Please or to access all these features

Elderly parents

DM about to dangerously discharge

262 replies

DorsetCamping · 14/06/2020 15:18

Apologies for the continuing saga but am at wits end.

To be brief DM (74) has been in hospital 3 times over the last month due to various conditions and the last admission being for 10 days and near deaths door. All pointing to her continuing decline and inability to cope independently.

She reluctantly agreed to go to a rehab unit last week and seemed to be making reasonable progress, no doubt due to be constantly monitored and with the 24/7 care.
Tentative Plans were being discussed for her to go home with an enhanced daily care package.

However, yesterday she had a fall, whereby her walking frame tipped and she banged her head. Thankfully she is ok but naturally it raised deeper concerns about her safety and needs when she goes home.

Onto this morning, she said she is self-discharging and that if I don't go and get her tomorrow she will call a taxi Hmm. Said that there is no way she is staying, hates it and is exhausted.
I have spoken to The nursing staff who are adamant that it is not safe for her to go home, especially with yesterday's fall and that her care package needs a new review. More worryingly is that no carers will even be available in the immediate future given COVID and calls on resource.
They have told DM all of this but she it's falling on deaf ears.

I am so cross her with, it's like dealing with a toddler. She has no clue about the worry this is causing or the implications with lockdown. All she keeps saying to the staff is that either I, or her elderly neighbours will help if need be.
I mean, WTF?!
They did ask me about her mental health as she seemed so low today but ultimately it is her decision.

I am so exhausted with her. All she is being asked to do it sit and recover - you'd think she was in a prison cell the way she goes on. I can pretty much guarantee that if she goes home tomorrow she will just end up in hospital again and we'll be back in the same merry go round.

OP posts:
DorsetCamping · 21/06/2020 13:19

Thanks @Pippinsqueak I think the care DM is currently having at home is under reenablement although it's clear now she will never be 'reenabled' enough to live independently.

OP posts:
DorsetCamping · 21/06/2020 13:16

Should also add I went nuclear with the Care company who weren't even aware that no one had turned up! Apologetic but said they have to use external agency carers sometimes and they are notoriously unreliable Confused

OP posts:
Pippinsqueak · 21/06/2020 13:12

Just a side note SS should have said the funding is "up to six week weeks" not six weeks in total. It's called Reablement and is an assessment period to see if placement in a care home is the right place for someone, or if the person wants to, work with them to get them home.

If it's clear after initial assessment for example the first week, that the best place for the person is in care, you only get the first week funded and a financial assessment will work out how much the person contributes to their care.

Just thought I would let you know just in case this happens.

This is what I do for a living and people are forever thinking the local authorities will pay for their loved ones to stay in care for free for six weeks.

DorsetCamping · 21/06/2020 13:01

Thought I'd update. Paramedics were called and although it took 4 hours to come out they eventually managed to get DM back up (no easy task as she is so large and has no strength in her legs).
Thankfully after being checked over and monitored for most of the day she was declared Unhurt, however the incident really scared her (as it did us) and made her realise just how vulnerable she is. 4 x 15 min daily care visits just isn't adequate for her needs, it's essential that someone is constantly on hand. She just can't be trusted to follow the rules to keep her safe.

So I have literally spent every available minute since Wednesday dealing SS, GP, OT, carers, District Nurse, pharmacy etc etc to look after DM and try to sort things out where we go from here. DM accepts she needs to go into a care home but at the moment we have no idea how quickly that can be arranged.

Initially SS said that COVID funding was available to send DM to a care home for 6 weeks but has since come back to say she doesn't think DM will
qualify because the rule is the patent must be sent into care from hospital only, not their own home 🤦‍♀️
Seems utterly bureaucratic to me and they seem to have forgotten that DM has spent most of May/June in hospital; in fact if it wasn't for the fact I am plugging the care gaps she would be straight back in there anyway!! So frustrating

OP posts:
Sparticuscaticus · 18/06/2020 13:48

MeteDinto no sometimes it's not quick. 8 1/2 hours is unusually long but an hour or two isn't that uncommon depending on whether the person is in great pain or distress. I had to wait 5 hours myself in huge pain, as all the crews were busy.

