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Elderly parents

No future planning and now crisis

135 replies

disappearingfish · 23/01/2024 20:59

SIL is 83 and her health, mobility and balance have been deteriorating steadily over the last few years. She has resisted any real interventions, just the bare minimum of adaptations.

She fell this week and spent 6 hours on the floor before the paramedics came to get her up. Now she's frightened of being alone and she's taken to ringing everyone in her address book and guilting them to coming over to fetch and carry for her, pressuring them to stay overnight. It's a flipping nightmare. DH (her brother) is her only local family so is being run ragged, guilted all the while she refuses to use the new electric recliner chair, the new accessible bed etc. etc.

She does have a carer but she's only supposed to pop in a few times a day and she's done nothing about any other care. She's off her head on meds half the time (including stashes of pills she's ferreted away which are years past their expiry date). She's shouting at everyone who doesn't jump to attention, including the doctor and DH. Her lovely kind neighbour has been in tears at the abuse she's had. I get that she's frightened but my god it's hard.

There's no LPOA or anything else in place that can enable people to make decisions in her best interest. Her children live far away, have their own lives and families and are doing their best. No real point to this post but just had to vent. We saw this coming years ago and have tried and tried to tackle it but she wouldn't listen.

OP posts:
Mum5net · 10/03/2024 21:01

@PumkinPlaytime my vote goes to personality rather than era.
Hope you feeling less sandwiched now.

PumkinPlaytime · 10/03/2024 18:20

Sorry, not wanting to hijack, having a bad Mother’s Day all round.

PumkinPlaytime · 10/03/2024 17:56

Does anyone think it’s cultural too? Or not?

My mother 85 definitely thinks along lines of “elders and betters”. Unfortunately she is a narcissist so there is an extra huge dollop of entitlement. But even without that, do you think it’s part of that generation? Of course some elderly are lovely …. I almost feel 😔 for myself when I see a post about someone’s lovely, loved elderly mother.

I am in my 60s and don’t receive that kind of respect from my adult son - he does sweet FA for me and totally unreliable. I suspect he has (undiagnosed) issues but it still hurts. However I see who he is and would not bother with making any demands and so look after myself!

disappearingfish · 10/03/2024 12:34

Thanks @PermanentTemporary, the nursing home grumbled (nicely) that the hospital discharge notes did not prepare them for her behaviour. They have requested medication but it's being held up over the weekend.

I think there is a lot more drama and upset to come, I'm just trying to support the main people involved (DH and her children) to keep good boundaries and look after their own wellbeing.

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PermanentTemporary · 10/03/2024 08:07

I'd ask the care home manager about requesting an assessment by the older adults mental health team. They were AMAZING with my mum. They identified medication that helped reduce the situation from impossible hellscape to serious but more stable almost immediately. Most importantly of all, they were the first people that mum spoke highly of for a long time. They understood what they were looking at and the causes. And they treated Mum as what she was - an adult woman dealing with very difficult neuropsychological symptoms. Unable to care for herself but still an individual person.

EdithStourton · 07/03/2024 22:10

I hope she settles down - this must all be so stressful.

I take it that someone has explained to her that she can't carry on being obnoxious, and she's just paying no attention.

Our elderly relative has no idea how many deep breaths her daughter has taken lately before replying. She switches from expecting to her daughter to act upon every hint, to complaining that her daughter is taking over. It's so difficult.

disappearingfish · 07/03/2024 17:51

I've been reading back over my own posts as it's so useful. I had forgotten so much! So today when we were asked about when she started to be unsettled overnight DH said it was really recently, whereas I could remind him that it was the end of January when she was phoning in the middle of the night so we started unplugging the phone...

Advice to all - keep a diary!

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disappearingfish · 07/03/2024 17:46

@HamBone I really don't see her changing. It's astonishing. I can allow for some distress at her loss of independence and change in circumstances but she has no consideration for the people around her. I don't think she ever has.

She's making life more unhappy for herself as people are pulling away from her.

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HamBone · 07/03/2024 17:39

Glad to hear that she’s somewhere safe now, but bloomin’ heck, she needs to change her attitude! How dare she treat the staff and other residents like that. She sounds awful.

3luckystars · 07/03/2024 16:52

I don’t know how they do it either.
They are well used to this though, they have seen it all before.

disappearingfish · 07/03/2024 15:12

Also, care home staff are amazing, I don't know how they do it!

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disappearingfish · 07/03/2024 15:12

Just an update from me. SIL is now in a care home and it's in equal parts heartbreaking and infuriating. She has continued to ignore/argue against all the instructions and advice she has been given and her physical abilities have declined massively as a result. She will never be able to walk again, she requires hoists to be moved and yet it still insisting that she can go home.

I won't go into all the details but she is raising hell with staff and upsetting the other residents. She's so rude! My worry now is that she'll be kicked out and there's nowhere else for her to go.

