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Elderly parents

DM about to dangerously discharge

262 replies

DorsetCamping · 14/06/2020 15:18

Apologies for the continuing saga but am at wits end.

To be brief DM (74) has been in hospital 3 times over the last month due to various conditions and the last admission being for 10 days and near deaths door. All pointing to her continuing decline and inability to cope independently.

She reluctantly agreed to go to a rehab unit last week and seemed to be making reasonable progress, no doubt due to be constantly monitored and with the 24/7 care.
Tentative Plans were being discussed for her to go home with an enhanced daily care package.

However, yesterday she had a fall, whereby her walking frame tipped and she banged her head. Thankfully she is ok but naturally it raised deeper concerns about her safety and needs when she goes home.

Onto this morning, she said she is self-discharging and that if I don't go and get her tomorrow she will call a taxi Hmm. Said that there is no way she is staying, hates it and is exhausted.
I have spoken to The nursing staff who are adamant that it is not safe for her to go home, especially with yesterday's fall and that her care package needs a new review. More worryingly is that no carers will even be available in the immediate future given COVID and calls on resource.
They have told DM all of this but she it's falling on deaf ears.

I am so cross her with, it's like dealing with a toddler. She has no clue about the worry this is causing or the implications with lockdown. All she keeps saying to the staff is that either I, or her elderly neighbours will help if need be.
I mean, WTF?!
They did ask me about her mental health as she seemed so low today but ultimately it is her decision.

I am so exhausted with her. All she is being asked to do it sit and recover - you'd think she was in a prison cell the way she goes on. I can pretty much guarantee that if she goes home tomorrow she will just end up in hospital again and we'll be back in the same merry go round.

OP posts:
Onekidnoclue · 01/07/2020 09:33

Congratulations! Absolutely wonderful news.

AvengingGerbil · 01/07/2020 09:27

Oh, well done Dorset. Enjoy your hard-earned break!

DorsetCamping · 01/07/2020 08:29

Quick update...drum roll.....

DM is in the nursing home!!

A few hiccups over the weekend; no riser/recliner chair big enough (resulting in 4 hour road trip to buy one!) and broken lift in the home BUT she was finally transferred yesterday and apparently all is well!

Huge huge relief, I can finally step back for a while. Although this is respite for approx 6 weeks, if she settled in well I can see it becoming permanent.

Thank you so much for the unending advice and support, it's meant more to me than I can possibly put into words Thanks

OP posts:
Supersimkin2 · 25/06/2020 18:09

Enough already. Well, enough already years ago. Phone off, have a nice evening. DM is safe and will be even safer in a care home.

I do think one of the factors for care home admission should be 'danger to the health of others'.

HappyHammy · 25/06/2020 17:53

Oh dear is this still all going on, at last she is back in hospital where she is safe and being discharged straight to a nh sounds a great plan. I doubt anyone has suggested she go home with antibiotics, just step back and don't engage with any more phone calls.

GooseberryJam · 25/06/2020 17:24

OP, do you believe what your mother said in that phone call? Because I would have serious doubts about its accuracy. I think she's telling you what she thinks will make you come and get her. Why on earth would doctors say she's not safe to be in hospital? How would that make sense? When all the other staff have agreed the direct move to the nursing home? I take it no doctor actually spoke to you as part of this call?

DorsetCamping · 25/06/2020 17:05

You're right @TwoTribes
It doesn't sit well someone taking up a hospital bed unless absolutely necessary but it's the only option. She CANNOT go home and enough is enough

OP posts:
TwoTribes · 25/06/2020 16:58

Switch your phone off OP and spend time with your family. This is not for you to shoulder alone, you have done enough. She is safer where she is than at home.

DorsetCamping · 25/06/2020 16:48

And on to today's drama.

Arrived at DM's and she's clearly unwell with recurring problems from hospital admission number 2 🤦‍♀️
GP advised to ring for paramedics and after 3 ambulances turn up (first 2 not bariatric fitted) she is taken off to A&E. Christ knows how much that all cost!

SW, Community Matron and myself all in agreement that she is discharged straight to the nursing home. She is absolutely not safe at home and in a real physical and mental mess.
Nursing home won't be ready until Tuesday so we firmly believe best option is for her to stay put until then. All fine and big sigh of relief, until....... very confused phone call from DM, hospital doc wants her to go home with large doses of antibiotics "not safe to be in hospital right now" blah blah.
I told DM nothing is happening, no one has spoken to me and frankly if I switch my phone off they won't be having that conversation.

I've had enough; no one in RL understands, my own family is suffering. I am broken. DB is 3 hours away.

OP posts:
Supersimkin2 · 24/06/2020 21:04

Well done OP. Massive well done.

My possibly rather tough post holds a world of sympathy for you - thing is, sometimes you've got to do what keeps you both alive and sane rather than what the elderly person feels like that afternoon.

