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Elderly parents

No future planning and now crisis

135 replies

disappearingfish · 23/01/2024 20:59

SIL is 83 and her health, mobility and balance have been deteriorating steadily over the last few years. She has resisted any real interventions, just the bare minimum of adaptations.

She fell this week and spent 6 hours on the floor before the paramedics came to get her up. Now she's frightened of being alone and she's taken to ringing everyone in her address book and guilting them to coming over to fetch and carry for her, pressuring them to stay overnight. It's a flipping nightmare. DH (her brother) is her only local family so is being run ragged, guilted all the while she refuses to use the new electric recliner chair, the new accessible bed etc. etc.

She does have a carer but she's only supposed to pop in a few times a day and she's done nothing about any other care. She's off her head on meds half the time (including stashes of pills she's ferreted away which are years past their expiry date). She's shouting at everyone who doesn't jump to attention, including the doctor and DH. Her lovely kind neighbour has been in tears at the abuse she's had. I get that she's frightened but my god it's hard.

There's no LPOA or anything else in place that can enable people to make decisions in her best interest. Her children live far away, have their own lives and families and are doing their best. No real point to this post but just had to vent. We saw this coming years ago and have tried and tried to tackle it but she wouldn't listen.

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disappearingfish · 26/01/2024 21:19

Care agency came today to talk options, 24 hour, live in or overnight. No decisions made yet so everything is still very much cobbled together.

She's ignoring all advice about keeping her legs elevated so now they're a swollen mess. I think she might end up in hospital if the sores don't heal.

So much else going on I can't keep up. DH has done a lot of running around but has also been firm about his boundaries.

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SeriouslyAgain · 23/01/2024 22:21

I second what ALuckyEllie said! Good luck - and to your DH!

disappearingfish · 23/01/2024 22:19

Harshness gratefully accepted, it's exactly what everyone else who's been in this situation has said.

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disappearingfish · 23/01/2024 22:18

Current carer is independent, no team behind her. SiL really needs to be somewhere they can monitor her meds.

I've told DH to go over tomorrow and bin all her ancient tranqs and painkillers. I swear some are left over from when she looked after her own mum 25 years ago!

Thank you for letting me vent.

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AluckyEllie · 23/01/2024 22:04

Unfortunately I’m going to be harsh and say you need to set boundaries now. Support your husband obviously big really try to get him on side. He needs to block her calls after a certain time, or on days he has said he won’t be available. Be crystal clear with other family members exactly how much he is prepared to take on for her.

This is not his fault or his problem. I’d get the lovely neighbour some flowers to say thank you and explain to them that you don’t expect anything from them/that it’s okay for them to ignore her.

She needs to fail and fall in a heap if that’s the only thing that will get her to realise she needs to accept carers/interventions etc. I know it’s not that easy, I really do. I work in a hospital and dear lord the number of elderly patients we get bouncing back into hospital over and over again because they cancel the carers or refuse to go into a home. It’s boggling and so frustrating.

EdithStourton · 23/01/2024 21:55

I would contact whatever care team is sending the carer who currently comes in, and say that she needs more support. Hopefully that can trigger a review of her case. She might accept advice from them that she would refuse from you.

You have my sympathy. It is so difficult when you have an elderly relative who could and should have made some plans for the likelihood of a decline in their mobility and capacity to care for themselves, but has been wilfully blind. We had this with one elderly relative, who refused to do anything other than rely on her children until a crisis hit, and we're now having a similar-but-different scenario with another.

disappearingfish · 23/01/2024 21:53

@DustyLee123 no social worker and no ability to get her to engage with one.

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disappearingfish · 23/01/2024 21:52

Thanks @SeriouslyAgain you've said what others have said. Unfortunately she has quite a few people (still) willing to dance round her and it's allowing her to ignore what we are telling her. That she needs proper care in place.

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DustyLee123 · 23/01/2024 21:44

Does she have a social worker?

SeriouslyAgain · 23/01/2024 21:41

Vent away! It's so often the case. The refusal to forward plan is so frustrating and then everyone around has to pick up the pieces. Without LPA, no idea what can be done really but just wanted to say 'I hear you'.
Probably the 'best' that can realistically happen is at the point of the next crisis, family will have to push at the point of discharge so that some form of care is 'imposed'. It's so stressful.