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Elderly parents

The Cockroach Cafe (the successor to the Shiny Thread)

964 replies

MereDintofPandiculation · 22/08/2019 22:25

A space for us all to get together for relief from caring, share news, frustrations, problems, or just have a rant. Everyone and everything welcome (though if you have a big problem needing advice, you may want to start a new thread so as to be heard above the noise of the clanking gin bottles and general chatter)

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thesandwich · 03/12/2019 07:48

Thanks for that dint really helpful.
jace I am so sorry you have all this to deal with. Is there somewhere you could escape? Even the much maligned spa day? Or take yourself out to a nice hotel? 🌺🌺🌺

MereDintofPandiculation · 03/12/2019 07:29

sandwich final trigger for home ... DF had an unexplained crash - went over the course of a couple of days from being able to take himself out by bus for appointments and shopping, to being unable to bear his own weight, enormously swollen legs, delusions. Hospital got most of his physical health back, and some of his mental health (no delusions, but more confused than previously) and he returned home with a stairlift and a care package + meals on wheels. But wasn't coping, falls every few weeks (and bashing his head on the way down), eating biscuits instead of making sandwiches, not going to bed but dozing in chair downstairs. This was a decline over 3 months.

Then after another fall, district nurse declared he wasn't safe on his own (and I declined the opportunity to sleep on the living room floor to be with him) so she asked him whether he thought it might be time to move to a home and he confounded us all by saying "I think it's well overdue". So - emergency admission 4 hours later to the only place with a vacancy.

Positives: he is healthier - he'd lost 2 stone over the last 3 months, he has put that back on again. Legs no longer swollen. Long standing bedsores cleared up (they turn him in the night, and badger him to stand up and move around in the day). And I get glimpses of the old father, and visits when we just chat (instead of just a long list of the things he wants doing to the house ... like fastening the wardrobe to the wall so he can use the doorknob to pull himself out of bed).

Home isn't what I would have chosen - no grounds, just a small patio, small rooms, and mainly dementia patients. But it's small enough that the staff all know DF, and indeed me, and many of them seem genuinely to like DF. Manager is very much in evidence. And they cater to DF's dietary fads, making special meals if he doesn't like what's on offer. He's clearly on the way out (he's nearly 100 so not surprising) but he seems happy there, so I'm not planning to move him.

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MereDintofPandiculation · 03/12/2019 07:09

Jace Flowers

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MereDintofPandiculation · 03/12/2019 07:09

and after an hour's moaning she would always think of 'oh just another thing' Yes, Dad does that too. I'm stood there in my coat, perspiring in the nursing home heat. and I can't stand comfortably for more than a few minutes, so I end up having to sit down and take my coat off again ... I've learnt to say "I need to be going" 30mins before the time I intend to go.

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JaceLancs · 02/12/2019 23:56

Back again!
Arrived at work late this morning (not sleeping well and have a lot of time owed to me) to find message on office line from DPs mother that his father died on Saturday
I can only imagine that she rang me at work knowing I wouldn’t be there so that she didn’t have to speak to me
Rang DP to let him know - could tell he needed tlc so suggested he came over and I took a very long lunch
I let him talk but it’s hard and making me feel even rawer
Now playing catch up at work
Back to being liaison person (left voicemail for DP DM)
Eventually went home and started drinking
Can’t get my head back in diet mode
DD was supposed to be coming over tonight but bailed on me
I just feel lost, alone and want to cancel not just Xmas but life for now
If I could find a suitable place to run to where no one would find me I’d be very tempted
Meanwhile in non dream world - I’m on a work training course tomorrow, am seeing DM day after and need to sort out her finances

thesandwich · 02/12/2019 16:49

Thank you yolo I have wine and avhotel chocolate advent calendar😆😆

yolofish · 02/12/2019 16:45

oh sandwich sorry your day out went tits up, esp when you'd been looking forward to it so much Flowers Wine etc.

In one way we were lucky: mum went into hospital on June 5 and then never really had much of an option to live at home again, apart from a few (completely disastrous) days at a time. She would have refused forever.

thesandwich · 02/12/2019 16:36

Good luck for your meetings and appointment yolo
Well..... just going out the door for day out when carer rant- dm delirious. Paramedics called. Day out cancelled. Worked out side effect of new meds- so all calmed down.
dint what was the final trigger for your df going into a home? I am wondering..... but do not know if I am strong enough for that battle....

yolofish · 02/12/2019 15:41

yes lello I think it is going to take a while, I'm sorry you're feeling the same. before is like another world.

Lellochip · 02/12/2019 13:44

I'm over 18 months on and I still can't really remember much of my mum from before

yolofish · 02/12/2019 09:13

dint not always very successful, and after an hour's moaning she would always think of 'oh just another thing' so it could take a while to get out of the door! I feel bad saying that and thinking of her like that because before she got so old and frail she was really sparky, funny etc. Still not really getting back to the pleasant memories from before.

MereDintofPandiculation · 02/12/2019 09:05

yolo How successful were you keeping it at an hour max? I could never get away in under 2 hours, still haven't managed to make it less than 1.5 hours with him in the home. He's TT, so no chance of wine!

