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Elderly parents

In cancer denial

33 replies

LindaLa · 09/09/2019 10:45

This is about a very close friends parents (they helped raise me when my mum died).

Both are early 70s, dm has Parkinson's and is slowly getting worse and df had heart attack and bypass surgery a month ago.

Whilst he was in hospital they found cancer. Lungs and bowel.

He is refusing to listen. Keeps saying they need to do more test and I'll keep refusing to let them.

His notes say "advanced cancer - refused treatment."

He won't listen to anyone.

I know I can't smack sense into him but how can I help my friend and her mum?

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LindaLa · 14/09/2019 10:51

@MereDintofPandiculation
No. He will not accept how ill he is of how much help they need.

However, it's all awful now.

He discharged himself.
We had asked for a SW/OT referral before he left but hospital can't enforce this.

Looks like we have to harass them ourselves- again...
They are struggling and I am sorely tempted to take my friend and her mum away for a few days to see if he'd realise he needs help but am also scared of returning to a dead body.

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MereDintofPandiculation · 14/09/2019 10:27

He keeps telling everyone ... he needs to get home as he is a carer for his wife! Can you work on this at all, and persuade him his wife is being well looked after? I suspect not, from your later posts.

YesQueen · 09/09/2019 20:48

It's really hard. I cared for people who didn't want me to do anything and were really really stubborn over it. If you can get a decent carer in the door then often they can get somewhere once they're trusted
I used to get around it a bit by saying well I have to stay here for 20 mins, can I have a brew? You having one? And then make a cup of tea and I've made a mess, best wipe the sides and wash up anyway
What you having for tea tonight? Oh I'll just get it out ready and put the oven on. I basically used to do things so fast they didn't have chance to argue and I'm as stubborn as they come so it worked out well Grin
I think I spent 10 weeks trying to persuade someone to shower because she was terrified of falling or being seen undressed. I had a flannel over my eyes at one point Grin

It's incredibly hard especially when they're stubborn and independent!

saraclara · 09/09/2019 20:35

Drs are willing to give him painkillers but he won't take them, he says he doesn't trust them to knock him out and do tests anyway.,,
There is no talking to him

That really is extreme self-sabotage. I think you're wise to concentrate on his wife and on damage limitation.
It seems to be a man thing when this stuff happens. And it's tough on everyone.

My dad refused to let the doctors tell him that he had cancer. He allowed them to talk to my mum separately though, and they broke the news to her instead, telling her that they'd given him every chance to ask what was wrong with him, but he'd persistently avoided doing so, and they had to respect that. However, he did allow himself to be treated 'for a prostate problem'. He lived for years longer than expected (it had already spread when he was diagnosed), but even as he lay on his deathbed at home, with visits from Marie Curie and Macmillan nurses, the C word never crossed his lips nor those of any of us family and friends. It was weird.
But his consultant said that his sheer determination not to acknowledge that it was happening might actually have contributed to him doing much better than expected.

LindaLa · 09/09/2019 19:42

@RosaWaiting

Apologies, yes that was a reply to your comment of is he in a position to enjoy time.

Drs are willing to give him painkillers but he won't take them, he says he doesn't trust them to knock him out and do tests anyway.,,
There is no talking to him.

All we can do now is try to protect his wife from being made carer.

Thanks for listening, I'm just ranting really.

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RosaWaiting · 09/09/2019 14:38

OP - do you mean you won't know if he can enjoy more time unless he tries?

he might already know, IYSWIM. What have the doctors said? Have they given any indication of what his max quality of life could be?

LindaLa · 09/09/2019 14:02

@RosaWaiting
We'll never know unless he tries.

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LindaLa · 09/09/2019 13:59

She will and we will be facilitating this but it does have to be after he has gone.

He will not have "help", when dm became unable to cook or clean he took over. They can only use two rooms and ready meals.

He won't even let my friend cook for them or even fill the fridge.

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ajandjjmum · 09/09/2019 13:36

Would his wife accept carers, and play along that they were for her, whilst he was actually getting the help too?

I know it shouldn't be necessary, but I also know how stubborn older men can sometimes be! If it was done from a 'it will help your wife who you love dearly' point of view (ie. emotional blackmail!), maybe he might accept it?

RosaWaiting · 09/09/2019 13:29

PS OP what does his wife say to social workers? We said bluntly that we couldn’t help dad at home.

RosaWaiting · 09/09/2019 13:27

sara I wasn’t trying to generalise, just saying the choice is individual. Apologies.

As you’ve raised it though, if someone doesn’t want to live the extra time that might be available too, that is their right.

OP if he won’t take painkillers that’s a very hard thing to see. There actually might be an argument that his wife and daughter don’t visit for a while to save their strength a little.

Is he in a position where any time can be “enjoyed” btw?

LindaLa · 09/09/2019 13:23

It's just so hard to accept that he is not looking at the bigger picture.

My friend and I are now just going to shift our focus onto dm.

She is the one who'll need the support and help, she knows and is being very practical about it.

It's sad that instead of being able to enjoy the time they have left, he is angry due to the pain as he won't take any meds.
Part of me wants to whisk my friend and her dm away so he can see the reality of what he is doing but none of us would leave him.

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Mrswalliams1 · 09/09/2019 13:06

It's a very sad situation and a similar situation we were in recently. My FIL was diagnosed with cancer. He didn't want to talk about it, acknowledge it or have anything to do with the hospital. As a result we knew very little info but we had to respect his decision and kept everything as normal as possible until the symptoms became too much for him and he was admitted to hospital. Even when he was there on his death bed he in denial. My advice is although you don't agree, ultimately it's his decision and one that should be respected. Good luck

LindaLa · 09/09/2019 13:02

@saraclara

Both my friend and I sound like broken records every time someone approaches his bed to talk about "moving forward " we say no carers, disabled wife, won't let anyone help etc.

They always act surprised that he hasn't got carers.

He is a very convincing man.

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saraclara · 09/09/2019 12:54

also he is wise to refuse tests
Not necessarily, @RosaWaiting
My husband was diagnosed with cancer of the bowel, lungs and liver. He had all the tests and treatment going, and though cure was never an option, he lived two more years of good quality life.

I'm sorry your dad was in so much discomfort (my husband fortunately wasn't) but I think it's important not to generalise about what someone with a cancer diagnosis should or shouldn't do.

saraclara · 09/09/2019 12:50

There are lots of helplines for people with cancer and their families. I would call one of those as the first step. This won't be an unusual situation for them. They might be able to help.

saraclara · 09/09/2019 12:48

But yes, refusing treatment is fine. But not accepting help, isn't.
Surely the fact that his wife has Parkinsons is something that his lies can't hide?
I would have thought that would flag up care needs straight off.

saraclara · 09/09/2019 12:46

he is also a cancer patient refusing treatment and taking up a bed for someone who'd love the opportunity of treatment

That's not true. Be annoyed with him for rational reasons, but don't go looking for extra things to blame him for. No-one will not get cancer treatment because he has a bed for a few days.

Weenurse · 09/09/2019 12:42

He needs to be told he must do everything for himself if he is refusing help.
I have had family move into the hospital to see if it is possible.
No nursing help if this has been refused at home.
It is often then that the patient realises that they cannot do everything.

LindaLa · 09/09/2019 12:41

@ShippingNews

She has.

He keeps telling everyone that there are many people to help (there isn't) and he needs to get home as he is a carer for his wife!
He keep being told to stop saying that but he just says he'll say what he needs to to get home.

I can see both sides.
He is a cancer patient that needs care yet he is also a cancer patient refusing treatment and taking up a bed for someone who'd love the opportunity of treatment.

It's horrendous

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ShippingNews · 09/09/2019 12:35

Your friend needs to go to the hospital and ask for a meeting with the charge nurse of his ward. She needs to tell them very bluntly " Nobody at home can care for him ". Your friend needs to be assertive about this, otherwise the staff will think that he has people at home who can do the caring.

LindaLa · 09/09/2019 12:32

@CassianAndor

Thank you. I completely agree that he is being selfish and I want to tell him that, yet also don't want to upset a dying man

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LindaLa · 09/09/2019 12:30

My friend and I (I'm a next of kin) spoke to his named nurse and said they'd refer him to O.T
We've constantly told Drs, nurses, pals etc that he cannot go home without a care plan but because he refuses they say "nothing we can do"

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ChicCroissant · 09/09/2019 11:54

If he is in hospital, he will be assessed before he is discharged - so his family could speak to a hospital social worker while he is in,.

RosaWaiting · 09/09/2019 11:15

ah, refusing care and expecting his wife to do it is completely wrong.

that is an area where you might be able to help. I had a friend whose mum expected her to do all her care - the shock of a stranger going in and saying "your daughter will break under the strain" did actually work and she got a carer.

I wouldn't focus on the cancer, I would focus on the fact that there are tasks that need doing and someone needs to help.

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