Please or to access all these features

Elderly parents

End of life question - sad subject

62 replies

SunsetSkies11 · 08/01/2023 22:25

My lovely dad is now at the end of his life. He has dementia, and has recently suffered a stroke. The doctors withdrew feeding and fluids, we are now in the heartbreaking waiting for the inevitable stage.

His oxygen saturation level is showing 65 on the finger monitor. It was 75 earlier today and has been dropping all day.

I'm now left wondering the question no one knows the answer to... how long do we have left?

I'm so sad.

OP posts:
New posts on this thread. Refresh page
MereDintofPandiculation · 24/01/2023 19:58

@Turquoisesea Flowers

SunsetSkies11 · 24/01/2023 18:54

I've been looking at readings for the funeral and came across this one. This isn't the right poem for us to have at the funeral, but by gosh those opening lines hit right in the heart. I know so many of you have been in the same situation I have recently, and whilst I was able to find comfort in the final days of my dads life, sometimes you just need a little trigger to help the grief on its way. I read this earlier today and it absolutely floored me because the first few lines are so accurate for me.

Sadness warning... it's a beautiful poem but could be very emotional for those recently bereaved.

We saw you getting tired
And a cure was not to be –
So I put my arms around you
And whispered, you’re safe with me.

With tearful eyes I watched you suffer
And saw you fade away –
Although I loved you dearly
I could not make you stay.

A golden heart stopped beating
Your beautiful smile at rest –
Life broke my heart that day
When time took one of the best.

It’s lonesome here without you
I miss you so each day –
My life just isn’t the same
Ever since you went away.

When days are sad and lonely
And everything goes wrong –
I imagine you gently whispering,
Cheer up and carry on.

Each time I see your picture
You seem to smile and say –
Don’t cry, I live on in your heart
And will do every day.

OP posts:
Turquoisesea · 22/01/2023 09:27

Thank you @SunsetSkies11 mum died peacefully on Thursday morning and I was with her and told her everything was ok and she would see my dad and all her friends and family again. I’m so grateful for the advice of a previous poster as I also sat with her for 10 mins after she died and didn’t rush to call anyone and it made the moment so peaceful. I feel she had a very peaceful death and I was with her and for that I will be forever grateful. Sending hugs to everyone else who has gone through or is going through anything similar x

SunsetSkies11 · 19/01/2023 20:14

I'm Sorry to hear that @Turquoisesea You and in my thoughts.

Now I'm a week on from my fathers death, in hindsight The best thing i did was to talk to him and tell him how happy his friends and family would be to see him. I told him I was ok, that he'd be ok and it was ok to stay as long as he liked, but he could leave whenever he wanted to.

I'd never thought about the inevitable moment he would leave this world. Someone earlier had some good advice for when it happened - don't panic or rush about. Acknowledge the moment and send him on his way peacefully. That's the Best thing I did.

OP posts:
Turquoisesea · 18/01/2023 15:13

So sorry for your loss OP. I’m going through the same thing with my lovely mum now. She has advanced dementia and in a care home and all fluid and food was stopped on Monday, although she was barely having anything before then. It’s just a case of waiting now but reading the advice on this thread is really helping. She is asleep and not in any distress so I hope she manages to just slip away peacefully.

SunsetSkies11 · 17/01/2023 16:26

Thank you for your kind words and thoughts everyone. I found comfort in your guidance in his final days and I am grateful for that - it hadn't occurred to me to talk to him about some of the stuff that has been mentioned in this thread. I'm so glad I did.

OP posts:
fortifiedwithtea · 17/01/2023 15:47

So sorry for your loss Flowers

Scrumbleton · 17/01/2023 09:45

So sorry for your loss and glad he slipped away peacefully. Thinking of you

anyolddinosaur · 16/01/2023 20:08

I am sorry for your loss but glad that his pain was being controlled and it did not take too long.

Purpleavocado · 12/01/2023 09:58

So sorry for you loss, when I feel sad I try to remember good and / or funny times with my Dad, I find it really helps, rather than thinking of the end x

justcouldntthinkofausername · 11/01/2023 21:01

@SunsetSkies11 ❤️❤️❤️

LifeIsntAllDiamondsAndRoseButItShouldBe · 11/01/2023 19:57

I am so sorry for your loss.

My dad died on 29th May last year and reading these posts has taken me right back to those last waiting days.

It is so hard but I strongly believe a privilege to be there with someone in their last days and moments.

Sending much love and strength OP xxx

NewyearNewStartnomorejunk · 11/01/2023 19:44

I'm so sorry for the loss of your dad. Take care of yourself and cherish his memory xx

Englishash · 11/01/2023 18:40

So very sorry for you loss. Try to remember in the days ( and nights) to come that you did the last thing you could do for your beloved dad; you made sure that he wasn't alone at the end. I'm certain he would have known you were there and being with him is in itself a huge privilege that not everyone has. I know it helped me immensely after my wonderful parents passed away. You did everything you could out of love. Take care of yourself now.

Icanflyhigh · 11/01/2023 15:05

@SunsetSkies

I am so very sorry for your loss, regardless of how much it was expected, it doesn't make it any easier at all.

I'm glad you found some comfort in my earlier post and I hoped it helped you in some small way.

Please take care of yourself in the coming days, nothing else matters right now but you and your family. Take plenty of time and small steps.
Lots of love x

Season0fTheWitch · 11/01/2023 14:06

So sorry for your loss OP. I'm glad you had beeen able to talk to and spend time with him, and hope you find peace with your loss. He would have known you were there, and felt loved. Thinking of you and sending love Flowers

CaramelMach · 11/01/2023 11:51

SunsetSkies11 · 11/01/2023 08:45

Thank you everyone for your kind words.

He died peacefully.

I just want to say thank you to everyone who shared their own stories, and to those who offered guidance at the end - it really helped me to take a moment to stay calm and peaceful whilst he continued his journey from this world.

@Icanflyhigh a thank you for your earlier post and guidance about this stage.

I am sorry for your loss OP. Look after yourself in coming days /weeks/ months Flowers

SunsetSkies11 · 11/01/2023 08:45

Thank you everyone for your kind words.

He died peacefully.

I just want to say thank you to everyone who shared their own stories, and to those who offered guidance at the end - it really helped me to take a moment to stay calm and peaceful whilst he continued his journey from this world.

@Icanflyhigh a thank you for your earlier post and guidance about this stage.

OP posts:
Icanflyhigh · 10/01/2023 15:03

Mum was at home as she had requested. Being there in that moment was one of the most privileged experiences I've ever had.

@Sunset I wish you lots of peace and calm when you need it most over the next few days x

fortifiedwithtea · 10/01/2023 14:44

My Dad passed at home as he had planned. Hospice nurses were visiting daily and we had a care worker stay overnight.

The care worker sat up all night with him and it gave us a chance to sleep knowing if his condition changed she would woke us up. As it happened I woke early anyway. “He’ll be gone by noon” she said. Dad was a stubborn man and I hoped he would prove her wrong. He didn’t. He died at 11.06am.

It had been raining all morning but the rain stopped and the birds began to sing. I told him that and that Mum and I were there and if he wanted to go it was alright. I think he needed permission to go, he passed a few minutes later.

Previous poster said stay in the moment. That is so true. And word of warning the body may make some unexpected noises as air leaves the body or the face might twitch its electrical signals firing off but they have gone.

The nurse ushered us out to tidy Dad up, comb his hair and smooth his bed sheets. But when we returned for me he didn’t look the same. I felt I was looking at the empty shell and he had gone.

Thinking of you @SunsetSkies11 Flowers

SunsetSkies11 · 10/01/2023 13:43

Thank you @Icanflyhigh

My dad is still here and this has given me something to think about.

OP posts:
Icanflyhigh · 10/01/2023 00:25

I dont know if this will help at all, but it helped me a lot.

Expected Death ~ When someone dies, the first thing to do is nothing. Don't run out and call the nurse. Don't pick up the phone. Take a deep breath and be present to the magnitude of the moment.

There's a grace to being at the bedside of someone you love as they make their transition out of this world. At the moment they take their last breath, there's an incredible sacredness in the space. The veil between the worlds opens.

We're so unprepared and untrained in how to deal with death that sometimes a kind of panic response kicks in. "They're dead!"

We knew they were going to die, so their being dead is not a surprise. It's not a problem to be solved. It's very sad, but it's not cause to panic.

If anything, their death is cause to take a deep breath, to stop, and be really present to what's happening. If you're at home, maybe put on the kettle and make a cup of tea.

Sit at the bedside and just be present to the experience in the room. What's happening for you? What might be happening for them? What other presences are here that might be supporting them on their way? Tune into all the beauty and magic.

Pausing gives your soul a chance to adjust, because no matter how prepared we are, a death is still a shock. If we kick right into "do" mode, and call 911, or call the hospice, we never get a chance to absorb the enormity of the event.

Give yourself five minutes or 10 minutes, or 15 minutes just to be. You'll never get that time back again if you don't take it now.

After that, do the smallest thing you can. Call the one person who needs to be called. Engage whatever systems need to be engaged, but engage them at the very most minimal level. Move really, really, really, slowly, because this is a period where it's easy for body and soul to get separated.

Our bodies can gallop forwards, but sometimes our souls haven't caught up. If you have an opportunity to be quiet and be present, take it. Accept and acclimatize and adjust to what's happening. Then, as the train starts rolling, and all the things that happen after a death kick in, you'll be better prepared.

You won't get a chance to catch your breath later on. You need to do it now.

Being present in the moments after death is an incredible gift to yourself, it's a gift to the people you're with, and it's a gift to the person who's just died. They're just a hair's breath away. They're just starting their new journey in the world without a body. If you keep a calm space around their body, and in the room, they're launched in a more beautiful way. It's a service to both sides of the veil. X

Icanflyhigh · 10/01/2023 00:24

@Sunset, I hope you are managing some rest and are remembering to eat and drink as gard as that may be. I lost my mum in September in exactly the same circumstances as you are with your dad. Her final fluid intake was on the Sunday and we lost her at 11.15 on the following Thursday morning. She was asleep from the Sunday and very peaceful. When she passed it was the most peaceful thing I've experienced. Just me and my dad were with her and we were chatting.
Her breathing changed very slightly and she took a few gulps for air, and that was that. I was terrified having heard some awful stories about death, but it genuinely was very very peaceful and the relief for her, and for us, at that point was immense.
We just let her be for half an hour or so, just to let her pass gently and calmly - and I'm glad we did.

Sending love and strength to you xx

Fabfam · 10/01/2023 00:05

Hi Sunset . I hope your Darling dad is comfortable, not distressed and getting lots of TLC . If he is even remotely uncomfortable please flag up to the nurse on duty even via the carers .Hopefully you are being offered endless drinks ,sandwiches and hugs if you need them .I work in a care home and we all love and care for the residents and their relatives 💐💕

clairea123 · 09/01/2023 23:55

I’m sorry you’re going through this op. It’s so hard, and I found the uncertainty very disorienting. Make sure you look after ypurself- make sure you have enough to eat and drink. If you are going to be there for long hours don’t feel guilty to read fyour book for a bit or be on your phone or whatever. I found this really helpful.
like many have said my loved one died when I’d nipped out. I was heartbroken that I wasn’t there but I think he’d chosen to go that way.
we had a couple of false alarms about how imminent the end was too- just so you are aware.
also I wish someone had told me that though I was sad, and my first response was proofing was relief, and so the real grief and mourning didn’t happen for a few months.
thoughts are with you.