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Elderly parents

Care home sent her back

139 replies

WickerShit · 27/01/2024 08:04

Mum (78) has Alzheimer's, diagnosed 2018, being cared for at home by my 85 year old step-father. Things have been really awful for a long time.

She is very very bad now crying and distressed a lot of the time, hallucinating, not washing or changing her clothes.

We have been pushing and pushing for them to get help (carers etc) and SF wouldn't have it said Mum would not accept any help from anyone but family. There's a lot more to the history of the last few years as you can imagine.

This month things came to a head with paramedics being called/hospital visits finally people seemed to start to sit up and listen and after a very bumpy ride very emotional and stressful she was found a place in a home which we moved her into. She went in Thurs lunchtime. By 7 pm they had called us and said they couldn't cope and we'd have to take her home. She was verbally and physically aggressive and throwing drinks / food at the walls.

Back home she is now calmer than that but back to crying and moaning and wandering round unable to settle. And still in the same clothes, hadn't washed for weeks,

When they called SF yesterday afternoon and asked how things are he said 'fine' . Someone called us yesterday and said if he continues to say 'fine' the authorities will move on and no more help will be offered.

Me and my step-sister have PoA. Just wondering what the next step is. So sad as I really thought on Thursday we'd finally moved on to the next albeit upsetting phase but no back to the nightmare again.

OP posts:
WickerShit · 02/02/2024 07:22

Thank you again for your kind thoughts and words of reassurance.

Trying to not get my hopes up too much but the doctor from her ward called and said she was anxious and tearful yesterday but not aggressive so sounds like things aren't quite as extreme as they were in the last place.

I'm most looking forward to maybe at some point in the future being able to give her a cuddle without her crying all over me or pulling away. 🤞

OP posts:
TheShellBeach · 01/02/2024 16:58

She's in the best place now, OP.

I understand how draining the last few years have been for you. I hope you and your family get peace from everything now, and that your mum settles down happily.

HappyHamsters · 01/02/2024 12:59

She will be safe now and can get the assessments she needs, if they move her to a section 3 she will get aftercare which the staff will arrange, she will be able to have visitors if the staff think it appropriate and you want to visit.

Spencer0220 · 01/02/2024 12:56

Massive hugs OP. I hope you and your family can come to peace with it.

helpfulperson · 01/02/2024 12:48

Have they said you can't visit her where she is? I understand not in the first couple of weeks but you should be able to visit her wherever she is.

WickerShit · 01/02/2024 12:37

NewYear24 · 01/02/2024 12:35

WickerShit I went through this 15 months ago. She’s in the right place now, I’m thinking of you.

Edited

Thank you

OP posts:
NewYear24 · 01/02/2024 12:35

WickerShit I went through this 15 months ago. She’s in the right place now, I’m thinking of you.

WickerShit · 01/02/2024 12:33

It’s been a very stressful few days but this morning she was sectioned and taken in an ambulance to a secure mental health unit. 😢

She went quite quietly in the end although obviously very confused and upset.

Hopefully in time they can adjust her meds and stabilise her enough to go into a ‘normal’ home and we’ll be able to visit her. SD is in pieces. Right now I feel a bit numb and relieved but also very very sad.

OP posts:
TheShellBeach · 01/02/2024 11:10

How are things going, @WickerShit?
Has your mum been admitted?

WinterExclusive · 30/01/2024 20:43

Ah @WickerShit this is - I promise - the very hardest bit, in my experience. The waiting. The guilt. The pure sadness. If I could (and if you were a huggy kinda lady) I'd give you the biggest hug.

When my dad was sectioned, I led the police officers and social workers in the house to my dad's bed, woke him up and held his hand for a few minutes then left at their suggestion. A couple of hours later, someone came down to say that he was coming out and my mum wanted to be away - so I panicked and tried to drive away quickly. I reversed into the ambulance to the ambulance men's utter disgust and to the policeman's delight. We drove to the end of the road, and saw the ambulance leave shortly after.

We gave my dad several days before I visited. The first few visits were him being very angry but he slowly lost that irateness and became more like the person I remembered.