SuzetteCrepe · 24/06/2020 17:45

Its good its being taken seriously. Is she realistically going to sit in an armchair or could she be nursed in bed. Some beds can be positioned like a chair, are they hiring in a bariatric bed for her. Why hasnt she had a proper wash.

DorsetCamping · 24/06/2020 16:44

Quick update...all being taken seriously now and a thankfully a place has been reserved at a local nursing home. She is getting increasingly helpless, the carer hasnt helped her get dressed for 3 days and she hasn't had a shower/thorough wash since Friday which I only discovered todayShock

Next hurdle, the home doesn't have a chair big enough and she can't go anywhere without one 🤦‍♀️
OT and Community Matron aren't able source anything so I may have to bite the bullet and rent a bariatric riser/recline at £££

Someone did mention asking about possible budgets in SS pot for helping with cost of chair but not sure whether that's possible.

OP posts:
GooseberryJam · 22/06/2020 20:57

OP, a very similar thing happened with my dad. I had to call the paramedics out and I emphasised that I didn't live nearby and that I was worried clout his continuing safety living alone. They were really sympathetic and agreed to admit him to hospital. I was then able to really push social services to move him directly into a care home, which I'd been part way through organising. It did speed things up. If this should happen again - it's quite likely it will - I strongly advise you to take this approach and push for your mum to be admitted and then for her to be kept in hospital until a transfer to a care home is possible. Paramedics see quite a few cases of people like this and they do understand how hard it is.
Can't remember if your mum owns a property or has savings? You will get a grace period, you don't have to hand over money immediately. I also found the finance people in adult social services very helpful once it got to that stage.

Supersimkin2 · 22/06/2020 20:42

Horrible OP. Care home, care home, care home.

You're letting the tail wag the dog.

Stop letting your guilt and DM's failing brain put her at risk of sudden death. Stop.

For your DMs sake you must stop engaging with her about why she's not going into care. Repeat that she is going into care. Don't explain why; speak in short, clear sentences. Hang up after 5 minutes.

Long agonised discussions just give DM a sense she is the centre of attention, which is no good, and that she has a point - she doesn't.

Kindness will enable another horrifying accident, and nothing else. Treating DM like an adult could kill her. That's not respect. That's not love.

Control yourself. Stop engaging, stop popping round, tell SS why. Only when DM is in care can you resume the relationship, which ought to be shortly.

SuzetteCrepe · 22/06/2020 20:39

Its a good job you visited otherwise she would still be there till the carers or district nurse came. I take it she doesnt use a carelink alarm..what a worry for you.

DorsetCamping · 22/06/2020 20:18

Knew it was to good to be true...
Popped over to see how she was and found her stuck on the loo. Ignoring all instructions not to move without a carer, she had got herself off the sofa and rather use the commode next
To her she went to the bathroom.
Had been stuck there a least an hour and had no strength to push down on the toilet frame to stand up. Nothing I could do to get her standing and so yet again paramedics were called as her legs were getting numb and I was worried about her falling off.

2 hours later they managed to get her upright, very red and bruised backside.

Have spent afternoon dealing with OT, carers and pleading with SW to find her a nursing home ASAP. What should've been a half hour visit has turned into yet another all dayer 🤦‍♀️

OP posts:
Katyy · 22/06/2020 16:10

DorsetCamping. The very best of luck to you and your mum. When you have your mum sorted you need a holiday it is exhausting.

DorsetCamping · 22/06/2020 11:33

No word back from the SW yet but have just had a hugely helpful phonecall with a Community Matron.
Assuming DM is still at home Wednesday the CM will visit (with me present) and do a full assessment of DM's medical and care needs. Says she then acts as a liaison between the various agencies.

Am so relieved that in principle such an advocate exists (never heard of a CM before) and am hoping that by taking a holistic view she can help set DM on the right path

OP posts:
SuzetteCrepe · 22/06/2020 11:20

Thank you for sharing your experience. I have found this a heartwarming thread reading about so many personal stories. We are in a similar position and am gaining so much help from our local community and support groups. Flowers

Onekidnoclue · 22/06/2020 08:43

@DorsetCamping I have nothing helpful to add but have read all your posts and am utterly blown away by your love for your mum and the huge effort you have made to keep her safe and well, despite her best efforts otherwise.
I hope you’re taking time for yourself if at all possible. You can’t pour from an empty cup.
You’re doing an incredible job, sorry I can’t help at all!

