Feeling completely lost as on only child navigating a sudden change in parents circumstances and hoping for some hive mind wisdom about where to start. Have tried to give relevant info and not drip feed.
DF has terminal condition which is causing progressive symptoms (communication problems, memory issues, vision loss, physical weakness, incontinence but still fully himself). Was being cared for at home by DM until a fall which has put her out of action for 6 weeks.
Since then he’s been in a care home as emergency respite. Home say his needs require 2 people to mobilise him, including at night to toilet/change. He hates it there, is 20 years younger than anyone else and most have dementia. He’s physically deteriorated so much in 2 weeks as he’s left in a wheelchair all day.
They live in an accessible but one bed flat. I am an only child, live 400 miles away, work full time, and am 31 weeks pregnant. We are self funding and money not (yet) the main issue. Social worker so far has been useless, no urgency and no suggestions beyond 2x 20 min carer visits a day.
Am terrified he’s going to deteriorate so much in 6 weeks he’ll never leave again and he’s always been adamant he doesn’t want to die in “one of those places”.
So how the hell do I get him back home? Is it possible? What should I be asking for and who from? Feeling so overwhelmed and sad.