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Elderly parents

I have to move my mum into a new care home, what do I tell her?

37 replies

Mxflamingnoravera · 26/08/2022 21:13

My mum has been getting very anxious and delusional again of late. She thinks I've been kidnapped and despite regular face time calls won't be talked out of it. So she's been leaving the building (she has a DOLS order) to look for me.
The dementia nurse came to see her yesterday and said that this is a safeguarding issue and I can see that it is. The mañager has now given me notice that that I have to find her somewhere else.

I have found somewhere. It's brand new and have vacancies. But I just don't know how to tell her why she's moving. She's moving on Wednesday so I need some ideas to start to see the thread of the idea that she's moving. But I just don't know what to say.

So far I've come up with a holiday, more things to do because she's bored where she is, but not sure if either will cut the mustard. She's constantly packing "to go home" so I could go with that but when we get there she'll know it's not her home (which is a feeling, not a place, I uderstsnd that).

Any ideas?

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bathshebaeverbusy · 01/09/2022 20:51

I had to move my 84 year old dad last year as he was asked to leave the care home he was in due to safeguarding. He had dementia and had attacked someone. I asked his gp to prescribe something ( I think it was temazepan) as I had a 40 min drive. I moved him myself. He’d totally forgotten what cars and roads etc are so it was actually quite a funny experience for me and thankfully an exciting one for him! It was hard work though and I hope it goes well for you.

Mxflamingnoravera · 01/09/2022 20:42

Thanks for this advice, I'm taking it. I tried to call but the phones didn't answer I'm quite glad.

I've just got to stop my aunt (control freak, OCD and neurotic) for whom I also POA getting angst because she can't speak to her sister. Three calls from her today same thing "can't get through, get me another number". I'm fucking done in. I'm putting her out of my mind too.

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ICouldHaveCheckedFirst · 01/09/2022 10:01

When MIL had to go into a home (she had dementia) she spent the first 2 weeks yelling that she'd been kidnapped because her DS and DIL were crooks who were just after her money.
The staff laughed it off - they were used to this.
We didn't visit much initially, then it wore off.
It's tough OP but it will get better.

Mum5net · 01/09/2022 09:52

Absolutely put your DM out of your head for next few days and let her settle in. Don’t even phone. Let her get in with it.
You will get through your workday. You have a network of people routing for you. It will improve.

Soontobe60 · 01/09/2022 09:36

Please try to put your mum out of your mind for today. And also let your boss know what you e been going through!
Just take care of yourself x

Mxflamingnoravera · 01/09/2022 07:06

It went well until the lorezepam wore off then she became angry and wanted to go back to her old home, she can't, they won't have her back.
She hated the food, she was rude to fellow residents and I was so shattered I just had to leave promising I'd call her today.
I made a big balls up at my new job which came to light yesterday whist moving her. I just want to throw in the towel and take to my bed. My leg is agony from sciatica and now I have to drive to the new job which I already hate and spend the day trying not to think about mum and how she's coping.

Right now I hate my life. It'll pass but today I hate it. I'm tempted to resign and just wallow, but my sensible head won't let me. Gotta go, another day of chaos to cope with at work looming.

If it had not been for my lovely son helping yesterday I think I'd have been the one checking into the home for a rest.

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Mum5net · 31/08/2022 23:02

@Mxflamingnoravera How did the move go? How are you feeling?

Mxflamingnoravera · 29/08/2022 23:11

@Mum5net
Thanks. That's what I really hope will happen. There is so much more to do and places to explore where she's going.
Everything is now crossed fro a smooth move with her beloved grandson helping out.

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Mxflamingnoravera · 29/08/2022 23:07

My son is coming home to help thank goodness.
Care home she is leaving will probs give her some mild sedative just to get us through the first few hours (it's all on her PRN). She was more lucid today than she has been in a while and when looking at the activities list for the week she curled her lip and said none of it ever happens. (I know that's not true) so I tested the waters and asked "what don't we find somewhere with more activities and things you can do" her response was "I'm not leaving here, I have friends here" then said "you've had a personality change, you're not my usual lovely Vera" I asked what she meant, how was I different but she couldn't say. I think I know it's because she knows I'm keeping something from her.

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Mum5net · 29/08/2022 20:58

Just sending some good wishes to you and saying a brand new care home and new facilities are actually more like a hotel than anything else. If she gets easily bored then a place with new people excited to begin new jobs will undoubtedly give her a new vibe. My DM was the first resident in her care home - there for three days before anyone else. I can’t begin to tell you how she thrived that first week. The chef was preparing her favourite meals and baking . So enjoy that honeymoon period!

stayathomegardener · 29/08/2022 20:45

I'm afraid I didn't warn my Mum with dementia at all when moving care homes.

Just turned up with a distracting bag of M and S lunch treats and only mentioned the fact she was moving on the way.

Saved her so much anxiety.

Nightmare if you can't currently drive, sciatica is so painful x

OneCup · 29/08/2022 19:56

Stay somewhere else until the works/ plumbing/ whatever are completed

Mossstitch · 29/08/2022 19:47

In my area there's a service called Handy Help from Age UK that is a man and a van who will move stuff, try Googling Age UK in your area to see if they have that service. Also there is a volunteer taxi service that only charge nominal fee/costs, or a wheelchair taxi will wheel her into it and out the other end without you having to do anything.

saraclara · 29/08/2022 19:26

My MIL was in a dementia specialist homme. You're doing the right thing by moving your mum to one. Staff that are specially trained and an environment designed for confused people makes all the difference. My mum was in a ' normal' care home and the care of those with dementia was half hearted and clueless.