DorsetCamping · 22/06/2020 08:31

@Katyy & @Passthebubbly, sorry to hear about your situations. It's so difficult when you're literally dealing with a child in an adult's body

OP posts:
Katyy · 22/06/2020 08:07

So many of us in similar positions it’s heartbreaking. I’m learning so much from this thread. I have a phone meeting tomorrow with sw and mum for home care.
Mums agreeing to it at the moment, but we had enablement last year after she broke her hip , all went well for a while,
then one day one of the girls couldn’t access the key safe, mum blew her top and wouldn’t have them again. Expecting worse this time as she’s has memory loss and slight confusion.
It only a matter of time before she falls again, she has low bp which can’t seem to be rectified. If you saw the way she gets on her chair lift 😱 won’t be told though so what can you do .

Passthebubbly · 21/06/2020 23:16

My heart goes out to you. Been here time and time again with my mum it is soul destroying and heart breaking.
The incidents just keep coming and for us now we have just reached full leg amputation 6 days ago already she is making noises to her out. She is due to go to rehab but I know she will rush that through as quickly as possible so she can get home for a cigarette until the next admission. All carers are dispensed off within a week of arrangement because “her daughter will help” it’s killing me now already had 12 years of if I just can’t cope anymore now it’s become so severe. It never stops does it no matter how bad things get my heart breaks for her but also it’s too much for us to cope with. Stay strong lovely

Sparticuscaticus · 21/06/2020 22:31

OP

One thing I will ask her SW tomorrow is whether we can get DM back into the rehab unit

That's a good question to ask, suspect the bed was quickly filled. We can really feel your exasperation at how Mum didn't appreciate what a rare opportunity she was giving up.

I hate the thought of having to make knee jerk long term decisions when actually what she needs right now is looking after and stabilising.

You could always dIscuss with SW and Mum if a long respite stay (eg 4 weeks) had any realistic value in her situation and during lockdown restrictions.

Might be worth asking the physio from NHS unit if they can email some physio exercises to continue her rehab, if felt to be safe, workable or appropriate.

Also don't forget about 12 week property disregard funding if that might apply - there's eligibility requirements- you can read about it online but go to the LA's adult health and care website to do so, to avoid the well meaning but unhelpful misinformation on the internet.

Sparticuscaticus · 21/06/2020 21:02

@HappyHammy

Like you say you dont know anyones qualifications or what their day jobs are
Yes, I know mine and recognise some of the others who posted to help on here, that you maybe didn't realise you said the opposite to. And a few hints from your use of language 'Cause for Concern' and emailing the Safeguarding Lead 😁 so you know exactly why I responded to add a caveat around your rather specific advice.

Look, OP might find this damn fine & helpful guidance from SCIE on the very difficult issue of self neglect and when it becomes a safeguarding concern

"Self-neglect can be a complex and challenging issue for practitioners to address, because of the need to find the right balance between respecting a person's autonomy and fulfilling their duty to protect the adult's health and wellbeing. Both perspectives can be supported by human rights arguments.
The Care Act 2014 statutory guidance includes self-neglect in the categories of abuse or neglect relevant to safeguarding adults with care and support needs. In some circumstances, where there is a serious risk to the health and wellbeing of an individual, it may be appropriate to raise self-neglect as a safeguarding concern. However, interventions on self-neglect are usually more appropriate under the parts of the Care Act dealing with assessment, planning, information and advice, and prevention.
It is vital to establish whether the person has capacity to make decisions about their own wellbeing, and whether or not they are able or willing to care for themselves. An adult who is able to make choices may make decisions that others think of as self-neglect.
If the person does not want any safeguarding action to be taken, it may be reasonable not to intervene further, as long as:
• no-one else is at risk
• their 'vital interests' are not compromised – that is, there is no immediate risk of death or major harm
• all decisions are fully explained and recorded
• other agencies have been informed and involved as necessary.
Risk and capacity assessments are likely to be useful. The legislation makes clear that adult safeguarding responses should be guided by the adult themselves, to achieve the outcomes that they want to achieve.
Carrying out an assessment may be difficult, if the person is reluctant. The Department of Health advises (in statutory guidance on the implementation of the Care Act 2014) that adult social care departments should record all the steps they have taken to complete an assessment of the things that a person wants to achieve and the care and support that they need. Research indicates that intervening successfully depends on practitioners taking time to gain the person's trust and build a relationship, and going at the person’s own pace.
If it is impossible to complete the assessment, or if the person refuses to accept care and support services, you should be able to show that you have tried, and that information and advice have been made available to the person on how to access care and support and how to raise any safeguarding concerns. All your decisions, and the considerations that have led to them, should be recorded in light of the person's wishes and their particular circumstances. You should be able to show that whatever action you have taken is reasonable and proportionate"

The Human Rights Act balance they refer to is usually between Articles 2, 3 verses Articles 5 & 8 - they'll be easy to google, it is important stuff.

Regardless of you and OP having relatives at different stages or exact situations , it's great to have someone else who's had similiar experiences of their relatives ill health and can really understand that frustration from watching a sad, scary and difficult situation unfold. This MN section is so brilliant at finding MNers to give support for that.

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