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Elderly parents

Don’t know what to do - worried I am being mean

55 replies

CaptainWentworth · 20/08/2021 12:28

Apologies if this turns out long, but I prob need to give all the background to make sense! Also should mention I’m an only child for context, we have an almost three year old and I am currently 36 weeks pregnant.

My parents live about 1.5 ish hours away from us; they used to live in another part of the country (where I grew up) but dad ended up in same area as me for work, however they bought a house that far away from us (and work and nearest large city) because they wanted a massive garden as a retirement project. That was about 13 years ago, when they were both in good health. We’ve always visited fairly regularly although they came to us as often, and we did alternate Christmases pretty much.

However mum’s health has declined rapidly over the last few years, and she was diagnosed with progressive supranuclear palsy (PSP) almost 2 years ago. Dad is now basically a full time carer as mum isn’t very mobile and has falls often, and they can’t come to stay with us any more because mum can’t manage stairs. We do try to go up regularly but we can’t all stay over with them either as there aren’t enough beds now since they got rid of some in anticipation of moving, and replaced one with a hospital bed which mum refuses to sleep in.

They (well dad mostly, really, as mum struggles cognitively as well now) decided to move somewhere closer to us with a smaller garden. They accepted an offer on their house in Feb/March but they’ve struggled to find somewhere suitable that’s disabled accessible as there’s just not much coming on the market. A couple of properties fell through due to survey issues or dad getting cold feet at last minute - he’s really worried he’s doing the wrong thing moving mum especially as she’s deteriorated since they started this process. I want them to move as it’ll be easier for us to visit each other frequently (and mum see plenty of grandchildren) without wanting to stay over, they’ll be less remote from local facilities, dad won’t feel he has to spend all his time keeping on top of the garden, and we can sit with mum to give him a break more easily.

They have finally found a property which seems a good fit about 25 min from us. However dad is worried about the moving process especially how mum will cope as the house is packed up, and wants her to stay with us for a couple of nights until he can take her to the new house. Their buyers understandably want to complete by end of September and this seems possible at the other end of the chain too. However from my POV it’s terrible timing as I’ll have a maximum 2 week old baby and I’m worried about looking after my toddler and the new baby and mum. DH will still be on leave which will help, but I’m still basically worried about the responsibility. Of course she can’t get up our stairs so would need to come up with some solution for her to sleep downstairs and I can’t think what would work. She won’t use the hospital bed if we got it brought to our house, and she struggles a lot with beds that are the wrong height otherwise. Also she’s liable to fall in the night and will need help getting to the toilet.

There has now been mention of her going into respite care very temporarily instead, but I know she doesn’t want this and I feel awful for potentially not looking after her in her hour of need.

Am I being awful? Both in encouraging them to move and in worrying about having mum overnight? Really don’t know how best to support them in general to be honest- feel I am not being a good daughter. And I feel bad that we moved a year ago and didn’t prioritise looking for a house with a downstairs bedroom for mum to stay in.

OP posts:
CaptainWentworth · 20/08/2021 13:22

Thanks so much for the responses- think I just don’t know what to do about my parents for the best at all.

You’re right, they will have to accept some outside help at some point. They have support from an occupational therapist who visits regularly, and mum is under a hospital consultant but there isn’t really any treatment for her condition so not a lot he can do.

Those whose parents did eventually go into residential care, how did this happen and what were the steps along the way? I’ve offered to help dad with a Continuing Healthcare application (I know a bit about this from the finance side) and if that was approved then they would get funding for whatever was needed- but just don’t know what to suggest and when.

OP posts:
Secretroses · 20/08/2021 12:45

Having a newborn is exhausting at the best of times but you don't know for sure you won't need a caesarian and then there is no way you could physically look after your mum as you will need looking after too! Definitely need a new plan A, you are not being awful at all xx

exexpat · 20/08/2021 12:44

Definitely respite care. There is no way you can cope with her in an unsuitable house with a newborn baby. If her health is deteriorating rapidly anyway, she will need to start accepting non-family care sooner or later as your father will not be able to cope indefinitely and you cannot take it on yourself.

cloverleafy · 20/08/2021 12:42

Respite sounds like the right solution here.

Bluntly, your parents chose not to move earlier in the year. The consequence is that you are not available to support the move in the same way. It's not your fault, just the way the timing has worked out.

SpringSparrow · 20/08/2021 12:37

Sounds like your mum needs to go into respite care whilst your dad moves. There’s no way you can take on caring for your mum, so soon after birth and with a toddler too. I don’t think you are being awful at all. If your mum can’t manage stairs then she wouldn’t be able to cope at your house anyway. Sorry to hear that you are in this situation. I’ve been through similar with parents and Inlaws over the last few years. Eventually my dad couldn’t care for my mum at home anymore and she went into a care home. Heartbreaking, but at least she was cared for there and my dad visited every day and had his lunch there with her.