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Elderly parents

Parents not accepting help, even though they need it

43 replies

Tricyrtis2022 · 07/12/2022 17:01

There is an ongoing situation with my parent. DF (87) has little remaining mobility. DM (73) has issues with arthritis in her knees, back and hands. DF was having falls years ago but they now happen more often and DM cannot lift him herself. They need help, but seem reluctant to accept most of it. We offered a ramp to make it easier with DF's wheelchair, but this has been rejected. Most things are rejected. They are struggling so much - I see my DM limping and DF barely able to shuffle from his armchair to wheelchair, that with the aid of his Zimmer frame, and I feel so frustrated. I don't know how they can continue for much longer and another crisis seems inevitable.

Is anyone else in this position?

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Tricyrtis2022 · 11/12/2022 16:51

dementedma · 11/12/2022 16:15

This is all so familiar. We have had to use the threat of going into care as in,if yiu want to continue living here on your own then you have to have x,or you won't be able to. It feels a cruel thing to do but its the only way to get through to her. We've had a lot of help fromOTs and Social Work,who are coming out again tomorrow to reassess. Its very hard.

We haven't reached that stage yet, thank heavens, but if going into care was suggested I'm pretty certain it would be refused. My dad is as mulish as it gets and DM backs him up in almost everything. While she can still stand herself, she'll be at his side.

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MereDintofPandiculation · 11/12/2022 16:30

Thank you for suggesting it, but this wasn't about the money I’m sorry I didn’t make my point clear - a delivery pass would remove her perceived need to book it for the crack of dawn because it is cheaper - all slots would be listed at £0. That would remove one way in which she caused knock on effects,

dementedma · 11/12/2022 16:15

This is all so familiar. We have had to use the threat of going into care as in,if yiu want to continue living here on your own then you have to have x,or you won't be able to. It feels a cruel thing to do but its the only way to get through to her. We've had a lot of help fromOTs and Social Work,who are coming out again tomorrow to reassess. Its very hard.

pinneddownbytabbies · 11/12/2022 16:04

MereDintofPandiculation · 08/12/2022 09:37

But when she chooses the delivery slot, instead of picking a sensible time during the day when she is usually awake and either: A - a time when one of her carers is there, or B - checking with DH when he can juggle his work so he can be there, she books it for the crack of dawn because it is cheaper Can they get a delivery pass? For an annual payment, they get free choice of all the slots. If they’re doing a weekly shop, it works out much cheaper.

70 seems to be the age it starts in earnest for most people In my peer group (mainly fit outdoorsy types) it’s nearer 80. There seems to be a definite and rapid decline, and the person themself starts talking about themself as old and mortal rather than young, invincible and immortal.

Thank you for suggesting it, but this wasn't about the money, it was really about her inability to comprehend that these things have a knock-on effect on other people, and that she often unwittingly causes severe inconvenience to family members.

She has always wanted to be in her own home for as long as possible, but there has been a recent rapid decline and we are currently just going from day to day.

Tricyrtis2022 · 11/12/2022 15:39

Good idea, Brit, but they don't have that kind of money. Also, the house is very old and listed and they've needed planning permission to even put new beams in.

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Britinme · 11/12/2022 14:59

Tri if there's any money available, it might be worth their while to get an architect or a consultant in who can recommend changes to make daily life more manageable for them. I say this because my husband is an architect and that's what we've done with our house with an eye to the future. That might feel more like taking control and making their own decisions to them.

Pegsmum · 11/12/2022 11:04

CMOTDibbler · 07/12/2022 17:20

Something I have learned from my very long tenure on this board is that this is what most of us here go through. It is almost always the way that it is only when a crisis happens that you can get things to change, and tbh you just have to be prepared to make as many things happen when there is a crisis, and the rest of the time remind yourself that they are adults who can make their own choices - even if you don't like those choices.

Exactly this. Have been in the same position and this is so true.

Tricyrtis2022 · 11/12/2022 10:57

Yes it is, Bint! My dad can now get himself from room to room downstairs without help, which is a really big deal for him.

I think, in their view, they have downsized. The house they were in before, where they brought up children from their previous marriages, plus two more they had together, was quite big. The issue is that the house they're in now, albeit smaller, is not at all practical for their needs.

