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Elderly parents

DM about to dangerously discharge

262 replies

DorsetCamping · 14/06/2020 15:18

Apologies for the continuing saga but am at wits end.

To be brief DM (74) has been in hospital 3 times over the last month due to various conditions and the last admission being for 10 days and near deaths door. All pointing to her continuing decline and inability to cope independently.

She reluctantly agreed to go to a rehab unit last week and seemed to be making reasonable progress, no doubt due to be constantly monitored and with the 24/7 care.
Tentative Plans were being discussed for her to go home with an enhanced daily care package.

However, yesterday she had a fall, whereby her walking frame tipped and she banged her head. Thankfully she is ok but naturally it raised deeper concerns about her safety and needs when she goes home.

Onto this morning, she said she is self-discharging and that if I don't go and get her tomorrow she will call a taxi Hmm. Said that there is no way she is staying, hates it and is exhausted.
I have spoken to The nursing staff who are adamant that it is not safe for her to go home, especially with yesterday's fall and that her care package needs a new review. More worryingly is that no carers will even be available in the immediate future given COVID and calls on resource.
They have told DM all of this but she it's falling on deaf ears.

I am so cross her with, it's like dealing with a toddler. She has no clue about the worry this is causing or the implications with lockdown. All she keeps saying to the staff is that either I, or her elderly neighbours will help if need be.
I mean, WTF?!
They did ask me about her mental health as she seemed so low today but ultimately it is her decision.

I am so exhausted with her. All she is being asked to do it sit and recover - you'd think she was in a prison cell the way she goes on. I can pretty much guarantee that if she goes home tomorrow she will just end up in hospital again and we'll be back in the same merry go round.

OP posts:
DorsetCamping · 10/07/2020 18:58

My DB who lives 3 hours away visited her today. She didn't recognise him and kept trying to send him away. Even more confused and manic than yesterday, wouldn't stop fiddlling with the bed controller and trying to pull drip out of her arm.
Again repeating she wanted to die and that all men were murderers! Confused

I spoke to the doctor, they still hadn't done the liver scan but every other test she'd had done was clear. She last had a brain scan 30 May but her behaviour has been so extreme I'm going to insist they do another one. Dementia has been mooted but how can it be so dramatic and quick? This delerium/psychosis has literally gone from zero to off the charts in a matter of 2 weeks. There has to be something organic causing it Sad

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flygirl767 · 10/07/2020 17:57

Oh Dorset, it sounds like she has psychosis or something, surely they must have sent a psych team member to see her? Can they give her something to calm her down so that she at least gets some rest?

Poor you and her, it must be dreadful seeing her in this state. My mum was none too good either today, begging me to take her home, not knowing where she was again and talking nonsense. Just when you thinking you are getting somewhere then they take a turn for the worse again. It is painfully slow getting any diagnosis let alone any treatment. Keep us posted how things have gone today.

LindowMan · 10/07/2020 12:56

Good luck for today - I feel for you x

HavelockVetinari · 10/07/2020 12:28

De-lurking to send you a very un-MN hug. You've really been through the wringer. I'm sorry things are so awful for you and your poor Mum. Sad

RandomMess · 10/07/2020 11:12

Hugs and more Thanks

DorsetCamping · 10/07/2020 11:05

Thank you for your kind words

So I saw her yesterday and all I can say is that the woman I was with was not my DM.
Completely confused, paranoid and terrified. She recognised me but was talking nonsense.
Saying she wanted to die, everyone was trying to kill her, what had she done to deserve this, shouting, crying. Wouldn't believe a word I was saying to her.
She needs constant supervision by staff.

She is being sent for a liver scan today which I almost hopes shows something as the speed and severity of this delirium is staggering.
She is no longer constipated and there is no UTI to account for things.

Also praying she is seen by the psych team today.

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RandomMess · 09/07/2020 21:45
Thanks Sad
thesandwich · 09/07/2020 21:38

Thinking of you🌺🌺

HappyHammy · 09/07/2020 19:54

Hope the hospital can help her and you are coping as well as you can

Rinsefirst · 09/07/2020 19:36

Dorset Hope it hasn’t been too traumatic. Your mum sounds increasingly unwell and it maybe that they will start to increase meds or do an about turn on whatever meds she has been put on. The hospital staff will have a huge volume of cases that they have seen before and can look objectively. It’s harder though as you are not detached. All days won’t be as bad as this one . Flowers

StopGo · 09/07/2020 14:20

Your DM sounds very similar to mine. It's so draining. Good luck this afternoon.

DorsetCamping · 09/07/2020 14:15

Thanks Rinse.

The hospital has just called to say DM is in extreme distress and they have put a call out to the psych team. I'm going in to visit her at 3 and can't lie, am dreading it. Haven't seen her for 10 days and no idea what awaits me.

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Rinsefirst · 09/07/2020 14:00

Dorset This comment addresses something you said on Flygirl’s thread... If your mum’s behaviour was v erratic at the NH now she’s in hospital it would be fair to assume the staff will witness what the NH staff were contending with .... they may make an exception and get an elderly specialist to rake a look.

