Please or to access all these features

Elderly parents

Caring for elderly relatives? Pop in for support, a hand hold, advice, whatever you need.

981 replies

picklemepopcorn · 06/03/2018 12:42

Carrying on from previous thread, IF I can work out how to link...

Come and offload your worries and frustration here, and share your experience and hard won wisdom with the rest of us!

OP posts:
picklemepopcorn · 04/06/2018 15:59

There's a lot of suppressed rage on this thread!

I find I feel less rage when I know I am making my own choices. If I feel obliged to do more than I am able, then the rage hits. If I'm doing what I have decided to do- less rage.

Also, the crap from the past can be put to one side. I find it helps to think 'this isn't about me, and her, and how she was. It's about me and who I am and want to be'. That way the fact she doesn't deserve as much support as I give her, or that she didn't support me when I needed it, or that she really doesn't realise the cost of supporting her now, stops mattering.

It's not about her, it's about you. I don't know if that works for everyone, but it does for me!

OP posts:
UnderTheOakTree · 04/06/2018 15:54

Pickle, you mentioned rage - I really need to learn to do something with mine! I find I just keep rehashing all the crap behaviour from the past from my mum in my head - there's a never ending supply - which just attaches on to whatever batshit stuff she throws at me on a daily basis & I end up trying to block it out with food, & then I feel even worse!
Mindfulness does help but I'm very good at finding every excuse under the sun why I don't deserve to sit for even 10 minutes!

picklemepopcorn · 04/06/2018 14:55

Great strategies! That's what we need, not more guilt but more strategies!

I'm a big believer in very rational boundaries. I work out what I can manage and how I want to spend my time. I then manoeuvre everything in to fit. If I choose to do more (give in to emotional blackmail) that is my choice and my problem. That really helps me deal with my rage towards an unappreciative demanding mother, and the somewhat inadequate support offered by other family members.

That doesn't mean I can do everything I want- housework has slipped (into a bottomless pit), as has social life. I do feel a bit more in control though.

OP posts:
thesandwich · 04/06/2018 13:33

🌺🌺grumple.
Oak...... been there too! SOOO Glad you are enjoying your coffee and scone!!! I realised a while back that trying to combine dual shopping missions with dm always ended in frustration and niggles. Now I do separate trips and consider the coffee/ cake as essential self maintenance and time to clear the head. And then I can devote my dm trips to her😉😉.

UnderTheOakTree · 04/06/2018 13:20

Thankyou for your lovely words, grumple & sandwich. I’m sitting in m&s having a coffee & a cheese scone on the strength of your wise words! But feeling a bit guilty for not inviting my mum to come shopping. I nodded toget concentrate on getting birthday presents for DS & when she comes along, it always ends up about what she needs to buy! Maybe I should do separate trips? Why do we put ourselves through the guilt? (My coffee & scone are delicious though! Wink)

Grumplegranskein · 04/06/2018 12:07

Thank you, you and pickle and all the others helped me so much.

thesandwich · 04/06/2018 11:23

What a lovely wise post grumple.
And oak- you have so much on, not just the practical but also grieving for who your dad was.
Please don’t feel guilty about being worn out and overwhelmed...... you cannot do it all. Keep finding space for you.

Grumplegranskein · 04/06/2018 11:03

When I first came on this thread I was caring for my MiL, my mum and step-father. I was retired and all my children had left home. I found it really hard work and very depressing. Especially as I had a poor relationship with all of them and neither my BiL, his wife, my DH or my Brother did anything.

Then I saw people on here coping with the same thing but with full time work, children going through exams, disabled partners, personal ill health and all sorts of other things. It made me realise how unfair and difficult life can be. Almost without exception they spoke about the guilt of neglecting those around them.

You and they are coping with so much more than one person should be expected to. The exhaustion, never feeling you are doing enough, sadness for the relative and quite often a secret wish that the person could let go of a life that has no pleasure for them.

Through life we are problem solvers. We see what needs doing and find practical help to make the problem go away. With looking after the elderly there are so many limits to what we can do that will actually make a difference. The frustration of day after day dealing with unsolvable problems is perhaps the hardest.

I really hope that just by coming on here you will know that you are not alone. There is lots of help and guidance but what we all would like to do is be another pair of hands for you. Because that is what we really need.

It is important to try and take time for yourself once in a while.💐

UnderTheOakTree · 04/06/2018 09:46

Right, I’m just going to start & see where I end up!
My DF has had Parkinson’s for 18+ years alongside a raft of other health issues. He’s in a wonderful care home where he’s happy & comfortable. Recently he’s gone rapidly downhill in terms of mobility but also cognitive capacity and has now been diagnosed with dementia with Lewy bodies (DLB). This manifests mainly through delusional episodes, which make communication tricky sometimes as it’s hard to access what he’s experiencing.
Whilst I’m not directly caring for him, I am supporting my DM, who is quite a complicated person - our relationship is not straightforward or easy, although often because I bite my tongue and smile through gritted teeth! She lives very nearby and I speak to her every day at least once and see her several times a week but it’s really hard work - she’s very high maintenance & always has been.
My lovely MIL is also showing signs of dementia - we think Alzheimer’s - and so I’m also trying to be supportive to my DH (who is very supportive to me & my parents!) and his mum. I speak to her a few times a week on the phone & she comes to stay for at least a week several times a year.
We’ve got 3 DCs who need our attention too, I’ve been woefully neglecting my business which has all but ground to a halt and I’m finding my way through my latest period of depression with the help of mindfulness, my lovely friends, a bit of running & Prozac!!!
I’m exhausted - I keep thinking that I ought to be able to cope with all of this, it’s none of it really terrible etc etc, but then I think that 2 very dear people in my life are deteriorating rapidly & I just don’t know how to deal with it.
My DF is such a lovely man but you only get glimpses of him now & I just want my Dad back.
I think sometimes I just need a bit of reassurance that it’s ok to find this really hard & upsetting, rather than just trying to battle on with a brave smile?
If you’ve got to the end of this - thankyou for listening! Flowers

