Please or to access all these features

Elderly parents

Planning for the "in case" - how do you manage when 200 miles away ?

58 replies

BookWorm45 · 27/12/2022 08:00

Hoping some kind MNer will have some experience or wisdom to share on this...

Visiting elderly FIL at xmas - he is mid 80s and has a bunch of health problems, including difficulty with walking (quite unsteady at times). He has one of those emergency call pendant / necklace things but doesn't wear it very much (only occasionally when at the far end of the garden, not when in the house). He is in a 1930s bungalow, which has some large doorsills / steps / floor height changes in it due to a previous owner's renovations. FIL lives ~ 200 miles away. DP is the only direct relative in this country (DP's sister lives in California so in practical terms no good for any immediate emergencies).

DP is trying to think ahead so that if there is a sudden emergency, we have some awareness of what might be possible. The most likely concern we have been thinking about is a trip / fall / breaking hip etc.

DP's job means it isn't possible to take holiday during certain times of the year (though there is emergency leave, this is normally expected to be only for a couple of days or so).

How have people managed in similar situations if they've had to respond to concerns (imagine elderly parent breaks their hip, post-surgery they need someone around for a few weeks).

Do people typically take unpaid leave for a few weeks so as to have time off (even though a hit to monthly income which is another factor) ?

Or do people liaise with care agencies so as to provide care during the working week, and then visit at weekends ?

Are there any options for nursing homes which will take people on a shorter term basis such as 3 /4 weeks ?

(We are separately having a conversation about what are the best long term options, the query above is really about how people cope in emergency / urgent situations).

Thank you for any thoughts you have !

OP posts:
New posts on this thread. Refresh page
MMAMPWGHAP · 03/01/2023 23:42

Please please be careful of this big plastic box approach. Sounds like it’d contain enough for a good round of identity theft. An easy target for a burglar.

BookWorm45 · 03/01/2023 15:15

Thanks Whiskey ! very useful about how to search on home care agencies and what to filter on.

OP posts:
whiskeyfoxtrotcharlie · 03/01/2023 13:22

What a great list @BookWorm45 .

Re. point 9, we arranged for a 'home adaptation team' visit where an occupational therapist from the local council came and inspected my mum's home and made suggestions for useful adaptations. Some she ignored (taking up the dozens of small rugs she had scattered around the place) but she did agree to have grab rails fitted in the bathroom and on small flights of stairs. The OT told me that sadly most people only agree to these adaptations after they have fallen and spent some time in hospital. He also said with older people, 'it's not if she/he falls, but when'.

Re. point 6, my mum went into a post-operative and convalescent care clinic for 2 weeks after a hip replacement operation. It was either that or sleep in the sitting room and use a commode during her recovery as she couldn't get upstairs and the downstairs loo was down a flight of stairs. The clinic was expensive but the care was excellent and it worked really well as she had two physio sessions a day that contributed to an excellent recovery.

You could also look on the Care Quality Commission website for home care agencies close to your FIL. You can filter the search to find ones that are rated Outstanding or Good. These agencies can supply carers to look after your FIL in his own home. Again, not cheap but useful in a crisis.

RidingMyBike · 03/01/2023 12:51

I keep my phone on do not disturb Mon-Fri 8am - 6pm which means I don't see the messages etc. It's set automatically to do this. It's a lot easier from my POV as I can concentrate on work rather than get distracted by whatever the current crisis/non-event is. I've told her this is the case but she still tries to call and msg. She can't seem to grasp that I work!

I've got the phone set so DH or school will get through. If there was a genuine emergency she'd get hold of DH on our landline and he'd get me at work.

OnceRuralNowUrbanbliss · 03/01/2023 11:28

I've decided to leave my phone in my bedroom during the working day (I work from home) so if she calls me I am, as reiterated many times during discussions about how she doesn't need professional care/support, UNAVAILABLE during Mon-Fri 9-5

Both she and my brother seemed surprised/annoyed that my chronically ill and depressed teen didn't want to get involved with supporting her Nanna. Ffs.

If you think you need support pay for it out of the ludicrous house price windfall you benefited from don't rely on voluntary handouts from untrained relatives.

RidingMyBike · 03/01/2023 09:54

You're not cold and heartless @OnceRuralNowUrbanbliss, far from it! Mine is currently moaning because I won't take three days annual leave at a really busy time to drive her to a hospital appointment. She has a friend who has offered to do it and who is available then!

