Please or to access all these features

Elderly parents

What should they do? What can I do?

28 replies

EdithSimcox · 16/03/2016 00:18

I'll try to be brief. DM has dementia (not yet diagnosed but very obvious). DDad is fine mentally but starting to lose mobility. They live in a big house in the country. Dad drives and does everything - shopping, cooking, organising. DM loses things, forgets everything, doesn't know where she is half the time (even at home), and has every appearance of anxiety and depression (also undiagnosed) - often distressed, lots of tears etc, and pain from arthritis. Dad is a saint dealing with her moods etc and very patient but not always brilliant at sorting her out (e.g. when they came to visit last week she had no coat, and not enough clothes packed). DM is also paranoid so won't accept help and genuinely thinks everyone is out to get her.

I live in London. They are 3-4 hours away. My DB is abroad. For years they have been talking about moving - downsizing, being nearer me and the DGC. We have been looking at houses on our road. DM is very keen on the idea most of time (but swings around too). Dad just wants a quiet life, and if she wasn't so keen would v happily stay put where they are, or move into sheltered accommodation. He sometimes thinks it's too late to move at all.

The idea of moving now seems absurd. They could never pack up the house, or decide what to keep, or cope with the move. But staying put is impossible long term too I'd have thought as DM will never accept carers until she is too far gone to have a say - by which time Dad will be on his knees.

Obviously I need to step up and do what I can - I've already pencilled in a load of weekends to go and visit etc. But there's a limit to what I can do from this distance other than phone often (so Dad has someone to talk to mostly - he must be so lonely as she can't have a normal conversation anymore).

So, people with experience of this dilemma, how did it work out for you?

OP posts:
Canyouforgiveher · 16/03/2016 01:52

Edith, I kind of meant maybe some support for your dad. Maybe a day center one day a week or a health visitor coming.

My knowledge is in US and Ireland (so hoping bumping this will help to get UK posters involved) but we did get a home help for my mum when she was going a bit poorly through the health service in Ireland.

Also really do involve your brother. If he is halfway decent he should ask what he can do to help. Maybe nothing now but maybe he will be able to help later.

My parents weren't hoarders but they did have ALL their stuff-including my grandparent's stuff. When they died, clearing out the house for sale was .... incredible. My sister can be a pill and a half but I forgive her a lot for bearing the brunt of that one (I did come home for a weekend or two too).

EdithSimcox · 16/03/2016 00:39

Thanks canyouforgiveher. What do you mean about meeting immediate health needs? I have seen the GP with her once, and got a referral to the memory clinic - but from talking to others I think they will just prescribe Aricept (or not) and send her away again. She's non-compliant with pain-killers for the arthritis despite the pain, and won't acknowledge mental health issues at all (depression etc) so there's no chance she take pills of any kind I don't think. Is there anything else I haven't thought of? It seems to me that in fact there's nothing medical that can be done..?

One thing I forgot to mention is that they are hoarders. Not full on Channel 5 documentary style, but they have loads of stuff - including most of their parents' furniture, books etc. - and they are very very attached to things. So it's not so much the packing up, as the mental hurdle of the getting rid of stuff that's the big issue with moving... just to add a further complication.

OP posts:
Canyouforgiveher · 16/03/2016 00:25

This is so hard. My complete sympathies to you.

I think first of all you might want to take a few days off if possible and go up and meet with the local health team and see what they can put in place for the immediate needs.

Also get your brother on board. I live abroad and my sister did most of the heavy lifting for my parents but in fairness to her she involved me in every decision (I deferred to her for most) and in fairness to me I came home more to do doctor's appointments/helped out with money etc.

To me the best solution might be sheltered accommodation now - with the proviso that it would provide accommodation for your mother if her dementia got worse. Don't worry about the packing up etc. You could help with that. there are companies who can help with that. That will work out. The big decision is what is best for your mum and your dad both for the future.

I am in the US so it is a bit different but is there such a thing as a geriatric consultant you could hire/ask for help in arriving at this decision? Someone who knows the help available from NHS etc. someone who can help you weigh your mum's needs with your dad's needs with your own resources?

This is a very hard stage of life. I wish you the best.