Looking back, I know that I did the right thing and I know the dad of twenty years ago would be pleased with me. He sometimes tells me that now too. Of course sometimes he tells everyone that his daughter has stolen all his assets, so on balance, the imaginary back dated approval is possibly more reliable.

I won't presume to speak for Hannah with the banner but maybe you'd have an insight into what she'd think about all of this. My dad would say "what a mess" and shake his head in despair and amusement at some of his antics...

TheShellBeach · 30/01/2024 16:42

WickerShit · 30/01/2024 14:53

After a lot of phone calls and stress on all sides they are now not coming today as they don’t have time. So tomorrow. Another 24 hours of waiting…

Oh no. How frustrating for you all. You get yourself worked up about something and then the NHS fails at such an important juncture.

I'm so sorry you're going through this, OP. It is just awful to have a loved one with dementia. People who haven't been through it do not understand.

You'll start to feel better in a few days, once your mother is in the unit and getting medication and meals - and being washed when she needs it, too.

Also, you will stop flinching every time your phone rings - and you'll be able to live a more normal life, without the need to factor in your mother's needs into everything you do.

NewYear24 · 30/01/2024 14:59

I forgot to say I was allowed to visit straight away and I went in the secure ambulance with her. I covertly packed everything as I waited for the ambulance.

NewYear24 · 30/01/2024 14:57

OP my DM getting sectioned was the best thing that could have happened in her difficult circumstances. She spent four months in a psychiatric unit receiving the right medication for her and also becomes institutionalised and accepting of the help where as she never did accept it at home.
Four months later I found a home that would take her. They managed her for 10 months and then she moved to a nursing home that is a better fit for her.

WickerShit · 30/01/2024 14:53

After a lot of phone calls and stress on all sides they are now not coming today as they don’t have time. So tomorrow. Another 24 hours of waiting…

OP posts:
OnGoldenPond · 30/01/2024 14:47

Tracker1234 · 27/01/2024 19:57

If you are not self funding can you pick a care home of your choice? There seems to be a number of people indicating that you can refuse certain ones if you don’t feel it’s right but what stops anyone just dismissing everything that is suggested until they get the one they really like?

When we were looking for DF we could choose any that accepted the local authority daily rate payment. That cut out the posh hotel type ones but still left a good amount of choice locally.

13Bastards · 30/01/2024 14:40

I haven't RTFT but my mum was sectioned due to hitting the Dementia nurse who visited her at home. We were all terrified, imagining her being in some sort of Victorian asylum building and we couldn't have been further from the truth.
The HCA and nurses were so lovely, they took real pride in the care they gave and the centre was relatively modern and had a beautiful secure garden, lots of windows where she could sit and see outside etc.

it was the best thing for her (and my dad) at that point

WickerShit · 30/01/2024 14:35

Puddingpieplum · 30/01/2024 13:53

@WickerShit this isn't a terrible thing that has happened, I promise.
When someone is in an elderly locked ward the staffing ratios are generally very good. The medics will try her on meds under close supervision, and will review every few days. It is in the interest of the ward to get her discharged as there are another 20 people needing her bed. So she will be optimised for discharge, and a suitable placement found. She will no doubt be discharged as FNC, so there'll be less fees to pay, and there'll be a specialist discharge nurse to manage the process.
Being sectioned and admitted averted a crisis, is isn't a crisis.
Honestly I know.you can't see the wood for the trees right now, but this is probably the best outcome xx

Thank you this is very encouraging to read.

And thanks for all your wishes and advice .

Still waiting for it all to start. Been phoning and making myself a nuisance though.

OP posts:
Puddingpieplum · 30/01/2024 13:53

@WickerShit this isn't a terrible thing that has happened, I promise.
When someone is in an elderly locked ward the staffing ratios are generally very good. The medics will try her on meds under close supervision, and will review every few days. It is in the interest of the ward to get her discharged as there are another 20 people needing her bed. So she will be optimised for discharge, and a suitable placement found. She will no doubt be discharged as FNC, so there'll be less fees to pay, and there'll be a specialist discharge nurse to manage the process.
Being sectioned and admitted averted a crisis, is isn't a crisis.
Honestly I know.you can't see the wood for the trees right now, but this is probably the best outcome xx

reflecting2023 · 30/01/2024 10:10

Ah ok. There aren't that many EMI beds so can be a wait :)

HappyHamsters · 30/01/2024 09:55

PermanentTemporary · 30/01/2024 09:22

Sorry I've only read first page.

