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Elderly parents

DM wants a riser-chair costing £4.5k! Advice v welcome

583 replies

Valleyofthedollymix · 30/01/2024 14:51

DM is 82 with moderate dementia. It affects her mobility more than her cognitive abilities but I don't know how much this is to do with the dementia and how much is due to her lack of exercise over many years.

She is currently burning through finite funds by living in a large house with a very expensive live-in carer through an agency. After a lifetime of being careful with money, she's spending like Liberace and it's going to run out, especially since I think she'll live a long time. Frustratingly, the extravagance encouraged by the carer, for example endless new pairs of trousers and cashmere jumpers (one week she bought six). If we query this spending, it gets turned into a black mark against us - for someone with a failing memory, DM can keep a really good tally of the ways in which we've 'denied' her.

Anyway the latest was the carer organising for a bespoke riser recliner chair company to come round to demo. DM apparently 'fell in love' with the deluxe one and has chosen the fabric etc. It costs nearly £4600. This feels like an awful lot to me but apparently, it's tailor made for her spine, size etc.

Does anyone know if this is worth it? Of course, if it's a buy once buy the best situation and it'll change her life, fair enough, we'll find the funds. But I wouldn't spend that sort of money on anything without due diligence. I feel like we're being bounced into it. I'm also unsure of the wisdom of these chairs at all because might it exacerbate my mother's immobility?

So, if anyone has any knowledge on how much you need to spend and what's worth it, I'd be vvvv grateful.

OP posts:
pam290358 · 31/01/2024 19:48

Scottishshortbread11877 · 31/01/2024 19:35

@mrsm43s she does not have capacity though. She shouldn't be encouraged to burn through funds as she obviously lacks insight. This is basic safe guarding.

The OP stated in her opening post that DM had moderate dementia, which is a far cry from lost capacity. Lacking insight doesn’t mean she’s not capable of contributing to decisions made about her future and while making unwise decisions may be in some part down to the effects of dementia, it doesn’t mean she’s lost capacity. The OP is clearly in a very difficult situation, but she has an obligation to involve DM as far as possible in any decisions made about her future while she retains even limited understanding. A declaration as to whether DM has capacity or not is a legal issue and can only be made by someone qualified to make that determination.

Mirabai · 31/01/2024 19:46

pam290358 · 31/01/2024 19:30

How so ? The poster said she would have loved there to be no ‘inheritance’ and that implies nothing left. How does that fund private care ?

OP said she’s assuming there will be nothing to inherit. DM has her current funds from one house and then there’s her own house to sell. So she’s not likely to be dependent on state care.

Wafflesandcrepes · 31/01/2024 19:44

You’ve got POA to protect her finances. Tell the carer to get lost and do what’s best for your mum and her finances.

Mirabai · 31/01/2024 19:41

Rosscameasdoody · 31/01/2024 19:14

I think that post was from me. And it was based on personal experience and legal advice. And if you have a look at the mental health act underpinning the basis for lasting power of attorney it clearly states that attorneys must make every effort to involve the donor in decisions made on their behalf. And if that means delaying a decision until a time when the attorney knows they will be better able to understand, then that’s what you do.

It’s clear from this thread that a lot of posters have no idea what constitutes capacity, and the legal issues surrounding it. A person may have capacity one day and not the next - for my own mum this is definitely the case. She has advanced vascular dementia, but she has periods of lucidity, during which she is capable of expressing opinions and contributing towards any decisions. Just because your friends’ mum can’t recall certain events, doesn’t mean she has no opinion about what happens to her.

If you’re not prepared to take the role of attorney seriously and familiarise yourself with the mental health act and what it requires of attorneys, then you really shouldn’t take on the responsibility. It’s not just a case of doing what you think is best, it’s all about considering what the donor wants - and if there’s even the slightest chance that they can contribute to decisions concerning them, in my opinion they should be given the opportunity to do so, however small that contribution may be. That’s what it’s about.