A taxi for your mum and a man with a small van for her stuff of the way to go. But if you're only talking clothes and trinkets as her possessions, then those big checked zipped laundry bags would fit in a taxi with you both.

Bobnotpop · 29/08/2022 19:15

I hope it works out for you. You can hire wheelchairs/walkers from the Red Cross if that helps and many local authorities have a ring and ride wheelchair transport service. The best advice we had was that when you’re talking with someone with dementia is to go to the world that they’re inhabiting rather than constantly trying to bring them back to the real world. So if they think that their Husband is still alive you don’t upset them by telling them he died years so, you just agree. It’s much less stressful for them. I really hope you manage the move seamlessly and your Mum is happy in her new home.

Mxflamingnoravera · 28/08/2022 17:40

It was the prescribing dementia nurse that kicked all this off. He said she is clearly not been safeguarded and would look into medication for the anxiety. The home immediately went into we can't look after her and served me notice.
The nurse called me later that day to say he'd arranged for a script for pregabalin for her (she has a PRN for lorezepam) but the home had already served the notice and I'd found her somewhere else.
In the end I think the move once done will be better for her as they are a dementia specialist home and also go all the way to end of life care. There is more going on, she's bored where she is, she's told me that many times so although I was devastated when they said she had to go, once I found a new place I realised that it's probably best. My biggest problem is getting her there with my own sciatica which makes walking painful and carrying stuff impossible.
A cousin in London has offered to come and help, I may have to take him up on it. I hadn't even thought about the walking bit for her, she's using a frame that belongs to the current home. I'll need to buy one for her asap.

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Sooverthisnow · 28/08/2022 14:38

Being honest isn’t always best though as it can cause more distress.
I listened to a R4 programme about dementia and one lady they interviewed said the only way to get her mum to the doctors was to tell her they were going on a flight because she used to love to travel. They would tell her the doctor had to check she was fit to fly then unfortunately the “flight” was cancelled after having been seen.
No one got distressed or upset and it was all about using the reference point of the dementia sufferer. The lady in that case associated waiting with airports.

Soontobe60 · 28/08/2022 09:51

I would just tell her she’s moving into a new home. However you word it she’s going to be unsettled. Being honest with her is best.
regarding the actual moving, you can hire wheelchairs from various places, and book a black cab that has wheelchair access.
this place does daily wheelchair hire www.bristolshopmobility.co.uk/daily-hire.html
and here’s the details for wheelchair accessible taxis in your area. www.bristoltaxihire.co.uk/services/wheelchair-taxis/
I would also contact the current care home to let them know you may not be able to organise moving on Wednesday.

PermanentTemporary · 28/08/2022 09:43

Another vote for a GP review to consider medication, if she's so anxious that she's unsafe.

I know I'm not an expert but the undermedication of huge distress and anxiety in older people bugs me hugely. My mum was in so much distress before and now isn't.

BinaryDot · 27/08/2022 17:12

Whatever explanation you give will probably 'slip' later but I would just emphasise that you think it's safe and a better place to stay. I don't know where you are Mx but where I am and where my DM is, you can book something called either hospital transport or patient transport which is council-run and is basically a souped-up minibus with trained driver, they have been very nice. Care homes can usually book them but I've been able to book myself via the council.

FinallyHere · 27/08/2022 16:50

We told my mother that they were going for respite care. The first few days she asked often when she was going home.

A week later, she was convinced that she was on a cruise. We think it might have been because it was fine weather and she was wheeled outside in a bath chair, not unlike the kind of steamer chairs found on deck.

Hope your mothers move goes equally well.

It's a good idea to prepare yourself for questions about going home you you don't find yourself blurting something out ...

lazymum99 · 27/08/2022 16:05

We used those giant laundry bags to pack up stuff. Neither care home would help with transport.
got a man with van to deal with furniture and bags and a lovely disabled black cab (London) who had a wheelchair to transport. Used him again to pick up DM and a carer to come to a wedding and take them back again.
None of this was with the help of the care home. We asked the carers who wanted to do it on their day off for extra cash

MarmiteCoriander · 27/08/2022 15:28

Have you discussed the anxiety and delusions with her GP? Does she take anything to calm her? My nan was extremely anxious and phoning constantly to check on my mums welfare. Her GP gave her a mild sedative. Not to make her drowsy or sleep, but just to take the edge off enough that she wasn't constantly fretting and in panic mode. This might ease things on moving day.

I'd ask the homes how they normally transfer patients to other care facilities? The red cross might be able to help with an extra pair of hands or to borrow a wheelchair.

www.redcross.org.uk/get-help

Mxflamingnoravera · 27/08/2022 15:18

NOne of the homes I've visited will do any transport. Not even to the dentist.

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Mxflamingnoravera · 27/08/2022 15:16

Hi all,it's less the transport as the stuff. I can manage a short drive but I cannot lift or carry anything. So on reflection and with ideas from here I think I'll find a person with a van to do the removals part and then drive her there myself.
I only only own one large travel bag and she has none, so I'll borrow some from friends and neighbours and then get the stuff over there that way.

Telling her, I think will involve going with where she is in her head. At the moment she thinks she's on a cruise. So when she asked when she will dock I said Wednesday and I'll come and pick her up. (Obvs not said and take you to new care home) but wondering how to describe where we are going...a lovely hotel for a few weeks till we decide where you want to live?

I'll phone admiral nurses later I'm sure they'll help with ideas for how to do this gently. They are so good.

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