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Elderly parents

Do you help your elderly with the toilet? Should I cross my line, woman up and get on with it?

34 replies

Winterlight · 13/05/2018 19:09

Dad has Alzheimer’s and we’ve just reached the stage where he needs help sorting himself out on the loo. I always swore that this would be my line in the sand, I wasn’t doing it but now there seems no way round it when he is in my care. It’s not squeamishness it’s just the indignity of it for him breaks my heart.

We’re in that limbo stage at the moment, he’s not bad enough to go into care but requires help with most things in the home and can’t be left alone.

Have any of you ever refused to do intimate care duties for your elderlies? Should I just woman up?

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junebirthdaygirl · 09/06/2018 07:20

I thought l wouldn't do it but when my dm needed it it wasn't a problem. After the first time we would chat away and act like nothing was happening. It became part of life. In the begining she kept apologising so it was important to keep it low key. When she died l felt privileged to have done it and it pushed me way beyond my comfort zone.

lovemyboys25 · 09/06/2018 06:59

I did this for my grandad without a blink of a eye but I was a carer before
He was embarrassed but after first few times it was ok

Not sure about my parents I've helped mum before when she was ill actually and that was fine but I think my dad would find it too much and very embarrassing I did his catheter when he had a op but think that pushed it for him. It was a big learning curve!

SnuggyBuggy · 09/06/2018 06:46

What do you think he would have wanted? Everyone is different, my late grandfather was uncomfortable with the idea of his family doing intimate care but ok with carers.

ImogenTubbs · 09/06/2018 06:36

I agree with sleephead1 - if you going to be in sole care then it might just need to be done. I did it for my gran a few times, simply because she needed help and there was no one else around to help.

I'm sorry OP, it's such a heartbreaking situation to be in.

mrsjackrussell · 09/06/2018 06:22

I'm a nurse and used to doing personal care but I wouldn't want to do it for my parents but then again I'm not in your situation. It would be impossible unless your dad was in full time care or had a full time career at home to avoid taking him to the toilet. It's difficult isn't it? I know a friend who has looked after both her mum and dad both with Alzheimer's and she has carries out their personal care. I think once you do it the first time it will break the ice and will be easier thereafter

Candyflip · 09/06/2018 05:56

I wouldn’t want my children to do this. Hopefully it is a long way off, but I just don’t want that at all, so I think my parents would feel the same way about me.

Sleephead1 · 09/06/2018 05:42

first op so sorry to hear about your dad its a terrible disease both my grandparents had it it's shit. I've done it for my grandma , my man did it regularly for both her parents and bathing ECT aswell. I understand p eople saying you wouldn't and get carers but what if they are with you and it happens I mean you can't time when people need to toilet and carers come in at set times. I do understand not wanting to do it but if he had a accident I think that would be worse in terms of mess, clean up , indignity for the person and upset for you. It's a very hard one as obviously no one really wants to do it but I don't know what the alternative is while he's at home, He could wear pads but obviously if it was a poo would still need changed by someone straight away for wees they can hold a few wees so not such a issue. Just wanted to say again how hard it is seeing someone you love with this awful disease. Sending love to you all

ChishandFips33 · 09/06/2018 05:12

I did it. It's not great at the beginning but you 'normalise' it

My relative, when they did move in to care, asked the staff if they could have their bath when I visited so I could do it. I was surprised as I thought they'd prefer a stranger

its an awful situation your mum and dad are in OP. You could ask if he needs help, but he may say no, not realising he actually does.

smurfy2015 · 09/06/2018 05:00

Ive had to do it for my partner when he used to lapse into unconsciousness usually after dtd when i would see the signs I would get the male urinal for him -

as i became ill he ended up having to do it for me before i had carers and thats when you know the relationship has nothing to hide as i couldnt hold myself upright so he sat me upright on edge of bed pulled close into him with pads underneath and held the female urinal into me so i could go, then we did our shuffle where he stood me up and sat me in a chair while he changed the bed as was sodden, his mum and aunt have helped me shower at different times, he has stopped me drowning in the bath 2 inches of water

Ive helped my mum and my aunt (she died when i was 11) and now im the one needing and receiving help i am thankful to the girls mostly who do it, there are a couple who rub me up the wrong way in every way

Caramelapplecake · 21/05/2018 21:21

My parents now have live-in care but before this I would regularly help mom with personal care, including toileting and occasionally have done it for my dad when he was unwell. As you say it's a case of getting stuck in and getting on with it.