thesandwich · 04/06/2018 09:24

Ooops thread vanished....
whatever Glad you got away but it is hard to be greeted like that. Dm can be another thief of joy......
Grumble and oak.... it is a v supportive place for advice, sympathy, to vent, and to say what we can’t in real life. Here when you need us...

Grumplegranskein · 03/06/2018 21:57

@undertheoaktree this is such a friendly place to get help. Under another name I was hear for 8years. The knowledge, support and humour kept me sane. I don’t know if I would have coped without this thread.

When you are ready just put anything you feel like. Sometimes our responsibilities are so overwhelming that we are just inarticulate babblers.

picklemepopcorn · 03/06/2018 21:36

That's disappointing, isn't it, whatever. I'm glad you took some time for you and the teens- you're right, it's really important!

Hullo, Oaktree! We're hear when you want to talk. There is lots of experience on here, both practical and emotional.

OP posts:
UnderTheOakTree · 03/06/2018 20:45

Hello! I’ve not been on Mumsnet for a while (& have namechanged!). I want to write about my parents so I can get some perspective but I’m not quite ready to do it yet - it all feels a bit overwhelming so I’m just saying hello rather than lurking! I’ll go & have a think about where to start...
Wishing everyone a nice evening in the meantime! WineBrew

whatever45 · 03/06/2018 17:09

Decided to take teenage children away camping for a few days last week as I wanted to give them some quality time after being so busy and emotional with all the drama with Mum and Dad over last two months. Saw Mum last Sunday and then messaged her on Wednesday to say we'd gone away for a couple of days. The reply.. 'Lucky you'. That's it. Not 'lovely hope you and grandchildren have a great time. Safe journey..' Nothing. I miss having a parent.

minmooch · 01/06/2018 14:05

Good advice annandale I shall do that as soon as I get back.

annandale · 01/06/2018 10:58

Care not career

annandale · 01/06/2018 10:57

I'm going to be cynical here mooch but once you have come back from holiday I would write a short letter saying that your father is now extremely violent towards you based on his actions on date xx, that SS advise no further contact between you and that you cannot safely be involved in his career, and send it to his GP for insertion into his record. You would not believe how short memories are in the NHS and SS and you don't want anyone assuming you can be part of the picture in the future.

picklemepopcorn · 31/05/2018 16:09

It sounds like you are completely absolved of any responsibility, and quite right too! You can't help him anymore- you've done far more than you had to, and it's right that you take a break now.

He can't value your care anymore, even if he ever did. Get back to the life you had started to rebuild. It's your turn now.

Thanks
OP posts:
Needmoresleep · 31/05/2018 15:04

I hope you have a lovely holiday. Perhaps in some ways it is a good thing this has happened before you go, even though it overshadows the holiday. I hope you come back with a good sense of where you can help and where you cannot, and are also able to grieve.

minmooch · 31/05/2018 14:53

Thanks for all your messages. I am just packing and will be going on holiday.

Crisis Team have said I am the trigger to my fathers reactions and they don't perceive him to be a threat to himself or anyone else. This despite him trying to break down the door to the block of flats on Monday, kicking other flat doors etc. Social Services are reluctant to put careers in due to risks. They are at stalemate as to what should happen.

I am going to go non contact for a while on their advice as I am the trigger. My brother is around but it is impractical for him to offer the care I was giving. I think he will be ok for a few days and then he will crash again and transfer his anger on to others in the not too distant future. It's like waiting for a car crash to happen.

In effect I have lost a father, I will never feel safe again in his presence. He has lost more than just a daughter. He doesn't know me as his daughter any more. I think he sees me as the manifestation of all the anger he has towards my mother ( she left him 7 months before she died, she was ill and went to stay with her sister. They never really reconciled their differences before she died although he was there, visited etc when she was in hospital.)

It's all horrible really and I'm exhausted by it all, and all the horrible things that have happened over the last 6 years - son diagnosed with cancer and then died, mum ill and died from cancer and/or a stroke.

It's messy, I'm tired.

annandale · 30/05/2018 23:21

Oh god mooch. How terrifying. I really hope you get to go on holiday.

whatever45 · 30/05/2018 22:53

Oh Min Mooch, what a day. I'm so sorry, hope you are ok. Not sure what I can say that's much help other than that there are lots of us thinking of you. I agree you should definitely go on holiday x

yolofish · 30/05/2018 19:14

oh mini I am so sorry, that must have been so frightening. yes agree to going away, if only to recharge your batteries - sending love

Needmoresleep · 30/05/2018 18:08

How awful.

Go on holiday! I suspect there may be a more satisfactory resolution if you are not around to pick up the pieces. And a break, with a chance to think, may be what you need.

thesandwich · 30/05/2018 17:28

Virtual hug mini from me too. How awful. And go on holiday.you deserve it.

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is closed and is no longer accepting replies. Click here to start a new thread.