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Elderly parents

The Cockroach Cafe 🪳 Spring 2023

971 replies

MereDintofPandiculation · 02/03/2023 09:21

Welcome! I’ve done a really good clean of the place overnight, and brought in daffodils from the garden to remind us all that spring is around the corner and better times on the way.

Come in when you want to share good news, or to rant, or to ask a small question that doesn't warrant its own thread. Or just to hang out with others who understand what you're going through.

For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. So 🪳 mes amis/amies, and may you all live to fight another day.

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SunshineGlamourIfOnly · 27/06/2023 11:42

@BestIsWest I feel for you so much. It all sounds very familiar!

SunshineGlamourIfOnly · 27/06/2023 11:41

Mine is now turning down things her carers offer to help her with (hair wash/leaving a lunch sandwich out/that sort of thing) I get to read her notes so I know she's telling them things like me or my siblings are coming to do it. O might ring a sibling and they tell me they told her they'll see her in the week.
She gets confused about who is doing what ALL the time, but maintains her lucidy facade (and charm) for her brief periods with the carers.
It's quite frustrating because I still then have to go to to these things for her. She can be lovely but can also be very difficult and very demanding ( and also very sweet and muddled)
And by siblings i really mean brothers who are very content to 'help' if I ask, if it's convenient to them.
I'm very tired, and grateful to read about other people's situations.

SunshineGlamourIfOnly · 27/06/2023 11:34

funnelfan · 23/06/2023 17:34

Welcome @SunshineGlamourIfOnly and sorry you have to be here iyswim.

Thank you!

SkeletonGhost · 23/06/2023 21:40

Just popped on quickly - I have read the replies from earlier in the week, just trying to take my time and process them all. Sorry I haven't replied to them all, all the kindness got a bit overwhelming and then it all kicked off, and seems to have settled a bit again.

I may well end up doing my own post with it all, as one PP suggested.

But I am feeling more human-ish today, and a lot less like breaking. Not a complete win but steps in the right direction.

InAMuddl · 23/06/2023 20:26

@BestIsWest, you have summed it up there. I feel the same resentment and frustration, then guilt at feeling like that, then sadness for her and all of us involved.

I’m dreading DM coming out of hospital because of what will no doubt occur, and the impact on my Dad as well.

@funnelfan, anticipatory grief is a huge part of it I think. It’s very hard to do. Sorry you are finding yourself there too.

BestIsWest · 23/06/2023 19:51

Yes, I think I’ll have to embrace online shopping for her. Trouble is she’s so disorganised - someone really has to go round and check what she needs otherwise I get distress calls for milk or toothpaste or loo roll. The only pharmacy in our little town is also disorganised - I’ve tried to get her prescription automatically delivered but every month I have to phone up and request that they do it.
To be fair it’s not that she’s demanding this of us, more that I feel guilt at not doing it. She’s been a lovely mum.

funnelfan · 23/06/2023 19:34

InAMuddl · 23/06/2023 18:44

Does anyone ever find they feel so sad about the situation around your elderly parents now?

DM has been in a psychiatric hospital, sectioned, for the last month and is showing no signs she will be able to be discharged any time soon. The whole situation is exhausting and feels soul destroying. I alternate between frustration and annoyance with the situation to overwhelming sadness that this is where we find ourselves when they are actually only in their 70s.

Yes. I feel like I’m pre-grieving my mum while she’s still with us. The woman she once was has long gone.

funnelfan · 23/06/2023 19:28

BestIsWest · 23/06/2023 18:07

We do her shopping on a rota, every other week. I retired two months ago and apparently he thinks I should do her shopping every week now. It’s the only thing he does for her apart from mow the lawn occasionally. I do the rest of the gardening, the cleaning, every single medical appointment, the prescriptions, all the admin, the clothes shopping, arrange any house maintenance, take her to any social occasions.
Rant over.

Is there a way to be able to farm some of this out to third parties? Or is your mum insisting that she’ll only accept assistance from you and your DB? Because if it’s the latter, then it’s as much a mum problem as a brother problem.

If she accepts that you’re not her servant(s) then online shopping, prescriptions automatically sent to a pharmacy that delivers, gardener and cleaner will all in the long term lift some of the burden. Granted it’s more work initially to set up but long term pays off.

The hardest thing about getting others to do the job is accepting it won’t be done to the exact same way/standard that you may have find it. There’s been a lot of adjusting to “good enough” with my mum.

BestIsWest · 23/06/2023 19:23

I feel terribly sad about it. I think DM would be better off in some kind of sheltered accommodation where there’s some kind of social life for her. I’m sad that I resent the things I do for her. I’m sad that I can’t just be a daughter to her, that I hate the responsibility.

InAMuddl · 23/06/2023 18:44

Does anyone ever find they feel so sad about the situation around your elderly parents now?

DM has been in a psychiatric hospital, sectioned, for the last month and is showing no signs she will be able to be discharged any time soon. The whole situation is exhausting and feels soul destroying. I alternate between frustration and annoyance with the situation to overwhelming sadness that this is where we find ourselves when they are actually only in their 70s.

