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Elderly parents

The Cockroach cafe -new look for spring 2021

982 replies

MereDintofPandiculation · 23/03/2021 11:09

Morning all! regulars or newbies, coping with your oldies is a frustrating, exhausting and difficult business however much we love them. The Cockroach Cafe is open to all, with a refurbishment to celebrate the coming of Spring, a place to vent, rant, ask questions, get advice, and hopefully laugh too.

If your question is big, it's best to start a new thread, and get all the advice together in one place. But for everything else, the cafe is the right place.

For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. So cockroach mes amis/amies, and may you all live to fight another day.

OP posts:
Knotaknitter · 09/04/2021 15:00

I don't compete with the tv Nodancingshoes. If MIL would rather watch that than talk to me it's fine, I already know where I stand in her list of priorities. I am not repeating myself and shouting over the babble, I'll just drop the shopping and leave.

I listened to the piece on Woman's Hour (starts about 2.45). I had great sympathy with the original text where the writer didn't want to care for their abuser and wished they were dead. I thought there was some dancing around the subject after that. There can be massive family pressure brought to bear by the wider family on the child of what might be seen as a "difficult" parent because everyone is keen for it to be someone else's responsibility to sort out. The wider family may have no idea just how "difficult" that parent was to their children, nor how nasty they are now. The only way for the now adult child to justify what is seen in the family as their lack of care is to disclose the abuse. It's opening up a whole can of worms on which the lid has been firmly nailed shut for decades. There is no easy way out of it, have nothing to do with the abusive parent and be slated by the rest of the family or be involved with the care of someone you'd rather never see again.

MintyCedric · 09/04/2021 14:54

Oh God @Nodancingshoes ...that all sounds so familiar...sending calm and patience (and gin and chocolate your way).

Mum's had yet another meltdown over L this morning, and she's also spoken to dad. Apparently he was telling her he wants to come home 🙄

thesandwich · 09/04/2021 13:08

🌺🌺🌺to you.

Nodancingshoes · 09/04/2021 12:19

Ok, so todays visit lasted 30 minutes. Sje was deep in self pity, not really talking, lots of heavy sighing, TV at a ridiculous loud volume throughout...I rang the fracture clinic as she says her arm hurts more than ever. I dont know if that's true. We are supposed to be taking the plaster off next week. Please give me strength....and some more patience

DeeplyMovingExperience · 09/04/2021 11:22

There was an interesting piece on Woman's Hour this morning about the issue of caring for elderly parents who have a history of abusive behaviour.

It raised a lot of issues regarding caring responsibilities that fall to women.

It will be available on BBC sounds.

thesandwich · 08/04/2021 21:44

daal sorry things are going that way for your dad. Hope you can find the right place for him.
Great advice from dint minty make sure home are in the picture re your dm. Also does your df have a social worker to protect his best interests?

MereDintofPandiculation · 08/04/2021 12:31

Retina is okay...I have some signs of posterior vitreous detachment due to a combo of age and being extremely short sighted from childhood. Great! I went through that about 15 years ago, floaters and flashing lights. Floaters have now gone, so it looks like everything has landed in a heap at the bottom without pulling off any retina.

I think what I might do in your situation is write to the nursing home setting out your concerns if he returns home, explaining factually what she and you are able or not able to do with him, and include an appendix of dated incidents when his care failed.

Then I'd do the same to his GP, so he/she is working from the same information.

Mark both letters "Confidential".

Have you any contact with your Dad at the moment? Make sure he knows he can express his own preference. He doesn't have to abide by what your mother, or indeed you, thinks.

I presume they can't actually kick dad out willy nilly because Mum's being difficult? They'd probably start by banning her.

Well the heart procedure is off...apparently she's not mentally well enough for them to safely do it! Interesting! I wonder if there's any way of getting that info to the home without breaking privacy regulations? Well, if she's not mentally well enough to have op, she's not mentally well enough to look after your dad unaided.

If I can get her out a bit the taste of freedom might put her off being housebound again with caring responsibilities. Sneaky! Grin

OP posts:
MintyCedric · 08/04/2021 10:56

Oh and we're definitely not a close family knot.

My cousins are mostly 10-15 years my senior and all over the country but I keep loosely in touch with some via FB. I don't think I've seen the ones mentioned above since my 21st, but we have quite a lot of interaction on SM and seem to get on really well so very much hoping I might be able to visit them later this year...and maybe even have a squish if their first grandbaby who's due any day now Smile.

MintyCedric · 08/04/2021 10:53

Well the heart procedure is off...apparently she's not mentally well enough for them to safely do it!

