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Elderly parents

Cockroach cafe 🪳 Summer 2023 🪳

984 replies

MereDintofPandiculation · 24/07/2023 20:27

Welcome! I’ve done a really good clean of the place overnight, and brought in sweet peas, and raspberries from the garden to go with the scones and clotted cream.

Come in when you want to share good news, or to rant, or to ask a small question that doesn't warrant its own thread. Or just to hang out with others who understand what you're going through.

For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. So 🪳 mes amis/amies, and may you all live to fight another day.

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MereDintofPandiculation · 14/10/2023 16:33

Thank you @TheShellBeach @seanbeanmarryme @DahliaMacNamara @funnelfan @Nodancingshoes for your good wishes. It does help.

@EmmaEmerald the cancer is stage 4 but prostate so slow growing compared to other cancers, the HF is causing cough and breathless and tiredness but apart from that he's still fit. Hence no imminent problems, just a lot of medical appts, but long term isn't good. At least he's talking seriously about LPAs. (We already have EPAs, but LPAs seem better, and there isn't a H&W EPA).

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EmmaEmerald · 14/10/2023 14:12

Mere if you don't mind me asking, is it early stage?

Nodancingshoes · 14/10/2023 13:48

@MereDintofPandiculation I'm so sorry to hear this xx

Things rumble on as usual here. I havnt seen nan since Monday. I worked the rest of the week and then I had a sickness bug yesterday so not going in this weekend for her safety. Nan is absolutely fuming about this... She has seen my Sister Wednesday and BIL Thursday plus obviously the carers every day so she hasn't been abandoned. I feel drained when I see her and then guilty for feeling that way.

funnelfan · 14/10/2023 13:38

I’m very sorry @MereDintofPandiculation

DahliaMacNamara · 14/10/2023 13:10

That must have been incredibly hard to hear, @MereDintofPandiculation .

seanbeanmarryme · 14/10/2023 12:46

@MereDintofPandiculation sorry to read your post.

TheShellBeach · 14/10/2023 12:03

Oh no, @MereDintofPandiculation that's difficult news to hear. Flowers
I'm so sorry.

countrygirl99 · 14/10/2023 11:57

@MereDintofPandiculation sorry to hear that.

MereDintofPandiculation · 14/10/2023 11:30

Thanks, @EmmaEmerald . Neither are likely to be imminently fatal, chances beyond 5 years don't look so positive. I'm back on an even keel now, but was feeling really bad Thursday night after we saw his consultant, not from anything he said, but the thought that DH really is dying. Yes, it's always on the cards at our age, but not him!! I'm not ready to go it alone!

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EmmaEmerald · 14/10/2023 10:16

MereDintofPandiculation · 14/10/2023 10:03

DH has been diagnosed with heart failure on top of the cancer. Medical appointments are running at two a week at the moment, half f which he wants me with him for note taking. If it were my Dad i’d be resenting it hugely. Interesting the difference a relationship makes, isn’t it?

Really sorry to hear this 💐

EmmaEmerald · 14/10/2023 10:15

Thank you everyone for the kind comments
I think the anger probably is just something I have to go through

Mum's brain MRI results finally came through. They don't think there's been any further damage since the stroke in November.

Frankly this is unfortunate for me because

a) it means my mother's decision making has been real and not impaired, to some extent? There are "normal age related changes" on the scan apparently. So...she had all her brain function while expecting me to be carer.

b) it gives her more grounds to get rid of the carer. But she has emergency contacts now through the care agency. I don't leave my phone on 24/7.

MissMarplesNiece I know it seems unthinkable, but it's more than time to step back. Really all of you should step back. It was the best thing I could have done. I refuse to take mum out. I'm going over there tomorrow for what will be a couple of hours - that's more than enough.

If you say you are ill, will she just phone you and scream and cry?

Really you need your sister to sit her down and say that you're ill, no one can cope and either she needs to find somewhere to live of her own accord or go into a home or sheltered housing.

MereDintofPandiculation · 14/10/2023 10:03

DH has been diagnosed with heart failure on top of the cancer. Medical appointments are running at two a week at the moment, half f which he wants me with him for note taking. If it were my Dad i’d be resenting it hugely. Interesting the difference a relationship makes, isn’t it?

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MissMarplesNiece · 13/10/2023 09:51

Sending 💐 to everyone battling with problems with/on behalf of their "olds". Im feeling especially fragile today after visiting my DM yesterday. She's so unhappy, but it's stuff I can't do anything about - old age stuff. Even though I know that, I feel really sad and upset that I can't make things better for her.

It doesn't help my frame of mind that she's so bitter about her life & everyone. Yesterday she was vile & told me no body has ever thought of her or done anything for her. I know it's frustration because she's so physically frail and can't do what she wants when she wants, but it's also so unfair because so many people spend so much time and energy trying to make life as nice and comfortable and pleasant for her as possible. And I find it upsetting to here her say that.

Juneday · 11/10/2023 21:03

@countrygirl99 right decision and I do hope she is comfortable, and you and family are holding up.

MiL wound has opened up again, screw came out yesterday and she has tested positive for MRSA. She is on antibiotics and hospital told nursing home they couldn’t see her until November so the home rang an ambulance and sent a nurse with her. DH has gone to see if he can find her in an isolation ward and discover what the plan is. She will likely be confused and distraught…. 🙁.

