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Elderly parents

Have run out of patience with elderly father

38 replies

WanderleyWagon · 22/07/2023 18:44

Have other MNers have ever abruptly run out of patience with an older parent?

My mother died more than 15 years ago, relatively young. My mother was the leader in every aspect of my parents' relationship; she planned all family activities, ran the household, worked a challenging job, managed their finances. She also managed the relationships between my father and most other people in his life including myself, my sibiling, and my parents' shared friends. My father is a very passive person and was happy to be bossed about.

My mother's death was very sudden and there wasn't any chance to talk about what future support for my father might look like. Since then, I've tried to support him. I live in another country, but have visited often, taken him on holidays, helped with his life admin, encouraged him to see friends and family, set up some more home support for him and done, in person or remotely, lots of small tasks that he finds difficult. My sibling lives on the other side of the world and, while kind and with good intentions, is not able to offer much support.

My dad still lives independently but his judgement is fragile, he makes poor financial decisions, he is needy, anxious and probably depressed. His mobility is worsening, but his mental and emotional health is worse than his physical health. He tends to be very negative. He is a poor communicator and struggles to articulate what he thinks and wants in ways that make sense to other people. He may be showing initial signs of dementia, but it is hard to tell because he has behaved oddly over a period of many years. (He may be neurodiverse; other people in the family have recently been diagnosed.)

I knew my father would need substantial support for the rest of his life, and over the years I have visited every couple of months, more or less and checked in by phone at least every week. I thought that, though this support probably seems a bit meagre to some people, it could at least be consistently maintained almost indefinitely, and I'd have something left in the tank when my father needed more support.

But this is not how it's panning out. My father's mobility is worsening and he needs more help/closer attention paid to his finances etc. because his judgement is also worsening. And now I'm finding that far from having 'something left in the tank' I seem to be losing all patience.

I don't know why I'm suddenly so angry and frustrated with him. I have some of my own stuff going on (perimenopausal, struggling at work) but I don't have a markedly more busy life now than I did before. He has been deteriorating very gradually over many years; there's not been any sudden change. But I feel like I am increasingly off with him. This (predictably) makes him even more anxious and stressed.

It feels as though, the more fragile he feels and the more scared and depressed he gets, the angrier I get and the more I want to say cruel things to him. I can barely stand to visit at the moment, though I still do. He lives in an unsuitable house and refuses to move to sheltered accommodation or accept more care at home. This is not unusual, I know! But he complains all the time about how he finds things very difficult, and I have begun to actually lose my temper, which is unlike me.

Has anybody else experienced these kinds of feelings? How did you deal with them? Did you find a way of recovering your usual patient, kind carer persona? All suggestions would be welcome because I am disliking myself at the moment and I really don't know what to do.

OP posts:
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GETTINGLIKEMYMOTHER · 11/12/2023 12:58

They can be utterly infuriating, I know.

An old aunt of dh refused to pay for badly needed help (she could very well afford it) but expected neighbours to do it all ‘for love’. We lived a good 2 hour drive away so couldn’t be popping in all the time. Dh arranged help for her anyway, but she sent them all away - ‘too loud’, ‘too common’, etc.

As a result, I’d have her neighbours (mostly elderly and decrepit themselves) on the phone wailing that they couldn’t cope any more.

She expected a considerably younger friend to drive 20 minutes each way every night to fill her hot water bottles! And was highly miffed when the friend said she couldn’t do it any more.
She refused the electric blanket we offered to buy her.

Things came to a head when she could no longer get herself to the loo in the night, and was expecting her extremely long suffering cleaning lady to clean up the bucket she’d used to wee in - and then knocked over - more than once.

How my poor dh didn’t lose his remaining hair I will never know. Eventually, after he’d spent an entire day trying to persuade her to move to the very nice car home he’d arranged for her - just across the road - it was only at 9 pm, after she’d endlessly said, ‘What am I going to do?’ and he’d replied, ‘You know what you need to do’, over and over - and he said he was going home, that she finally agreed to go.

