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Elderly parents

Feeling overwhelmed

34 replies

Lou898 · 24/06/2019 23:14

Just need some advice....my father passed away in January and my mother (81) is not coping well with the loss. I work full time and I have dealt with all the affairs of my dad, financial as well as a lot of the funeral arrangements. I have 2 children to look after although they are older youngest 15. Mum is not well, in quite a lot of pain daily and not sleeping. Mum says she’s lonely but not for other people just for my dad. I go over every Saturday, staying most of the day, do some cleaning, sort letters and post and hospital appointments etc. She was driving but 2 weeks ago I went out with her and felt she was no longer fit to drive, she resisted but then had a little incident (nearly went into a wall) and has now accepted she shouldn’t drive but now feels she has lost her little bit of independence, worries how she’ll get to appointments etc. I haven’t said anything to her but I’m struggling ( currently crying whilst writing this) I’m trying to stay strong for her but I miss my dad too and feel I haven’t had chance to grieve properly myself. I want to be there for my mum but finding it really hard. She natters about little things which I know aren’t helped by lack of sleep and I also think that’s why she finds coping difficult both with life and the pain.
Mum had an exploratory operation planned for today which was to investigate the pain she was in. All transport arrangements made, arrived at 7am at hospital and was sent home as they think she “may”have a UTI and possible swelling of kidney so don’t want to do investigation. We’ve waited months for this and her hopes were pinned on this to try and get to the bottom of it. Pain she’s in is made worse by stress so this hasn’t helped.
She has always been absolutely adamant she will not go in a home (altho she understands I couldn’t look after her at my house) and I don’t think she’s at that stage yet. However tonight she’s said she is finding things hard and wants some respite care...for someone to look after her full time for a short period. My question is where do I start to find something like this.. I’m exhausted with it all.
Sorry for the long post.

OP posts:
testingtesting111 · 26/06/2019 23:27

Hi op, so sorry you're going through this. It is so very difficult. I'm loosely in a sort of similar situation in that my father in law died very suddenly last year. He looked after my mother in law - she had a stroke years ago that made her a little unpredictable...

My in-laws had modest savings so we currently have a live in carer. It is eye watering my expensive and rivals a nursing homes fees.

Sounds like your mum is doing pretty well and can be left to her own devices on the whole. If so perhaps consider a home help type of thing. You'll be looking at £20-40per hour, but it will help the pressure. If your mum has more than £23k savings I wouldn't bother contacting social services as in my experience (I won't go into it here they've been as much use as a chocolate teapot). Alternatively perhaps get a cleaner in or look into a companion?

Silver line is a great but often overlooked charity for lonely elderly people.

Above all don't forget yourself. Best wishes

Beamur · 26/06/2019 23:22

Don't have time to post much now, but am dealing with similar!
Depending on where you are, Age UK are well worth a look. Some areas offer a reasonably priced home help service. Can help with shopping, cleaning, gardening etc.
Care homes are very expensive and unless you can't live independently may not be the best solution.
Look into sheltered accommodation if Mum is still fairly able.
It's really hard work and overwhelming to suddenly be caring) supporting a parent and trying to grieve for a list one.

Lou898 · 26/06/2019 23:14

Thank you for your reply grace212.
Actually I’ve checked tonight and she’s no longer on Amitriptyline she’s now on Gabapentin which is not used to treat depressed anyway so I got that one wrong.
I know deep down that I should tell mum how I’m feeling but she seems so fragile at the moment I don’t want to upset her. She has mentioned today about getting a gardener and cleaner so maybe that’ll help take the pressure off both of us a bit.
The doctor has phoned and she has an appointment tomorrow and I’ve done her a list of questions as I’m unable to go with her. I said just take it and give it to the doctor. Give permission to call me if they need to.
Mum does go to church...this is where most of her friends originate from. Dad was always a church goer but mum more so in the last 15 years. I’ve encouraged her to keep going, which she was reluctant to at first as it upset her and still does at times cos she associates it with my dad. She’s also now not driving so has to rely on lifts now which she doesn’t really like but doesn’t want to have to get taxis which might not turn up leaving her stressed. It’s all sooooo complicated.
I know things will hopefully get better and I’m feeling a bit better today....clearly ha£ a bit of a melt down day over last couple of days.

It’s helped being able to vent on here and getting responses to 8 thank you all for that x

OP posts:
Grace212 · 26/06/2019 12:12

tbh it sounds like your mum is actually doing quite well in a way, so physically she can do things, but she's been pole-axed by what happened?

the sheer misery and unhappiness of it all is a terrible thing. I actually had to say to mum to try and keep it from me, and get a counsellor if she needed to say it to someone, because I can't hear it, it's too horrendous, and frankly I think it's unfair to take on someone else's pain.

re her meds, is it amitryptaline (sp) that will be at a painkilling dose, it won't be like taking an antidepressant. Certainly I've had times where I've taken that with my regular meds because of a pain problem.

in terms of looking after you, I mostly struggled because what I needed was time alone and I couldn't get it! but eventually, tbh, I lost it a bit with mum and I found that was quite helpful actually because she realised I was about to crack under pressure.

I'm quite impressed your mum went to a coffee morning with strangers. People suggested it to us but neither of us thought it a good idea. What has been helpful has been finding good books and TV for mum - I appreciate that's quite a mission with a fussy person but she's really got some distraction from things she wouldn't even have known were on if I hadn't told her. Seems a bit random, but very true.

Is your mum religious at all? My mum is now reading a lot of stuff about god which seems to help. She's interested in all religions.

