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Elderly parents

Has anyone stepped back from being involved with elderly parents as their condition deteriorates?

139 replies

codandchipsandpeas · 30/01/2023 10:20

Sorry for the slightly odd title but I would value any opinions or advice on this. I'm going to keep it vague, there's a lot of back story I won't go in to.

Elderly FIL, been on his own for 2 years since MIL passed away. As the closest relative (geographically) I have always tried to pop over and help with little jobs, take him out to the shops, cook a meal, just go for a chat. I have also on numerous occasions helped when he has been in hospital with visiting, dropping stuff off etc. There are SILs but historically they have chosen not to be involved although this has improved recently.

FILs health is declining. He is refusing to accept any form of carer. This is of course his choice. Money is not an issue in any way whatsoever, he just doesn't want to spend it. He told us this recently.

I do not want to gradually fall in to the role of carer. It's too much expectation and I have my own job and responsibilities at home. It's half an hour to get there so not just down the road. I resent the assumption that I will do it just because I've always been the one to go. There have been a few emergency situations and I am expected to drop everything and pick up the pieces. It makes me cross because no one has asked me if I'm OK with this.

DH is fully supportive of me stepping back. He says FIL has made his choice and will have to live with it. He often works away so while he does what he can, this is limited. I feel a conflict of emotions, guilt for not doing more and anger for FILs refusal to help himself and take the pressure off me. There is a lot of emotional blackmail in the language he uses, a lot of barbed comments about what I haven't done and should be doing. He's not really coping with jobs like the laundry etc.

Has anyone been in a similar situation? Any words of advice about how to handle this, or whether I should just suck it up and do what's needed?

OP posts:
Parisj · 30/01/2023 12:10

The sad thing is he will appreciate you more once you do less. There's nothing unkind, just honest and assertive. Take him through the other people and agencies he can call on - because he has capacity and agency to decide - and step back to being the dil who sees him with dh. If he is nasty just say gently 'you are being very unpleasant despite my efforts to assist which you seem to want. I am really offended at how much you take me for granted. What I can do is x, what I can't do is y. Do you still want me to do x? I will leave you to sort out on your own behalf or with dh and dsils how you do y. Right can we get back to being friends now please, I would much prefer that'. The assumption that the nearest woman regardless of her own schedule or their relationship will provide care makes my blood boil. I see it everywhere.

Soothsayer1 · 30/01/2023 12:07

God knows what they do want to happen
Seems pretty obvious to me they expect the generation below them to sacrifice their own time and well-being!
I see this with mine they had a fabulous time in their golden years retired in their late 50s and then 20 years of holidays, they live a couple of hours drive away from me except I don't drive, can't afford it, never mind holidays!
A few years ago I gently suggested that they might move out of their house into some more suitable accommodation they became very agitated and then changed the subject.
I have no idea what their plans are, perhaps they thought they would stay pristine in mind and body and not need any help?🤷

Soothsayer1 · 30/01/2023 11:58

DonatellaBella · 30/01/2023 10:32

Can you imagine a man taking on the care of his elderly mother in law, while his wife and her siblings do little to nothing? Why do so many women allow themselves to be treated as support humans?

Don't be a martyr. Step back, let your husband and his siblings deal with it.

This^
Why are you even letting it being your problem OP?

EL8888 · 30/01/2023 11:51

camelfinger · 30/01/2023 11:19

Sounds rough OP, don’t blame you for feeling the way you do.
I think as a society we need to get more used to the idea of care being something that you pay for, just like paying a cleaner, a mechanic or a gardener. (Actually gardener is probably a poor example as that tends to be one of the areas that people prefer to rope others into rather than paying for it). I don’t want to be a burden on my own children.