WanderleyWagon · 10/12/2023 13:32

I agree @MereDintofPandiculation that the remote access to the laptop is great. We used one of these bits of software for a few years, but my father doesn't want to be bothered with his laptop any more. In fairness, he uses his phone for a lot of things, though he does get very frustrated with it...

OP posts:
pickledandpuzzled · 10/12/2023 08:34

@MereDintofPandiculation I have an app so I can see her iPad, but not control it. I can not describe the circle of hell which is watching someone press pop up adds and ‘what does this do’ buttons, while you are trying to help them buy a train ticket/photograph etc.

At one point I was able to shop for her using her credit card, but someone put two factor authentication on it and she was unable to authenticate it for me.

ah well. Such is life.

MereDintofPandiculation · 10/12/2023 08:11

pickledandpuzzled · 10/12/2023 07:42

That’s such a great idea, @WanderleyWagon ! I might nick that! Long distance tech support is a nightmare! A shared doc- so simple but useful!

The thing that transformed tech support for me was one of those programs where you take over someone else’s computer …. But thinking aboutit, most of you dont have elderly parents struggling with their desktop computers.

pickledandpuzzled · 10/12/2023 07:42

That’s such a great idea, @WanderleyWagon ! I might nick that! Long distance tech support is a nightmare! A shared doc- so simple but useful!

WanderleyWagon · 10/12/2023 02:04

Thank you for asking, @pickledandpuzzled!

Things aren't actually too bad at the moment. I did cut back a bit on phone calls, and tried not to be too hard on myself for that, but I have continued to make regular visits and it's feeling a bit more manageable. It helps that he has accepted a little bit more help, so now he has somebody going in several times a week. We have a shared document where I put down things I know he needs doing or things he tells me about in our occasional phone calls, and they are now getting done without him calling me and me trying to offer tech support for an hour on the phone for something that could be solved in person in five minutes.

Feeling very grateful that there is support available for him, and that he is willing to pay for it (given some of the threads on this forum!).
Thanks again to everybody who has responded.

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Needspace2023 · 09/12/2023 08:52

" I get frustrated with DM because her problems are entirely self inflicted. She could hand over everything that worries her to us, and just do things she enjoys. She’d rather keep struggling though, and drop drama on us when it’s got to the point of being difficult."

So familiar. My past 3-4 years and it caused so much tension with my siblings too. Now we are getting om when he was forced to accept help from all of us and professionals in the last month of his life 😢 make her listen. Get family members involved and make them make her listen. Xxx

pickledandpuzzled · 09/12/2023 08:41

I’m sorry to hear that, @Needspace2023

It’s hard, even when you’ve seen it coming.

How are you,@WanderleyWagon ? Did the patience ever come back?

I get frustrated with DM because her problems are entirely self inflicted. She could hand over everything that worries her to us, and just do things she enjoys. She’d rather keep struggling though, and drop drama on us when it’s got to the point of being difficult.

Needspace2023 · 09/12/2023 08:29

He died 😔 from pneumonia in hospital in late November. Please everyone insist they get help in their years of frailty and vulnerability. The past 4 years have been awful worrying and my father was so stubborn and resistant. He is at peace now but im going to miss him so much 😢

balzamico · 14/11/2023 14:45

I think there comes a time when you need to override them and insist, IME when it is in place they are actually grateful and it helps everyone.
The thing is that no one wants any of the situation you all find yourselves in. They don't want to be infirm and accept help, you don't want to be the one to make them do things they don't want but what everyone wants - them well, happy, healthy and independent- is not available so you have to make the best of what you do have.
I really hope that our generation will be better and more proactive in old age, I certainly intend to be, I wouldn't wish caring duties on my kids, I want them to want to come and see me and to enjoy it when they do.

