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Elderly parents

Cockroach Cafe - newly refurbished for the summer

961 replies

MereDintofPandiculation · 30/06/2021 22:26

Welcome into our newly refurbished cafe. We've got rid of the Bad Daughters' bench - it was getting too small - and refitted the main room as a Bad Daughters' room, with comfy sofas, coffee, chocolates and drinks of your choice. (There is a good daughters' room - go down that corridor there and you'll find it tucked behind the stairs. It's not yet been fully furnished - we haven't had a visit from a Good Daughter in I don't know how long).

Anyway, come in when you want to share good news, or to rant, or to ask a small question that doesn't warrant its own thread. Or just to hang out with others who understand what you're going through.

For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. So cockroach mes amis/amies, and may you all live to fight another day.

OP posts:
Zolrets · 06/09/2021 15:30

@Knotaknitter I read your comment on hospitals and wanted to vent share my experience. Eye op - took to consultation, took to covid screen (drive through by appointment one location only), took to surgery. All this involves a 40 minute journey to pick them up. A 20 minute journey to the hospital. Then the same in reverse. When I went to pick up I did the rictus smile as the nurse simpered on about ‘parent needing special care and looking after’. Having managed to keep my mouth shut during that little speech she then went on to tell me that ‘first thing tomorrow, you must take them to the optician to get their glasses adjusted’. I was WTF? You are telling me this now in an emotionally manipulative manner? I was just furious. Why do medical staff assume you have no other commitments? Even my parent said ‘oh they just assume you have a huge family available to step in’. I have a full time job and a child at primary. One day I will ask medical staff what they want me to do - leave my child uncollected or do their bidding. I’m not expecting clinicians to solve all problems, just to quit the saccharine assumptions and manipulation. It’s not good for the elderly person either to paint a picture where they are the only ones with this problem.

thesandwich · 06/09/2021 13:31

Agree with nota about the icons-thanks dot a business idea?
Together with the sainted sons of course basked in golden radiance….
Good luck with the hospital nota

notaflyingmonkey · 06/09/2021 13:25

Thank you for the suggestion of the icons Dot, first time I can remember laughing for a long while!

BinaryDot · 06/09/2021 12:58

I haven’t posted in a while. I have read sometimes though and I wanted to just wave to posters with their own health issues, it must make everything twice as hard.

He's scared of her being unhappy, so always placates her

This popped out at me from Wombat’s post – I see a pattern here for elderly partners who are not co-operating with offers of professional help and also in my own relationship with my DM: even when I reject it, that impulse to placate for this reason is strong. I’m actually picking up some counselling support for myself at the moment and this is something we’re discussing. It’s interesting to go a bit further and ask ‘What if she is unhappy? What will the fearful consequences be?’

On the dementia topic, my DM has evaded diagnosis (she’s likely to have Parkinson’s dementia, which is like Lewy Body) – the GP suggested she attend memory clinic 18 months back but she declined to go and she’s since had an attempted cognitive assessment in the care home by a different team as part of a wider check but she didn’t want to do the test so although we can see she is ‘confused’ and the care home just do their thing accordingly, there’s a bit of a limbo there, especially as some (e.g. financial institutions) can ask for ‘capacity’ statements from a professional but I have found professionals are reluctant to commit to one.

I do believe that it's partly because they have fond memories of a time when women stayed at home, looked after their kids, then switched to looking after the elderlies. They just don't get that life has changed now for the vast majority of families.

Agreed Minty and I don’t even know if these are real memories or impressions gathered from the public face of other families or even TV families. Because in reality women were still overburdened – in my (w/class) GPs days, the women had to look after old people because there were no alternatives, and institutions were feared, but there was not much cosy about it and many of those women’s lives were eaten up by care of all kinds. And ditto to Permanent’s comment that my DM’s generation mostly didn’t have ancient extra-frail elderlies to look after, my DM’s parents both died without much invalidity in their early 70s.

Hairbrush these expectations lurk and while parents in their prime don’t acknowledge them, the neediness emerges when the other partner goes, the idea that children will substitute for the partner is ingrained somewhere. You have done everything you can.

There are always martyred women to be held up to us, who have selflessly cared for oldies unlike us. I feel there should be an Etsy shop selling icon paintings of these saints (“Shirley across the road who has always been so good to her Mam”, “Monica who sees her Mum every day and takes her out in the car”, “Ma Larkin”) so our DMs can put them on the wall behind their beds.

I have been sticking to my monthly travel (train) to DM’s care home to visit under crap Covid rules. Depending on how long I stay, I see her more than once. The first stay was quite long (2 weeks of my annual leave) and many things were sorted out but I suspect DM’s levels of appreciation will only dwindle. I’m taking a friend next time and the time after that another friend is offering to accompany me and hire a car we can both drive so we can take her out locally. But I manage to keep her out of my head more when I’m at home, which is necessary as my job is about to kick off (term time).