Figureof80 · 26/06/2019 01:09

Hallo Lou 898
You are doing really well caring for your kids, working full time and looking after your Mum when you are also grieving for your Dad. Don't be hard on yourself, if you are getting up every day and coping then you're a star. Star

I'm not certain if you have spoken to her GP yet about the referral for depression? I was surprised how involved and helpful the GP was when my Mum died and I was trying to sort out care for my Dad in his own home. Mum was the competent one, Dad had dementia. So I would say have a talk with her GP about how she is not coping well, they and the practice nurses should at least be able to tell you about the forms of respite available in your area. I also found social services very helpful not just in organising care but also in suggesting social activities and clubs for Dad.

I do know how you feel and how overwhelming it all is. Have you got someone you can really talk to and let off steam with? Would your work give you some compassionate leave? Even a week to take a breath, deal with your Mum and do some self care? Failing that you can always rant here. It has helped me on several occasions.Flowers

Lou898 · 26/06/2019 00:20

Yes I can relate to quite a few things you’ve said.
Mum is 81 and unfortunately many of her friends are of a similar age or already caring for partners or relatives so would be difficult to ask them, although some have helped where they can albeit quite limited.
I always thought mum would cope much better than dad if one went first so I think that has been quite a shock as she appears to be crumbling before my eyes. We’ve decided to go out on Saturday for something to eat and to get her eyes tested so I’ll see how that goes. I encouraged her to go with a neighbour to a local coffee morning 2 weeks ago but she said she hated it as they were all old people 🙄😂 and no one spoke to her other than the lady who went with her. I will try to get her to try again and be more forward in speaking to people herself....not something she has previously lacked. I do get her to do things before I get there on a Saturday...like I’ll say put the washing on so it’ll be ready to hang out/put in dryer when I get there and she does. She appears to keep house reasonably tidy, so as I say she’s doing ok. I did think she was a little vacant tonight at times and struggled to think of what she wanted to say but this could be related to medication or UTI (if she has one). The pain meds she is on are actually a form of antidepressants as they are supposed to help with nerve pain so no sure what gp will do about the referral for depression. Think if the pain was relieved and she could get a good nights sleep she would cope better. She says she just feels so tired all the time.
Sorry for the long post....I really appreciate your response. Thank you

OP posts:
Grace212 · 25/06/2019 23:17

You are not a bad mum, you are dealing with so much tough stuff right now. Flowers

I had to call an ambulance once not long after dad died, because mum has a heart condition and she collapsed. Luckily it was Xmas Eve so they came quickly! They spent lots of time with her and it was considered that it was the strain that caused the collapse. That was with me doing all practical stuff - bar cleaning - mum has a cleaner once a week now because dad did most of it.

So, I can imagine that she feels she needs practical daily help, is it care or is it a home help type situation? Can her friends do any kind of rota, that’s how we managed when I wasn’t there.

Re the depression, the ambulance people made an urgent referral to her GP, who wanted to give her an antidepressant but alas, she didn’t agree. I think it’s a norm now to offer them in bereavement cases like this. I’m already on them and my GP upped the dose.

As for you, are you okay with how much you are doing? I do understand about not having time to grieve, I used to stay for days in a row, come back home - about 90 mins away - and cry for ages. Then I’d have to “reset” to go back within a couple of days.

Another friend who lost her dad in a similar set up to mine, told me very bluntly “if you lose the competent parent, it can be worse than losing them both in an accident or something”. Is that your situation? Mum never even paid bills. So there was a lot of stress apart from the bereavement.

I will be a cliche and say it gets better with time, but it also needed very clear boundaries and honesty with me and mum.

So I’m wondering, can your practical tasks on a Saturday be outsourced? Can a kindly friend or neighbor do things like laundry? That will relieve you a bit.

Has she done anything ordinary? The first day mum agreed to go to the tea shop for a bit of a cake, that was a good start.

Lou898 · 25/06/2019 22:59

Thank you so much for your reply...so needed someone to just acknowledge and understand how I’m feeling. Just typing it all last night helped a bit too.
I think too much has happened recently and she just feels she can’t cope but I think she’s doing well all things considered. I went over tonight and she says she just thinks she needs someone to help her for a bit till she gets back on her feet. I was looking through discharge papers and they say Urgent note to gp...investigate re depression. Now I wonder if I’m missing something.
I broke down at work today...only one colleague I think knew and talked to me for a bit which helped. This was triggered by something mum said when I phoned. I’d been over at the weekend with my youngest son and she asked if I’d moved any photos in the bedroom my mum and dad shared (she doesn’t sleep in there anymore) I had been in and had seen a photo on my dad’s pillow and some silk flowers and a little teddy but had thought mum had done it. It now appears my youngest had done it and now I feel bad that I’d not realised how much it had affected him but don’t feel like I can emotionally support him too at the moment. Feeling like a bad mum 😢

OP posts:
Grace212 · 25/06/2019 05:05

firstly, I really hear you. my dad died in October and mum was similar.

in terms of the practicalities, if she can pay for respite care, what does she want - does she want a home or live in? If a home, just ring round your local ones. My experience is that many have no online presence so I had to ask neighbours etc

it sounds like she might be hugely distressed and incorrectly perceiving that she can't cope? Our situation was different because i took redundancy before dad got sick and so was able to spend days a time with mum.

does she want a short term period of someone doing everything for her to help her get back on her feet?

if you are needing the local authority help for that, it will be more complicated, because Adult Social Services will assess her on the basis of needs.

i must try and go back to sleep but will check back later. I get the sense from your post that you are struggling with the utter misery of your mum's pain and that is so hard, I really understand it.