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Elderly parents

If they keep refusing carers...

32 replies

Orangeblossom78 · 28/02/2020 08:41

in the future will SS say no to more care? Or am I overthinking this.

Context: elderly dad, refused carers in past to make meals and check meds, now talking of refusing it again (new referral)

Will they then say in future if he gets worse, well he has refused it twice now? Or does it not work like that.

I mean this time they have granted it again after he refused in the past, guess each time os a new referral. Frustrating situation.

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Orangeblossom78 · 01/03/2020 14:07

In this case it was broken glass- some frames left lying around which caused the injury, housing warden says it is become a 'health and safety issue' and it was also mentioned in the social services referral from the hospital. Of course part from injury and fire risk it is also the concern as it is council run and they need to keep it 'to a reasonable standard' he may lose his home. But I suppose he would be given notice for that. the glass is clear now.

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MereDintofPandiculation · 01/03/2020 11:39

If he’s always hoarded then it’s not necessarily a capacity issue. The nature of it may change with diminishing capacity - My dad has always done what might be considered as hoarding - saving anything that "might come in useful" - a rational behaviour pattern for someone who grew up during the Depression and WWII. And he's always been distressed about (anyone) losing "information" - he doesn't buy my argument that if you can't find it when you need it there's no value in the information. As he's got older he's got more determined and less rational about what he keeps and less able to keep it tidy and in order.

CherryPavlova · 29/02/2020 18:33

I think it’s incredibly difficult to strike the right balance. No harm at all in thinking about the level of decisions you can help him make and when you might need to agree to disagree.
If he’s always hoarded then it’s not necessarily a capacity issue. Sometimes it is best to accept others need to be involved in providing support. You just need to try and keep open communication and provide the support for him to make his decisions in the undoubtedly kindly way you have been doing.

Orangeblossom78 · 29/02/2020 14:09

Yes it is. because in this case, he does have some long standing mental health issues. he told me he was sectioned and given ECT in the 1960s.

Not sure how true that is but he has always had some issues - very disorganised, a hoarder, and now being investigated for deafness and mini mental state exam as well as having a heart condition and on a warfarin type blood thinner.

This meant when he recently cut himself deeply on glass due to hoarding, it was more severe due to the warfarin etc. It is a complex situation. he needed several stitches, also has dizzy spells with his meds but forgets these and insets he is fine.

It makes it very hard to weed out the different problems and overall judge needs etc, the local council seems quite good in supporting with care though (in Scotland) I guess most of it is in their hands

His housing warden thinks he needs us to be 'his voice' she is a former psych nurse and know him well. I know that standing back might mean another call from hospital as he may have injured himself again.

Mind you neighbour and in laws are also having medical emergencies and falls etc so got it all going on here, there are limits as to what can be done at times.

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NataliaOsipova · 29/02/2020 09:41

Maybe I just need to stand back a bit and let him see the consequences of his decisions.

Harsh as it seems, you do. Because he can - rightly - make his own decisions. But you don’t have to help him to make bad ones, or facilitate those poor decisions. Step back and let him see for himself why his decisions need to be different.

It’s tough. My mother is on this road and it’s gruesome. I sympathise with you...

MereDintofPandiculation · 29/02/2020 09:39

The LPA is basically the representative The LPA is a Lasting Power of Attorney whose physical form is a document. The attorney is the representative.

MereDintofPandiculation · 29/02/2020 09:37

It is only effective at a point when someone loses capacity around the decision being made. Not quite. An LPA for financial affairs can, if the person wishes, be set up so that it can take effect even when the person still has capacity. An LPA for Health and Welfare can, however, only be used when the person has lost capacity for the decision in question.

Orangeblossom78 · 28/02/2020 21:33

It was actually my brother started on about getting power of attorney and his wife. Took dad to the solicitors etc. Asked me to join, I said no.

They also didn't like it when the hospital sent him home last time, wanted them to keep him on for further assessment etc. I thought the hospital was right he was fit to go home.

It is tricky between siblings, dealing with this stuff. I kind of had the feeling they were 'taking over' things a bit and it made me want to step back.

Maybe that was the right decision.

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Orangeblossom78 · 28/02/2020 21:18

Ok I agree he should have the right to do what he wants.

It was a social services assessment from the hospital last admission resulted in this decision to have two free care visits a day and to check he has taken his meds.

It's nothing I've imposed on him or suggested, I won't mention about the care home etc.

i'm staying out of the P o A anyway. In fact going to step back quite a bit for my own mental health.

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CherryPavlova · 28/02/2020 20:33

Yes I guess the words seem a bit harsh but then so does depriving someone of their freedom to make choices.

I just want you to be aware how serious any breaches of the Mental Capacity Act are. Whilst I’m sure the intention is kind, a gilded or cotton wool cage is still a cage - Justice Hales words not mine. Control over our lives is a fundamental right.

You cannot detain someone except under the Mental Health Act or via an approved DoLS. It’s important to know that an LPA doesn’t give you that authority. However much the urge is to protect.Removing someone’s rights is abuse unless done through proper route. Using threats ‘You’ll be put in a care home if you don’t do what we want/we think you need’ is a threat.

It’s hugely difficult and you do need to help him understand the risks and options but it has to remain his decision. That’s hard to watch and entirely understandable that offspring want to protect but he’s still allowed to do unwise things. Even if there are consequences he hasn’t foreseen.

Orangeblossom78 · 28/02/2020 20:00

So it's not just about 'doing it my way', it is about being safe and looking after things so he can keep his home / independence as long as possible, which means his engaging with the SS / housing place

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Orangeblossom78 · 28/02/2020 19:58

Cherry I find your words a bit harsh. the situation is the housing warden is being supportive as much as she can be but has written a letter saying she hopes with support he can stay in his home independently and in the community where he knows people.

it was clear is he doesn't start to engage he could lose his home or be moved somewhere else and the only other option is more supported care. / home

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Orangeblossom78 · 28/02/2020 19:50

sheltered

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Orangeblossom78 · 28/02/2020 19:50

OK, well it is not really me who is in charge of the housing situation, he is in shattered housing and he needs to keep in in reasonable care or he can't keep it, and he isn't. His housing warden is in charge there. So he could be homeless then if he continues to make that hoarding decision.

I won;t mention a care home then, even if it opens his eyes to the future regarding housing options as / she he declines, his health is not very good. Maybe I just need to stand back a bit and let him see the consequences of his decisions.

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CherryPavlova · 28/02/2020 16:45

It’s an absolute minefield.The LPA is basically the representative who acts on behalf of the person where they have given consent whilst they have capacity. If a capacity assessment shows they are unable to consent they cannot agree to an LPA. You’d need to apply for deputyship.

The assumption is he has capacity unless proven otherwise.The law requires minimal control over the person’s decisions and gives them as much decision making power as possible.

An LPA can’t force him to accept things that deprive him of his liberty. He cannot be forced to take medication against his will, for example. Covert administration requires a DOLS if he is not co-operating. An LPA can consent to surgery or (if financial LPA) set up direct debits for the electricity bill or buy an oil filled radiator.

He’d need a Deprivation of liberty Safeguard assessment completed by the local authority if the idea is to stop unwise decisions. That is not the purpose of the LPA. He can go ice skating if he understands the risks.
He is absolutely entitled to eat or refuse to eat what he wants. That can be a diet of liquorice allsorts and pork pies, if that is his preference. An LPA can’t override that - very few courts would overrule his right to choose what he eats regardless of capacity.
Moving someone into a care home against their will is unlikely to be successful. If he reaches a point where he cannot understands or be involved in the decision then he’s unlikely to put up a fight.

Blackmailing him to accept the care you want him to have isn’t particularly kind - even if done with kindly intent. Threatening a care home is just nasty. If he has capacity to agree a LPA he can remove it very easily. It cannot be used until he loses capacity. So no, you cannot force care upon him. You cannot force him to do it your way, however well intentioned. If he can agree an LPA he can make his own decisions. Using an LPA inappropriately to make decisions on his behalf but without his permission whilst he retains capacity is abusive and a criminal matter.

Orangeblossom78 · 28/02/2020 14:57

Ok the P o A is being done, the initial part has been done just the final part to go I understand, the interview has been done a few weeks ago. Maybe I will mention to him the care home in case the sees they might do that unless he takes the care

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HappyHammy · 28/02/2020 12:43

If he doesn't have capacity he cannot grant POA, it will have to be a best interest decision made by everyone. If POA has already been granted and he lacks capacity then yes carers can try and go in but they need to weigh up the risks to him and themselves and will have to hold a meeting with all the people involved. If he gets to that stage when he lacks capacity and refuses care then would he be safer in a carehome where he can be looked after.

Orangeblossom78 · 28/02/2020 11:56

So...if he refuses the carers but has given P o A and considered to not have capacity then the carers will still come despite of him saying no? What happens then

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Orangeblossom78 · 28/02/2020 11:54

So in this case it might be the person doesn't understand the need for care, for example have memory problems and forget meds but think they are Ok for example. It is a difficult thing. Because there is also a thing I saw about being able to make 'unwise' decisions also. It's not simple is it.

I mean my dad's decisions to eat ready foods and hoard stuff might be unwise and a health and safety risk, but does he not have the right to make 'unwise' decisions as well.

As an aside, as well as not taking on P o A for another reason, it is partly as dad does make what some may consider 'unwise' decisions.

I guess he is going to have memory tests soon and based on that and mental state we'll see. I don't want it to get into a situation of refusing then getting into crises and needing 'rescued' again.

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CherryPavlova · 28/02/2020 10:17

You can’t get LPA. It must be given.
It must be registered with OPG to be lawful.
It is only effective at a point when someone loses capacity around the decision being made.
Capacity is decision specific; it’s not a case of having capacity or not it is about having the capacity to make a specific decision. Someone with quite advanced dementia might retain the capacity to decide whether they want crumble with custard or ice cream, but not have the capacity to decide to drive. They might be able to decide whether to wear a coat outside when it’s raining. Someone in a coma does not have the capacity to agree to surgery.

Soontobe60 · 28/02/2020 10:13

I've got my mum loads of M&S meals and put them in her freezer. She can choose what she wants for them the next day and take it out to defrost then just pop in the microwave.

MereDintofPandiculation · 28/02/2020 10:04

Brother is getting power of attorney, unsure about capacity. Can you be put on form too, or is this a responsibility you don't want? It's useful to have two attorneys, in case anything is needed when one is on holiday.

georgialondon · 28/02/2020 09:42

100% his previous refusals will have no impact on future care.

Orangeblossom78 · 28/02/2020 09:42

Brother is getting power of attorney, unsure about capacity.

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Orangeblossom78 · 28/02/2020 09:39

They told me it is as a health professional did the referral it is just done automatically. In Scotland.

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