InAMuddl · 23/06/2023 18:42

In some ways it sounds harder to manage with siblings than as an only child given the possibility for arguments and pressure from siblings.

BestIsWest · 23/06/2023 18:07

We do her shopping on a rota, every other week. I retired two months ago and apparently he thinks I should do her shopping every week now. It’s the only thing he does for her apart from mow the lawn occasionally. I do the rest of the gardening, the cleaning, every single medical appointment, the prescriptions, all the admin, the clothes shopping, arrange any house maintenance, take her to any social occasions.
Rant over.

BestIsWest · 23/06/2023 17:59

FFS brothers! I’ve just put the phone down on mine. We’ve both booked a holiday for next week. Apparently I should have checked with him first. I pointed out that a) he hadn’t checked with me, b) it’s his second holiday this year and he didn’t check with me the first time, c) he’s away every weekend and bank holiday from March to October and assumes I’ll be around for all of those. When he started shouting that it wasn’t right for me to say DM would be fine for a week so long as we stocked up her fridge, I put the phone down.

funnelfan · 23/06/2023 17:34

Welcome @SunshineGlamourIfOnly and sorry you have to be here iyswim.

EmotionalBlackmail · 23/06/2023 16:29

@countrygirl99
My brother does the "it's easier if you go" line about anything to do with Mum needing something.

Easier for whom, exactly?! Definitely not easier for me. Sure, I live closer than he does but it's still a 4-5 hour round trip.

Ironically my parents were both only children and didn't want me to be left on my own supporting them when they got old so thoughtfully provided me with a sibling I don't get on with!

countrygirl99 · 23/06/2023 15:41

I sometimes have to be quite blunt with one of my brothers. He used to live in the same town as mum but has moved several hours away. He will say things like "I can't just pop round anymore you'll have to pick that up" I out very bluntly that other DB and I not only live an hour away (many years ago mum moved to be near golden DB who has moved away) but work full time so are also not in a position to "pop" round. He alone has POA. I go up regularly to sort tablets, take her on outings etc so get very pissed off if he tries to fob a phone call onto me.

EmotionalBlackmail · 23/06/2023 14:50

Been on the phone to my Mum. I try to limit calls to no more than once a week but even that is driving me mad. I hate being on the phone with her and have been trying to use some grey rock techniques to stop it being quite so bad.

SunshineGlamourIfOnly · 23/06/2023 14:36

'If they've got capacity and won't be reasonable you just have to step back and let the crisis happen' is pure gold! Thank you

Also somewhere someone has said how their parent put their best lucidity on for the hospital discharge team....
Absobloodylutely!

I've found my tribe!! I have tried to chat about these things out the in the real world, and people really don't understand.

SunshineGlamourIfOnly · 23/06/2023 14:29

Hello everyone. I'm another looking after/out for an elderly parent, and I'm so glad I've found you all. I'd like to pull up a chair and join you all if I may. First I'm going to read the thread though flowers 💐

funnelfan · 23/06/2023 11:49

@venusandmars one of the things I’ve learned is that your capacity to cope/give of yourself is not necessarily related to the amount of “free time” or other commitments that you may have. On paper, I should be able to do lots for my mum, but in reality if I try to do much more than I already am I run into a brick wall with my mental health. DH and I have just returned from a short holiday, less than a week. Before I went I made sure she was stocked up and has everything she needed. She has carers four times a day. DB visited for a few days too. And yet she couldn’t give me a break and was still ringing me every day, “I can’t decide whether to get dressed today” “where did I put my purse” etc.

Sorry I didn’t mean to make it about me! I would strongly recommend a cards on the table between your DH and his siblings. I presume when they moved your in laws to the current location, it was discussed that sibling 2 would end up the default on call due to their proximity? If not, time for a chat. He’s already acknowledged that his long term priority is his relationships with his siblings, and we all know that the foundation of good relationships is communication.

TheShellBeach · 22/06/2023 16:43

venusandmars · 22/06/2023 15:12

Thanks for your responses. It helps to have another perspective.

Hi - I think that most people on these threads believe that we can only give a finite amount of our time and emotional energy, and that trying to make us feel guilty for what we cannot do is unacceptable.

Your DH is doing what he can and his siblings should not be trying to make him feel that his contribution is insufficient. Your IL's situation sounds very difficult.

BTW I knew a cantankerous old lady who sacked a carer because of her "common" accent (the old lady's words, not mine).

venusandmars · 22/06/2023 15:12

Thanks for your responses. It helps to have another perspective.

GordonBennett345 · 21/06/2023 21:23

Your DH should only visit as often as HE wants to. There is no requirement for all siblings to do the same thing. I'd be like your DH and let the care home do their job. Step right back.

Knotaknitter · 21/06/2023 19:17

@venusandmars What "load" do they think that they are carrying? Is there some sort of agreement between them that their parents should be having X visits a week? His siblings don't get to decide what your husband does with his time, if he wants to go once a week then he should. If they want to be there every day then that's their choice but that doesn't impact on other people's choices. It cuts both ways, your DH doesn't get to say how often his siblings should be visiting.

As to holidays, I was widowed before retirement and the things we'd put off doing until later are now something that I'd have to do alone. My chance of doing things together has gone. Get out there and live your lives as you want to.

(Disclaimer, I'm an only child)

venusandmars · 21/06/2023 16:48

Hello, I hope it's OK to join you all.

I've read the first couple of pages and the last couple of pages and I've been alternately nodding along in agreement and feeling awed at what some of you are coping with. I'll go back and read more pages so I can get to 'know' you. I suspect I'll be here quite often...

I'm the DIL. PILs are 92 and 93 and recently moved into a care/nursing home. DH is recently retired and one of 3 siblings. He is actively involved in his parents' lives but I can imagine that if his siblings were posting on mumsnet they'd be saying "we work, our brother is retired, he isn't pulling his weight". I can see both sides.

PILs have been healthy throughout most of their life. MIL has arthritis and hearing loss, FIL has dementia and sight loss. Until last autumn they lived independently although with increasing amounts of family and professional help. MIL became increasingly immobile but could issue instructions and FIL could follow them although that was more difficult as his dementia progressed: "get the milk" (FIL wanders to kitchen and stands..) "it's in the fridge" (FIL looks around) "that's the door labelled fridge" (FIL open fridge and looks blank) "it's the milk you want" Task accomplished Grin

Throughout this period of deteriation all 3 children were working and each of them went for a day visit 1 weekend in 3. DH included. Although I know his siblings sometimes visisted more frequently and sometimes stayed over. PIL lived appox 2 hours away from everyone.

In the late autumn MIL had a couple of falls - one we didn't know about until we found the ambulance report, the other DH was visiting. He became their defacto carer (he was retired by this time). He helped his Mum to dress, wash, took her to the bathroom, pulled down her underwear, and pulled it up again afterwards. The other 2 siblings took over at weekends.

It became evident that PILs 'independent' life was not sustainable. In the end they had 24 live-in care to help with all food, medication, night time toiletting, personal care etc. They also continued to pay for some of thier previous carers - a weekly physio, twice weekly independent carer, cleaner, and a dementia befriender. It all seemed ideal.

MIL can be cantakerous (always has been) and decided that this arrangement wasn't working. She didn't like one of the carers (because of their Essex accent!) and became uncooperative with them. She also expressed a strong desire to have time away from FIL, who's only desire is to sit next to her and hold her hand (sweet but claustrophpobic). She pleaded to go to a nursing care home, couldn't get out of her own home fast enough.

Both PILs are in the same care home and they are in seperate rooms so at least MIL gets a break overnight. FIL is very bewildered, doesn't remember that he has a room there, although he seems content mostly. MIL is awful. I don't know what she imagined it would be like - maybe that her hearing would be miraculously restored, that she would not have to spend any time with FIL, that she would meet a new circle of friends. Instead she has sunk into a depression, hardly eats, won't participate in any activities. It is heartbreaking.

The nusing care home is closer to all of us: 40-60 minutes drive for us, 80 minutes drive for sibling 1, and 5 minutes drive from sibling 2. And therein lies some of the problem. Sibling 1 visits once a week but sibling 2 has been visiting 3/4/5 times a week, sometimes planned sometimes in response to a 'crisis'. The crisises are nothing critical just the normal day-to-day ups and downs of moods where one parent is crying or another one is having a period of delusion. None of this is helped by the fact that S1 and S1 phone every day so are exposed to the vagaries of mood, and S2 feels under pressure to respond.

All 3 siblings are honest in that mostly there is very little joy in visiting.

I know that DH would prefer to visit infrequently. He is accepting of going once per week, usually goes twice a week, and feels under pressure (from his siblings) to go more. He's not exactly copping out. But this is not the retirement he anticipated. He's very outdoorsy and active, wants to see the sun shining and get out on his bike, or go away camping for a few days, to be spontaneous. Then there's holidays. We've already had one long-ish holiday away, DH has a week's cycling event planned, then a climbing trip to Nepal. These are things he can do now, in his younger retirement (and the first trip was my holiday too, with my work arranged to make it possible). But it leaves his siblings carrying the load and I sense their resentment building up.

DH acknowledges that the most important thing during the next years (FIL is physically very fit and could live for a long time) is to maintain a good relationship with his siblings. PILs are safe and very well cared for in a great (and eye-wateringly expensive) place. DH feels that all siblings need to step back to a manageable and sustainable level of visiting. Emotionally that is easier for him than his siblings. I can see it from their perspective, I can see that they are working and that DH has 'more time on his hands'. I feel like I end up nagging him.

The sibling relationships in general are pretty good (although 2 of them are twins which brings its own dynamic) and I'm sure that family bonds and good sense will prevail.

I'm not particularly asking anything here (although any insights / advice would be appreciated). But goodness, it feels good to be able to get all of that off my chest!! Thank you to all those who set up and support these threads Flowers

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