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yolofish · 02/12/2019 08:23

well remembered sandwich. Our hospital was in the Sunday Times yesterday (young woman died because they didnt attempt resus, family deny order being in place) so I think they will be twitchy.

thesandwich · 01/12/2019 21:53

Interesting....... spend a good 4 hours there both today and yesterday, plus shopping etc.
Escape day with a friend tomorrow, then back to several hours per day.
Dm currently has v limited mobility, so hoping things will improve. She did appreciate my efforts.
I must focus on managing through this crisis and getting more in place for steady state( I hope)
cockroach all- is it your meeting and appt this week yolo?

yolofish · 01/12/2019 16:36

With mum 'round the corner' (less than a minute's walk) I prob visited at least 5 days out of 7 of not 7 out of 7, but tried to keep it for an hour at a time max, and always timed it so I could have a glass of wine at hers... it was still very very tedious, and got worse as time went on. When she was in good form it was great; as the depression and fragility set in it got worse and worse. I hated that it became an obligation rather than a desire to see my mum, who became less of my mum as time went on.

MereDintofPandiculation · 01/12/2019 13:35

in normal times it’s three times a week for at least2 hours a time........plus all the jobs/ shopping in between.......... That's slightly more than me. I making sure he's being seen every 3 days, mostly by me - managed to more or less keep it at that when he was home, in the last few months with the help of a care package. But even now he's in a home, there's a surprising number of jobs to do - small shopping like batteries for his torch, making sure he has paper and pens, checking medication ordering is going OK, cleaning his electric shaver, keeping my records up to date (invaluable when arguing care related things), keeping an eye on his house - we haven't yet dared that difficult conversation. Sourcing a ramp so he can get into our house, booking a wheelchair for Christmas Day. I know others have it far worse.

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AutumnRose1 · 30/11/2019 18:37

sandwich “ she seems better after a bit of peace.....”

That’s interesting

If you don’t mind me asking, you’re doing the jobs on top of the time there so are you mostly keeping her company in your other time?

thesandwich · 30/11/2019 17:45

dint I do get the control thing.... I would hate it and try and let her have as much control as poss but when it is a case of calling out the doc after carer concerns I will overrule if I agree.
rose thanks...... their puppy eyes didn’t work and to be fair she seems better after a bit of peace.....
I am currently there at least a couple of hours a day.... but have some day escapes planned next week carers permitting..... in normal times it’s three times a week for at least2 hours a time........plus all the jobs/ shopping in between........... I don’t know how you working folk manage at all. 🌺🌺🍷🍷

AutumnRose1 · 30/11/2019 10:58

sandwich can’t they play the “but I want to see you” card? And put puppy eyes on? Grin

Retired AND round the corner, how often are you there?

MereDintofPandiculation · 30/11/2019 09:47

my only hope is that I have enough awareness of being on that path to exit stage left while I can. Yes, but that in itself is scary. What happens if you muff your exit?

and she loathes the fact that I have control. And so would I. Bad enough if it were my dearly beloved DH, but my sons ...?

And yes the gender thing- son visits are guests, ceremonial. No siblings, so I don't get that. But I know that DH and DSs don't get told about all the problems I get told about, nor is there any suggestion they might want to help with toileting. They don't get hugs either, just manly handshakes.

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thesandwich · 30/11/2019 08:28

Thanks for the support, folks- I am retired and around the corner, dbs both work and are 90 mins away, but offered to visit this weekend as she cannot walk.
It would have cheered her up and made things a bit easier for me- but she declined, sharing the load a bit
I am so much more fortunate than you nota and others that there are less demands on me but I didn’t envisage this when I slogged at my career, leaving dd and travelling a lot, to be consumed by caring when I gave up work.
And yes the gender thing- son visits are guests, ceremonial. Even the phone calls are different.
Rant over and 🌺🌺☕️☕️ To all.

notaflyingmonkey · 30/11/2019 08:15

Sandwich does your DB 'work' by any chance? Mine does, which is why DM doesn't want him to have to visit, and would prefer me to do it instead - I work full time, commute, have kids, etc, but apparently that doesn't count over gender.

AutumnRose1 · 29/11/2019 23:05

sandwich she cancelled your DB visits?!

I don’t see a control thing with my mum. I’m not round the corner, I’m about 90 mins, 2 hours depending on trains. I think her wanting me socialise more is partly that she’s very influenced by the age we live in, and perhaps has a view “if I’d been single and childfree at your age, I’d have done xyz”.

She has two neighbours with keys which is good. They also help her with bins etc.

yolofish · 29/11/2019 18:53

Mum would argue with the paramedics about whether or not she needed to go to hospital, saying "my daughter just wants rid of me" and they were always angelically amazing and would say things like "if you were my mum I'd want you to go". Paramedics are such superb people.

nota sounds like you are in the trenches, its Friday, here's a Wine

thesandwich · 29/11/2019 18:14

Another daughter round the corner!
Dm furious with me as called out doc after carer contacted me concerned ..... cancelled dB visits but expects me there every day at the mo....
and she loathes the fact that I have control.....

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