Please or to access all these features

Elderly parents

No future planning and now crisis

135 replies

disappearingfish · 23/01/2024 20:59

SIL is 83 and her health, mobility and balance have been deteriorating steadily over the last few years. She has resisted any real interventions, just the bare minimum of adaptations.

She fell this week and spent 6 hours on the floor before the paramedics came to get her up. Now she's frightened of being alone and she's taken to ringing everyone in her address book and guilting them to coming over to fetch and carry for her, pressuring them to stay overnight. It's a flipping nightmare. DH (her brother) is her only local family so is being run ragged, guilted all the while she refuses to use the new electric recliner chair, the new accessible bed etc. etc.

She does have a carer but she's only supposed to pop in a few times a day and she's done nothing about any other care. She's off her head on meds half the time (including stashes of pills she's ferreted away which are years past their expiry date). She's shouting at everyone who doesn't jump to attention, including the doctor and DH. Her lovely kind neighbour has been in tears at the abuse she's had. I get that she's frightened but my god it's hard.

There's no LPOA or anything else in place that can enable people to make decisions in her best interest. Her children live far away, have their own lives and families and are doing their best. No real point to this post but just had to vent. We saw this coming years ago and have tried and tried to tackle it but she wouldn't listen.

OP posts:
AQuantityOfNaughtyCats · 28/01/2024 10:50

midgetastic · 28/01/2024 10:17

But most people don't see the point of downsizing when they are still full of life

Just watch escape to the country !

That’s the entire point of the thread. People don’t move when they’re fit and able and become unfit and unable and by then it’s too late.

midgetastic · 28/01/2024 10:17

But most people don't see the point of downsizing when they are still full of life

Just watch escape to the country !

AQuantityOfNaughtyCats · 28/01/2024 10:16

disappearingfish · 28/01/2024 10:01

It's not (all) about downsizing, although her house and garden are far too much for her to manage. It's about being in a house that is/can be adapted for infirmity. E.g.

She is on a steeply sloping site which means she can't walk out of her own front door and up to the pavement.

She took much joy from her garden but it's terraced so she can't get down the steps to the flower beds.

She likes an open fire for warmth but she can't put logs on it anymore so gets cold.

When I get older I'm going to pack myself off to a nice modern bungalow or flat somewhere with a small garden or balcony and rid myself of the burden of keeping up a house.

This in spades. Same with my relatives- the house is large and high maintenance, the garden is large, sloped and high maintenance. They are dependent on being able to drive to get anywhere. I’ll certainly be downsizing to a smaller place once my children have left home and making sure it’s somewhere appropriate for later life- level access, downstairs bathroom and bedroom, low maintenance and transport links.

disappearingfish · 28/01/2024 10:01

It's not (all) about downsizing, although her house and garden are far too much for her to manage. It's about being in a house that is/can be adapted for infirmity. E.g.

She is on a steeply sloping site which means she can't walk out of her own front door and up to the pavement.

She took much joy from her garden but it's terraced so she can't get down the steps to the flower beds.

She likes an open fire for warmth but she can't put logs on it anymore so gets cold.

When I get older I'm going to pack myself off to a nice modern bungalow or flat somewhere with a small garden or balcony and rid myself of the burden of keeping up a house.

OP posts:
MereDintofPandiculation · 28/01/2024 09:47

And if two thirds of anyone’s house is used for storage of item with no use, no material value and no sentimental value then they have a hoarding problem. Even a single room storing pointless items. That's a big leap! I haven’t met many people who say their house has enough storage.

MereDintofPandiculation · 27/01/2024 21:35

You don't need to assume - I've already made my age clear on this board. and that I'm not ready to downsize. Where would I keep the canoes and the climbing gear? But while I have my father alive, my DC do not regard me as old.

AQuantityOfNaughtyCats · 27/01/2024 21:34

AQuantityOfNaughtyCats · 27/01/2024 20:41

Can I assume you’re getting on in life yourself and not wanting to move?!