Needspace2023 · 14/11/2023 14:02

My fellow sandwiches, them getting help is you getting help to be there for all. Please get adult social care involved to help. And other family members and neighbours or pay someone once a day to come by.
We have 3 carers visits for him now , morning, lunchtime and evenings. They help with washing and hygiene
hanging up laundry, heating up meals.

Needspace2023 · 14/11/2023 13:56

Just checking in. Father is now getting help with reenalblement services after he had some falls. He is now accepting our help because he has no choice. Also getting a panic button has equipment ordered and installed after the occupational therapist assessed him.
Please make your elderly parents receive help and from others.
I don't think my father has much time left, he's so frail now. Wish he had gotten help sooner and accepted that he is frail and needs it.
I am there now every day as is my sibling who lives closer.
They ( elderly) get very very stubborn and difficult at this last stage. Getting help is a huge weight off everyone's minds and it's been wonderful having professionals involved. Now the hard bit is going over all the time but worrying and stressing was so much worse.
Good luck everyone and sympathy for all of you juggling families and elderly parents ❤
They need to accept help. Insist, insist, insist! Wish I had instead of 3 years feeling intense resentment, worry and frustration.

MysterOfwomanY · 26/10/2023 10:06

Utterly normal. My Mum was a "sandwich", nursed her dying mother, then saw her much loved aunt decline and pass due to vascular dementia (going wandering the streets after dark in her nightie...) and then she had a nervous breakdown because she had a crappy job and gormless teens and a dog and a (I suspect not all that helpful) husband on top.

We have similar "elderly parents" issues with a friend who had a devastating stroke, but, we can step back if we find it too frustrating. "It's just me" is an extra layer of shit that makes it twice as difficult.

SmugglersHaunt · 25/10/2023 20:08

My dad died nearly two years ago. My mum’s been alone since. I speak to her every morning and evening and visit often but sometimes it feels like it’s sending me over the edge. The moaning (especially in the morning) is sometimes unbearable, especially if I’m stressed and/or have things in my mind (all the time at the mo). I resent her, then I feel wracked with guilt as I love her but she drives me up the wall sometimes. And then things from my childhood come up as well. It can ruin a day easily. Plus I have a vile brother who barely speaks to me so I can’t confide in him. I hate him for the horrible times he’s put us all through. I wish I could escape

WanderleyWagon · 25/10/2023 19:52

Just coming back to the thread to say that he does have some support at home, but is (understandably) skittish about new people, so each small step forward is then followed by a long adjustment period. But there's some hope on the horizon that he may accept more support, which would be great.

I took on board some of the comments that I need to get less stressed about him not having ideal/optimal levels of support, so long as he is reasonably safe at home (which he is). That was helpful!

Thank you again to everybody who has taken the time to post.

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GETTINGLIKEMYMOTHER · 02/10/2023 13:26

You need to insist on carers. He almost certainly won’t want them/won’t want to pay for them, but he’ll have to understand that you simply can’t go on supporting him the way you have. And frankly, to expect you to do so - especially when you’re not exactly living around the corner! - is very selfish.

I know all too well how hard it’ll probably be (we’ve had a very demanding elderly relative to cope with) but you do really need to get tough.

muddyford · 02/10/2023 12:56

When a medical professional suggested contacting the local carers' support, all their stuff was about how to be a better carer. No one WANTS to be a carer. I wanted the odd coffee morning or ludo session or shared dog walk, not an envelope full of crap about my poor relation and how best I could support them. Not about supporting carers at all. I am still angry about it. They didn't even tell me about carers' week , when they did more of the things I had expected initially.

letsallmeetupinthehyear2000 · 02/10/2023 12:50

Have you explored the options of a career going in once a day just so he has sometime to chat to, make his bed, help him or just chat? Does he have the means for this - or does he qualify for this through the council/district?