I admit I prefer not to have to for dad and I'll always call the carer at home but if we were out and he couldn't cope then I would.

paddypants13 · 14/05/2018 08:06

I work as a carer so the idea doesn't bother me at all.

I second what a previous poster said that it is more undignified to leave someone dirty and at risk of sores and infection than to help clean them.

I do understand it's difficult for you though. I can't explain but helping with personal care makes me feel very protective of my customers. We give them as much dignity as possible though, covering genitals with towel where possible, shutting curtains and doors and leaving the room or turning our backs whilst they are actually on the toilet.

woodhill · 13/05/2018 20:48

I would truly hate to have to do this for my dps

picklemepopcorn · 13/05/2018 20:41

When my dad was very poorly, I needed to help him. It was a bit of a shock because mum said he could manage, but it turned out not to be the case. I helped him with the bottle and needed to change him several times because he got wet. After the first time, it became very much more a very straightforward practicality rather than anything embarrassing.

Winterlight · 13/05/2018 20:30

No they live in a tiny bungalow which is well adapted. Not much in the way of funds either unfortunately.

OP posts:
Winterlight · 13/05/2018 20:26

Thanks Penfold, that’s useful to know, I will get in touch with their surgery to see if they have a nurse in their area.

Yes, all these new steps seem so hard at first but I’m doing things now without thinking which four years ago when I started out I wouldn’t have ever believed I’d be doing.

OP posts:
Charley50 · 13/05/2018 20:21

Have they got room for live-in cArers?

Winterlight · 13/05/2018 20:17

Pottering I think so, or very close to it.

He had such an awful time in hospital, went really downhill and I was expecting him to go into care from there. But the minute that he got the medical all clear they discharged him and he’s perked up a bit at home so now my Mum is soldiering on as if nothing happened.

I think she will only consider it when a crisis forces the issue.

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hildabaker · 13/05/2018 20:17

I did it for my parents and yes it is dreadful at first, emotionally let alone the practical side of it. But it does get easier. And now, as someone upthread said, I am glad I did it.

Penfold007 · 13/05/2018 20:16

Winterlight I agree it isn't about being squeamish, it's the loss of dignity etc. I've been/am going through similar with elderly and frail parents.
I spoke to their doctor about the problem and they were referred to the Continence Nurse. So knowledgeable, helpful and empathetic. Incontinence pads etc are now on prescription and delivered. DF finally had an indwelling catheter fitted and he finds it very helpful.

PotteringAlong · 13/05/2018 20:07

I don’t think you are in a limbo stage. I think you’ve reached the point now Flowers

Murane · 13/05/2018 20:04

I'd do it for my parents if necessary. They've done similar for me over the years. Last year when I was pregnant and huge my mum looked at my sore bottom because I couldn't see past the bump to see if I had piles! I don't find it undignified to receive help from a trusted family member. Imo a stranger doing it is more undignified.

Winterlight · 13/05/2018 19:57

Thank you for all the replies. I do wonder if once we’ve got over the first time it will be okay I don’t suppose I’ll know unless it happens. Care is difficult because he wants to go when he wants to go and then it’s just a case of whoever is around at the time. He wore pads in hospital so maybe it’s a case of using them more often and especially when out.

It’s just such a brutal illness and I think I’m feeling very bruised by it all at the moment and it’s knowing that worse is to come.

Also like most care of elderly stuff you either feel guilty saying no or do it and feel put upon, you can’t win either way😊

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Mum2jenny · 13/05/2018 19:56

I've done this for very drunk friends and relatives, it's no different from caring for a helpless baby. If friends or relatives can't do it for whatever reason, you do it as you like/love them when needs must imo

FinallyHere · 13/05/2018 19:46

My mother occasionally needs a bit of help with toileting these days. She always apologies for needing the help, saying it must be horrible for me. I remind her how often she changed my nappy... and how when they were first abroad, she had to change me on the bed, I (so the family story goes) used to do a back flip and end up on the other side of a big bed. Would let her walk round to 'this' side, then flip back to the other. 😁

we laugh, and smile and sometimes get a little sentimental.

nemno · 13/05/2018 19:45

What actually is the alternative? Is this the point where your mum either never gets a break or he moves to a residential home? Can you help provide finances or can your parents afford paid respite? Would your dad tolerate incontinance products to last between care visits?

We had a short period of time when we had to do this for my parents, pretty soon they needed nearly fulltime carers. I am so sorry that you are in this position, you have my best wishes, it is just so so hard.