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Elderly parents

She’s cancelled the carers 😕

63 replies

Donm999 · 10/02/2024 18:54

DM, late 70s, lives alone. In poor health generally, lots of lower level health issues, doesn't really leave her bungalow anymore. Things seem to be getting worse. Doesn’t take care of herself, eats terribly, doesn’t look after her place/washing up was constantly piled up etc.

Finally got a package of care in last November. DM has then constantly moaned about having people in the house etc.

Invoice came through yesterday; DM has decided she can’t afford it ongoing and has now cancelled the carers completely.

Feeling both annoyed and upset, and dreading the switch back from moany phone calls about carers to moany phone calls about how the place is a mess, she’s barely eaten all day etc. Not to mention the ‘joy’ of sorting her place out every time I go down again.

So as not to drip feed; the relationship is highly challenging, with the expectation that I should be constantly doing stuff for her, with no appreciation. I’ve pretty much been the parent since my teen years. Phone calls and visits are basically her talking/moaning at me on repeat. No local family - apart from my not-so-DB who does sweet FA and nothing is expected of. I work long hours and have a small a child and live 40 mins away.

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TorroFerney · 14/02/2024 08:53

Donm999 · 11/02/2024 12:14

Are we related?! Lol.

I think you’re right about the phrasing on repeat - due to years of conditioning, whenever she moans about stuff I going into instant guilt that I’m not doing enough! Need to instead to push back to offering to sort arrangement…not do it for her.

Or train yourself to say „oh that sounds rubbish, what are you going to do about it?“

Donm999 · 12/02/2024 11:08

Also, thanks for all the messages of solidarity and ‘hold your boundaries’. To be honest, I wondered if I was being a ‘bad daughter’ but the unanimous verdict of her needing to take some responsibility has reinforced it’s not on me. Thank you 🙂

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Donm999 · 12/02/2024 11:06

Update: Having left her to stew, she has now decided she wants to keep one visit a day going. Phew!

OP posts:
GoldfishFins · 12/02/2024 10:22

Leave her to it, if she won't accept carers, let her figure it out herself

MereDintofPandiculation · 12/02/2024 10:20

daysfilledwithdappledlight · 11/02/2024 22:46

This is a great suggestion.

Careers are extremely expensive - for good reason - but twice a week is something she probably doesn't want to commit to for the rest of her future if she's not financially well off, so simpler help like a cleaner a few times a week that can do a little household also (washing up / ironing) while she's able enough to not need the health experience careers bring may be a great balance.

A career twice a day @£30hr = £1,800 a month / £21,600 a year

A cleaner 3 times a week @15hr = £180 a month / £2,160 a year

If I've done my maths right, I can understand why she has stopped the career after getting their invoice. Sadly it then defaults to you, but hopefully a reduce career package or a cleaner can alleviate that pressure off you without being too much of a financial burden on her ❤️

This is one reason a LPA is useful - the bills can go straight to the attorney instead of scaring the donor.

MereDintofPandiculation · 12/02/2024 10:17

An unpopular opinion perhaps but you don't owe your mother anything I wouldnt go as far as that, she’s family, I couldn’t imagine stepping back completely and not coming to the aid of any family member in need. What you don’t owe your mother is to sacrifice your life, health or happiness for hers.

It's hard but you're allowed to care about someone without having to care for them. Yes, remember this.

Supersimkin2 · 11/02/2024 23:01

I’ve had this drama too. Oldsters of a certain ‘type’ love it.

Ignore DM. Easier said than done, but persevere. Don’t cave.

What DM wants is either impossible or bad news for the rest of the planet (you). Meh, Unacceptable. Don’t cave.

A small crisis will set you both back on the right track, and if things get bad, you can call in SS.

Good luck.

QueefofSheena · 11/02/2024 22:53

If there is no POA then ultimate responsibility for her is with the LA. Ask for an urgent care assessment and get them to put things in place. It’s an uphill battle and they will make her pay or put a charge on her property if she owns any but its not on you OP, as much as they will try to make you believe that.

daysfilledwithdappledlight · 11/02/2024 22:46

Boomer1964 · 11/02/2024 06:57

This is really common. However it might be worth looking for a cleaner instead. Lots have experience with older people and will help with washing, errands etc. Much cheaper too if you can employ direct. I did a similar role for numerous older people and it always worked well. You have to set boundaries though. Even one visit a week is too much right now. Back off and see how it goes. Plus a slightly mucky house isn't the end of the world. Her standards don't have to be the same as yours. Also, AA is only about £90 a week which doesn't go far for carers. Honestly look for perhaps a older lady to help your mum, it often works better. Some agencies endlessly send different people every visit and many of us wouldn't be happy with a parade of strangers coming through our homes. Eventually she may need a lot of personal care and then try asking agencies what their policies are regarding sending different people. Good luck.

This is a great suggestion.

Careers are extremely expensive - for good reason - but twice a week is something she probably doesn't want to commit to for the rest of her future if she's not financially well off, so simpler help like a cleaner a few times a week that can do a little household also (washing up / ironing) while she's able enough to not need the health experience careers bring may be a great balance.