That poster didn’t say her friend’s mum has no opinion about what happened to her she said that a. It’s very difficult for someone who hasn’t known a person for years whether a person has capacity at any given point; and b. By way of example the GP totally misread her mother.

I don’t see any evidence that that poster’s friend or the OP or anyone on the thread isn’t taking their PoA seriously.

I learnt with my dad that, past a certain point, presenting him with multiple choices, so that I felt I was doing a good job as PoA, and he had agency in his life, simply overwhelmed and upset him. He didn’t have the lucidity to be able to quantify the different things and compare them and he didn’t want to be responsible for the decision.

Scottishshortbread11877 · 31/01/2024 19:35

@mrsm43s she does not have capacity though. She shouldn't be encouraged to burn through funds as she obviously lacks insight. This is basic safe guarding.

Scottishshortbread11877 · 31/01/2024 19:33

That seems a lot to pay for a carer but only £11.90 an hour and not even sure agency worker would get 100% as agency would get a cut.

Runskiyoga · 31/01/2024 19:30

No direct experience but regarding spending how about (preferably in discussion with other people with capacity and dms best interests in mind - if you do it with other people transparently and take their views into account and document everything then it seems robust)

  1. You set out a framework for making financial decisions based on your thoughts about your mum's pre dementia attitudes and priorities and 'what a financially responsible adult might think was reasonable', for instance 'top quality but infrequent purchases' or 'mid range value', 'get three quotes' type approach.
  2. Set a budget for 'wants' / fun spends per week or month (she might be able to suggest a figure?).
  3. Try to set a budget for 'needs' / living within means.
pam290358 · 31/01/2024 19:30

Mirabai · 31/01/2024 19:27

She would be going into private so it’s not relevant.

How so ? The poster said she would have loved there to be no ‘inheritance’ and that implies nothing left. How does that fund private care ?

Emotionalsupportviper · 31/01/2024 19:27

Spencer0220 · 31/01/2024 13:49

I haven't read the full thread, but here's some initial thoughts.

For reference I had live in carers for many years due to physical disability. I don't now because my husband took over the care responsibilities.

  1. 8k is a lot. Try looking at other national agencies. Depending on what your DM needs, there are much cheaper.

If you are able I would DEFINITELY suggest talking to the agency. My agency would have been absolutely appalled if my carer had started to ask for things like smoked salmon or organising a sales representative for me. Carers at ALL my agencies had a small food allowance per week. If they spent over that on their own food, they paid out of their own money.

How long has this carer been in place? She should be rotating every few weeks with another staff member. There's such a thing as a pairing breaking down because both parties get too comfortable and take liberties.

Why doesn't your mum have social services oversight? Even self funded people have the right to an assessment.

A good carer will promote your mum's independence. They absolutely shouldn't have deskilled her.

If your mum is saying things like needing a second carer for her nails, surely there's a question of whether she can make decisions?

Was there a meeting with the agency after your father died about a care package for your mum?? This should have been set up and paperwork done just about your mum setting out what the carer does and doesn't do.

How long has this carer been in place? She should be rotating every few weeks with another staff member. There's such a thing as a pairing breaking down because both parties get too comfortable and take liberties.

At a more "human" level, if a carer leaves (health problems/ better job/ wins the lottery) the client isn't suddenly presented with someone she has never seen before in his / her life - confusing and upsetting them even further.

Mirabai · 31/01/2024 19:27

pam290358 · 31/01/2024 19:18

All well and good, but what if she had needed to go into full time care ? Social Services would likely have looked on this type of spending as deprivation of assets to avoid care fees and would have treated her as though she still had those assets.

She would be going into private so it’s not relevant.

IncompleteSenten · 31/01/2024 19:26

I think some do.

My younger son has been assessed as not having capacity in certain areas (finances being one) . There's a lot of rules around how you act

Bertiesmum3 · 31/01/2024 19:23

Valleyofthedollymix · 30/01/2024 15:51

Thank you all so much for your reassurance. You've given me a useful slap (in the nicest possible way) and the encouragement I need to change carers and stop paying these hideous agency fees.