OnceRuralNowUrbanbliss · 02/01/2023 23:15

Thanks for writing that post @SharpLily very useful for many reasons but psychologically for me reading my mum is not alone in her stubborn refusal to take seriously how enfeebled and vulnerable she is.

My brother has headed home over 300 miles away today after a few weeks festive stay but we are very worried/annoyed by her.

She can barely stand without falling over yet refuses to entertain the idea of a walker or other mobility aids, won't let me book in someone to help with meals, cleaning etc and definitely will not sort out a POA.

Super annoying as just two years ago when she was relocating across country to be near me she flatly refused to view bungalows and when I suggested she rule out houses not in walking distance to the shops she haughtily told me she'd 'just drive'. Of course she's way beyond driving now.

I have a full on job with loads of business travel but most days will be able to pop in after work but frankly I'm thinking if she can't do anything to help herself then why should I put myself out to help her either.

You makes your bed so time to lie in it.

This maybe makes me cold and heartless which I am not.

MereDintofPandiculation · 01/01/2023 09:20

Means not mans

MereDintofPandiculation · 01/01/2023 09:20

As someone in their 70s, I sit in the middle. I have experienced the drain of “supporting someone to live independently “. On the other hand, the words “she will be safe” strike me with terror. Safe for what? To spend years in a slow decline through dementia, having my freedoms taken away one by one? Being alive is not necessarily “better than the alternative “.

She had good friends who help drop off shopping etc but it’s not the same as close family. Family will take care of shopping and finances, but will not provide companionship. Moving an elderly person close to you, so that you are there if needed, is going to be a considerable downturn in their life if it mans leaving a network of friends behind.

Bunnycat101 · 31/12/2022 19:44

I’m terrified of this. My parents seem less capable each time I visit. My dad would be fine on his own but if something happened to my mum she’d not have a bloody clue how to live independently. I have tried to get them to think about a bungalow or something easier to manage but they won’t. I have small children who will have to be my priority and we’ve both got full on jobs. I just am dreading some form of crisis situation. If my dad died my mum would have to move. I don’t think there would be much point going for a flat/bungalow plus carers as suspect assisted living would be more appropriate. I’ve been doing research on the sly but then feel very disloyal doing that.

SirChenjins · 28/12/2022 11:19

Soothsayer1 · 28/12/2022 10:48

We suggested to her some years ago when FIL died that she could move to our town (we’re the only family she has in this UK country) but she refused
Same here ....my suggestions that the parent move closer to me were angrily shot down.
So here we are, them 300 miles away, me the only family a non driver with problems of my own that prevent me from travelling.
My highly intelligent careful strategic parent .....appears to have no plan at all🤷

YY to the ‘no plan’ - except to rely on neighbours, and family travelling long distances on top of their very busy lives. In our case, MIL’s independence is facilitated by others, rather than herself.

Soothsayer1 · 28/12/2022 11:09

Thanks Emma I know, but it's still a very uncomfortable feeling, I suspect the real 'plan' was that they feel I am obligated and they have intentionally done nothing thinking that will force me to step in.
I will have to muddle through providing some sort of telephone support 🤷

EmmaAgain22 · 28/12/2022 10:53

Sooth in that situation, you can't be expected to do anything much really.

Pp mentioning carers available for emergencies - I have searched high and low online at least, and asked someone in the area who is a carer.

It really doesn't seem to be a service that exists in the area. The Edinburgh link looks like day care, not emergency care?

Soothsayer1 · 28/12/2022 10:48

We suggested to her some years ago when FIL died that she could move to our town (we’re the only family she has in this UK country) but she refused
Same here ....my suggestions that the parent move closer to me were angrily shot down.
So here we are, them 300 miles away, me the only family a non driver with problems of my own that prevent me from travelling.
My highly intelligent careful strategic parent .....appears to have no plan at all🤷

Clymene · 28/12/2022 10:16

Incidentally the needs assessment isn't something your FIL needs to be involved in - I did it over the phone from my house so it's not remotely intrusive.

SirChenjins · 28/12/2022 09:40

Good list 😊

Remember that you can set up Alexas around the house so that they can call for help and Alexa will dial an emergency contact number eg yours. That means they don’t have to be wearing their alarm (although much better if they do, obviously)

Decorhate · 28/12/2022 09:13

It’s a good list! I would add that it’s best to be prepared for things to change quickly & that measures you put in place & that work well, can suddenly not be enough (especially if they start to have memory problems).

My mother is quite active still for her age but I do worry about falls as she is not great with stairs/steps. She was due to visit for NY with one of my siblings but that sibling is now ill & I am fretting about airplane steps…

RidingMyBike · 28/12/2022 08:23

That's a good list!

Do they have a burglar alarm or similar? We found, as well as only giving spare keys to two people 200 miles away in opposite directions, DM hadn't told anyone how to turn off the burglar alarm...

BookWorm45 · 28/12/2022 07:34

So pleased I began this thread as it's been very helpful for me. I've summarised the suggestions (for my own benefit) and posted below in case useful to anyone else.

Immediate response stuff:

  1. Advising (again !) that FIL must wear the emergency button all the time (he doesn’t really use a mobile, although he has one, but it’s usually not charged);
  2. There is already a keysafe fitted to the house but I realise that FIL hasn’t shared the code with us (the cleaner knows it though) so we need to find that out
  3. Check our spare key works (we do have one but I suspect the lock may have been changed after the original door handle broke)
  4. Investigate paid care in an emergency as per PP’s mention of this
  5. Re jobs and time off - check in contract / discuss with management about the “what if” for DP, if an emergency occurred during one of the times in the year when he isn’t allowed holiday. I’m assuming this would mean unpaid leave and deductions from the following month’s salary and that there might be a cap on maximum number of days permitted.

Longer term stuff:
6) Looking up nursing homes that would offer post-op or short term care, so we have some awareness of where these are and what they cost;
7) Encouraging FIL to use the “big clear plastic box” approach, he does have POA set up but all the other papers are who knows where……
8) Age Concern – look up what options they might be able to tell us about local to FIL
9) Start the conversation with FIL about arranging for adult social services needs assessment, I think grab rails / walking aids would be useful
10) Start the conversation about having a daily carer for an hour as a PP said
11) Find out if FIL is using the electronic prescription arrangements so that current prescriptions are easily known about and information can be accessed
12) Investigate whether there is anything that can be done about the raised doorsills / different levels in the property so as to make it easier to walk (not sure if ramps would fit in the available space)
13) Look up the Richard Osman books about retirement living
14) See whether FIL would agree to look at sheltered living options … ( I expect the answer would be no)
15) There are some friends / neighbours local to FIL (though all are also quite elderly), we have the name / number of neighbour next door and probably need to get the details of some others including weekly cleaner.

OP posts:
RidingMyBike · 27/12/2022 20:19

Some areas have a falls service for instance, which will respond to fallen elderly people and help them up. Might be worth talking to something like Age U.K. as they should be able to signpost to suitable care? Some kind of sheltered housing with a warden on site would be worth looking into too?

I have just had to accept that I can't get there quickly - it's a minimum of 3 hours. Last time she ended up in resus I was travelling for work so would have been about 8 hours if I'd gone.

RomeoOscarXrayIndigoEcho · 27/12/2022 20:15

I'm aware of a charity that provides lots of different services to the local (older) community. They have found a certain group of clients are those whose loved ones are very far away.

It's called LifeCare Edinburgh perhaps there's something similar near you?

Befriending might be something that builds a relationship regularly and they might be willing to be an emergency contact?

Toooldtoworry · 27/12/2022 20:02

@BookWorm45 if I'm honest I'm glad you posted this. I am in a very similar situation although parents are younger. We have POA for health and money, and they have advanced directives and wills. I have passwords and know the pin to the key safe but its getting there in an emergency that concerns me and they refuse to move back.

EmmaAgain22 · 27/12/2022 20:02

DenholmElliot11 · 27/12/2022 19:56

but paid care in an emergency situation doesn't appear to exist.

It does in some areas @EmmaAgain22 - I work in this exact area myself, it's what I do.

Would you mind if I sent a PM?

Cornelious · 27/12/2022 20:01

Technology can be really helpful- ring doorbells, blink cameras in house that you can communicate through. Key box outside the house and if possible a few local people who know the number. A care assessment by council.

BookWorm45 · 27/12/2022 19:58

That's interesting @DenholmElliot11 - could you tell us what would be the right thing to search on if looking for a local set of people that can provide paid care in an emergency ? Is this the sort of thing that carers agencies do or is there anything specific / different that I should be looking into ?

OP posts: