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Elderly parents

DM about to dangerously discharge

262 replies

DorsetCamping · 14/06/2020 15:18

Apologies for the continuing saga but am at wits end.

To be brief DM (74) has been in hospital 3 times over the last month due to various conditions and the last admission being for 10 days and near deaths door. All pointing to her continuing decline and inability to cope independently.

She reluctantly agreed to go to a rehab unit last week and seemed to be making reasonable progress, no doubt due to be constantly monitored and with the 24/7 care.
Tentative Plans were being discussed for her to go home with an enhanced daily care package.

However, yesterday she had a fall, whereby her walking frame tipped and she banged her head. Thankfully she is ok but naturally it raised deeper concerns about her safety and needs when she goes home.

Onto this morning, she said she is self-discharging and that if I don't go and get her tomorrow she will call a taxi Hmm. Said that there is no way she is staying, hates it and is exhausted.
I have spoken to The nursing staff who are adamant that it is not safe for her to go home, especially with yesterday's fall and that her care package needs a new review. More worryingly is that no carers will even be available in the immediate future given COVID and calls on resource.
They have told DM all of this but she it's falling on deaf ears.

I am so cross her with, it's like dealing with a toddler. She has no clue about the worry this is causing or the implications with lockdown. All she keeps saying to the staff is that either I, or her elderly neighbours will help if need be.
I mean, WTF?!
They did ask me about her mental health as she seemed so low today but ultimately it is her decision.

I am so exhausted with her. All she is being asked to do it sit and recover - you'd think she was in a prison cell the way she goes on. I can pretty much guarantee that if she goes home tomorrow she will just end up in hospital again and we'll be back in the same merry go round.

OP posts:
loutypips · 28/07/2020 16:43

Just read back over the whole post and this stood out:
I can't help but think there is some sort of connection with the 'mild seizures' she had durjng the longest hospital stay. The brain scan came back clear but all I can say is that she has been 'changed' since then.
She's like a truculent, obstructive toddler; won't cooperate and confused. She also had a varying hold on reality. Her eyesight has also rapidly deteriorated

This is exactly the same as my Nan. She had a massive stroke and within a fortnight she was like this. She was also suicidal and self-harming. Lost sight in one eye and was hallucinating and accusing people of raping her. She lost all inhibitions and became very self centred.
It was vascular dementia and it is very rapid. The change in her personality was so fast and so shocking.
She had a few TIA and started having seizures too.
The hospital reckoned she was fine and it was a fight to get them to listen to us. Fortunately, SS were brilliant and the SW got her out of there and into a lovely home.

loutypips · 28/07/2020 16:25

My nans carehome applied for DoL in April 2019. It was finally granted in January 2020.

I'd push for the section as then you won't have any costs to pay.

DorsetCamping · 28/07/2020 16:21

Sorry for multiple posts. Seems to me the only difference between S3 and DoL is that aftercare is funded with S3? If that's the case I guess most people would push for S3?

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DorsetCamping · 28/07/2020 16:09

*ward nurse

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DorsetCamping · 28/07/2020 16:08

Had DM's assessment meeting today with her consultant, hospital SW and warns nurse.

All very informative although still early days. Consultant says delirium seems to be the overriding symptom at the moment but could take a long time to diagnose the cause. Nothing is being ruled out.

I gave a potted history of what's been going on but stressed that she has no history of mental illness or confusion and that all this came in very suddenly.

When S2 runs out on 17/8 one of 3 things will happen, going for the lightest touch approach

1 voluntary inpatient
2 DoL
3 S3
Tbh I'm still not totally clear in the difference between DoL and S3 but certainly can't see DM volunteering to stay. Apparently she is very cross at being labelled 'insane' Confused

OP posts:
flygirl767 · 27/07/2020 14:27

@DorsetCamping

Thanks *@flygirl767* I suspect there are differing agendas at play when deciding whether to invoke S3. The aftercare is clearly expensive and I suspect SS might be very mindful of budgets.

As an aside one of the MH nurses rang me earlier saying DM keeps throwing herself out of bed and her wheelchair. Unfortunately the last time she did it she really banged her back on the metal footplate. The nursing home also said she'd been doing this - I just don't get why? She refuses to talk about it when anyone asks. It's so sad Sad
It pains me to write it but I really hope they S3 DM, there is no way she can come back from all this within 3 weeks.

Your poor mum, I really hope they can calm her down and stop her injuring herself. From the sound of it, she won't be going anywhere anytime soon so in which case it will be a S3. The first couple of weeks are using spent observing anyway and there is no way a nursing home could cope with her the way she is now.

Thanks for the good wishes, I will update my post after the meeting. Funnily enough Mum has stopped asking to go home now, not sure she really remembers it as home anyway as when she was there, she wsa always asking to go home (common in dementia patients apparently).

DorsetCamping · 27/07/2020 13:39

Hope all goes well with your DM's discharge meeting @flygirl767

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DorsetCamping · 27/07/2020 13:38

Thanks @flygirl767
I suspect there are differing agendas at play when deciding whether to invoke S3. The aftercare is clearly expensive and I suspect SS might be very mindful of budgets.

As an aside one of the MH nurses rang me earlier saying DM keeps throwing herself out of bed and her wheelchair. Unfortunately the last time she did it she really banged her back on the metal footplate. The nursing home also said she'd been doing this - I just don't get why? She refuses to talk about it when anyone asks. It's so sad Sad
It pains me to write it but I really hope they S3 DM, there is no way she can come back from all this within 3 weeks.

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flygirl767 · 27/07/2020 07:59

Hi @DorsetCamping I had no idea about the section 3 implications either until mum was put onto it and I asked on here! I would imagine if she has not been diagnosed within 28 days or needs further treatment in hospital then the will put her on s3. I don't know anything about DOLs and when that is used instead. You re right that is has a huge impact on aftercare though. I got the impression that our SW was not too impressed that mum had been put on a s3 but I could be over thinking it! It does mean as pp has said that all their aftercare is paid for altbeit only up to their local limit which in my mum's case is not a lot. If she does go into a home I would not want her to go to any of the ones the sw suggested.

We didn't get an admissions meeting so it sounds like they are on the ball. I would question what will happen when the s2 is up, I don't think at the moment they will be able to say whethe s3 or DOLs is more likely.

Hope all goes well, we have a ward discharge meeting tomorrow so hopefully will be able to move mum to somewhere more comfortable than the ward.

DorsetCamping · 26/07/2020 22:33

Thank you @Sparticuscaticus that is really useful information.

So I have a virtual 'admission meeting' with DM's consultant and hospital SW on a Tuesday. The unit liaison officer has contacted me to make sure I prep a list of questions to ask just in case anything is clear/covered.
Would this be a good opportunity to raise what happens when S2 expires and whether a S3 would be likely?

From what you say It seems like the decision whether to invoke S3 or go with DOL has a huge impact on the aftercare provided.

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Sparticuscaticus · 26/07/2020 12:51

@DorsetCamping

The house had been put on the market because we realised at that point she would have to self-fund care fees.

Viewings are happening but of course we don't currently have the authority to agree a sale.

If you don't have legal authority & she's too mentally unwell to sign, you can't sell her property.

You'd need deputyship in this case (if no POA)- look up how to apply on HMGov website

Right now she will be under a section 2 of the MHA (first 28 days for assessment), after then they will decide whether to detain her under s3 of MHA (up to 6 months) or a DOLs.
If she gets detained under s3 MHA she would be entitled to s117 aftercare planning and services which are free if related to her mental health needs for which she was sectioned. Ie. If Ward team feel she needs residential care home on discharge, it will be non chargeable (free) as under s117 aftercare arranged by adult services

If she does not go into s3 but instead her s2 lapses and she goes into a DOLs whilst in the ward, her future care remains chargeable (if not CHC level) . You'd need to talk to a hospital social worker anyway as you can see it's slightly complicated and around what lawful basis consent & needs for placement occurs