My mum attacked a nurse in her 'dementia specialist' home. As a result the nursing home gave notice (but didn't put her out on the street!) She was assessed by the Older Adults Mental Health Team, started medication and a social worker identified a place for her in a really specialist unit. Because they understand whats going on with her and have more staff, she has never been aggressive again in the same way, although they have had to work very carefully with her at times.

Start screaming for help. GP, duty social worker. Oh and a big complaint to the CQC about that shitty home. All this stuff gets things moving.

Read the update

Thisisnottheend · 30/01/2024 09:39

p.s. staff can also use positive life events/ likes/hobbies as a way in to engage with someone. She sounds like she was a very strong, loving woman.

Thisisnottheend · 30/01/2024 09:34

WickerShit · 30/01/2024 05:04

I'm awake at 4.30 in the morning. I can't believe what's about to happen. Obviously over the last 6 years since her diagnosis I knew that she'd almost certainly end up in care. But this isn't how I visualised it.

The Admiral Nurse I spoke to today is lovely but when I queried the technicalities of the section order she said ‘Your Mum will be banging on the doors desperate to get out’ which was more visualisation than I needed if I’m honest.

SD FaceTimed me but we have no idea how to talk to each other there’s too much pain - neither of us can help the other one. One minute he’s talking brightly about hoping they can get her in somewhere nearby so he can visit (I don’t know if he has any awareness that he may not be able to visit her in the unit at all or certainly for a while, I’m too scared to mention that). Next minute he’s randomly telling me he had to wash her bedding because it was soiled. ‘There was water on it as well, I think she tried to clean it up. She does try to do stuff sometimes, in her own way’ then broke down and ended the call.

I was an only child. My biological father was an alcoholic who wasn’t around much, and when he was home he was arguing and fighting with Mum. We left when I was 5 and for a bit it was just us two until she met and married SD. In my head it was always still just us two though. SD called us ‘two peas in a pod’. I loved her so much and then one day she started to disappear and I was horrified. I’ve been grieving ever since but can’t say goodbye properly because from the outside she’s still here.

She was beautiful and clever and funny and opinionated and passionate about fairness and justice. She referred to herself as ‘Hannah with her Banner’ and got into trouble at work for wearing a red rose Labour badge on her lapel.

She had issues in her own childhood and before she met SD she was treated badly by the men in her life. Things weren’t great when I was very young but she loved me and protected me - she said ‘I love you’ constantly and she was so affectionate my overriding memory is being cuddled and held.

And now I can do nothing to reach her or help her and she’s in a living hell and that’s that.

OP@WickerShit so eloquently written....could i suggest you write a potted history of your mum ( including her personality, beliefs and any of those difficult events she went through?) is it great for staff to be aware of the 3D person she has been throughout her life ,particularly as in older people (with and without dementia) those difficult life events can come back and might be causing distress. Particularly if those distressing events involved men as she may have male care staff. Sending big hugs, my mum was in a psychiatric hospital for a while and i "lost" her too.

TorroFerney · 30/01/2024 09:31

WickerShit · 27/01/2024 10:40

Thanks. This response has really hit home with us. What we have been looking for is something that makes us happy, less guilty about leaving her.

It's much harder to think about what will make her happy. Because currently nothing does. Nothing at all.

It’s awful I know but forget happy and think safe and secure and clean.

PermanentTemporary · 30/01/2024 09:24

Argh I'm so sorry to posy without reading. I really hope the outcome is as helpful as it has been for my mum. 🌹

PermanentTemporary · 30/01/2024 09:22

Sorry I've only read first page.

My mum attacked a nurse in her 'dementia specialist' home. As a result the nursing home gave notice (but didn't put her out on the street!) She was assessed by the Older Adults Mental Health Team, started medication and a social worker identified a place for her in a really specialist unit. Because they understand whats going on with her and have more staff, she has never been aggressive again in the same way, although they have had to work very carefully with her at times.

Start screaming for help. GP, duty social worker. Oh and a big complaint to the CQC about that shitty home. All this stuff gets things moving.