And if two thirds of anyone’s house is used for storage of item with no use, no material value and no sentimental value then they have a hoarding problem. Even a single room storing pointless items.

AQuantityOfNaughtyCats · 27/01/2024 20:41

MereDintofPandiculation · 27/01/2024 20:35

But they still have them! Even if just for storage.

Can I assume you’re getting on in life yourself and not wanting to move?!

MereDintofPandiculation · 27/01/2024 20:35

AQuantityOfNaughtyCats · 27/01/2024 20:32

They don’t use two thirds of the rooms they currently have!

But they still have them! Even if just for storage.

MereDintofPandiculation · 27/01/2024 20:33

We've been saying that this would happen for 10 years and now she's perfectly happy to run me ragged and stress me out She probably doesn’t understand that. She sees that she’s asking you to do a five minute job. She may have forgotten that the 5 minute job involves you driving for 4 hours. She certainly won’t understand the knot in your stomach every time the phone rings.

AQuantityOfNaughtyCats · 27/01/2024 20:32

MereDintofPandiculation · 27/01/2024 20:30

Well, it doesn’t retain quality of life necessarily, because they’re living in a smaller space. So they have to balance up whether it’s better to have a partial reduction now in return for postponing the major reduction that will come later.

They don’t use two thirds of the rooms they currently have!

MereDintofPandiculation · 27/01/2024 20:30

AQuantityOfNaughtyCats · 27/01/2024 12:30

We’re heading this way with elderly relatives who refuse to see that at over 80 they need to plan ahead. “We’re not there yet” is their mantra, ignoring the fact that when one of them does have a stroke/break a hip/develop dementia it then becomes a crisis whereas downsizing to a manageable house with level access, potential for a downstairs bedroom/bathroom, easy to care for garden etc etc retains quality of life while also ensuring they ARE able to cope when things inevitably start to deteriorate. So frustrating.

Well, it doesn’t retain quality of life necessarily, because they’re living in a smaller space. So they have to balance up whether it’s better to have a partial reduction now in return for postponing the major reduction that will come later.

Notmorerainagain · 27/01/2024 14:07

Same here and I'm fed up of it. Neediness, self-neglect and refusal to engage is spot on!

NO to every offer of help: cleaner, carers, moving stuff they said they want taken to the tip, fixing trip hazards. Then I'm expected to spend 4 hours each way on the bloody motorway dealing with some pointless shit that could be dealt with by their pig-headed "partner" or by the people we've offered to get in to help. As if I have nothing better to do and no right to downtime.

We've been saying that this would happen for 10 years and now she's perfectly happy to run me ragged and stress me out. Pure selfishness. No wise advice but you're not alone if it makes you feel any better!

disappearingfish · 27/01/2024 13:00

Huge sympathies @AQuantityOfNaughtyCats. I don't know what the magic words are to unlock this. All the evidence is right there in front of them.

DH is out on his boat today for some R&R. He got a call because she wants her duvet cover changed (it was changed yesterday but she doesn't like the one she's got on now🤷🏻‍♀️) he said no. That she isn't actually sleeping in her bedroom/bed right now didn't seem to make it less of an emergency 🫤 she's going to call one of the women from the WI instead....

OP posts:
AQuantityOfNaughtyCats · 27/01/2024 12:30

We’re heading this way with elderly relatives who refuse to see that at over 80 they need to plan ahead. “We’re not there yet” is their mantra, ignoring the fact that when one of them does have a stroke/break a hip/develop dementia it then becomes a crisis whereas downsizing to a manageable house with level access, potential for a downstairs bedroom/bathroom, easy to care for garden etc etc retains quality of life while also ensuring they ARE able to cope when things inevitably start to deteriorate. So frustrating.

disappearingfish · 27/01/2024 09:46

The care home issue is moot tbh, she will never go. She would, IMO, been so much happier in some kind of supported living situation five years ago. She's very lonely and while she was still able to converse and socialise she would have been happier somewhere with people around and less work/stress. Her house and garden need a lot of upkeep which has stressed and tired her out. It's been so sad watching her house degenerate around her ears but if we talked about a move she would shut us down.