I think I might see if we can do a non essential shop and coffee trip next week...if she behaves on Saturday (bribery)! If I can get her out a bit the taste of freedom might put her off being housebound again with caring responsibilities.

Knotaknitter · 08/04/2021 09:45

Minty That sounds better. It might take careful handling for your mum to save face and back away from an unwise decision without ever admitting that she was wrong but you'll be an old hand at that. Is there a chance of distracting her with haircuts and non-essential shopping? If she has something else to think about it might stop her working herself up over the same thing over and over again. I find choosing paint will fully occupy me for weeks, dragging out the dustsheets is a sign that there's something I really, really don't want to think about.

I have a lot of cousins, I only see them at funerals and have to work out who they are as they aren't 12 any more. "We are such a close family" - no, we're really not mum.

MintyCedric · 08/04/2021 09:19

Oof....phone wasn't working properly yesterday so received a voicemail from one of the two senior nurses at the home (SN2) about mum's phonecall/email to then "we thought you you were telling here...we can't have all this again..."

I presume they can't actually kick dad out willy nilly because Mum's being difficult?

Anyway, had a chat with the other senior nurse (SN1) who we've dealt with mostly this morning, explained the situation. She was much more sympathetic and said she realised mum clearly wasn't herself at the moment and that she'd phoned back yesterday, booked a visit for dad's birthday next week and been fine on the phone then.

So hopefully smoothed things over a bit. SN2 is very no nonsense with a touch of battleaxe so she and mum tend to clash, whereas SN1 seems to have a bit more of a handle on the psychology of it all.

Mum is still making dark mumblings about 'that place not being right' and bringing him home, but not until after she's had and recovered from her heart procedure, so hopefully things will calm down and common sense will prevail in the meantime.

MintyCedric · 07/04/2021 22:52

@AChickenCalledDaal sorry you're having to deal with all that...it's all so bloody relentless isn't it?

I have every intention of bigging up the eye issue...it seems fairly likely it will need more treatment at some point anyway so much better to minimise damage now if I can.

Knot I keep repeating "Well, you're next of kin so that's your decision isn't it?" On a loop, although I have had some fantastic advice and support this afternoon from my cousin's ex wife who works in adult social care (sadly not locally!)

AChickenCalledDaal · 07/04/2021 19:10

Doing bugger all sounds like exactly what you need right now Minty. I would milk the stress/risk issues issue for all its worth to give yourself some sort of break.

Looks like we are moving from Dad being on a six week temporary nursing home stay to a permanent placement. Although he's improved somewhat since leaving hospital, his Parkinsons appears to have taken a massive leap forward and he having delusions and hallucinations, as well as being constantly restless, somewhat aggressive and extremely prone to falls. The Home are coping, but only just. I'm trying to get my head around the idea that this isn't a temporary phase but I might well have had my last sensible conversation with him and now all the difficult decisions are definitely down to me.

Knotaknitter · 07/04/2021 19:03

there is no guarantee we will be able to get adequate home based palliative care in place given the hospice has already rejected 2 applications.

That should read "no guarantee that SHE will be able to get adequate...care". She has to get the message that if she goes this route it's against your advice and she's doing it on her own. She's going to do her own sweet thing and rely on you bailing her out when it all goes west. You will be dragged back in because of your concern for your dad and she won't have to face the consequences of her actions. Why on earth does she want him back home when she doesn't do the caring or want to pay for the hours it needs? All the effort it took to get him there and he's no sooner settled than she's throwing a strop.

In normal times I'd suggest a holiday so that you are not at the end of a phone, it's just a pity that we can't do that right now.

MintyCedric · 07/04/2021 18:50

Line of Duty is bloody amazing. I've just finished series 4.

Mum has had another go at the home including telling them that she wants dad home as soon as her heart procedure permits and that they are only to communicate with her about dad's care going forward.

I've emailed them along the lines that I did tell her about visiting and don't support her plans but as she is next of kin I am now stepping back.

Have had her on the phone this afternoon going on about it all again and basically saying she still expects to deal with all manner of other admin type stuff eve though she's barred me from speaking to the home. I've made it clear that won't be happening.

I have also suggested she needs to be mindful of making decisions based on her wants/needs/fears rather than in dad's best interests. And pointed out some of the potential implications of bringing him home...not least the impact of increased stress and fatigue on her cognitive functioning and the fact there is no guarantee we will be able to get adequate home based palliative care in place given the hospice has already rejected 2 applications.

Although my eye is okay for now, I am higher than average risk for an RD and stress won't help (high blood pressure and increased adrenaline chemicals can have an impact...it's tiny but not telling mum that).

I have done bugger all today...but such is life.