Supersimkin2 · 04/07/2020 20:16

Well, you really can't look after her yourself now. NH and new GP will have answers next week, don't you worry.

Of course seizures can cause bizarre, usually awful, behaviour - a mate of mine who had a small stroke was vile for months. Old people who have them can be impossible to keep at home.

Switch off (ha ha - easy to say. But try.) DMs behaviour is a medical problem, not a family one - leave decisions up to them.

Rinsefirst · 02/07/2020 22:25

Whilst it’s v upsetting to read her notes, far better she is being monitored by a team at the nh and not under your sole care. If she worsens then she will be escalated to somewhere with higher staffing ratios rather than back to you.
My DM left lots of little scattered notes saying how scared she was of people staking out her home and noises. Medication helped her greatly. It’s likely you are still on high alert and wired to her every need. Try to switch off for a few hours if you can. Flowers

Katyy · 02/07/2020 15:46

So sorry Dorset. I can’t say anything helpful, but at least you know now she needs specialist help. Don’t go everyday to see your mum, she won’t be aware of how often your visiting anyway. Be kind to yourself and take care. Xx

TwoTribes · 02/07/2020 14:54

How often are they asking you for detailed history? It's ok to tell them you will not be available for 2/3 days. Give them another contact number for emergencies only and make yourself unavailable. You need to put your own oxygen mask on before helping others. Look after yourself.

DorsetCamping · 02/07/2020 14:43

I do want to step back but it's not so easy when the NH/New GP are asking me for DM's detailed history

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TwoTribes · 02/07/2020 14:37

I think the NH will have seen a lot of this type of behaviour. It also shows that she cannot be left on her own so services will have to be involved in her care whatever happens. I would let them know about the notes you found.

I think you should continue to step back and give yourself a break with your phone off. If your dm thinks 2 days is 2 weeks anyway, it really won't make a difference to her.

DorsetCamping · 02/07/2020 14:26

This morning the Matron from the NH rang to say they'd found DM this morning with deep cuts all over her arms.
It appears she'd brought a pair of scissors back from hospital and hidden them somewhere.
I am poleaxed! She has always been prone to low mood and negativity but nothing in this scale.
The GP has been called and I am waiting for a report.

I can't help but think there is some sort of connection with the 'mild seizures' she had durjng the longest hospital stay. The brain scan came back clear but all I can say is that she has been 'changed' since then.
She's like a truculent, obstructive toddler; won't cooperate and confused. She also had a varying hold on reality. Her eyesight has also rapidly deteriorated

I visited the NH this morning and through her window accused me of abandoning her, that she's been weeks (it's actually 2 days), that everyone is unkind and that 'something scratched her arms in the night'
This is all so extreme even for her.

When the nurse spoke to her about the cuts DM
just brushed it off and said her arms were itchy.
However, when I was cleaning her house the other day I found several scraps of paper with notes about how bad her life was, how much pain she was in and even reference to overdose.

Not sure what I'm asking if what I can even do but is it possible that the seizures brought on brain injury causing this behaviour?
Could it be some sort of rapid onset dementia?
Or is it just the culmination of being unwell and tumultuous few months?

Just don't know what to think or do. Am also anxious she will put her place at the NH in jeopardy.

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Supersimkin2 · 01/07/2020 14:09

Congrats @DorsetCamping Flowers.

Katyy · 01/07/2020 12:37

So so pleased for you and your mum hope she’s very happy there. Can’t help wishing it was my mum we’re just starting on this road, more and more calls for help, just had a call to say she feels dizzy and can I go and take her bp, yesterday could I go because her toaster had broken the day before she had a lot of Pain in her hip. She’s been assessed by adult services we’re waiting for a call to see if she can have carers. I honestly feel like running away, I suffer from anxiety so I’m not much good anyway in these situations, which in turn makes me feel very guilty. But I’ll have to live with that. Good luck to you all.

DomDoesWotHeWants · 01/07/2020 12:35

Good news for you both.

MereDintofPandiculation · 01/07/2020 12:31

Well done Dorset!

Yes, longhaul is right about capacity. Nursing home is still accepting DF has capacity over whether to take painkillers, The government guidance is very clear that capacity isn't all-or-nothing, it has to be assessed on a decision by decision basis, from "where do you want to live?" to "would you like a cup of tea?"

Inforthelonghaul · 01/07/2020 10:00

Thank goodness @DorsetCamping we had a similar thing with my mum a few years ago. She was discharged home and we’d actually told the discharge team it would fail and she’d be back in 24 hrs and she was, this time with another broken hip!

I would just say though that the capacity thing is tricky. My DM doesn’t have capacity to decide where she lives but is deemed to have capacity to decide if she wants to accept personal care. Effectively this means that she rarely washes but that’s her choice and the care home cannot force her. Just because she has limited capacity for some decisions doesn’t mean total control should be removed and it’s very hard sometimes to remember that.

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