Realistically she is now pretty trapped in one room, no quality of life and still refusing to discuss "the future" (which is now).

OP posts:
midgetastic · 27/01/2024 09:38

Have you seen a care home you would be happy with ?

How many people are realistic that this is it - their lives are over ?

It's not the concept , it tue actuality in a world geared for youth and profit

disappearingfish · 27/01/2024 09:35

How does one future plan though?

Some basic research - what care is available, how much does it cost?

Visit potential care homes and have a look around. Get your name on a waiting list even if you never take it up.

Adapt your home (or at least understand how you could) for future incapacity - grab rails, specialist furniture etc. Be realistic about whether your home is going to be suitable when you are infirm.

Talk about expectations of support and where it will come from. She expects everyone to drop everything for her now. People have jobs and children and responsibilities they can't walk away from.

Set up LPOAs and other permissions to enable relatives to speak to doctors etc. on your behalf.

Just endless stuff like that. For example, she now needs someone to stay overnight but the spare bedroom was rammed with stuff so DH had to clear it out so that someone could actually sleep there. It took him a day including a trip to the tip, all the while she shouted at him that he was stealing from her. Six months ago she could have done a lot of it herself. It always would have to be done but by refusing to do so meant others had to.

The thing she could have done 20 years ago was to lose some fucking weight. She is (sorry) enormous. Which makes care and treatment so difficult. She knew this in her 50s and 60s but didn't do anything. Sorry, I know weight is an emotive and complex issue but it can't be ignored.

OP posts:
tokesqueen · 27/01/2024 09:04

Until people stay away, completely, and she has to phone emergency services then nothing will change.
Whilst people are calling in, doing her shopping, odd jobs, sorting problems etc then nothing will change.
Give social services 48 hours notice in writing and withdraw contact.

midgetastic · 27/01/2024 09:03

Ignoring the real problem you now face and going back to your headline

How does one future plan though ?

Ignoring that everyone ends up differently

There is not much high quality sheltered living accommodation or a community that she could have signed up for , so there is a not a culture of signing up for such accommodation or communities ( which do exist in other countries )

Care in the uk is a last resort that is done as cheap as possible , no one plans to put themselves in that situation

And because there isn't really a good option no one wants to think about it and get mentally prepared- because there is absolutely nothing positive to look forward to

disappearingfish · 27/01/2024 08:06

Thanks so much @SafeguardingSocialWorker. The doctor and district nurse is aware, would she be under an obligation to make a referral? Because at the moment she is just being viewed as a nuisance, not as a risk to herself.

OP posts:
SafeguardingSocialWorker · 27/01/2024 07:56

you can probably make what is called a Safeguarding referral online with her local authority.

if she is taking a load of random meds and neglecting herself physically then it's likely she will meet the threshold for some level of attempted intervention from services - it may well not meet the threshold for safeguarding immediately but it should generate some involvement from adult social care who could then involve other agencies.

3luckystars · 27/01/2024 07:04

Vent away!!!

disappearingfish · 27/01/2024 07:02

Thanks @FiniteSagacity that describes it perfectly, neediness, self-neglect and refusal to engage. Whenever there needs to be a serious conversation she just says "I'm too tired" and shuts her eyes and that's that! Then 5 minutes later she's on the phone to some random in her phone book saying "I'm dying can you come over straight away". Even if they live 100s of miles away.

Also discovered, as long suspected, a serious binge eating problem. Which now she's not in control of her shopping and fetching/carrying she can't hide anymore. She was eating kilos of chocolate, cake and biscuits at a time. What on earth to do about that?

OP posts:
FiniteSagacity · 26/01/2024 22:33

@disappearingfish I can only offer solidarity, this is so similar to what we’ve been dealing with and the mix of neediness, self-neglect and refusal to engage with those who can help is just exhausting. On the verge of capacity but not reality with any grip on reality 😔