We are all doing everything we can. Everything.

Cockroaches Ho!

Mum5net · 05/09/2021 21:04

StopGo hard as it is, just ignore. It’s not your real DM this evening. My DM accused my DF of having sex in their car with two teenage boys that he’d parked across the road. Then she told everyone she met for about a week including the social worker and the Avon girl. Hopefully, she’ll be less muddled tomorrow.

StopGo · 05/09/2021 20:50

Well my "D"M excelled her self this evening. Accused me of 'sleeping around' as I was widowed last year after 30 years it's broken me just at the moment. Ironically she left us the DF when she embarked on an affair many years ago.

TonTonMacoute · 05/09/2021 15:42

Thank you @OnthePiste, it is a relief to know there is hope. The complex care team have only just managed to carry out an assessment on her, but hopefully they can implement some improvements soon.

OnthePiste · 05/09/2021 15:07

@TonTonMacoute I sympathise with you and your DH. DM had a period of calling numerous times a day and through the night. I woke one morning to 35 voice mails, all of which were getting increasingly hysterical. She wanted to know why it was dark..Confused However, once on medication (Donopezil for Alzheier's) and various medical issues (constipation and UTI) resolved, she is now back to sort of normal..still very forgetful but fully aware not to ring too often or at night!

TonTonMacoute · 05/09/2021 14:05

We actually discovered there had been over 100 calls! When we eventually listened to them she was saying 'It's really urgent and important, not just for my life but for all of yours too' in tones of utter doom. The problem? She had managed to miniaturise the keyboard on her iPad.

It's hard not to feel guilty as they do get so distressed but you just can't be at their beck and call all the time doesn't really help and just wears you down. By the time DH had sorted the problem she had forgotten all about it.

MintyCedric · 05/09/2021 12:50

Oh Tonton that sounds very familiar.

My mum went through a phase a couple of weeks ago of accusing me of taking things home with me from her house.

Random messages and phone calls 'but I didn't call you/press anything' are also a regular feature, as are 3 or 4 phone calls a day when I don't see her asking tenuous and trivial questions.

Her ability to deal with technology is definitely going south.

I did an online writing retreat yesterday and pulled out the house phone, which I've not plugged back in yet...bliss!

Am also back at work...which is not so much fun.

TonTonMacoute · 05/09/2021 10:32

She has also taken to ringing up our friends at all hours, it's really embarrassing but they have all been very understanding.

She called an old friend N last night, it was after 10. They got cut off Hmm and she rang us, furious, because DH had obviously caused this by sabotaging her computer, and she was demanding that he ring his friend N to get him to fix it.

TonTonMacoute · 05/09/2021 10:24

Dint we get quite a few random messages, sometimes just odd letters and/or numbers which mean nothing. We use Facebook messenger to communicate sometimes when we can't face phoning or visiting and she had managed to change the background theme, we think she was trying to say nasty display or something. No idea otherwise.

We got up this morning to 22 messages demanding DH ring her now! The first one was at 6.43. Poor old DH is over there now Sad

PermanentTemporary · 05/09/2021 10:22

Just so low and we don't even have it badly, mostly because of sibling stuff. My brother and sister are having an email row about Mum's future with me tagged in. My sister has also taken on too much with Mum and it's now my brother's and my fault she's done that. Mum now planning her third move in 4 years, back to my area which she moved away from 2 months ago after 3 years of complaining and misery. I will admit I was enjoying the break... but if she's back here to a sensible place at least my sister might be a bit calmer.

notaflyingmonkey · 05/09/2021 10:15

I do think as women we are conditioned to try and put other people's needs before our own, and of course none of us would want to make an old feel bad about asking us to do something quickly. But the analogy I use is the boiling a frog one - before you know it you have spent more and more time each week doing stuff for them, that really doesn't have to be done by you.

My tip to anyone going into this is to outsource whatever you can as early as you can, to help normalise the experience of help coming from outside sources. Gardening, cleaning, etc doesn't have to be daughter work, and can be paid for from Attendance Allowance.

MereDintofPandiculation · 05/09/2021 09:00

hairbrush what sandwich said. There will come a time when the awfulness fades and you will look back with pride.

nota meals on wheels Grin

tonton what did that message even mean?

OP posts:
MereDintofPandiculation · 05/09/2021 08:51

I’m also lucky not to have a brother

OP posts:
MereDintofPandiculation · 05/09/2021 08:49

@Dumakey

I think the weight of expectation is probably the biggest/ hardest thing and it seems so much harder as the daughter. Does anyone really expect the sons to step in and help or are they all too busy working/ being important to ask. Most women these days also work but it's still acceptable for the women to be expected to take it all on 😡
Some of us caring for olds are past retiring age ourselves. Hard to find socially acceptable excuses when you’re not in paid work.

