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Elderly parents

Cockroach Cafe 🪳Autumn 2022 🪳

989 replies

MereDintofPandiculation · 25/09/2022 19:58

Welcome! I’ve taken advantage of the relative quietness recently to have a good “spring” clean. And also install solar panels and get in a good supply of logs for the stove.

Come in when you want to share good news, or to rant, or to ask a small question that doesn't warrant its own thread. Or just to hang out with others who understand what you're going through.

For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. So 🪳 mes amis/amies, and may you all live to fight another day.

OP posts:
thesandwich · 24/11/2022 19:45

@Mum5net what a beautiful post. I too am sorry for your loss. I am sure you will celebrate her life fittingly. 🌺🌺

Knotaknitter · 24/11/2022 18:57

@Mum5net May you have the time now to dwell on your good memories of your mother, the richness of her life and not just the final years.

Badger1970 · 24/11/2022 18:18

@Mum5net what a lovely kind way for your DM to go - I'm so sorry for your loss. The best we can hope for anyone we love is a peaceful calm journey.

Flowers
IthinkIsawahairbrushbackthere · 24/11/2022 17:24

Oh @Mum5net what a moving and uplifting post and what a tribute to your mum's spirit and resilience you are.

Be kind to yourself over the days and weeks ahead. Even though you are relieved that she is at peace it is a difficult time.

EmmaAgain22 · 24/11/2022 15:34

Mum5net Condolences on your loss. In terms of the practicalities, it's such a relief when they go okay.

That sounds like an excellent plan re matching whisky cartons. I will think of your folks next time I have a glass. You must be still in shock, I guess? Much love to you Flowers. Share whatever you want to share of course.

Mum5net · 24/11/2022 14:04

Rather surreal last two days. My little DM (91) died in an ambulance just before 04.00am, Tuesday. It was v rapid. She had been fine at bedtime. But it was absolutely the right time to go and I feel nothing but love for her and relief for me.
The chain of events in the previous 45 mins were unscripted with a literally a last gasp change to our version of Operation London Bridge. Operation Kingston Bridge -Mark II turned out to be remarkably positive and uplifting.
DM picked a night when there were only 3 people at A&E when she was received, no queues of ambulances and a very loving and attentive nhs team to send her on her way. I'm still to see the care home crew in person, but they too were spared the soon-to-be feeding tubes and bedside vigil.
Remarkably, within 30 hours, I had DM's death certificate and Form 14.
DM is likely to get booked in next week for a direct cremation. The funeral team will put DM in a similar style whisky carton to the one DF has so they can be matching, I just have to bring a photo of DF in his present form. Family now planning a DM themed party in her honour.👑Fifteen years of dementia has curtailed the parties somewhat, but looking forward to celebrating the little golden gem of a mum which was always hidden inside.

orangetriangle · 23/11/2022 19:13

thanks emmaagain😍

EmmaAgain22 · 23/11/2022 17:52

How's everyone today?
Brought mum back from respite care. Quite alarming to see her wobble around.

I still think she needs to be treated for a couple of things that doctors are ignoring and thinking of as heart related.

Going to be a tough couple of weeks I think.

One of the catering staff was really upset to see her go, and I took a shine to one of the carers. But I bet that happens a lot in that environment. I think the catering lady thought mum was like her grandma as she talked about her gran a lot.

countrygirl99 · 23/11/2022 05:28

💐 to everyone having a tough time

EmmaAgain22 · 23/11/2022 03:56

Hi orange
So sorry.
I don't want to get old either.

orangetriangle · 23/11/2022 01:55

Can I join in please
My mum was admitted to a care home last week.
Sadly she is declining quickly. She has alzheimer's and vascular dementia. She currently cries to come home which is just not possible. She has very limited mobility as is forgetting how to walk. She is doubly incontinent and cant remember things from 5 minutes to the next. Her speech is also now affected so very difficult to understand. She just about knows who my sister and I are
She is 80 and 18 months ago there was nothing wrong !! Dementia is awful. I dont want to get old

EmmaAgain22 · 22/11/2022 22:09

Permanent I absolutely hear that.

Born I wish I knew how to develop a thick skin too.

Badger yes, it's a strange business. I know of two people who died of liver cancer, one was fine till the end and the other much like your dad.

I had a strange phone call from the local busybody - well intentioned chap though - he was looking to speak to mum about a local issue. Or non-issue, in her view, lol.

I explained that she was declining and he got really down. I suppose for him, she was an example of an older person doing fine, now suddenly not.