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Mum5net · 16/02/2024 12:18

Being on a public transport route for her friends is a major consideration. However, the biggest 'decider' for us was the leadership provided by the care home manager. A visible and influential care home manager ultimately is the key, even if it is in a slightly awkward place. The continuity of staff and level of training they receive is also up there.
If the 'first' care home isn't right, she can be moved and I know all about this too,

DRS1970 · 16/02/2024 11:52

I have found being firm, tough love, helpful in a similar situation. I said that my help is conditional on them trying to help themselves first, whether it be accepting adaptions, or using equipment that has been provided, surrendering stashed of illicit medication, and treating me with respect. If they aren't trying, then nor would I. Otherwise you will end needing care too. GL, and sorry to hear you are having a tough time.

disappearingfish · 16/02/2024 11:48

Thanks @Mum5net she's had a massive medication review by the hospital doctors. I suspect she wore her GP down with constant requests for medicines, plus she was hoarding them, plus taking medication prescribed for her (now deceased) husband and mother. So she's off a lot of them and I think her system is adjusting. Part of her new agitation is that she's actually much more alert than event before (alert but not always making sense).

A care home has been identified but it's not an easy journey for us / her friends to make to visit her there, again, lack of forward planning!

Advice from doctors is that her current conditions could be managed successfully for years to come, but with little prospect of regaining any mobility or ability to care for herself but SIL can't really absorb that reality.

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GuppytheCat · 16/02/2024 11:44

My poor Dbro had our DM ringing him up to 30 times in one hour! She simply couldn’t remember that she’d only just spoken to him.

Oh goodness. DH once made the mistake of leaving a note out with his mobile number for MiL's temporary lunchtime carer. DMiL 'found' the note and rang his number pretty much on repeat for the whole morning. 'Hello? Who is this? There was a note here with this number...'

BenjaminBunnyRabbit · 16/02/2024 11:38

Delirium is very common in elderly. It presents as dementia.

Mum5net · 16/02/2024 11:12

Going forward, OP, lets hope the meds she's been given to reduce her agitation work well and they decide to stick with them. Once the care home is selected, it's normal for a representative from that home to visit her in hospital to make sure that her needs can be met by them before she goes to them and everything is rubber stamped.

Just giving you the heads up - and it might not come to this- but be aware if she is assessed when she is 'less agitated' and then they subsequently withdraw the meds when she departs to the care home, her challenging behaviour might give her new place of residence a problem.

I think it's normal practice in a contract for the care home to have a six week 'getting to know you ' clause'. This is where it can be terminated by either party for whatever reason. DMil parted company with her first care home after six weeks because there were issues on both sides. I'm not saying you will run into this problem, but just have it on your radar. Take the opportunity to discuss with the hospital team their recommendation for these meds- whether they are purely a one-off or maybe for the long term. (At least get the name of them so you can suggest them further along the journey.}

Thedogsdindins · 16/02/2024 10:16

Feeling your pain. Going through exactly this at the moment with parents (SD at end of life) both deteriorated lots in last few years with no forward planning despite us have conversations over and over.
Try contacting social services to see if they can help.
Good luck to you and your DH x

disappearingfish · 16/02/2024 10:09

Yes, we're getting to the stage where we take a call and then block her number for a few hours, otherwise she calls incessantly. She is somewhat confused but I think also just bloody-minded, bored, anxious and has no understanding of how this is affecting everyone. She must be making about 100 calls a day to various people.

She is getting visitors by the way - between 2 and 5 a day so it's not like she's been forgotten.

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Mum5net · 16/02/2024 10:06

They're sedating her just to give everyone some respite!
That one line says so much, OP.
Sending medals to you are your DH and everyone on her calling list.

GETTINGLIKEMYMOTHER · 16/02/2024 09:49

disappearingfish · 31/01/2024 09:53

Solidarity everyone, @FiniteSagacity your situation sounds so difficult.

SIL phoned us at 1230am asking us to go over because she felt sick, woke us all up, sent the dog into a barking fit when he normally sleeps all through. She called her neighbour at 615am.

She had a carer there! I don't know how long it's going to take to get her into residential care so it's going to be a rocky few days/weeks.

Is it fair to just take her phone away from her to stop her from phoning everyone?

It was dementia-related, but I’ve known of people having a dedicated basic mobile for such calls - delete any other number! - and have a recorded message to say, ‘Sorry, I can’t answer at the moment, but will call back later.’

And limit such calls to once or twice a day.
My poor Dbro had our DM ringing him up to 30 times in one hour! She simply couldn’t remember that she’d only just spoken to him. It was seriously starting to affect his mental health.

TellySavalashairbrush · 16/02/2024 08:28

Her brother is able to request a Carer’s assessment in his own right from adult social services, even if your sil refuses a care needs assessment herself. This would alert them to the situation and in the case of an emergency allow respite to be organised more quickly for sil.
Does sil have capacity ? Is also contact sil GP and advise them of the situation . They may be able to discuss the issues with her- people often heed the advice of professionals even when they refuse to listen to family and friends .

disappearingfish · 16/02/2024 08:13

SiL is being as difficult in hospital as she was out of it. Constant demands, phoning her entire contacts list repeatedly, asking for impossible things like a private room and a bath.

They're sedating her just to give everyone some respite!

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NewYearSameShizzle · 06/02/2024 13:46

This is such an important topic OP. Why do t people plan for this? Why do they assume their relatives will drop everything and be at their beck and call, especially if they're treated so poorly?!
I hope to never become so entitled that I behave in such a way. My daughter has already told me she would tell me to snap right out of it, if I attempted to ( quite rightly too).