It would be cheaper for your mum to go into a nursing home!
As for the chair, remember that there’s a possibility that your mum may become incontenent, so make sure it’s an easy to clean waterproof material

pam290358 · 31/01/2024 19:18

MyrtlethePurpleTurtle · 31/01/2024 18:02

One of my big regrets is that my mother did not spend like Liberace in her final few years. I would have loved for there to have been no inheritance with her spending it on a round the world cruise (with carer or nurse in tow), cashmere throws and smoked salmon and Waitrose fruit. I tried my best to get her to throw caution to the winds.

All well and good, but what if she had needed to go into full time care ? Social Services would likely have looked on this type of spending as deprivation of assets to avoid care fees and would have treated her as though she still had those assets.

Rosscameasdoody · 31/01/2024 19:14

Abeona · 31/01/2024 17:41

On a dog walk this afternoon I met up with a friend who is currently trying to work out how to care for her elderly mother who is increasingly confused. I mentioned this thread and the responses from the lawyer/ social worker/ human rights folk who talk about it being a breach of human rights to make decisions on behalf of people who trusted you enough, when they were well, to ask you to be their attorney. I told her about the post here from someone who says that if on a good day, at the right time of day, someone might have the capacity to make their own informed decisions then there is a legal obligation to keep consulting them — and she just laughed and then got tearful.

She asked how anyone who hasn't known the person for years could have any idea whether they were cogent and had capacity at any moment. She pointed out that until quite recently her mother's GP had assured her on various occasions that her mother was showed no sign of memory loss or intellectual impairment. He didn't seem to believe anything she reported about her mother's behaviour. Then one day when she took her mum in for an appointment the GP asked whether her mum had enjoyed her week in Broadstairs with Bernard. My friend pointed out that her mum hadn't been on holiday to Broadstairs for 50 years, and that Bernard died in 2012. At that point the GP conceded that maybe it was time to do some assessments. But until that moment, apparently, she had been fully compos mentis.

I think now if anyone asked me whether they should accept a request to be an attorney I'd say no. I had 18 years looking after my aunt and even though I had it relatively easy, I had responsibilities for things like selling her home (200+ miles away), visiting her every few weeks, managing her money and dealing with all the various complications that arose. I was allowed to charge my expenses and that was it. I gave hundreds, possibly thousands, of hours of work — because it was work — for free. Most of the other other attorneys I've met have been women, because it's mostly the women in the family who are expected to do the caring.

I think that post was from me. And it was based on personal experience and legal advice. And if you have a look at the mental health act underpinning the basis for lasting power of attorney it clearly states that attorneys must make every effort to involve the donor in decisions made on their behalf. And if that means delaying a decision until a time when the attorney knows they will be better able to understand, then that’s what you do.

It’s clear from this thread that a lot of posters have no idea what constitutes capacity, and the legal issues surrounding it. A person may have capacity one day and not the next - for my own mum this is definitely the case. She has advanced vascular dementia, but she has periods of lucidity, during which she is capable of expressing opinions and contributing towards any decisions. Just because your friends’ mum can’t recall certain events, doesn’t mean she has no opinion about what happens to her.

If you’re not prepared to take the role of attorney seriously and familiarise yourself with the mental health act and what it requires of attorneys, then you really shouldn’t take on the responsibility. It’s not just a case of doing what you think is best, it’s all about considering what the donor wants - and if there’s even the slightest chance that they can contribute to decisions concerning them, in my opinion they should be given the opportunity to do so, however small that contribution may be. That’s what it’s about.

GhostWalker · 31/01/2024 18:47

We got one for about 400 for FIL that was perfectly adequate. Sadly he had to go into a home shortly afterwards, and we had to practically give it away as no one would pay anything decent for it. So give gumtree/ebay a good look at.

