confrontational", then fine. But sometimes we need to shock people into action. If OP has not already taken her mother's car keys away from her, she has not acted.

TheShellBeach · 21/02/2024 13:59

BigFluffyHoodie · 21/02/2024 13:56

Have you got her car keys, OP?

Could you stop being so confrontational.

BigFluffyHoodie · 21/02/2024 13:56

Have you got her car keys, OP?

JamieFrasersSassenach · 21/02/2024 11:25

Thank you @TheShellBeach

OP posts:
TheShellBeach · 21/02/2024 11:18

@BigFluffyHoodie you're being a bit demanding. The OP is well aware of the issues here and is doing her best in difficult circumstances.

JamieFrasersSassenach · 21/02/2024 11:02

The GP said that the hallucinations could be caused by the uti or by dementia.
This is all very similar to her reaction to morphine about 3 years ago.
She is not driving.
I will be back with her first thing tomorrow and she has a friend keeping in touch with her today as well.

OP posts:
BigFluffyHoodie · 21/02/2024 08:01

OP's mum has already admitted she is having hallucinations. OP, does your mother still drive? If so, you must stop her somehow.

I had to get my relation to give up their driving licence. That didn't stop them driving though. We had to sell their car.

Growlybear83 · 20/02/2024 21:41

I really am sorry for your worries with your mum. It sounds as though she is very similar to how my Mum was for about 18 months until she ended up in hospital. She was admitted after a very severe nosebleed (she was taking warfarin and was prone to bleeds) and then deteriorated very rapidly. I found the amount of support available before that point was really bad, and social services wouldn't do anything to help, partly because she always appeared to be so lucid when the social worker spoke to her, despite the fact that most of what she said was completely bonkers, but also because she owned her house and had modest savings and so was self funding when she eventually went into the care home.

I agree with a previous poster that if your mum doesn't perk up considerably after she's finished the antibiotics, you need to try to stop her driving, but it was so hard for my mum when she had to stop. I reallly do sympathise, and fear you've got a difficult time ahead.

JamieFrasersSassenach · 20/02/2024 21:29

Mum5net · 20/02/2024 21:23

Fluffy, I think OP is facing reality.
Several times she has suggested things will be what they will be and she can only be there when she can.

Thank you @Mum5net this is exactly how I feel

OP posts:
stomachamelon · 20/02/2024 21:29

@JamieFrasersSassenach I hope it all goes well and it seems like progress. You can only see what happens.

JamieFrasersSassenach · 20/02/2024 21:28

@BigFluffyHoodie I'm not sure how she could be admitted to hospital currently - she is mobile and quite coherent albeit confused.

Physically she is not unwell and admitted to the GP herself that she has been hallucinating.

I am going to remain hopeful about the antibiotics - I will review this on Thursday when I next see her.

OP posts:
Mum5net · 20/02/2024 21:23

Fluffy, I think OP is facing reality.
Several times she has suggested things will be what they will be and she can only be there when she can.

BigFluffyHoodie · 20/02/2024 21:17

Mum5net · 20/02/2024 21:14

Your thread has taken a little bit of a turn, OP.
Hospital is possible but not inevitable.
She may take the drugs.
Your DM could then bounce right back to almost how she was last week.
She might not.
None of us know.
Dementia is different for every person.

Hospital should be the target.
She won't take the drugs.
If she bounces back to how she was last week, she will still have dementia.
I know.
Am happy to support OP as she has to face reality.

Mum5net · 20/02/2024 21:14

Your thread has taken a little bit of a turn, OP.
Hospital is possible but not inevitable.
She may take the drugs.
Your DM could then bounce right back to almost how she was last week.
She might not.
None of us know.
Dementia is different for every person.

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