Badger1970 · 22/11/2022 21:51

Dad's continuing to decline with his liver cancer. He took a tumble at the weekend, so palliative care are now requesting more care visits for toiletting. He's barely eating or drinking, and just looks so sad. He's using the Oramorph daily. It breaks my heart every time I leave him. I'm torn between wanting his pain to end, and being unable to imagine life without him Sad

Borntobeamum · 22/11/2022 21:50

Mums care home just rang as she was upset and wanted to speak to me.
She feels abandoned and like a lost child.

Someone told her I wasn’t her daughter and that’s upset her.

My brother hasn’t been for weeks - we were both there together on Sunday.

She would run away if it was summer.

She’s going to have to get a job - she’s 90.

I’m trying to negotiate buying the top floor of the care home and rent it out.

I’m mentally drained but going to see her tomorrow (I live 50 miles away so can’t just pop in) and I just know it’s going to be awful.

How do I develop a thick skin 😪

PermanentTemporary · 22/11/2022 20:59

My mum has a UTI again, six days after the last one. She seemed ok when I saw her on Sunday, but as ever she can't say much, perhaps a bit less this time. They gave her a short course of antibiotics last time... probably yet another one now...

I wish wish wish she was dead. I will greet that day with joy. She deserves so much better than this being handled from chair to toilet to bed in a nappy.

EmmaAgain22 · 22/11/2022 19:29

How's everyone?

mum's home from respite care tomorrow. I think she's got a cold which I will almost certainly have got. My sister is no longer able to do the weekend - possibly an excuse but not sure.

so I may be on the verge of being mum's live in carer. Could work well or could be awful. Nervous!

EmmaAgain22 · 21/11/2022 20:36

Thank you
rang up for the form today

feels like strange days. Will take getting used to, both for her when she gets home and me if/when I leave her alone for the day or night. My sister will be here at the weekend so I do get a break.

MereDintofPandiculation · 21/11/2022 12:38

Re the six months, we're not asking for it to be backdated though so it seems odd. The six months is to establish it’s a long term need. You cope with the first 6 months, if you still have the need at the end of that then they will pay

If it doesn't go through, then I guess in another six months it might be worth filling in again If it doesn’t go through, you appeal.

OP posts:
EmmaAgain22 · 20/11/2022 10:40

Re the six months, we're not asking for it to be backdated though so it seems odd. They think she had a stroke so there is a difference between now and six months ago.

is there something else we should claim for instead? Social Services said it will be one to three months before they assess her. The hospital wrote on the discharge note that I live with her, which I don't - but I presume they did that to get rid of her.

we will be honest on the form and see how it goes. There was a marked deterioration after her fall in March and me and the neighbours have helped for ages. We can only try. If it doesn't go through, then I guess in another six months it might be worth filling in again. I asked her to apply for it ages ago but understandably, she doesn't want to take money that she doesn't need. She's only become willing now because she realises the deficits from this fall are permanent.

MereDintofPandiculation · 20/11/2022 10:10

Go for the worst case scenario in every question. More important than that (which could verge into fraud if the “worst case” is very infrequent) is to remember “a need met is still a need”. So strip off all the coping mechanisms. Does slide her plate along the work surface rather than carry it direct to table? - she needs assistance preparing meals because she can’t carry plates, saucepans etc. She maybe can wash herself, but does she have to get a hairdresser because she can’t hold her arms up to wash her hair? - she needs assistance with hairwashing (and probably face washing). And so on.

seems odd, that 6 months. It’s meant for permanent disability, not for someone nursing a sprained ankle. They have to have a cut-off point somewhere.

Do they come round and see the person? Not in my experience. Think the form asks you sign that the answers are true. So if down the line it’s found that you’ve claimed AA under false pretences, the responsibility is on you.

V worthwhile seeking advice. I was told by a retired SW that “fiercely independent” means aggressive (with implications for later care home acceptance), and that “pigheaded” is therefore better expressed as “resolutely independent “. Grin

OP posts:
EmmaAgain22 · 19/11/2022 21:42

thesandwich · 19/11/2022 21:37

@EmmaAgain22 thats where cab etc can help re the wording. V worthwhile seeking advice.

Okay, thank you
the form looks quite straightforward apart from that bit.

thesandwich · 19/11/2022 21:37

@EmmaAgain22 thats where cab etc can help re the wording. V worthwhile seeking advice.

EmmaAgain22 · 19/11/2022 20:51

Sorry, re the AA forms

some of the needs have existed for 6 months but not all. Does that mean a flat rejection? Seems odd, that 6 months.

Theradioisoncoco · 19/11/2022 20:48

CoffeandTiaMaria · 18/11/2022 14:53

My father had 17 different accounts; 2 years after his death things are still not finalised.
☹️

My dad has got 36 😱 he's proud of the fact 😏🥺

EmmaAgain22 · 19/11/2022 20:44

Thank you sandwich and hairbrush

I will call up for the forms on Monday. Do they come round and see the person?