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BinturongsSmellOfPopcorn · 11/12/2022 10:40

That's good news.

PaBint spent 20 years talking about downsizing to a nice practical bungalow. Never did it.

Tricyrtis2022 · 11/12/2022 09:07

They won't move, no. They absolutely love the tiny village they live in and the close network of neighbours. I don't think there are any bungalows there they could move to either, even if they were persuaded. Everyone in the family would like them to move to a more practical house, but they won't. They both grew up in villages but spent most of their adult lives living in towns, which neither of them ever liked, so where they are now is a dreamworld to them.

On a positive note, the powered wheelchair has gone down a storm and they're over the moon with it.

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AluckyEllie · 10/12/2022 19:08

I suppose it’s unlikely if they are resistant but would they move? I’m very lucky in that my parents (dad 80 mum 77) are realistic and determined to be independent as long as possible. They downsized to a bungalow a few years ago and the change in them was massive. They are no longer rattling round a big house full of memories, it’s compact and easy to keep on top of. They made an effort to integrate into the local area and go to clubs (which they never would have in the old familiar area.) They also had a huge clear out, it’s like a weight was lifted. Would they consider a move? It may make a big difference especially with those steep ramps.

Britinme · 08/12/2022 13:32

I guess we all do things that are important to us. I've always loved to travel and visit new places.

Tricyrtis2022 · 08/12/2022 13:28

@pike, I could have written your post myself!

Given the choice, I would move to Norfolk or Suffolk and spend my time rummaging about on beaches and field walking.

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Tricyrtis2022 · 08/12/2022 13:27

Okay, a positive development. A while back someone offered us the use of an electric wheelchair that his partner no longer needed. We wiped it down and charged it up, tested it and then took it to the parents. It worked really well to start with, my dad was getting himself about in the house and was able to get to the living room from the kitchen for the first time in nearly two months. Then, once everyone said how great it was, it stopped bloody working. It turns out that they need charging every couple of months or the battery degrades and this one had been stored for two or three years with nothing being done. Massive disappointment all round.

Anyway, we've bitten the bullet and ordered them a new one, with express delivery. Going up tomorrow to take delivery and make sure all is okay. Parents are actually thrilled, which is lovely. DM will be able to use it as well, which will ease her painful knees.

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Dotellhimpike · 08/12/2022 13:18

I have absolutely no urge to travel. Though that's maybe because I've moved around most of my life, including half a decade or so living and working aborad. When I retire in nine years time, I intend to spend the rest of my life pottering around my house and garden, with the occasional walk in the woods. I love pottering, me.

Britinme · 08/12/2022 13:09

My husband's parents died at 86 and 97 (and his mother had dementia for the last few years). I've already outlived both my parents, who died at 58 (heart) and 71 (cancer), and my last aunt just died at 96. Realistically we know we've got maybe 20 years if we're lucky, in which we're likely to be pretty limited for the last 5-10.

It makes me very conscious of wanting to cram travelling in now - we had a long trip to the UK, Greece and Venice this year, and I want to go back to France next year. Going to England to see my kids will become more difficult eventually but so far not a problem and I am heading over for a month in February/March. They, of course, can't afford to sacrifice all their holiday budgets and time just to pop across the Atlantic to see me casually. One thing you do have when you get to our age is time, ironically.

Tricyrtis2022 · 08/12/2022 09:45

I know a lot of elderly people, as well as living next to a retirement community, and in the last year or so, a lot of people aged 85-87 have died. It's been noticeable.

My dad is 87 too and regularly talks about not having long to live and how he's appalled to have reached that age, because it's so crap. Then again, when he was in hospital after yet another fall recently, he complained about being put on a geriatric ward 'with a lot of old men'.

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MereDintofPandiculation · 08/12/2022 09:37

But when she chooses the delivery slot, instead of picking a sensible time during the day when she is usually awake and either: A - a time when one of her carers is there, or B - checking with DH when he can juggle his work so he can be there, she books it for the crack of dawn because it is cheaper Can they get a delivery pass? For an annual payment, they get free choice of all the slots. If they’re doing a weekly shop, it works out much cheaper.

