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Elderly parents

Just not sure what to do anymore

30 replies

HC4U · 30/09/2019 18:36

Hello. My Dad is in a Nhome the past few months. He had early stages of dementia but is now getting worse in terms of mobiliy but he is still recognising us thankfully. Mum is much younger than him and openly noted to us she didn't want to mind him so she did everything she could to get him into a home from his initial diagnosis. Long story.

The nHome is 4 hours away from me and I try everyweek if not twice a week to visit my Dad. My Mum lives 2 minutes away by car from the nhome and I am finding it very difficult to visit her when I go to see my Dad. There is a history there with her behaviour and my tolerance of it. Everytime I visit I am upset leaving and it takes its toll on me and my own family. But this weekend when I visited them both, I just thought I cannot do this much longer where I am constantly scoffed at for visiting Dad making the long journey and "isn't he fine, I am looking out for him" and never ever during the week do I get an update on Dad. She would never phone me or let me know if he was unwell which he had been recently and ended up in hospital. She is perfectly able to go on holidays, meet friends, have everyone have sympathy for her, but she treats her children so differently. I have heard today from staff that she isn't visiting everyday like she has told me and also senior staff have started emailing me with things Dad needs etc. I feel very much on my own as my two siblings don't live in the country and they try to visit once a month but would just tolerate her too and just go through the motions with her. I guess what I am saying is I am just finding the whole thing hard with her more so than my poor Dad. I have also discovered she has lied over two very signifance issues with regard to my Dad and I am finding that very difficult to deal with. My other siblings just want nothing to do with her but I am concerned now that maybe she isn't mentally well as you couldn't make up some of her behaviour. But then I switch to her just being not a nice person and has a major issue with her daughter who is trying to keep a family together and be there for both of them. Just not sure what to do anymore. One part of me is just be there and be kind and do what you have to do. Other side feels like having it really out with her and not being a door mat, but unfortunately the consequences of that I amn't able to deal with. So I guess kindness and tolerance is what is needed. I am so aware life is short having a lot going on in my own immediate family and illness and also having mil and fil who both had alzehmiers and who myself and hubby cared for until the very end. So I also wonder do I feel so bad that Dad went into the home without me being able to care for him in my own home. My Mum just would not let us help and that was such an issue. Also now that she isn't visiting all the time and staff emailing me, if I don't keep visiting Dad I won't know whats needed or going on. Its just the guilt too I feel if I am so close to the nHome and I don't visit her. Thanks for listening....................

OP posts:
exiledfromcornwall · 01/10/2019 12:28

Gosh, weekly visits with an 8-hour round trip each time? Apart from anything else it must be costing a fortune. Getting from A to B in this country is not cheap whichever way you do it. My DM is a similar distance away and there is no way I could manage weekly visits, although she does have family members living locally who visit regularly. I do admire your loyalty to your DF, but this does not seem sustainable to me. As Fortysix pointed out, he is safe and being cared for, so you shouldn't feel guilty about easing off a bit on the visits.

Fortysix · 01/10/2019 12:19
  1. oops sorry, got interrupted. It's the emotional stuff between your DF and your DM which is really difficult to work through and reconcile in your head. Be gentle to yourself. You have an awful lot on your plate. For now the issues between your DF and DM can be parked as you can't do anything to change them.
  2. The feelings and thoughts specifically to your DM obviously have some history. Absolutely put yourself and your immediate family first. Don't rush to meet her needs / wishes or hear her criticisms. Take a huge step back from her if you can with immediate effect.
  3. Try to visit your DF once a fortnight say from November.

You are absolutely doing your best. be good to yourself. This very difficult stage will pass. Hang on in there.

Fortysix · 01/10/2019 11:58

There's only so much anyone can do when things get this stressful Flowers
If you travel twice a week then you are 16 hours away from your immediate family/ work before you factor in actual time spent visiting and on the phone 'sorting' your DF and then your DM's separate issues. In real terms you are trying to add three extra days to to your normal week.
1.Such an additional workload isn't sustainable so step back and see what you can do with just one weekly visit.
2.Your DF is safe and his needs are met. He is being fed, has people to talk to and is not in danger. Honestly, from your post he is safer there than being with your DM.

  1. I know some families visit every day but don't be guilted into thinking that someone must visit your DF daily. Put your mum's issues to the side - her going seven days a week- isn't that great for her mental health either. Take a more relaxed view if you can.
drankthekoolaid · 01/10/2019 08:11

Who is paying for the home? Them or the LA?

Could you move him to a home nearer to you?

Miljah · 30/09/2019 19:30

I couldn't read and run. I can't offer any advice, I'm sorry. I recognise that we were 'lucky' in so many ways, with all 4 parents, none died with dementia, 3 died very quickly (5 days, max), the 4th was well supported at home.

I hope someone will be along with some practical suggestions.

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