IncompleteSenten · 31/01/2024 18:32

Snugmummy · 31/01/2024 18:15

I own and run a large domiciliary care company, including live in carers. I would be extremely concerned about a carer having this much influence over a customer. I suggest you speak to the registered care manager of the company and explain the situation. In this case I would change the carer to someone with more professional boundaries. I understand that it is usually better for the customer to retain the same carer, especially with dementia involved, but this is highly inappropriate behaviour on the carers part! Please speak to the office asap.

I used to own and run a very little care agency and I see it exactly the same as you. I would have taken immediate action upon learning something like this.

Snugmummy · 31/01/2024 18:15

I own and run a large domiciliary care company, including live in carers. I would be extremely concerned about a carer having this much influence over a customer. I suggest you speak to the registered care manager of the company and explain the situation. In this case I would change the carer to someone with more professional boundaries. I understand that it is usually better for the customer to retain the same carer, especially with dementia involved, but this is highly inappropriate behaviour on the carers part! Please speak to the office asap.

MyrtlethePurpleTurtle · 31/01/2024 18:02

< well, ot necessarily those particular items - but you get the drift >

MyrtlethePurpleTurtle · 31/01/2024 18:02

One of my big regrets is that my mother did not spend like Liberace in her final few years. I would have loved for there to have been no inheritance with her spending it on a round the world cruise (with carer or nurse in tow), cashmere throws and smoked salmon and Waitrose fruit. I tried my best to get her to throw caution to the winds.

Sandia1 · 31/01/2024 17:44

Valleyofthedollymix · 30/01/2024 15:44

DM has quite a bit of inherited money. It's not a pension or money she's earnt, most of it came from inheriting a very large house (larger even than the one she's currently living in).

It's tricky because there is enough money to keep going for really quite a long time. But why spend crazy amounts of money when we could spend less? But even saying that feels like we're trying to penny pinch. It's all so ironic as they were so parsimonious growing up - like I got no maintenance money at university, we never went on holiday, we barely got given birthday presents.

And the more crap that gets bought from the internet, the more decluttering will fall to me. She has 200 scarves! Loads with their tags unpopped.

She doesn't have a social worker. Because they've got money, most of the arrangements have been done privately. The NHS GP just told me that now was the time to "turn on the money hose".

The live in carer is a worry. I think they are stepping over the line by asking you to buy a new TV etc. Buying 6 jumpers in one week? The carer is not encouraging your mum to be responsible with her money. I would seriously think about changing the carer or you may find other things that are not above board. Maybe ask to speak to a manager and ask if certain behaviour is normal. Also keep a watch on your mother's bank account.

StiffyByngsDogBartholomew · 31/01/2024 17:43

MrsSkylerWhite · 31/01/2024 12:35

Valleyofthedollymix · Yesterday 15:55

@mrsm43s I see your point but it just feels incredibly wasteful and consumerist. Like, technically I could afford to fly first class, but I never would because it's a waste of money and I'd rather spend it on my children or give it to charity. And yes it is her money, but money she's inherited and I don't think her hardworking ancestors would want it pissed away like this”

So, this is about inheritance?

Why are you taking the quote out of context ? You even quoted the first half of her sentence.

She meant "i can afford to fly first class but i choose not to as i would rather give the money to charity or spend it on my children."

the inheritance was not referred to in this sentence. It amazes me how some poster criticise others when they themselves have such limited reading and comprehension abilities that they can't understand even a very simple sentence.

NoggintheNoggin · 31/01/2024 17:42

@Valleyofthedollymix Re. the credit cards and how you need to sort something out pronto.

No one outside of the immediate family should have access to your Mum's DOB, credit cards, address, security number on the back of the card, etc.

It's no good assuming the carer is honest. She probably is, but it's negligence on your part to allow this access to your Mum's money.

My Mum, thankfully, doesn't have dementia. She's much older than your Mum and lives alone.