There are also different arrangements with some hospitals during coronavirus period

BillBaileysBum · 21/07/2020 18:13

Oh goodness, I’m really relieved so I can’t imagine how you’re feeling!
I’m really glad OP, for all of you x

CrotchetyQuaver · 21/07/2020 12:53

i haven't RTFT but are you sure it's not some form of dementia.

i'm pleased for you she's been sectioned at last and hope they come up with some solid diagnosis and care/treatment plan for her.
in my experience and as already mentioned on here, there comes a point when you have to advise them that they're on their own if they won't cooperate with care plans and so forth, telling everyone that you'll sort them out won't be happening. i've been through this a few times now with aunts uncles in laws and my mother and it doesn't get any easier. it's how hard you as the daughter/niece have to push back at social services that amazes me and how SS will lie through their teeth good luck going forward whatever the outcome is.

Rinsefirst · 21/07/2020 12:44

That’s great news. It’s entirely possible that with treatment her capacity may improve and she comes out of section. Sending best wishes

flygirl767 · 21/07/2020 12:41

@DorsetCamping

Quick update and a positive one too! DM has finally been moved to the on-site psychiatric unit. It's a shame it took from sectioning her on Friday until today to actually get her off the ward but there we are, she's gone.

Hopefully now the assessment and treatment she needs can finally start

That's great news, what a relief for you. You know she is safe and in the best hands to treat her. Are you allowed to visit her?
DorsetCamping · 21/07/2020 09:44

Quick update and a positive one too!
DM has finally been moved to the on-site psychiatric unit. It's a shame it took from sectioning her on Friday until today to actually get her off the ward but there we are, she's gone.

Hopefully now the assessment and treatment she needs can finally start

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Rinsefirst · 19/07/2020 01:05

She has to give an address of residence to the courts. The address will be Hospital A , Dorset. She can’t move to Care Home B, while the case is not concluded, she has to remain at address given.
She is therefore in the NHS hands until you get ‘ownership’ and OPG certification through.
This is not necessarily bad news.

DorsetCamping · 18/07/2020 22:26

@Rinsefirst

dorset Take a breath. It’s all happening at once for you. We are in Scotland so it won’t quite be identical but it will work out. Because she is sectioned her care is nhs so you won’t be paying at the moment. As soon as you make an application to the courts her address must remain constant. so she can’t be moved out to a care home funded by you.
Rinse not sure what 'her address needs to be constant' means?
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Rinsefirst · 18/07/2020 21:10

dorset Take a breath. It’s all happening at once for you. We are in Scotland so it won’t quite be identical but it will work out. Because she is sectioned her care is nhs so you won’t be paying at the moment. As soon as you make an application to the courts her address must remain constant. so she can’t be moved out to a care home funded by you.

DorsetCamping · 18/07/2020 19:25

The house had been put on the market because we realised at that point she would have to self-fund care fees.

Viewings are happening but of course we don't currently have the authority to agree a sale.

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TheSparklyPussycat · 18/07/2020 19:03

By the way, in an ideal world everyone should set up POA. There are cases where people have been eg in a coma after an accident, and their spouse has not been able to access funds as no POA set up.

TheSparklyPussycat · 18/07/2020 18:59

As Rinse says, if she is under a section, she should be able to access an Independent Mental Health Advocate.

HappyHammy · 18/07/2020 16:08

Is there anything urgent that needs doing with her finances ir the house that you might need help with.

DorsetCamping · 18/07/2020 14:29

I was going to start the application for Deputy but sounds like I should hang fire until a SW/advocacy worker is assigned. Need to be sure I am applying for the right stewardship given that the MCA has been invoked.

So frustrating, wish we'd been more proactive about getting LPOA in place whilst she was capable of making decisions.

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Rinsefirst · 18/07/2020 14:04

My DM got an advocacy officer assigned to her as well as a social worker.
We applied via a solicitor to get legal aid for the guardianship application.
Whole process took 5 months.
Our situation was complicated by my DF dying while she was six weeks into section.

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