Odd too when someone else’s “old” is the same age as your DH.

Difficult to admit to yourself that you’re needing a lot of help because it’s all downhill from here. It’s important for self esteem to feel you’re still independent. So I can understand people minimising the help they are receiving. I’m sure it’s only made worse by the low regard our society has for the aged.

I’m lucky in that I can emotionally detach, and regard him as a problem to be solved. (I’m even luckier that he’s such a nice person) It’s very difficult with a parent because there was a time when our very survival depended on their approval, we were completely dependent on them. Hard to shake that off.

OP posts:
Knotaknitter · 05/09/2021 08:10

Mum wasn't called on to do care for the elderly, her parents died young and dad had sisters. This may be why she'd never thought about it. Having been through the mill myself I am determined that I won't put my son in the same situation but it's ok saying that now. Maybe I too will plod on, unable to acknowledge that I need help.

Nota my concern at the moment is the return of MIL's hospital appointments. She has routine appointments for five different conditions. Pre covid she had something else under investigation and it meant a visit to one hospital or the other about once a month. The switch to telephone appointments eliminated the transport issues but didn't do much in terms of scans and testing. At some point there's going to be a massive catch up and I fear that everything will hit together.

countrygirl99 · 04/09/2021 23:42

@PermanentTemporary

My mother never cared for an elderly relative - they died while still relatively able, or other family members did it. It's often the case that even one generation back, people died of other conditions before they reached the level of frailty that so many of our elderly folk have done.
We get constant comments from FIL that "we looked after our parents in their old age". Both hs parents died relatively young. His mum after a very dort illness, his dad in an accident. MILs dad died shortly after retiring and her mum was happily independent in a sheltered flat she moved to.after he died. What "care " there was consisted of sending their teenage son, my DH, round to mow the lawn before she moved.
PermanentTemporary · 04/09/2021 22:10

My mother never cared for an elderly relative - they died while still relatively able, or other family members did it. It's often the case that even one generation back, people died of other conditions before they reached the level of frailty that so many of our elderly folk have done.

notaflyingmonkey · 04/09/2021 21:23

DM has a hospital appointment on Monday afternoon, my boss has made it clear I need to start taking these things as leave rather than just leaving early/finishing late. So I booked the afternoon off, sorted work for the morning, and the bloody hospital moved the appointment to the morning. I spent about an hour on the phone trying to explain that I couldn't actually accommodate that change, to lots of puzzled receptionists.

I don't expect anyone will remember this but my golden DB decided that DM no longer needed Meals on Wheels a few weeks ago. So I left it to him to plug the gap. He has now decided she is ready to start them again... Funny that.

thesandwich · 04/09/2021 15:45

🌺🌺 hairbrush you supported her and still gave her the illusion of independence for so long. I hope you can insulate yourself from her words.
You deserve time for your life and family.

thesandwich · 04/09/2021 15:42

A common theme on here is sons are ornamental/ ceremonial/ and FAR too important to “pop” to the chemists/ gp/ put the bins out etc etc…….
But it can be worse if they meddle / are not on the same page as some vets of these pages can testify……..
as you say, we do all the ” little things” that make elderlies lives function without them really noticing sometimes….. providing the scaffolding to enable them to live at home.

IthinkIsawahairbrushbackthere · 04/09/2021 15:40

Something that has brought me to tears no end of times is when my mother would say "I could never do what M (her sister) did" - she cared for my grandmother when she was dying, moved her mother in law, her father and her aunt into her home with her family over the years when they needed care. Mum would say over and over again how wonderful M was and she herself could never take on a caring role. However she has never, ever acknowledged that she expected me to do it for her. .

When I hear people say what a privilege it was to care for an elderly parent I wonder where I went wrong. I had a great relationship with my parents, they were always kind and generous with time and resources but when my dad died my mum expected me to fill his role as her carer and companion - even though at the time I had 4 kids at home.

Every time I visit her she tells me how ashamed she is that she has to go into a home. No one in our family ever went into a home. I promised her I would never stuff her in a home etc etc. Sadly she is the only one in the family to be disabled and to have dementia. I have reached the end of my capabilities and can no longer meet the needs she doesn't know she has.

Dumakey · 04/09/2021 15:33

I think the weight of expectation is probably the biggest/ hardest thing and it seems so much harder as the daughter. Does anyone really expect the sons to step in and help or are they all too busy working/ being important to ask. Most women these days also work but it's still acceptable for the women to be expected to take it all on 😡