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Elderly parents
Original poster

He's at end of life :(

38 replies

Bowbowbo · 05/04/2023 16:04

My DF is 89 and has been declared 'end of life' by medical profession. He's at home with carers, I live two hours away but am kept fully in the loop by the care agency and I handle the finances. I go down about twice a week but can't stay as there's no room. He's fully compos mentis and not scared etc, just pissed off that it's dragging on. It's that old classic, a rollercoaster, in terms of good days/bad days, short-term panics etc. I reckon it'll go on for weeks yet.

I'm just struggling with my emotions. Half of me desperately wants it to be over. The other half is terrified of how I will feel when he is no longer in my life, he's been a great dad. Any tips?

OP posts:
Littlewhitecat · 08/04/2023 08:58

We've just been through this with my FiL. What you are saying about wishing it was over is quite normal, so don't feel guilty. The last few weeks were a rollercoaster of being told he wouldn't last the night to him sitting up and asking for food the following day. We live 150 miles from the in laws and my DH was backwards and forwards for the last 4 weeks. In the end FiL died in the middle of the night before the family got there - this is very common. However because everyone got to spend so much time with him in the previous 4 weeks (he was still pretty with it until the last 48 hours) the family really feel that they did the right thing. We were lucky in that the care he recieved in hospital was outstanding (he was put on the Swan pathway), which really helped the entire family come to terms with what was happening. Listen to what your dad wants and go from there.

Borntobeamum · 07/04/2023 19:34

If you want to go stay with him, make room.
I stayed 9 nights in a hospital chair so my dad wasnt alone.
Id already flown home from USA one day after arriving on holiday when we got the news he’d had a massive stroke which he wouldn’t recover from.

I never left the ward. Id never have forgiven myself if Id not been there x

Original poster
Bowbowbo · 07/04/2023 16:15

Very best wishes to you too 💕

OP posts:
Lovetotravel123 · 07/04/2023 15:55

I’m going through similar right now and very much understand. When my mum died a few years ago she/ we found it comforting when she told us that this is just the circle of life. It’s so hard to see them suffering at the end. Best wishes.

Original poster
Bowbowbo · 07/04/2023 15:23

that’s what I feel is right too - and what dad has always said he wanted.

i was talking to a friend last night about this, she lost her parents when she was 18 and 42. She felt she was lucky to be spared what I’m going through ie the diminution, the decline etc. But then I’ve had the benefit of his love for all my 60 years to date, so I still think I’m luckier. In the end it’s just bloody hard, however it happens ☹️. I’m going to carry on being true to myself and the relationship.

thank you

OP posts:
PermanentTemporary · 07/04/2023 10:50

Not weird at all, but I wouldn't make strict rules about it.

I'm away on holiday at the moment and it's just possible my mum will die while I'm away (she's very frail now, not for antibiotics or any treatment but has been like that since December, but now has another infection). Her care home is a fair distance from me, we see her once a week. To me there isn't any huge value in any individual visit now. She has been an amazing mum over a long life, this is just the very end of that, and one visit more or less doesn't matter - she's asleep most of the time. I have found friends, even those who cared directly for their parents, have often been quite traumatised by the very last days and I don't think it's compulsory to force yourself through them.

Original poster
Bowbowbo · 06/04/2023 10:15

I’ve talked to him about whether he wants me there all the time and he really doesn’t. I don’t think it would help me now or in the future either. We had a very happy day recently with me and my DC there, lots of chat and laughs. In a way I want that to be the last time I see him. Is that weird?

OP posts:
Marchsnowstorms · 05/04/2023 22:31

Take a blow up mattress. Go see him and stay. You might find it calming to be with him at the end

Original poster
Bowbowbo · 05/04/2023 21:59

thank you x

OP posts:
MysterOfwomanY · 05/04/2023 20:23

Well, right now he's alive, albeit with poor long-term prospects. So make the most of that.

Don't worry about beyond that point.

When he's no longer alive, he'll be free from pain, distress, boredom; he'll be in the same state as his own parents, the same state we all end up in, given enough time.

Parents die before their children. It's the normal way of things. He and your Mum would have gone through similar when they lost their parents. I found that anyone who had already lost one or more parents was kind and helpful to me when I lost mine. So don't be afraid to reach out, particularly to your older friends and acquaintances, for a bit of support.

Mosaic123 · 05/04/2023 17:28

Make sure you tell him he's been a great Dad. Even if it makes you sad..

Original poster
Bowbowbo · 05/04/2023 16:13

Thank you, that's a helpful tip. It takes up so much of my headspace and makes me so so tired... I'll get googling.

OP posts:
YomAsalYomBasal · 05/04/2023 16:10

Firstly, big hugs to you. This is hard. What you are experiencing is probably anticipatory grief, and it may help you to read up on this, there are lots of good resources. What you are feeling is normal and you are not alone.