Ambulance service prioritorise its calls and responses and their crews might be tied up on other more time critical emergencies or at A&E waiting for staff to sign off on their patient so they can leave.

That's why call centre call the person's emergency contact. So the relative, friend or neighbour can visit perhaps to judge if they need ambulance or not, sometimes just to wait with them safely for the ambulance reassuring the person, to ring them back if they deteriorate, and can give key details to the crew and pack up their essentials for A&E or admission. You think the paramedics would be able to see the person's medical history but they don't and can't. And what paramedics handover to A&E staff is crucial.

Sparticuscaticus · 18/06/2020 13:27

Redwoodmazza
They are called unwise decisions under the MCA and has capacity in that decision
They're legally defined in those exact terms and adult social services can't lawfully over ride that. Doesn't make the social worker happy in high risk cases, far from it!

It's huge amounts of work and worry for SW to keep having to sort out / assess for multiple crises, for someone who makes regular unwise decisions with capacity, than to work with a person who accepts that little bit of support they need to prevent the disasters, injuries, distress and use of nhs & other emergency resources. But that's the law and peoples' rights.

Sorry to hear your DM was so difficult.

MereDintofPandiculation · 18/06/2020 09:40

Yes the lifeline monitoring centre would call an ambulance if you don't answer their call of they can't get an answer or believe she has fallen or is unwell. It won't necessarily be quick. When our OT called an ambulance after my father fell, it took 8.5 hours for them to arrive.

redwoodmazza · 17/06/2020 14:32

My DM was like this. Always making what I thought were stupid decisions - but as she was supposedly 'capable', Social Services were quite happy about it!!!
MY DF ended up with dementia and she then was able to get her own back on him for their acrimonious marriage.
My DH and I got looked on as the 'bad guys' and we ended up going NC with my DM - for my sanity.
Nightmare of a situation.
Good luck, OP.

Katyy · 17/06/2020 14:19

Thanks sparticus. We’ve had many accidental calls too. I’ll probably carry on as the thought of her needing help and me not being there is too awful.

Knotaknitter · 17/06/2020 13:38

Well it wasn't a good start but hopefully it will just be start up issues and it will settle down quickly. Would she be able to get off the sofa if it was higher? If so chair lifters under the feet are a quick fix. You can also get thick seat cushions that give an extra few inches. Mum needs a chair rather than a sofa because she needs both the arms to push from, a single arm rest is no good.

Sparticuscaticus · 17/06/2020 13:35

Report it to adult services as well as the care agency office that no one turned up last night and she fell as a result. A missed care call in those circumstances on a high risk case are serious

How did it go?

A PP asked
? I can’t take anymore emergency calls through the night. What would happen, would they send an ambulance?

Yes the lifeline monitoring centre would call an ambulance if you don't answer their call of they can't get an answer or believe she has fallen or is unwell. The alert from lifeline isn't to replace need for an ambulance or emergency response it's so she has someone with her whilst they call one or so you can check first if she needs one if you are close enough. Some people regularly press by accident or for minor things so it'll be the context of what they know about the client if they can't reassure themselves that she's safe by talking to her. No one would expect you to pick her up from floor or lift her if she is unable to stand to get up herself safely or is injured.

I am emergency contact for my NDN and there were times I was fast asleep not hearing the phone , they ought have keysafe number -check the lifeline service do- so that ambulance team can let themselves in. Once the police broke into my NDNs house as we were away and her family didn't answer as second contact number but she had fallen and was on the floor and monitoring team could hear a vague voice saying help me. (I wish I'd been there to sit with her and put a blanket over her & let them in, family organised keysafe after then, following a £130 door repair bill!)

Apolloanddaphne · 17/06/2020 11:30

Oh gosh, that is not a good start. I hope the care improves from today.

HappyHammy · 17/06/2020 11:12

Oh dear. Not great but a familiar story to me. She sounds safer in a carehome. Even if the evening carers had turned up she might have got out of bed during the night or she could fall during the day. If she is on insulin that needs monitoring. Have the care agency told you why they didnt arrive. I hope you are all ok today. Flowers

MereDintofPandiculation · 17/06/2020 10:43

Dorset That's dreadful! So sorry that's happened. OK, it could have happened anyway after the carer left, but it really is not acceptable for the carer not to turn up and there to be no Plan B.

MereDintofPandiculation · 17/06/2020 10:41

they speak and act as if we are obliged to Sacrifice our well-being in order to keep them alive for as long as possible I think everyone would want to keep their elderly relatives alive for as long as possible (providing that's their wish too), it's the sacrifice bit which is the problem. But things have changed so quickly. I'm a bit older than you, and my parents grew up to adulthood before the NHS existed. My grandfather was petrified of going into hospital because the building had been converted from the workhouse. It's not so long since the family was the only reasonable option. And of course it was less often so onerous for so long - people died of heart problems and other nowadays manageable illnesses before they got to the horrors of dementia. So a not wholly unreasonable belief has changed quickly into being quite unreasonable and out of tune with the other responsibilities of life.

Katyy · 17/06/2020 08:14

Sorry I’m late to this but having similar problems myself. So sorry about last night what’s going on ! Hope you find out today it’s disgusting if there was no
availability to call at your mums they should have told you.
I’m just in the process of organising care for my mum. I’ve had the assessment over the phone and be passed to the local team, just waiting for a phone call, hoping care can start soon as dh and me wants some need to go on holiday ASAP.
My mum has a pendant alarm with my name and someone else’s, would it be possible to take my off ? I can’t take anymore emergency calls through the night. What would happen, would they send an ambulance? Feeling so gulilty but so desperate too. Good luck to you. Hope things become easier Flowers

Adarajames · 17/06/2020 00:43

Oh you poor thing! If you can’t lift her and she is at risk where she is, then it’ll have to be an ambulance. Do you have an emergency number for the care agency so you can get them to assist seeing as their failure has caused the new issue?

DorsetCamping · 17/06/2020 00:08

Well not a great start. First carer and District Nurse arrived at 4 - all good and I left them to it as I had to go to work myself.

10.00 frantic phonecall from DM, bedtime carer hasn't turned up. She can't stand up from the sofa so has slid herself off it and crawled to the bathroom as she was desperate for a wee. I am 40 mins away so have to drop everything and race over. DH also driving over as he is closer, leaving DC at home. When I arrived DH told me he found DM on the floor, thankfully not hurt but no way is he going to be able to pick her up (she is very overweight)

So as I type she is now on a mattress on the bedroom floor, quite comfortable under her duvet but I am beyond livid. This whole house of cards is utterly reliant on good care being in place which we were assured was all in place. What if I hadn't picked up the call? What about her meds (which I have had to administer)? What if she had hurt herself?

No point ringing anyone at this hour but I will be ripping someone's head off in the morning. I also have no clue how we get DM off the floor. I cannot ring for yet another ambulance Angry

OP posts:
forgetthehousework · 16/06/2020 13:54

B1rdbra1n, yes and I think he's an only child because why have another when you've got your 'insurance policy'. She died several years ago, so it's not a problem any more but it certainly was on more than one occasion.

We don't have any children so goodness knows what will happen to us Grin.

HappyHammy · 16/06/2020 11:51

Take care and hope mum is happy to be going home

DorsetCamping · 16/06/2020 11:47

Thanks for all your advice @HappyHammy Thanks

OP posts:
HappyHammy · 16/06/2020 11:45

Great news. The district nurse can refer to community matron.

B1rdbra1n · 16/06/2020 11:43

Told my DH that it was his job to look after her
I am in my 50s and (IME) this belief is widely held by people of my parents generation, they speak and act as if we are obliged to Sacrifice our well-being in order to keep them alive for as long as possible

DorsetCamping · 16/06/2020 11:26

I've also been advised to try and get a referral to a Community Matron (?) to oversee DM's conditions. Not sure whether that has to be instigated via the GP?

OP posts:
DorsetCamping · 16/06/2020 11:23

Yes, thankfully DM already has a key safe.

Hospital transport will be taking her home this afternoon in time for the teatime carer and I will meet her there. District Nurse has been also been lined up to administer DM's insulin in the short term and dress her leg ulcers longer term.

OP posts:
Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is closed and is no longer accepting replies. Click here to start a new thread.