TheShellBeach · 11/10/2023 20:59

MissMarplesNiece · 11/10/2023 20:35

The suffering that elderly people go through is horrible and distressing to see when we love them and care about them so much.

@countrygirl99 , my DM also bruises so easily - her arms and hands are purple with huge bruises, and she gets so embarrassed about them. I'm so sorry to read about your MiL - I hope she finds peace quickly. It must be such a sad time for you & your DH.

My DM's surgery doesn't do home visits. Very poor really, they must have many patients like my DM where visiting the surgery is very, very difficult. It makes me cross really; we can have home visits from a hairdresser, chiropodist, optician etc, but the people who are meant to have their patients' well being at heart - GP surgery - doesn't have a person to do home visits.

Can't the district nurse do the vaccinations?

MissMarplesNiece · 11/10/2023 20:35

The suffering that elderly people go through is horrible and distressing to see when we love them and care about them so much.

@countrygirl99 , my DM also bruises so easily - her arms and hands are purple with huge bruises, and she gets so embarrassed about them. I'm so sorry to read about your MiL - I hope she finds peace quickly. It must be such a sad time for you & your DH.

My DM's surgery doesn't do home visits. Very poor really, they must have many patients like my DM where visiting the surgery is very, very difficult. It makes me cross really; we can have home visits from a hairdresser, chiropodist, optician etc, but the people who are meant to have their patients' well being at heart - GP surgery - doesn't have a person to do home visits.

countrygirl99 · 11/10/2023 19:23

@funnelfan we've already agreed no more hospital trips and no more tests, keep her comfortable only. She was having blood tests twice a week and getting really distressed and as she bruises very easily her arms were black and blue they were causing real pain.

thesandwich · 11/10/2023 19:19

@countrygirl99 I'm so sorry 🌺🌺
@venusandmars very interesting observations.

funnelfan · 11/10/2023 19:00

I'm sorry @countrygirl99 . The care home probably is following procedure because somewhere there will be a family who would want a lump checked out even in that situation. Wishing your MiL peace and comfort in her final days, and also for you, your DH and family.

@EmmaEmerald I don't wish to join a pile on about you feeling angry about yourself, although I agree 100% with posters expressing dismay at this! Your emotions are completely valid - albeit I'm sorry you are experiencing them. A thought I had was that it may be possible that the anger at yourself may be part of the healing process you are doing from the breakdown. Are you accessing any form of talking therapy at the moment that would help you explore your emotions?

countrygirl99 · 11/10/2023 18:47

So MIL is dying. Dying slowly but dying and probably won't make DHs birthday next month if she even makes next month. Today DH gets a call from the care home to say they are concerned because, when they were washing her, they found a lump in her breast and wanted the doctor to check it but thankfully he said there's no point. Why ask someone to poke about and distress her now?

venusandmars · 11/10/2023 18:18

@EmmaEmerald there are times when many of make decisions that seem right at the time - moving closer to parents, moving near to our own dc to help with dgc, moving to an ideal dream location... then things change - dc move to Australia (or in my case you have a falling out over a dog!), the dream location turns out to have a new road built adjacent to it. We cannot predict these things. We make our decisions in a spirit of optimism for how wonderfully things might turn out, that is not stupid, that is hope, which is a good thing. It is also a good thing to be reviewing now and to be able to consider other possibilities.

Flowers to all those who are going through the difficult struggles. In the year that dh and I were 50 we met up with our very close friends, also both 50. We celebrated our milestone birthdays of course but also celebrated that unusually we still had 8 living parents between us, all of them in their 80s. Now we are in our 60's and there are 2 parents left between us. To be honest, those of us who have lost our parents feel more fortunate. However difficult those times were, the first four to die were somewhat predictable (advanced Parkinson's, chronic heart failure etc) and the really difficult periods were comparatively short - only a few months. MIL died earlier this summer age 93 - a merciful relief as she was in terrible pain, desperately unhappy and wanted nothing more than to leave this world. Now the two remaining parents (both men) have advanced dementia and are either horribly lonely or distressingly confused.

thesandwich · 11/10/2023 17:13

@MissMarplesNiece please prioritise your own health and well-being. Can the surgery send someone out to your dm to jab her?

BestIsWest · 11/10/2023 11:14

Yes, I had a boss once, lovely man, and he gave me a piece of advice one night when we were fixing a computer system and I was dithering about a course of action - and that was just to make a decision. You can only base it on the knowledge and information you have at the time - it might not be the best or wisest decision but don’t blame yourself in retrospect. He was right.

seanbeanmarryme · 11/10/2023 11:05

@EmotionalBlackmail you're spot on.
Also unhelpful is when those with no experience of looking after an elderly relative tell you they could never put their loved one in a home. Wish those people would understand it's not a rash decision but one that has been carefully thought about. Once in the home, problems don't magically disappear, they just change.

MereDintofPandiculation · 11/10/2023 10:47

I don't give a shiny shite about the rest of it any more, but to cock up financially - new flat appears a very bad buy - now in possession of two flats riddled with issues and hard to sell. @EmmaEmerald Don’t be silly! You made the best decision at the time on the basis of the information available to you. You are in no way to blame if, in the light of later events and information, it turns out to have been not such a good decision. It’s something to deal with, but not your fault.

what would you say to a friend in your position? Don’t treat yourself any more harshly

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