Jenthefredo · 07/04/2021 17:58

@MintyCedric

Thanks jen on the bus to optician as I post!

Spoke to mum this morning...thunk we've both calmed down a bit.

If she insists on bringing dad home I will look at finding another job or returning to work sooner and raise my concerns with adult social services.

As for L there's no indication that he would actually agree to mums request and he does seem to have backed off a fair bit lately.

Glad your eye is ok x Always worrying when its your vision. Ah. ..so your mum is gaslighting "L" too? Interesting! She really can't see how her own behaviour pushes people away, can she? Sigh. She won't change. So one can only change ones reactions. Easier said than done though. I have got much better at laughing off the more hurtful stuff. It infuriates her :) Is line of duty and good? Never seen it...
VictoriaBun · 07/04/2021 16:27

@MintyCedric
See this as a wake up call that you are not invincible. Time to look after yourself and your daughter . You won't get a second chance to do that.

Knotaknitter · 07/04/2021 16:17

Minty I am glad you made the time to get your eye looked at, it is better to be safe than sorry.

BinaryDot · 07/04/2021 15:52

It's good you are bingeing on LoD Minty - I find it healing for my whole focus to be on bent coppers and the letter of the law for a while.

I'm sorry about your Mum lashing out at you. It sounds like you're shouldering an awful lot right now Flowers

MintyCedric · 07/04/2021 15:13

Retina is okay...I have some signs of posterior vitreous detachment due to a combo of age and being extremely short sighted from childhood.

It's not worrisome in itself but combined factors put me at higher than average risk of retinal detachment so am being referred to hospital eye clinic for further tests as a precaution.

Right pupil is still huge and felt quite fragile after the whole thing tbh...40 minute bus ride into town wearing a mask left me feeling really sick and panicky, so I got a cab home and am spending the afternoon on the sofa with the curtains drawn binge watching Line of Duty.

MereDintofPandiculation · 07/04/2021 14:54

If she insists on bringing him home, I am having no further involvement beyond a couple of social visits a week (assuming she'll let me over the threshold)! Makes sure she knows that. Don't let her make an uninformed decision on the basis that you will be there to help.

I went and cleaned mums windows. She sat there with pursed lips. They are too streaky for her. Tell her she'd be better off with a proper window cleaner/cleaner. Someone who knows how to clean windows Grin I remember it took only a couple of my haircuts for Dad to go out and find himself a barber.

Well done, Minty! Just read your update. Now you have at least 24hours peace. Use it to the full! ... oops, looks like you will be - yes, the detached retina thing has to be sorted immediately. Hope it's not that, please tell us when you know. Focus on yourself today, and try to keep hold of that anger = it's your protection against being dragged into things.

OP posts:
MereDintofPandiculation · 07/04/2021 14:42

I have booked a slot for Saturday morning (there goes my day off...again). Mum will need to take a lateral flow test in the car park and wait for a result until she is allowed to enter, and must wear a mask and apron for her 60 minute visit. That will no doubt go down like a cup of cold sick. Tell her she's really lucky. I have to go through all that palaver for a 10 min visit.

OP posts:
MintyCedric · 07/04/2021 10:46

Thanks jen on the bus to optician as I post!

Spoke to mum this morning...thunk we've both calmed down a bit.

If she insists on bringing dad home I will look at finding another job or returning to work sooner and raise my concerns with adult social services.

As for L there's no indication that he would actually agree to mums request and he does seem to have backed off a fair bit lately.

Jenthefredo · 07/04/2021 10:16

I wish I could give you a big hug minty
Time to make an official complaint about "L"? As a Trustee of a voluntary group I'm pretty horrified by his actions.
I don't know what to suggest but echo knot - we care about you and we want you to take care of yourself (as anyone who cares for you should)
Please get to the opticians today...I have an eye issue which could become a detachment...don't delay when it comes to your vision.
If your mum has your dad home she won't cope, and adult SS will have to get involved. Sometimes a crisis can lead to positive changes.
SS (and your mum) will happily let you kill yourself looking after everything. Don't. Your dad would not want this.
Love to you x

MintyCedric · 06/04/2021 23:19

Thanks knot

The procedure probably isn't helping but this is her third one...it's not a new thing to worry about.

It's the fact she's accused me today of trying to 'get rid' of dad, then is talking about getting L involved to sort things out to her satisfaction.

I just can't do it any more. I also need to take care of myself tomorrow. I have been having eye issues for a few days that could indicate a detached retina so I need to get an emergency optician appt.

If she wants to keep accusing me of things, reiterating that she's next of kin and everything is her decision and getting that f*ing man involved in my dad's care, the she can bloody well do it in her own.