This is how we and my sibling manage her money.

My sibling takes cash out of my Mum's bank account each week, gives it to my Mum, and she uses it to pay for her gardener, or neighbours bringing her shopping. This gives her some control.

Anything else, like purchases for clothes, household items like a freezer she needed, I buy for her using my credit card.

(My Mum can use her iPad to look for clothes, etc, but we don't trust her to navigate online sales at her age.)

My Mum transfers a certain amount of money into mine and my siblings' bank accounts a couple of times a year.
We use that to pay whatever she's bought on our credit cards. I do online bank transfers so I have the statements and she can see what's been spent- so it's all very transparent.

Abeona · 31/01/2024 17:41

On a dog walk this afternoon I met up with a friend who is currently trying to work out how to care for her elderly mother who is increasingly confused. I mentioned this thread and the responses from the lawyer/ social worker/ human rights folk who talk about it being a breach of human rights to make decisions on behalf of people who trusted you enough, when they were well, to ask you to be their attorney. I told her about the post here from someone who says that if on a good day, at the right time of day, someone might have the capacity to make their own informed decisions then there is a legal obligation to keep consulting them — and she just laughed and then got tearful.

She asked how anyone who hasn't known the person for years could have any idea whether they were cogent and had capacity at any moment. She pointed out that until quite recently her mother's GP had assured her on various occasions that her mother was showed no sign of memory loss or intellectual impairment. He didn't seem to believe anything she reported about her mother's behaviour. Then one day when she took her mum in for an appointment the GP asked whether her mum had enjoyed her week in Broadstairs with Bernard. My friend pointed out that her mum hadn't been on holiday to Broadstairs for 50 years, and that Bernard died in 2012. At that point the GP conceded that maybe it was time to do some assessments. But until that moment, apparently, she had been fully compos mentis.

I think now if anyone asked me whether they should accept a request to be an attorney I'd say no. I had 18 years looking after my aunt and even though I had it relatively easy, I had responsibilities for things like selling her home (200+ miles away), visiting her every few weeks, managing her money and dealing with all the various complications that arose. I was allowed to charge my expenses and that was it. I gave hundreds, possibly thousands, of hours of work — because it was work — for free. Most of the other other attorneys I've met have been women, because it's mostly the women in the family who are expected to do the caring.

Dancerprancer19 · 31/01/2024 17:40

Valleyofthedollymix · 30/01/2024 15:20

This is all really useful, thank you so much for taking the time.

Yes the carer is through a nationwide agency, which charges an absolute fortune (nearly 2k a week). It made sense when my dad was alive as his needs were constantly evolving and we knew we needed flexibility for the likely short time he would live in order that he stay at home.

It means we've got into this big bucks spending and DM feels v entitled. She was furious when I cut the live-in carers from two to one when he died - they weren't even supposed to be caring for her but she's turned into some sort of dowager duchess!

I like the main carer who makes my life easier by taking a lot of initiative. But god she loves spending other people's money. So much smoked salmon! She's always on at me for something - the most expensive Dyson, a new bigger TV etc. We are in control of my mother's finances but carer can use the card and also asks for stuff. I don't think she's dodgy, but she's deeply irritating. We have POA. It feels like we're being put into a tricky position when we're asked for stuff. I would have liked to have been asked before the chair company came round - we just got sent photos of DM looking gleeful in the 'deluxe' model and told she'd already chosen the fabric.

I'm chasing NHS OT now, but you know what that's like...

This sounds really inappropriate. Can you raise it with the agency?

whirlingdevonish · 31/01/2024 17:33

Sorry haven't RTTT but your situation is very similar to the one we were in. I felt I was drowning under purchases!
But a care company should insist on an OT assessment as much to protect themselves as to help you. So get that done, and see what they think about the chair. You might even get given one if it's needed. Alternatively (as I sadly know) there's a quick turnaround on the second hand market because purchases of said chairs may not last long.

Good luck. The whole thing is brutal x

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