Needspace2023 · 02/10/2023 12:40

Can I just arghhhhh my 84 year old father is so cantankerous with me, the one with 2 children aged 10 and 13 who lives on the other side of London and is utterly sweet with my siblings, one who lives 5 minutes away nd has a small baby now and the other who lives abroad and has no children or spouse. Both siblings have taken advantage of mums death by taking inheritance and moving into the family home and phased me out.
Me and siblings have fallen out about caring for Dad but he won't accept help from me and leaves me worrying all the time.
I'm at the end of my tether with it all. Yes, I'm definitely perimenopausal too so not the sweet middle child who would accept the shitty behaviour like before.
I think this is known as the "sandwich generation". Stuck between raising kids and worry about elderly and frail parents. If you have a dysfunctional family it just adds to the stress.
I have no words of advice except it is a horrible phase of life and any bad feelings you have are probably warranted!

EmmaEmerald · 25/07/2023 19:39

BadSkiingMum · 24/07/2023 20:34

@WanderleyWagon
Would it be so bad if you did blow up and express anger towards your Dad? Something is clearly coming and perhaps better your Dad than your husband or colleagues, with whom you have far more to lose.

The other thing that absolutely leaks out of your post is that your Dad wants you to take charge.

I second this

the only times I've got mum to help herself have been when I showed my irritation

I get the sense from you that you hate going into the relentless misery of that house and I don't blame you.

BadSkiingMum · 24/07/2023 20:34

@WanderleyWagon
Would it be so bad if you did blow up and express anger towards your Dad? Something is clearly coming and perhaps better your Dad than your husband or colleagues, with whom you have far more to lose.

The other thing that absolutely leaks out of your post is that your Dad wants you to take charge.

boboshmobo · 24/07/2023 19:45

@Poochypaws this is sooooo true !

I fear my mum will be like this and a pain for the next ten years at least and then I will be old and unwell . I've spent since I was 28 being a mum or support carer for my mum or child ( I sue a son with sn)

It's relentless 😞

WhatHaveIFound · 24/07/2023 15:33

Yes, I'd say it's normal but that's coming from someone who said the F word in front of her mum the other day. Even my daughter said she wouldn't say it in front of me!

I feel I'm very patient with my ailing dad but less so with my mum who just moans on that life hasn't treated them well. The fact they live in a big detached house and can afford all the care dad needs seems to pass her by.

The final straw was when she made excuses that my sister hadn't called for a whole week because she was busy at work. As though sorting all their admin & medical stuff plus visiting dad in hospital every other day is easy for me working full time!

The only solution I've found is to take myself to the gym, switch off my phone and have some me time. And breathe...

WanderleyWagon · 24/07/2023 15:13

I just want to thank everybody who has taken the time to post on this thread - I am very moved and impressed by the kindness, good sense and compassion on display. It's very, very comforting to know that I'm not the only person feeling these feelings. Sorry that I can't respond to you all individually.

To @Lucy377, your post is very wise, but one of my issues is that when I was growing up my dad wasn't actually the strong, reliable parent. I know he loves us, but by the time my mother died I had become very aware that he was more like a third child for her to take care of. She was frustrated and stressed by this, and I think in some ways, I might be resenting him a bit for her too (which probably isn't healthy for me or him).

A special shoutout to @sunshinesupermum - you're of course right that it's difficult for all parties. I don't underestimate how not-fun it is for him to be anxious and gradually losing the motivation and ability to do things. I do still have compassion and hopefully, I'll be able to access that sense of compassion again soon.

And it is of course his prerogative to take, or not take, any advice I give him. I think I'm going to try to take @Lucy377 's advice not to take things so much to heart. I'm going to give myself a break, not plan another trip for a few weeks, and hope that a bit of self-care and focusing on work and friends for a while will help me get some of my mojo back. Warm, warm thanks again to everybody and solidarity with your own frustrations and hopes.

OP posts:
sunshinesupermum · 24/07/2023 11:27

Being an older person myself (75) although fortunately not requiring help from DDs, I feel very anxious about being less able to do things I used to take for granted (eg driving) and also tend not to take advice. Not sure what to suggest to the angry OP. It's a difficult situation for us all.