@camelfinger l completely agree. The mindset needs changing. Especially as it typically is “women need to give care for free”, if not they’re being “selfish”. In reality their time is precious as well

TakeYourFinalPosition · 30/01/2023 11:41

I feel for you, OP. DH's parents have always been clear that they don't want care and won't accept it, and they don't want to go into a care home. It was a frequent topic of conversation when they put his nan into care; they reminded him almost constantly that they don't want to go into a care home.

God knows what they do want to happen. It won't be me looking after them.

Sadly, you're making a bit of a rod for your own back. If you are the person who goes, you'll be the person expected to go. And then you get people like SIL, who is being a really cheeky fucker - if she wants to "protect" her inheritance and not have it spent on care, she needs to provide the care.

To be honest, I often wonder if the people who move away had this factor into their decision... DH's parents keep threatening to move closer to us, and one of many reasons that this sounds like a nightmare to me is that it feels very much like they want to be close enough that we could be relied on for daily care. Right now, they're 45 minutes away, so too far really.

It's a rotten situation; but at this point, I'd be contemplating that if you can't take it all on - maybe it's kinder to stop now and let him get used to a new normal, rather than push through, burn yourself out and him end up needing more intense care while he's in less good condition?

peaceandpotato · 30/01/2023 11:41

picklemewalnuts · 30/01/2023 11:33

Excellent. Your employer can no longer be flexible, you are doing additional hours, you are no longer available beyond the usual Sunday teatime visit.

Yes perfect

codandchipsandpeas · 30/01/2023 11:36

This thread has been extremely helpful. It's given me the confidence to stand by my convictions. Thank you for being so honest in your replies, I needed to hear it all.
As I say, there's a lot more back story which I don't want to go into as I want to keep possible identifying elements out. But to get outside views on the basic situation is really useful. I will leave this thread now, thanks all.

OP posts:
picklemewalnuts · 30/01/2023 11:33

codandchipsandpeas · 30/01/2023 11:25

I work part time, sometimes mornings sometimes afternoons.

Excellent. Your employer can no longer be flexible, you are doing additional hours, you are no longer available beyond the usual Sunday teatime visit.

cptartapp · 30/01/2023 11:30

We save all our lives to buy in care and help as needed when older, it's what we 'scrimp and save for'. To ensure we take responsibility for our own health and well being and not rely on busy adult DC with jobs and families of their own.
Or it should be.
I would think far less of any family member than let me run round after them in the prime of my life to meet their wants at the end of theirs.
My DM ended up on BP medication and and antidepressants doing this for my GM and would have foregone every penny of 'the inheritance' not to do so. It didn't leave fond memories of her after she'd gone.
Step away.

Cannottryasp00 · 30/01/2023 11:30

Your husband and his siblings need to have a meeting to discuss any likely scenarios and how they are dealt with . Made very clear that you are not going to take the responsibility if it all goes wrong ? At his age a fall is very high risk .
SILs living further away doesn’t give them less responsibility than your husband.
The SIL who is very ‘protective’ of her inheritance would make me suspect that she is influencing FIL with his decision making and judgement.
Does FIL have full mental capacity?

TheVeryThing · 30/01/2023 11:26

I don't understand why your DH is off the hook here. I mean there is some implicit criticism of the siblings who don't want to step up but surely that includes him.
Or do men not have do anything if they can get their wives to do it instead, that covers their responsibilities nicely?
How good of him to support you in stepping back.
I have some sympathy for you and agree that you need to stop what you are doing but I find it hard to see how you put yourself in this situation in the first place.

codandchipsandpeas · 30/01/2023 11:25

I work part time, sometimes mornings sometimes afternoons.

OP posts:
codandchipsandpeas · 30/01/2023 11:24

Willynuts · 30/01/2023 11:17

Is he expecting you to help with personal care?

Currently to be around in the house while he washes 'just in case' but I'm not doing it and have said so.

OP posts:
picklemewalnuts · 30/01/2023 11:23

What do you do, day to day? Do you work?

I'd say something like your job conditions have changed and you are no longer available for emergencies. If you haven't got a job, get one! Even voluntary and very limited hours!