70 seems to be the age it starts in earnest for most people In my peer group (mainly fit outdoorsy types) it’s nearer 80. There seems to be a definite and rapid decline, and the person themself starts talking about themself as old and mortal rather than young, invincible and immortal.

Tricyrtis2022 · 08/12/2022 08:12

Some good ideas here, thank you.

itsjustnotok's point about not speaking to one's parents like they are children is worth bearing in mind. I've seen this happen with elderly people I've known, particularly thinking of the older son of a woman I worked for. I hated the way he spoke to his mother, the way he barked orders at her and criticised her. He was so disrespectful and it infuriated me because I didn't feel I was in a position to say anything.

There were carers who were supposed to visit twice a day but I think they've been dismissed, mainly because they turned up at inopportune hours so there was nothing for them to do. An example is arriving to help my dad to bed at 4pm, which, of course, he refused.

We are seeing them on Friday and I'll take on the advice to ask what we can do to make things easier.

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Britinme · 07/12/2022 22:51

I'm 73 and my husband is 80, and although we are far healthier and more mobile than some of the parents referenced in this thread we are conscious that we are getting older. We've taken pains to make our house age-friendly - for example when we renovated we made the stairs so that they could take a chair-lift if necessary, we made sure all floors were level and we put in a laundry chute from the upstairs bathroom to where the washer and dryer are in the downstairs toilet so we didn't have to carry baskets of washing down. When we did our kitchen, we put pull-out shelves or deep drawers in the cupboards under the counter to make access easier. There are lots of small practical things that can be done to make a house age-friendly.

My husband is nowhere near as tech-friendly as I am, but he would be able to work his way through ordering and paying for goods online. Teaching your parents to use technology is something we tend to expect our children to do!

I would respond very badly indeed to anything that felt like manipulation or bossing by one of my children. The approaches outlined above by WishIwasatailor and itsjustnotok are the ones that would work best with me.

BinturongsSmellOfPopcorn · 07/12/2022 22:47

Re the falls alarm, check with your local adult social care team. They may well have an arrangement with a particular provider to get them (and often also key safes) at a discount.

Nixer · 07/12/2022 21:43

My mum was ok until she got to about 85 or so, but the last 4 years has seen her decline a lot mentally and in the last 2 years physically. IME it's rare that people foresee their own decline and research care homes and ask to go to one, it's sort of a last minute scramble off the back of a crisis for relatives to find somewhere with a place and for the place to accept the person. Fortunately we were referred to an organisation that does the finding for you but it's still been stressful. I still need to go and see the care home in person to make sure it looks ok so it's not done and dusted yet.

Dotellhimpike · 07/12/2022 20:58

"Getting older is shit!"

It totally is. I hope when it's my time to go, I just go, without the long decline beforehand. 70 seems to be the age it starts in earnest for most people. I never had elderly parents, they both died at very young ages but now I am 12 years off 70 myself, I am starting to think about how I don't want to be a burden for either my daughter or my partner, so I get where other people's parent's are coming from. I hope any future Labour Government follow through on their promise to create a National Care Service, much as we have a National Health Service.

Lollypop701 · 07/12/2022 20:18

I told my sil in a private conversation, but sneaky mil hearing of which I was aware , that if she wouldn’t accept help to stay at home then to start looking at homes because they take a while to find and it would end up there after a fall/not taking meds etc. moved on to respite care and she stayed because she liked the company of the lovely people there (sil did a lot of research) Unfortunately some manipulation was involved because she wouldn’t listen when we tried to discuss. Which I really didn’t like but accepted as fall out to making sure she was safe . She wouldn’t listen to dh and sil , her kids, and they both nearly sent themselves mad trying to help whilst working full time jobs. She was a lovely lady, and I really miss her. Getting older is shit!

itsjustnotok · 07/12/2022 19:34

Aging is hard for many people, particularly as they become less mobile. It’s a lot of change and I know my gran hated the feeling of losing her independence and becoming reliant. My aunt didn’t necessarily deal with things well, she spoke to my gran like a child and would often tell her what to do (not saying you do OP!). This further confirmed the feelings of loss to her. I don’t know if it’s worth sitting down and asking what you can do to help keep them as safe and healthy as possible? What can we do to make life easier and leave you as independent as possible.

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