A career twice a day @£30hr = £1,800 a month / £21,600 a year

A cleaner 3 times a week @15hr = £180 a month / £2,160 a year

If I've done my maths right, I can understand why she has stopped the career after getting their invoice. Sadly it then defaults to you, but hopefully a reduce career package or a cleaner can alleviate that pressure off you without being too much of a financial burden on her ❤️

Donm999 · 11/02/2024 21:46

TellySavalashairbrush · 11/02/2024 16:44

Sadly this happens a lot (I’m a social worker with elderly adults ) I would suggest reducing the package of care , say one visit a day or every other day and having a cleaner and someone to support her with shopping .
As difficult as it is you have to be firm that you cannot offer her more support now the carers have been stopped and really stick to it. Many of my clients lack insight when it comes to how much their adult children should do for them - they can be very selfish and almost revert back to children themselves. I wish you all the best, it’s not an easy situation.

Yes that’s exactly what it’s like; having a second child. In fact, my 5 year old is significantly easier!!

Not sure if she lacks insight or just doesn’t really care. Likely a bit of both!

OP posts:
Donm999 · 11/02/2024 21:43

crosstalk · 11/02/2024 18:08

Any reply yet OP? This is clearly the way to go eg not offering yourself as the sacrificial lamb.

Long silence…then a text with a moan about carer coming late today (they’re not cancelled until she calls the office tomorrow) followed by;

‘Ok whatever!!’

She is avoiding owning her decision and making a plan for sorting herself out. Think she’s holding out for option d; dutiful daughter will just do it for me. She’s going to have a long wait this time!!

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MereDintofPandiculation · 11/02/2024 20:51

Sensing a theme here… Then learn from it and don't set up anything for her unless she asks. Take a step back and let her feel the consequences of refusing help.

Re"stealing" - if you keep losing things, either it's you being forgetful, or someone's stolen them. It's much more comfortable to blame someone for stealing them than to admit to yourself that you're losing your marbles.

crosstalk · 11/02/2024 18:08

Any reply yet OP? This is clearly the way to go eg not offering yourself as the sacrificial lamb.

eilaka · 11/02/2024 17:59

Awful situation, very common.

Next time she phones, I'd stop her before she says anything and say: I feel very unwell, please call DB, goodbye.

You do feel unwell, due to the stress she is causing you.

Missingmyusername · 11/02/2024 17:54

JayAlfredPrufrock · 11/02/2024 07:40

My DHs allowance was stopped when I phoned to inform them we had cancelled the carers. 🤷‍♀️

I’ve worked in benefits and this shouldn’t be the case (depending how you’ve phrased it). It’s about the care you need and do not get or may not get.
Unless you’ve said something along the lines of you can manage, you don’t need the help or he’s better- if they can cancel it then they will. Reapply.

OP we had a lot of this- care being cancelled and money being spent on deliveries, sometimes it’s so the elderly person gets some interaction. A chat - even a delivery driver. Had a housebound neighbour take on my dog’s huge parcel of food once (I was mortified). She told me to always get it sent to her as she was lonely, she had a natter with the delivery driver and then with me. So from then on I always made sure to pop over to chat to her, pop her a Sunday roast. Would your mum accept one of those volunteers that pop in and have a chat etc. Our local authority runs a scheme like this. I’ve no idea how you access it though….

Orangesandlemons77 · 11/02/2024 17:12

Check out the website Out of the FOG. Try and get her to sort things out herself. eg. You will need to speak to the carers about that, for example

BruFord · 11/02/2024 16:58

My Dad gets AA and my understanding is that it’s to help ppl with medical conditions continue to live independently, but no one dictates what it has to be spent on, I.e., whether it’s carers, cleaners, taxi to a hospital appointment, etc.

My Dad has Meals on Wheels from a local charity (luckily they’re really good meals) and a fortnightly cleaner/light housekeeper who does washing up and his washing . Unfortunately, he sometimes cancels his cleaner, especially when I’m due to visit 🤣 so everything piles up. I think he needs a weekly clean, but he refuses.

He enjoys shopping and can walk to a supermarket so that’s not an issue for him.

It sounds as if your Mum needs something similar, carers twice a day might be too much.

TellySavalashairbrush · 11/02/2024 16:44

Sadly this happens a lot (I’m a social worker with elderly adults ) I would suggest reducing the package of care , say one visit a day or every other day and having a cleaner and someone to support her with shopping .
As difficult as it is you have to be firm that you cannot offer her more support now the carers have been stopped and really stick to it. Many of my clients lack insight when it comes to how much their adult children should do for them - they can be very selfish and almost revert back to children themselves. I wish you all the best, it’s not an easy situation.

kessiebird · 11/02/2024 16:34

Donm999 · 11/02/2024 07:24

@kessiebird family sucks sometimes!
Agree there is an automatic assumption that the woman will do the caring role.

No expectations on the sons. DM even gives my useless DB £40 a week to ‘help him out’ even though he’s a 40 year old man living on his own benefits! And yet she can’t afford a carer….

Seems quite common with some men. DH and his brother the complete opposite, they've took the load off their sister. But my DB oh my! Anyway we've sorted it now and have to keep with the push back. They keep implicitly accusing the carers and cleaners of 'losing' things. I find the items pretty quickly. It's hard but you're allowed to care about someone without having to care for them.

My DM has attendance allowance, she only had carers for a short period six years ago and not since. She's only had carers and cleaners for a few weeks, as I thought my poor Dsis was going to have a breakdown so we had to do something. I was furious with DM and told her that. 'don't do that to MY sister' kind of conversation 😂

rickyrickygrimes · 11/02/2024 12:49

It’s hard to go against years of conditioning. But I’m going to say to you same as I said to another poster in a very similar situation: no one is forcing you to do this. No one has a gun to your head. Your mother (presumably) has capacity and she is choosing to live the way that she wants to - with you jumping to enable it.

would you expect your own daughter to do the same?

Great that you’ve taken the first step to set firmer boundaries. As the pp says, when you next visit, you go to visit - not to clean, sort, tidy, skivvy around. Take a cake. Have a cup of tea. Make polite conversation. Offer help to put arrangements in place, and no more.

or don’t visit. This is also your choice. as is getting into text conversations, phone calls etc.

BrownFurBunny · 11/02/2024 12:27

She’s cancelled the carers. Her choice of course. Let her take the consequences. She is of course expecting you to fill the gap. Really, it’s manipulation. Just say no!

My mother tried this on me. I said no, I think you need a cleaner, that’s what your AA is for.. She will probably demand to know why (mine did). You could say it’s too much for you with work and family, health, whatever, make up a reason even. Rinse and repeat. Rinse and repeat.

If she chooses to live in a mess and not look after herself, that’s totally her choice (you’re welcome). She has AA. If she doesn’t want to use it or spend it, that’s totally on her.

I don’t know what to suggest about the moany phone calls ugh, though apart from limit them in frequency and length.

Finally, the brother thing. Seems to me these kinds of parents seem to appreciate those who do least for them. A kind daughter meanwhile is treated like dirt, simply used (and/or abused).

Donm999 · 11/02/2024 12:20

So am attempting firmer boundaries. Sent text earlier suggesting she either reduce care right down or get a cleaner twice weekly. Pointed out she gets £400 a month attendance allowance that would more than cover it.

She replied with ‘All they do is wash up!’

I then sent ‘Then it's either wash up yourself, keep some carers, or get cleaner in who also washes up. Have a think and let me know which option you want to do x’

No response so far. Will await the rant…!

OP posts:
Donm999 · 11/02/2024 12:14

InSpainTheRain · 11/02/2024 09:46

I really feel for you OP, I had exactly the same with my parents, and then when my dad passed away, even worse with my mum. They lived a 3 hour plus round trip from me, I had two teenagers at the time (now adults), and a husband (so of course wanted to spend time with them) and full time job. It was simply not possible to go to see my parents every week to clean their house, do their shopping and move their lawn/do the huge garden.

Like you I put arrangements in place for cleaning and gardening, but nobody could do it well enough for them and they cancelled. The only thing they did accept as better was shopping that I did for them online then got it delivered. You just have to put boundaries in place and stick to them. We used to go to see them, and I'd take a nice tea (sandwiches, scones, cream etc) and when they started complaining about the house or garden we'd just say "we can arrange the gardener/cleaner/whatever" and stick to that.

It is really hard, but you have to realise you cannot do everything, and I certainly couldn't do things to the standard my parents wanted either. You have to "rinse and repeat" the phrase "I can arrange a ... whatever" but don't step in yourself otherwise you also become unwell and can't function properly and that helps no one.

Are we related?! Lol.

I think you’re right about the phrasing on repeat - due to years of conditioning, whenever she moans about stuff I going into instant guilt that I’m not doing enough! Need to instead to push back to offering to sort arrangement…not do it for her.

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MrsSkylerWhite · 11/02/2024 12:14

Goawaytina · Yesterday 21:23
**
An unpopular opinion perhaps but you don't owe your mother anything. You have your own life, you've been helping her, you've organised professional help also, what else can you give her? There has to be an element of personal responsibility here. I hope to god that when I'm at that age I don't behave in such a way to put so much pressure on my only child”

I agree.

Donm999 · 11/02/2024 12:12

MereDintofPandiculation · 11/02/2024 08:49

It sounds to me that she doesn’t need carers so much as a cleaner and perhaps meals on wheels (if it exists in your area).

carers are for meeting personal needs, ie washing the person, helping them dress or undress, helping them use the loo, and preparing a “simple meal” ie putting something in the microwave. Nothing you’ve said implies those needs (apart from the meal). Carers don’t do housework.

Based on what she says (lays on thickly!) on the regular moans, she is completely incapable of doing anything.

Based on what she’s then says since having carers, she doesn’t need any help and it’s all an inconvenience (and they don’t anything except the washing up according to her…basically I think she just turns down the help once they’re there).

Have chatted it through with my DH and think we’re going to try and push her towards getting a cleaner in a couple of times a week.

Oh, and have already tried meals on wheels. Set it all up; she moaned about it for 2 days then made me cancel them. Sensing a theme here…

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