Get DH and the SiLs to have a discussion about it clarifying you are no longer available. His work means he's limited in what he can do. What do they suggest?
I'd suggest care home, which will alarm the tight SiL into agreeing to carers!

camelfinger · 30/01/2023 11:19

Sounds rough OP, don’t blame you for feeling the way you do.
I think as a society we need to get more used to the idea of care being something that you pay for, just like paying a cleaner, a mechanic or a gardener. (Actually gardener is probably a poor example as that tends to be one of the areas that people prefer to rope others into rather than paying for it). I don’t want to be a burden on my own children.

Willynuts · 30/01/2023 11:17

Is he expecting you to help with personal care?

peaceandpotato · 30/01/2023 11:14

MrsSkylerWhite · 30/01/2023 11:09

peaceandpotato · Today 10:27
I think his own children should be stepping up not you“

Why should anyone be “stepping up”? Care is not easy. He can afford a professional and should pay for one.

No way do we want our kids caring for us.

That's a fair enough point yes. If his own kids aren't worried about it then why should OP. By stepping up that could just be trying to help him see he could do with help around the house.

Allthegoodnamesarechosen · 30/01/2023 11:13

Your DH needs to discuss with his siblings who is going to have Power of Attorney, both financially and socially. You need to get this in place asap. Otherwise the whole situation is insoluble, as DFIL becomes more irrational and infirm, his care needs will become more pressing, but his family will not have the power to meet them.

I really mean this. Otherwise you as the willing helper will end up responsible, but with no power. Do not allow this to happen.

EL8888 · 30/01/2023 11:11

peaceandpotato · 30/01/2023 10:27

I think his own children should be stepping up not you

This. Why do you have to do it?! I would be putting into clear and high boundaries

MrsSkylerWhite · 30/01/2023 11:09

peaceandpotato · Today 10:27
I think his own children should be stepping up not you“

Why should anyone be “stepping up”? Care is not easy. He can afford a professional and should pay for one.

No way do we want our kids caring for us.

codandchipsandpeas · 30/01/2023 11:09

peaceandpotato · 30/01/2023 11:08

Why do you feel coerced into it? By who?

By FIL. Because of all the emotional blackmail he uses when you talk to him.

OP posts:
peaceandpotato · 30/01/2023 11:08

Why do you feel coerced into it? By who?

codandchipsandpeas · 30/01/2023 11:07

gogohmm · 30/01/2023 11:03

Yes I understand but I would try to take a different approach, try to get him to hire someone to help around the house, cheap, change bedding, washing, bit of shopping to introduce him to getting help, much easier then to get him to accept personal care

Yes this is what we are suggesting as well as helping with showering etc.

OP posts:
Ohshitx · 30/01/2023 11:07

The reality is though, that you will fall in to that role. Intentionally, or not.

For example, if he has a fall tomorrow. It will still be you they call, it will still be you that drops everything and goes. Visits in hospital, etc.

I think a family conversation with him and all involved needs to be had, where it’s explained to him, the reasons why carers will benefit not only him but will lessen the strain on you.

codandchipsandpeas · 30/01/2023 11:06

Thanks for all the replies. He is 86. I get what you're all saying and it is helpful to read but harder to do in practice. One of the SILs is encouraging him in being as frugal as possible (she questions everything he spends e.g. do you really need that?) and sadly I think this is to do with her future inheritance. So this just compounds the issue.

In terms of working out emergency scenarios there really isn't anyone. Both SILs live too far away to be of any help. And they are more likely to happen as he gets more and more unsteady. It just feels like an impossible situation and I feel coerced into it. The sad thing is, if he agreed to carers for the day to day stuff, I'd still be happy to visit as I have always done, just without the pressure of the expectation of caring duties.

DH is going to have another try but its like talking to a brick wall and then we get accused of making him spend his money. Sigh.

OP posts: